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jmerchlinsky
01-30-2013, 04:41 PM
Hello everyone, not sure if anyone remembers but we posted about our youngest son's MAW trip last October, and now it is time to post about the experience with his older brother.

Cameron is 4 and was diagnosed with NF1 when he was about 18 months old, he was not thriving like he should and he had various learning and physical delays, our youngest son (our other wish kiddo) has the same disease. They got the disease from the their mother (it is genetic), her father and her grandfather had it, it is more prevalent in males, we have two older girls are as healthy as horses. :)

We weren't sure if Cameron would qualify with his disease and most times he would not have but Cameron has white spots on his brain, that are slowly developing as tumors. We weren't even sure about asking because of the hospitality everyone has shown us with John. But Cameron's doctor suggested it and then we get a call from MAW, asking if our t-shirt sizes had changed. And that they would be sending a volunteer, our volunteer was the same one we had for John's trip.

Cameron has been through alot and is still going through alot, he even donated marrow to John for John's BMT.

Our volunteer came out about a month ago, and Cameron told him that he wanted to go back to the bunny house. Cameron was so enthralled with GKTW that he wants to go back.

We filled out all of our paperwork and now we are waiting to hear back for our dates.

We will keep you updated as we progress

Thank You for following us as we begin another journey:goodvibes

2012bella13
01-30-2013, 05:41 PM
GKTW is a very special place, with Angels all around you.
We were there in 2011 for our DD wish trip, she refers to it as Disney World,lol.
She has Evans Snydrome, she is stable right now & we are planning on a return trip for her birthday. We will be visiting the Village & showing her Aunt her star.
I hope all goes well for your sons trip, God Bless!

angel's momma
01-30-2013, 11:28 PM
So sorry your family has been through so much. :hug: So glad that Cameron will be getting his wish to go back to the bunny house. :) Hope you get dates soon.

Lilfoot93
01-31-2013, 12:18 AM
Glad that Cameron is getting his wish too! I hope you get dates soon!

Jackie

JWCJ
01-31-2013, 04:54 PM
Wow, I'm sorry that your family has had to go through so much. I'm glad to hear that Cameron is getting his wish.

angel's momma
02-14-2013, 12:43 AM
http://i45.tinypic.com/ilc1sw.jpg

jmerchlinsky
02-22-2013, 12:29 PM
Cameron's doctor signed the form that he is stable enough for his trip, and our wish granter asked us for our dates, so we are just waiting to hear back from her on our dates.

Cameron saw the neurologist and most of what we believed was occurring is happening with the spots/tumors, he also might have ADHD and he has a lazy eye as well, so he is going through a lot. But he is a trooper and he is in good spirits.

Thats our update for now, will keep updating as we know more.

angel's momma
02-22-2013, 01:46 PM
Sorry Cameron's going through a lot :hug:

Hope you get dates soon.

jmerchlinsky
03-05-2013, 03:06 PM
Hello Everyone, Just wanted to update everyone who is watching, Cameron's wish granter spoke to us about moving up the date to June, which is exciting right? Well, we are just waiting for the doctor to resign the form because it is warmer and they have to make sure Cameron can handle to heat. SO now we are either going in September or June, :cool1:

Also we just purchased a bunch of Disney pins to trade while we are there, we wanted to trade last time we were there but didn't know much about it, so when we found out that we were going back, we decided to do research, and while we are still not a 100% sure :confused3 we are going to try it anyway.

Thats the update for now, will update again soon,

Thanks everyone.......:woohoo:

angel's momma
03-06-2013, 12:41 AM
Yay that you may be going in June :)

Pin trading is so much fun. ::yes:: Be sure to watch for the CMs that are wearing green lanyards/pin squares, because they can only trade with kids 12 & under, and often have great finds. :)

jmerchlinsky
03-27-2013, 10:10 AM
Hey everyone, just a great update, We finally got our dates, :banana: we are flying out on the 25th of May and Coming Back the 31st of May. They had to wait to get clearance for his brother since he is still being treated for his BMT.

We will be there for Star Wars Weekends, and Cameron Loves Star Wars, it wasn't a planned experience but we will be enjoying it none the less, anyone else go on SWW, we have never been, and we were just wondering what it is all about?

Well I will update more later, just wanted to get this one exciting post in!!! :cool1:

angel's momma
03-29-2013, 02:28 AM
Yay for dates :cheer2: Glad it's during SWW. Trevor's wish was for SWW, have you seen his thread? There's quite a bit of SWW discussion on it. :)

angel's momma
03-30-2013, 03:58 AM
http://i48.tinypic.com/2rwqoau.gif

Lilfoot93
04-01-2013, 01:23 PM
Yay for dates!!! We get there a couple days after you. Trev's wish is Star Wars Weekend so I have been learning all about it!! This will be our first time going too. You can check out my PTR for some Star Wars info. Also, this link here will give you info: http://www.disboards.com/showthread.php?t=2955827&page=67&highlight=star+wars+weekend

Jackie