Well, I guess this is the start of our Pre-trip report.
I still feel like this might be a little too early, but my planning is at a semi-stand still and Disney World is all we can think and talk about so this seems like a good way to "vent".
So here goes.
Cast of characters:
DD: Ali (age - almost 4) our wish child. Ali was always a fussy baby but I didn't really think much of it until she was 5 months old and started having a type of seizure called infantile spasms. We took her to Children's Hospital in Pittsburgh. I remember being in the emergency room talking to DH about what we were going to get to eat "on the way home" because it never dawned on either of us that this wasn't just something they could fix in the ER. Needless to say, we were admitted. Ali was taken to the Neurology floor while they did several tests. A few days late two doctors came in and told us to sit down because the news "was going to be rough". I thought for sure they were going to tell me that my baby girl wouldn't even make it to her first birthday. The dx was Tuberous Sclerosis. As they were talking about the variety of problems Ali could have over the course of her life, they finally told me it wasn't fatal. I wanted to laugh, because as long as she wasnt' going to die, I didn't think it was all that "rough". Anything else I can handle. I couldn't handle losing her.
Over the past few years, Ali has had good times and bad. She went months without any seizures at all, then started having heavy seizure activity which medication wasn't fixing. Finally, we found the right combo of medications and she has been seizure free for 7 months. She's developing in leaps and bounds and has amazed all of us.
DS: Wil (age 6 1/2) My little man is a stellar big brother. He loves everyone and only wants to make a friend every where he goes. He's super smart and funny. He takes excellent care of his sister and always makes sure she is included. He loves Toy Story, Star Wars and Spongebob.
DH: Vaughn ( age 33) he's a trainer for the Picture People and travels alot. When DH and I were married, we went to WDW for our honeymoon. DH told anyone who would listen that he was only going to make me happy. He used to complain all the time that he couldn't wear any of my t-shirts or sweatshirts because they were all Mickey or Disney. We hadn't even been in Disney World for one whole day when DH bought a shirt with a picture of Tigger on it and wore it throughout our vacation. Even he was amazed at the magic Disney can work.
Me: Misty (age 33) I work 24/7 as a mom, but also 4-6 hours a week at Janie and Jack, a kids clothing store. I used to work for our local Disney Store, back when it was still owned by the Disney Company and I am a total Disney fanatic to say the least.
Also included in this trip on their own dime are:
DA (my sister) Casey (aka KK age 32): KK is a high school science teacher in Pittsburgh and assists in spoiling my children. She's a world traveler but hasn't been to THE World since 1993. She is staying at Port Orleans Riverside with...
DM (my mom) Julie (aka Ta - age can't be diclosed onaccounta...on account of if I disclose it she'll beat me)
Supreme spoiler of my children. Also hasn't been to the World since 1993.
My kids are very close to my family and most special events are done with them as well as some of my mom's sisters and my cousins. It takes a village.
That's us in a nutshell.
To be continued...
I still feel like this might be a little too early, but my planning is at a semi-stand still and Disney World is all we can think and talk about so this seems like a good way to "vent".
So here goes.
Cast of characters:
DD: Ali (age - almost 4) our wish child. Ali was always a fussy baby but I didn't really think much of it until she was 5 months old and started having a type of seizure called infantile spasms. We took her to Children's Hospital in Pittsburgh. I remember being in the emergency room talking to DH about what we were going to get to eat "on the way home" because it never dawned on either of us that this wasn't just something they could fix in the ER. Needless to say, we were admitted. Ali was taken to the Neurology floor while they did several tests. A few days late two doctors came in and told us to sit down because the news "was going to be rough". I thought for sure they were going to tell me that my baby girl wouldn't even make it to her first birthday. The dx was Tuberous Sclerosis. As they were talking about the variety of problems Ali could have over the course of her life, they finally told me it wasn't fatal. I wanted to laugh, because as long as she wasnt' going to die, I didn't think it was all that "rough". Anything else I can handle. I couldn't handle losing her.
Over the past few years, Ali has had good times and bad. She went months without any seizures at all, then started having heavy seizure activity which medication wasn't fixing. Finally, we found the right combo of medications and she has been seizure free for 7 months. She's developing in leaps and bounds and has amazed all of us.
DS: Wil (age 6 1/2) My little man is a stellar big brother. He loves everyone and only wants to make a friend every where he goes. He's super smart and funny. He takes excellent care of his sister and always makes sure she is included. He loves Toy Story, Star Wars and Spongebob.
DH: Vaughn ( age 33) he's a trainer for the Picture People and travels alot. When DH and I were married, we went to WDW for our honeymoon. DH told anyone who would listen that he was only going to make me happy. He used to complain all the time that he couldn't wear any of my t-shirts or sweatshirts because they were all Mickey or Disney. We hadn't even been in Disney World for one whole day when DH bought a shirt with a picture of Tigger on it and wore it throughout our vacation. Even he was amazed at the magic Disney can work.
Me: Misty (age 33) I work 24/7 as a mom, but also 4-6 hours a week at Janie and Jack, a kids clothing store. I used to work for our local Disney Store, back when it was still owned by the Disney Company and I am a total Disney fanatic to say the least.
Also included in this trip on their own dime are:
DA (my sister) Casey (aka KK age 32): KK is a high school science teacher in Pittsburgh and assists in spoiling my children. She's a world traveler but hasn't been to THE World since 1993. She is staying at Port Orleans Riverside with...
DM (my mom) Julie (aka Ta - age can't be diclosed onaccounta...on account of if I disclose it she'll beat me)
Supreme spoiler of my children. Also hasn't been to the World since 1993.
My kids are very close to my family and most special events are done with them as well as some of my mom's sisters and my cousins. It takes a village.
That's us in a nutshell.
To be continued...