Make a Wish (and other organizations) - Wish Trippers UNITE! Volume THREE! :)

[that's nice]

Just wanted to update on Sydney. We still haven't spoken directly with her oncologist, just the oncology nurse and her paediatrician. Both are pushing for a face to face with the oncologist for early next week. We should know today. I was told yesterday by the nurse that the oncologists believe neuroblastoma cells are giving positive results on the test. They've said that once these mature, they become normal cells and the test comes back normal until others activate again. That's all I've been told. What I know though, from my own research and speaking with her paed is that after age 2, neuroblastoma cells will rarely mature completely and become normal cells. That means, its back. The onc nurse said that there's a little girl in the under 2yrs clinic that has fluctuating levels and they even did a full body scan to find out why but nothing so they figure for some children, this just happens. Two concerns there: that child was under 2, Sydney isn't and Sydney hasn't had a scan since 2007 and then it was just abdominal because that's where the tumor was. We're now pushing not only for a meeting but for a full body scan to see if there is a tumor lurking in her. I want the meeting by early next week with a scan within a week afterwards. DH has contacts (he's a pharmaceutical patent lawyer) and is trying to find the best paed oncologist to take her on and work with the hospital here to do the testing/treatment. Our hospital is amazing but things work slowly here and right now, I want things done quickly. Any advice would be great but in any event, please send a little prayer for her.

We are praying for Sydney. If there is a possibility it is back, then things definately need to move faster. I am not sure how things work there, but my son has leukemia and goes to Children's Memorial Hospital in Chicago. I can get his oncologist or the oncologist on call on the phone 24/7 with questions or problems and we have never had to wait or push for a test. If it were me, I would look to go someplace else. If that is not an option, then I would continue to push till they get tired of me. Whats that saying??? "The squeeky wheel gets the grease"

I totally agree with jen.. you have to speak to your doctor ASAP or find a reputable doctor at another children's hospital. We are able to speak with my DD's nurse or even her oncologist during clinic hours or the on call oncologist 24/7. We even have her oncologist's email.

I think you are doing the right thing by pushing for the tests. Keep at them.

We will be praying for your little girl.

 

[yinyanggirls]

Just to update over here...

I called to ask about the "full size" car and an hour or two later our wish granter called back and said it is changed to a 7 passenger vehicle. I don't know what kind, but as long as it has some cargo room for the wheelchair we're happy.

FYI - I called GKTW first but they said to call MAW about rental cars.

 

[maroo]

Just to update over here...

I called to ask about the "full size" car and an hour or two later our wish granter called back and said it is changed to a 7 passenger vehicle. I don't know what kind, but as long as it has some cargo room for the wheelchair we're happy.

FYI - I called GKTW first but they said to call MAW about rental cars.

Awesome! Sounds like it worked out well!

 

[noahsketomom]

Just to update over here...

I called to ask about the "full size" car and an hour or two later our wish granter called back and said it is changed to a 7 passenger vehicle. I don't know what kind, but as long as it has some cargo room for the wheelchair we're happy.

FYI - I called GKTW first but they said to call MAW about rental cars.

YAY! So glad -- no worries!!

I think I told you on your PTR, but if not, BON VOYAGE!!! See you on the other side -- and hopefully our TR will be much further along!! Here's to hoping, at least!!!

SAFE, SAFE Travels!!!!!!

 

[cantwaittoseemickey]

We are praying for Sydney. If there is a possibility it is back, then things definately need to move faster. I am not sure how things work there, but my son has leukemia and goes to Children's Memorial Hospital in Chicago. I can get his oncologist or the oncologist on call on the phone 24/7 with questions or problems and we have never had to wait or push for a test. If it were me, I would look to go someplace else. If that is not an option, then I would continue to push till they get tired of me. Whats that saying??? "The squeeky wheel gets the grease"

We love Childrens Memorial. We travelled there a couple of years ago for urology and they were so good to us. The dr even emailed me to see how things were. Even called me on a Saturday to answer some questions I had.

 

[pnutallergymom]

Ok guys....I thought I would try here!!! Never hurts to ask, right???

Brigitte has been talking about Cinderella and The Castle for a couple of weeks now!! I've been on the phone and online trying to score an ADR for Cinderellas Royal Table to no avail. I am fully prepared to walk-up and ask if we can get in, and also ask at the Wish Lounge and hope that someone might sprinkle some pixie dust.........but I also remember a while back someone saying that there was someone here on the board that could sometimes have some "pull" and get a ressie if all else fails!!!! So, I am asking!!!!

We are looking for either breakfast or lunch (up until about 2pm) on Tuesday April 27th......or for lunch or dinner on May 4th. If anyone could help, I would be very appreciative. We would also be able to do 1900 Park Faire for dinner from 5/1-5/4 as well if that was an option!

Thanks for letting me beg. I figure if I don't ask, someone can't help!!!

 

[noahsketomom]

Hi all,
Just wanted to post here that our TR is up and running! I'm only on day 2, but Court and I have to wade through 1000+ pictures, so we're getting there! We had a fantastic time -- due in large part to all the folks on this board.

THANK YOU for being with us on this journey!!

http://www.disboards.com/showthread.php?t=2444543


Blessings,

 

[alaskanabbott]

Hi all,
Just wanted to post here that our TR is up and running! I'm only on day 2, but Court and I have to wade through 1000+ pictures, so we're getting there! We had a fantastic time -- due in large part to all the folks on this board.

THANK YOU for being with us on this journey!!

http://www.disboards.com/showthread.php?t=2444543


Blessings,

Hi, I can't wait to read it...I'm almost finished with our day 4, it's been slower than I'd hoped, but so much fun re-living everything

 

[youyou588]

If there are some information can share about love, family and self-improvement, thanks!!

 

[youyou588]

I like your pictures, so interesting!!

 

[pacrosby]

Hey guys

I've a serious dilemma on my hands and am hoping someone here knows the ins and outs of dealing with these online photo sites. To summarize.............when we went on our Wish Trip in December a surprise private meet and greet with the MVMCP gingerbread men was arranged. Disney also arranged to have a professional photographer at the meet and greet to take pictures for my family. Maroo was there that night and was kind enough to offer to get the pictures from the Disney reps for me and send them to me later. While I never did receive the actual cd, she was finally able to send copies to my photobucket account a couple of weeks ago. The big problem now is that they were resized and are now low resolution copies. As a result when I've tried to order prints I am told they will likely be of poor quality. Does anyone know how true this is? Have I truly lost the ability to have these pictures developed??? As you can imagine I am heartbroken. I did ask maroo if she still had the cd but apparently she has lost it.

Any advice would be greatly appreciated? I am in the process of trying to get in touch with the Entertainment Manager who was there that night in the hopes that he has access to another copy. I don't know. We're talking almost 6 months ago

 

[TTomlinson]

Pam-Sometimes they come back looking bad, but sometimes they don't. My brother ordered a huge poster one time from an image that I had fast uploaded so wasn't high-res and it looked just fine even though it gave them that warning. Can you maybe order a test run of say 5 pics and see how they look before you invest in all of them? Usually those places turn around orders pretty fast so it shouldn't take long and then you can see if they are going to be ok.

Sorry this happened I'm a freak sometimes when it comes to my digital picture files... but I've also lost plenty in my day!

Hugs...

 

[maroo]

Ok guys....I thought I would try here!!! Never hurts to ask, right???

Brigitte has been talking about Cinderella and The Castle for a couple of weeks now!! I've been on the phone and online trying to score an ADR for Cinderellas Royal Table to no avail. I am fully prepared to walk-up and ask if we can get in, and also ask at the Wish Lounge and hope that someone might sprinkle some pixie dust.........but I also remember a while back someone saying that there was someone here on the board that could sometimes have some "pull" and get a ressie if all else fails!!!! So, I am asking!!!!

We are looking for either breakfast or lunch (up until about 2pm) on Tuesday April 27th......or for lunch or dinner on May 4th. If anyone could help, I would be very appreciative. We would also be able to do 1900 Park Faire for dinner from 5/1-5/4 as well if that was an option!

Thanks for letting me beg. I figure if I don't ask, someone can't help!!!

PM me the ages of everyone and your times and dates - with some back ups.

The DIS shut down the thread I used to have to help with this process.

What I usually do is log on to the Reservations site and try several combinations of times and number in the party. For example: If there are 6 people eating, then I would try a table for 4 and 2...sometimes you can get a table for 4 and not 2. Same if you have an odd number in your party...you can sometimes get a table for 6...but you have to prepay, so you may not want to add party members.

But PM me and I will see if I can work some magic.

Hey guys

I've a serious dilemma on my hands and am hoping someone here knows the ins and outs of dealing with these online photo sites. To summarize.............when we went on our Wish Trip in December a surprise private meet and greet with the MVMCP gingerbread men was arranged. Disney also arranged to have a professional photographer at the meet and greet to take pictures for my family. Maroo was there that night and was kind enough to offer to get the pictures from the Disney reps for me and send them to me later. While I never did receive the actual cd that was prepared for me and passed on to maroo, she was finally able to send copies to my photobucket account a couple of weeks ago. The big problem now is that they were resized and are now low resolution copies. As a result when I've tried to order prints I am told they will likely be of poor quality. Does anyone know how true this is? Have I truly lost the ability to have these pictures developed??? As you can imagine I am heartbroken. I did ask maroo if she still had the cd but apparently she has lost it.

Any advice would be greatly appreciated? I am in the process of trying to get in touch with the Entertainment Manager who was there that night in the hopes that he has access to another copy. I don't know. We're talking almost 6 months ago

I just got your PM. I responded - but I will respond here, too.

I will be glad to upload them all at full resolution. The pictures are not lost - they are all on my computer and backed up. I can even make a CD of them?? Just let me know which ones you want or if you want them all. And if you want me to upload them to your photobucket or just burn you a CD of them.

I don't usually keep memory cards or CD's once I have uploaded pics and backed them up.

That was an awesome night! I would be in tears if we lost those pics.

 

[cantwaittoseemickey]

PM me the ages of everyone and your times and dates - with some back ups.

The DIS shut down the thread I used to have to help with this process.

What I usually do is log on to the Reservations site and try several combinations of times and number in the party. For example: If there are 6 people eating, then I would try a table for 4 and 2...sometimes you can get a table for 4 and not 2. Same if you have an odd number in your party...you can sometimes get a table for 6...but you have to prepay, so you may not want to add party members.

But PM me and I will see if I can work some magic.




I just got your PM. I responded - but I will respond here, too.

I will be glad to upload them all at full resolution. The pictures are not lost - they are all on my computer and backed up. I can even make a CD of them?? Just let me know which ones you want or if you want them all. And if you want me to upload them to your photobucket or just burn you a CD of them.

I don't usually keep memory cards or CD's once I have uploaded pics and backed them up.

That was an awesome night! I would be in tears if we lost those pics.

I hope Maroo is able to work some Magic for you and find reservations!

I am so glad it seems things will work out with your pictures.How awful it would be for you not to be able to get these awsome pics

 

[cantwaittoseemickey]

We couldn't get Chef Mickeys the only thing they have available is at 7:45 and that is just too late for us to eat. I will keep trying but I doubt they will have something this late out.

 

[maroo]

We couldn't get Chef Mickeys the only thing they have available is at 7:45 and that is just too late for us to eat. I will keep trying but I doubt they will have something this late out.

Oh, don't lose hope yet! You still have a few months to shoot for one.

Are you trying online?

The other trick is to see what you can find around 45 days out...everyone that books a "package" with Disney has to pay off their trip 45 days out and some cancel and also cancel their ADR's at that time, so it is possible closer to the 45 day mark that you will be able to find something.

 

[cantwaittoseemickey]

Oh, don't lose hope yet! You still have a few months to shoot for one.

Are you trying online?

The other trick is to see what you can find around 45 days out...everyone that books a "package" with Disney has to pay off their trip 45 days out and some cancel and also cancel their ADR's at that time, so it is possible closer to the 45 day mark that you will be able to find something.

There wasnt anything at all online so I called and the lady and I went through all of the days we are there. She came up with 7:45 for 2 different days but that was all they had.

Oh thank you. I will try that. I would have never thought about that. Im going to mark it in my calender to call.

 

[maroo]

There wasnt anything at all online so I called and the lady and I went through all of the days we are there. She came up with 7:45 for 2 different days but that was all they had.

Oh thank you. I will try that. I would have never thought about that. Im going to mark it in my calender to call.

I called at 90 days out (before they had moved it to 180) for our December trip and the CM told me that they didn't have anything at all for CRT for our party. I asked him to check various party sizes, etc. And there was nothing.

So I hung up the phone and got online and had a reservation in a few mintues. I have no idea why...I thought they worked from the same system?

Then I called in March for our Sept trip and the same thing - except that time I was on Disney property with no access to the internet. Even a few days later (once I got home) there were better reservation spots than what they gave me on the phone...

With those two instances, I have decided to make all of my reservations online from now on. Then if I can't get them online then I will call and see if a CM can work some magic??

Hopefully it helps to try online.

 

[cantwaittoseemickey]

Thank you Maroo. I will definately keep trying. Nothing online yet but maybe one of these times we will have success

Ok now I have a duffel bag question. Do you carry these on or check them? (I might have already asked but can't remember) I'm wondering where the best place to put it on our way back if it is "stuffed"

 

[maroo]

Thank you Maroo. I will definately keep trying. Nothing online yet but maybe one of these times we will have success

Ok now I have a duffel bag question. Do you carry these on or check them? (I might have already asked but can't remember) I'm wondering where the best place to put it on our way back if it is "stuffed"

I think most families are given a duffle bag at some point during their stay - but I would not check that one...mainly because it is special and I would not want it to be torn up by the airline.

If you have a strong duffle bag - like an Army type bag?? - then I would check it, otherwise it will need to be pretty small and you could carry it on.

I am not sure if that answered your question or not.

If I was headed to GKTW on a Wish Trip in the near future, I would probably pack a few big bags and not really fill them up - just leave quite a bit of room to expand. Or maybe even pack a suitcase within a suitcase for the trip down that could be 2 suitcases on the return trip. You really will end up with a lot of stuff.