Glynis - I hate to jinx it but the swelling is down a little and the pain is minimal! Of course it's early in the day, we shall see, bbl.......
If anyone is interested I will post the link so you all can see my little nest...It needs some more work but I will miss it...
May baby is 7 months old today! I can't believe it!
Katie has a "Night of Excellence" at church that parents are invited to, so it will have to be something quick and easy. I'm thinking maybe a tuna pizza.
Timothy is doing pretty well, although he still wakes up at least once a night and has to figure out how to get himself to sleep again. The last few nights have been better, as he's only cried for about half an hour instead of the hour and a half it has been.
Nothing new here. No results from labs yet. She is having a little less pain, looks better, is eating, but still having diarrhea. She is very cranky.
Tomorrow I'm going through my Grandma & Great Grandma's trunks so there will be plenty of dust & tears.
I really have to be in a mood too. For the stuff Nancy is doing, I really have to be in the mood to write a check so someone else can do it.
Well the news was not great last night. I told you that Buddy has Atypical Retinosa Pigmentosa and it is atypical because the pigment is not spreading. It is the same as it was two years ago but the Dr said that he is losing his side vision. She told us that she has seen this happen but that she really does not know why the pigment is stable. The way Buddy's RP presents is pretty rare so they don't really know why the side vision is affected without the pigment spreading. Anyway, she said he now needs the massive dose of Vitamin A so I will have his prescription filled today. It is all that can be done to slow this down. He still meets the standard for his license, thank God! He told her that he has not noticed any issues when he drives but she wanted him to be aware. He was stunned.
Dinner will be out tonight. I am sick of working my butt off only to have to cook dinner and have another mess. We signed a listing agreement and they are coming to take more pics tomorrow. If anyone is interested I will post the link so you all can see my little nest...It needs some more work but I will miss it...
Glynis - I hate to jinx it but the swelling is down a little and the pain is minimal! Of course it's early in the day, we shall see, bbl.......
Going to my parents for lunch in the rain.
Nancy- My father in law can only see straight in front of him with one eye and he seems to be doing well. If he looks to the sides he sees double. I'm sure Buddy will adjust as his vision changes and he might not even notice. Macular degeneration runs very strong in my family and it's scary to think I might only have thirty more good years of seeing. It just makes me enjoy everyday sights more.
Well the news was not great last night. I told you that Buddy has Atypical Retinosa Pigmentosa and it is atypical because the pigment is not spreading. It is the same as it was two years ago but the Dr said that he is losing his side vision. She told us that she has seen this happen but that she really does not know why the pigment is stable. The way Buddy's RP presents is pretty rare so they don't really know why the side vision is affected without the pigment spreading. Anyway, she said he now needs the massive dose of Vitamin A so I will have his prescription filled today. It is all that can be done to slow this down. He still meets the standard for his license, thank God! He told her that he has not noticed any issues when he drives but she wanted him to be aware. He was stunned.
Glynis - I hate to jinx it but the swelling is down a little and the pain is minimal! Of course it's early in the day, we shall see, bbl.......
Going to my parents for lunch in the rain.
Aimee I don't know about soy maybe someone else can chime in. I can't have soy. I have to avoid plant estrogens. Can you not have milk even when cooked? I can tolerate cooked milk just not a glass of milk. And for some reason chocolate milk (not that your going to use it in soup) I can have in small doses. The Dr said something in the chocolate breaks down the lactose. Who knew chocolate was so good
Well the news was not great last night. I told you that Buddy has Atypical Retinosa Pigmentosa and it is atypical because the pigment is not spreading. It is the same as it was two years ago but the Dr said that he is losing his side vision. She told us that she has seen this happen but that she really does not know why the pigment is stable. The way Buddy's RP presents is pretty rare so they don't really know why the side vision is affected without the pigment spreading. Anyway, she said he now needs the massive dose of Vitamin A so I will have his prescription filled today. It is all that can be done to slow this down. He still meets the standard for his license, thank God! He told her that he has not noticed any issues when he drives but she wanted him to be aware. He was stunned.
Well, they have found the culprit that's been making our girl so sick. It is c-diff bacteria. It was brought on by all the antibiotics she was on after surgery. It's strange that to get rid of it, they have to give more antibiotics plus probiotics to build up the good bacteria. We don't know when she'll be released yet. The surgeon (who is not actually her dr for this) is the one that came tell Chris last night. The internist didn't bother to come by to tell her! We are really worried about the amount of school she's missing. Chris will have to talk to the Principal about it. We're hoping as long as her grades stay up that they will promote her at the end of the year.
Latest update: The doctors will have a meeting to discuss how long they will keep her in the hospital. One dr feels this is too serious to let her go home, another thinks Chris can handle it.
I am making a recipe from this month's cooking light magazine tonight...spicy singapore-style noodles with shrimp, and some baby bok choy on the side.
Well I'm officially ready to go back to work.
Good news! Her white blood cell count is 7!!! Still discusses if they are going to let her out. Also checking CDC regulations on return to school.
Tonight is date night - I have to tell you something funny that happened this morning. Doug & I have been invited out to dinner tomorrow before the BIG Nebraska/Missouri game. So I got up early this morning and got the crock pot started with beef for Beef & Dumplings for dinner tonight. Doug asked me what I was doing and I told him getting Dinner ready for tonight. He "flipped" out. "WHAT ABOUT DATE NIGHT?" I tried to explain to him that we were eating out tomorrow night so we can eat at home tonight. Well, one look at his face and I changed plans real quick - WE ARE GOING OUT FOR DATE NIGHT tonight. And you had better believe I will NEVER mess with it again. Oh my!!
How are you holding up?