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999ghostslover
06-20-2011, 02:57 PM
A couple of months ago the podcast put out a request for questions/topics on facebook and I had asked about what different facilities and capabilities did the clinics and hospitals around Disney provide. Unfortunately, my topic wasn't chosen. (No big deal lots and lots of suggestions were provided by listeners and the odds were against me). But little did I know how valuable that information would become the first week of June...

Our June trip was supposed to be so special. Well over a year prior I started my ticker and began my PTR and planning. We were going to celebrate A's kindergarten graduation, B's 3rd birthday and C's first trip. It would mark exactly two years since our last trip and we were going to have a blast. Our first park day (MK of course) was magical. My kids had Pirate's League makeovers for 9 am. The cast members let us in before rope drop, no less that 20 cast members wished my son a Happy Birthday before we even got to Adventureland, we got beautiful Photopass pictures made on an empty Main Street. It was great. With help from my parents we tackled 14 attractions and had a great meal at Liberty Tree Tavern. We crashed in our hotel rooms at Coronado ready for an equally great Animal Kingdom day with an early breakfast at Tusker House to start things off right. But at 2:30 in the a.m. my son began vomiting. Mousekeeping was great and brought all new bedding, tons of towels and were very helpful. He slept the rest of the night okay getting up to vomit a small amount twice more.

We did what you do on vacation.
We rationalized.
It was the heat. It was the junk food. It was the rides.
Maybe it is a small stomach bug.
He'll be fine when he wakes up.

We decided to go to AK for breakfast (this was the day I had 7 matching shirts made for) and my DH or I would return to the hotel with him to rest as he gets over what will surely be a few hour minor hiccup in my perfectly planned trip. At Tusker House he got worse. We took turns with him in the bathroom. There, the number 2s started. It was awful. He was also getting really lethargic and puny. He hadn't eaten or drunk anything since dinner the night before. So we sent my parents and DD6 off to do AK stuff and we headed out with our two DSs. As we were leaving I decided to stop by first aid to see what they thought. After many many trips to the parks this was our first experience here and they are so helpful. It was cool and quiet. The nurse was dressing someone’s badly blistered foot but excused herself to come and greet us. She agreed that he probably needed to be seen by a doctor and on the chance he would need an IV he should go to a real emergency room as CentraCare cannot handle that. She provided us a sheet of paper with great directions to the two closest hospitals as well as the Pediatric Hospital in downtown Orlando. She said that the two closest hospitals, affiliated with Florida Hospital, were close and saw kids all of the time. So, even though I am an RN in a great women's and children's hospital, I decided to go with the close by one. I knew my DH would be at the hotel with our 20 month old. I knew my parents were in a theme park with a 6 year old in 96 degree weather. I needed to be close. But boy did I pick wrong.

We drove back to CSR to grab a few things and then my DH dropped me off at the entrance to Florida Hospital in Celebration, FL. What a beautiful building! It looks like a fine hotel. And that is where its charm ends. Let the nurses in matching BLACK scrubs be a warning. Do not bring your kids here. After a short wait we were brought to a private room right across from the nurses station. The nurses seemed so grossed out that my son's clothes had vomit on them. She had the nerve to say "we always bring a change of clothes to the theme parks for our little ones" Umm so do we, and we used them up before our jungle juice got to the table! He had vomited 2 seconds before and I had changed his clothes 3 times that morning. In our private room we waited for an hour. Then a nurse came in and asked a few questions. Then another 30 minutes a physician's assistant came in and ordered an IV and zofran and bloodwork. They also decided to straight catheterize him in case it was a UTI. The nurses who came in to help basically yelled at my 3 year old to get him to sit still, talked over us the whole time about a coworker and then left. The catheter technique was so so bad it was scary. Like shut down a hospital scary. This woman had no clue that this is a sterile procedure! During all of this I had changed probably 15 diapers. My son's diarrhea was so out of control. It took me asking four times to get a pack of diapers (I ONLY brought 15. silly me.) and I never got any diaper cream despite asking many times. His tooshy was bleeding. It was awful. The PA came back after awhile and said bloodwork was good but that he had some bacteria in his urine. Well, let me tell you if you did a straight cath like this nurse and didn't get bacteria in the sample it would be a miracle. So now they want to hang IV antibiotics. Fine. All the while Brady is still sleeping, he barely wakes up for 30 seconds, will not drink juice or water or eat anything.

After the antibiotics run (30 minutes) no one comes to check on us or anything. We have no idea how long we will be there. If the machine starts to beep a different nurse comes in and says she doesn't know to any of our questions. At some point after many hours I ask if someone can sit with my son so I can go down the hall to use the bathroom. They literally say that they do not have time to babysit. So I ran down the hall to go to the bathroom. I haven't eaten since dinner the night before (maybe I had a biscuit at Tusker House; I remember filling a plate but not being able to eat because Brady was sick again) and I am very hungry. The nurse knew this but no tray or sandwich or anything was offered. Now we are getting to be mid afternoon. We have an ADR at 1900 Park Fair, the only princessy thing we have planned all week for my DD, at 5pm. I know that the nurses cannot control my care but they can give me an estimate of how long we will be here. Can they ask the PA? I told them that this is our special trip, the only one we have ever done with my parents, and I would like to go to the dinner with my DD and my parents if possible. My DH can stay in the hotel with the boys if necessary. If not then he will come and sit here with B and I will take A and C to 1900PF. They just snickered. They were not going to be put out in the least. It was very apparent.

So as late as possible I had my DH drive back to the hospital and I took our youngest to the Grand Floridian to meet up with DD and my parents. We had a nice dinner. I cried a lot. It had been a long day. After dinner my dad and I caravanned back to the hospital so DH could go back with him and leave me with the van and Brady who was still in the emergency room. Our night nurse was on. She was also rude and clueless. My DH tells me that someone came in to get our $150 co-pay. “Really?” I ask, “Because someone came in to take that copay hours ago”. I’m still not sure if that has even been resolved. My Dad and DH left and Brady started to writhe in pain. This was the first action I saw out of him all day. He was screaming and in pain. I checked his diaper and let’s just say my nursing instinct alerted me to the fact that this kid had to pee. He was screaming. The nurses couldn’t care less and I am a wreck. Finally I see an actual live bona fide doctor (the first one all day)and beg him to come in. I tell him about the bad catheter and that he needs to pee and what can we do. Surely these ER nurses have a trick to get a kid to pee (I work with newborns and know several). No, they shoot my 3 year old with ativan. ATIVAN! Look it up. It still makes me mad. He almost immediately relaxes and then pees all over the place. He obviously had not peed since the catheter about 10 hours prior and that is with IV fluids running all day. But now he is on ATIVAN which is making him loopy. He is talking to the walls and all over the place. I tell the nurse that he peed, she can see that the floor is wet, the sheets are soaked, his gown is wet and she walks away. Ten minutes. Fifteen minutes. So I run down the hall to the linen cart and get my own linens. Someone asks me what I am doing and I tell them that the nurse saw my son soak his linens and left him to wallow in them. With linens in hand I come back to the room which now has vomit and diarrhea everywhere as well. I ask the nurse to help me. She walks away. I try to have my son sit in a chair while I clean up and he falls and crashes to the floor. I’m still mad at myself that I did not report this as a fall. I told the nurse that he fell and hit his head but she did nothing and I’m sure it did not get written up as a “fall”. So with him in the bed, I change his linens. Thanks nursing school! And get him cleaned up. I ask for more zofran which has been ordered for every 6 hours as needed. He hasn’t had a dose in 10 hours. She doesn’t bring it. He starts vomiting more again. Still no zofran.
At midnight we are released from the ER with instructions to have him drink lots of fluids (he still won’t drink anything) and to eat crackers (he won’t) and to have a nice vacation. We were also sent into the scary ghetto of Orlando (the same Orlando I was trying to avoid by taking him to Celebration) to get his prescriptions filled at the only 24 hour Walgreens pharmacy in town. Scary. He throws up in Walgreens and while none of the workers speak English and I speak very little Spanish they rush to help me clean him up at 1am. There are decent people in the world! We sleep soundly that night. The next morning he isn’t any better. Some of us go to Epcot for a few hours and others stay behind with him at the hotel. He really just sleeps all day long. We change dozens of diapers. They are awful. I really started to think he was dying. At one point I could not wake him up and his head lolled back and I thought the worst. We called our pediatrician back in Alabama. Tell her a few details and she says that it is rotavirus, almost certainly. She could not believe that they did not test him for it. She says that we need to get him to a real pediatric hospital quickly. So at about 10pm I drive into the scary parts of Orlando for a second time to the Arnold Palmer Children’s Hospital. Let me tell you. I pray no child ever has to get sick or injured at Disney World but this place is a heaven on Earth if they do. I actually feel blessed by the amazing care we received. The medical students, the residents, the attending physicians, the nurses, the child life specialists, the aides, housekeepers EVERYONE was incredible. All I did was cry because I could not believe how blessed we were to be cared for like this. Brady spent the night in the pediatric ER and was admitted by the morning. He was released around lunchtime the following day. He is fine now and just had a checkup where he was declared to be in excellent health. All in all we spent 3 days of our 8 day trip in hospitals. Including Brady’s actual third birthday. The nurses and childlife specialists made him a huge birthday banner, gave him presents and got him a cake (which he wouldn’t eat) I also got came down with rota and was forced down to the pediatric ER that second night there. I was very ill. I will spare you the details. Those nurses took amazing care of Brady while he was upstairs on the floor and I was down in the ER. And how amazing is it that they did not make me go to the adult hospital down the street? They were fantastic.
We had two very short park days after that and then cried the whole way home to Alabama. CSR gave us some free passes to use for a later visit. We are very grateful. The biggest blessing is that the baby and our 6 year old did not come down with the virus. I cannot even imagine what we would have done. And considering the five of us were in a hotel room together it is really a miracle that only B and I got sick .
Thank you for reading. I will post later with a list of lessons learned from this whole experience. Hopefully it will help others.

Pastamom
06-20-2011, 03:27 PM
:grouphug:

What a nightmare for you and your family!! I'm so sorry you had to go through that. I'm glad your little guy is better.

Diegosmom
06-20-2011, 03:37 PM
thanks for that info...if DS were to get sick I would probably pick the closer hospital...but now if it does happen (hopefully it wont) I will take the extra drive to the Childrens...

wishspirit
06-20-2011, 03:43 PM
Oh bless his cotton socks! I am so sorry you had to deal with that, especially on vacation! I really hope that hospital gets a kick up the backside. It's also nice to know that there are some lovely places in the world too.

Is there anyone you could contact about the bad standard of care you got in hospital? I don't know the American system, but if that happened in the UK there are organisations you go to report such incidences so they aren't repeated. I would hope no other child has to go through that.

WorldWacky
06-20-2011, 06:04 PM
Thank you for the info! What a nightmare. Did you let hospital management know about your experience? They ought to be ashamed.

pjennings
06-20-2011, 07:22 PM
Oh My Goodness. I hate this happened to you (or would happen to anyone else)!!! Glad to hear your little make is doing better.

Monkeyfish
06-20-2011, 07:52 PM
First, praise God that your son is well and healthy now, and that you are as well! The (lack of) care he received at Florida Hospital borders on negligence and that should absolutely be reported through your insurance carrier. I'm so sorry you both had to endure that. Imagine if you weren't an RN and weren't bold enough to advocate for him!

I'm glad to know about Arnold Palmer Children's and will file that piece of information away in the event we ever need it. Thank you for taking the time to share your ordeal with us.

I hope you're able to schedule another trip back and truly enjoy it!

wigdoutdismom
06-20-2011, 08:32 PM
Oh my goodness Erin, what an ordeal...

Since I was following you on FB I knew of some of this but certainly not to this extent!
Thank you so much for writing this, we will be traveling with children over Christmas break and I feel so much better for knowing about the staff at Arnold Palmer.

I hope you get the chance to experience Disney with your family the way it was meant to be and your next trip is all you could hope for!:hug:

Fantasyland Mom
06-20-2011, 09:16 PM
Erin, My heart hurt for you each time you posted updates on FB, and I didn't even know the half of it! I am so happy he's feeling better now (and you, too!) and kept you in my prayers from that first update. Thanks for all this information; I'm hoping never to need it, but I will now feel better-informed about a hospital choice if I have to make one.

*NikkiBell*
06-20-2011, 09:28 PM
I am so, so sorry that this happened to you and your family. I am glad things worked out in the long run. Hugs to you all.

disneydreamgirl
06-20-2011, 09:35 PM
Thank goodness your little one is okay! Good Lord, what a shameful state of affairs at that hospital. I hope your next trip is completely without incident - you deserve it!

pal-mickey
06-20-2011, 09:46 PM
Wow, what a nightmare! I'm glad everything worked out in the end and that you and your ds are feeling better. Thanks for posting the info. If it was me, I probably would have gone to the closest hospital also. Now I know to avoid that hospital

999ghostslover
06-21-2011, 07:33 AM
:grouphug:

What a nightmare for you and your family!! I'm so sorry you had to go through that. I'm glad your little guy is better.
Thank you. He really is. He loves to tell EVERYONE that he puked in Disney World.
thanks for that info...if DS were to get sick I would probably pick the closer hospital...but now if it does happen (hopefully it wont) I will take the extra drive to the Childrens...
Yes, it is a lesson learned for sure. It really wasn't a bad drive either. Right off I-4. I was able to get there by myself late at night. And they have free 24 hour a day valet parking so there were no issues with finding parking.

Oh bless his cotton socks! I am so sorry you had to deal with that, especially on vacation! I really hope that hospital gets a kick up the backside. It's also nice to know that there are some lovely places in the world too.

Is there anyone you could contact about the bad standard of care you got in hospital? I don't know the American system, but if that happened in the UK there are organisations you go to report such incidences so they aren't repeated. I would hope no other child has to go through that. Yes, I have written a letter and I am waiting to send it. I wrote it yesterday while I was writing this. I want to cool off a little and reread it today before I send it. And "bless your cotton socks" is now my new favorite saying!

Thank you for the info! What a nightmare. Did you let hospital management know about your experience? They ought to be ashamed. I let the nurse manager at Arnold Palmer know how fabulous that hospital was. At Florida Hospital, I just so wanted to be out of there. And I was so scared that they would take it out on me. I have taken care of some know-it-all nurses before and they can be a pain in the butt. I didn't want anyone to take anything out on my son. I was so worried, scared and at that point frustrated about my vacation that I just wanted to leave. But I have written a letter and will be sending it.

Oh My Goodness. I hate this happened to you (or would happen to anyone else)!!! Glad to hear your little make is doing better. Thank you. Yes, it was so unfun but we still managed to have a few good memories of our trip. And DS wants to go back so bad. He loved it. And that is what is most important.

First, praise God that your son is well and healthy now, and that you are as well! The (lack of) care he received at Florida Hospital borders on negligence and that should absolutely be reported through your insurance carrier. I'm so sorry you both had to endure that. Imagine if you weren't an RN and weren't bold enough to advocate for him!

I'm glad to know about Arnold Palmer Children's and will file that piece of information away in the event we ever need it. Thank you for taking the time to share your ordeal with us.

I hope you're able to schedule another trip back and truly enjoy it!We will be back for sure. I hope you never need the hospital too but it is lovely.

Oh my goodness Erin, what an ordeal...

Since I was following you on FB I knew of some of this but certainly not to this extent!
Thank you so much for writing this, we will be traveling with children over Christmas break and I feel so much better for knowing about the staff at Arnold Palmer.

I hope you get the chance to experience Disney with your family the way it was meant to be and your next trip is all you could hope for!:hug:
Me too! One of the hardest parts of the week was explaining to Abby what was going on. She was rightfully disappointing that many of the things we talked about doing for months did not happen. But there is always next time. And with the free passes we are trying to scrape some funds to go in the early spring/late winter. We'll see! If not there is always our 2012 cruise look forward to.

MeMom
06-21-2011, 12:25 PM
It's good to know about Arnold Palmer Hospital.

I was following you off and on on Facebook. I felt so sorry for Brady and for all of you. It's good that you had your family there to support you through all of it. I really hope you guys have a super magical trip when you get to go back.

wishspirit
06-21-2011, 05:04 PM
Yes, I have written a letter and I am waiting to send it. I wrote it yesterday while I was writing this. I want to cool off a little and reread it today before I send it. And "bless your cotton socks" is now my new favorite saying!


That's a good idea. I hope you get a response! I'm glad you like the saying. :goodvibes

hockeymomNS
06-21-2011, 05:57 PM
Oh my gosh. Thank heavens you are both fine now. I agree with everyone, write letters, letters and more letters to whoever you can.

I will make sure that I keep this tucked in my mind for our future vacations and whenever I hear of anyone going.

LilGMom
06-22-2011, 12:06 PM
Good grief!!!! What an incredibly scary and frustrating experience at Florida Hospital and I hope that your letter gets into the hands of people that might actually do something to fix their issues.

Hate that this happened to you and your family but thank you for sharing the experience so others can learn from it. Note to self... NEVER ever ever use Florida Hospital!

Miss Monorail 1971
06-22-2011, 12:34 PM
I read your post to my DH. He works in HR at our local heath system and is also an RN as well as teaches in the nursing program at a local college. He just kepst saying ohh thats bad over and over. We are seriously discussing moving to the Orlando area and he was curious about which is a good health system to work. I guess we know which one to stay away from.

Glad everyone is ok and that you finally found excellent care.

MaryKatesMom
06-23-2011, 10:25 AM
Let us know how they respond to your letter.

How scary for you! Weren't any of the people parents themselves?!!

I'm glad your son is better and when he takes his own kids there I'm sure he'll proudly show off ever place he puked. The memories we are left with!!!

999ghostslover
08-24-2011, 12:11 PM
Let us know how they respond to your letter.

How scary for you! Weren't any of the people parents themselves?!!

I'm glad your son is better and when he takes his own kids there I'm sure he'll proudly show off ever place he puked. The memories we are left with!!! He will .he walked into preschool last week-first day- and told the teacher "Ipuked at Disney World" He is a riot!

I read your post to my DH. He works in HR at our local heath system and is also an RN as well as teaches in the nursing program at a local college. He just kepst saying ohh thats bad over and over. We are seriously discussing moving to the Orlando area and he was curious about which is a good health system to work. I guess we know which one to stay away from.

Glad everyone is ok and that you finally found excellent care. Yes, I would stay away from them for sure. Just found out that a nurse I work with was in WDW two years ago and got kidney stones and was treated horribly. It has taken two revisionary surgeries to fix what the doctor at FL Hospital in Celebration did to her. Gah!

Good grief!!!! What an incredibly scary and frustrating experience at Florida Hospital and I hope that your letter gets into the hands of people that might actually do something to fix their issues.

Hate that this happened to you and your family but thank you for sharing the experience so others can learn from it. Note to self... NEVER ever ever use Florida Hospital! Yes, good note to self. I already had someone from the Dis facebook me that my story helped them decide to use Arnold Palmer when their son was sick and they are so glad they did.

Oh my gosh. Thank heavens you are both fine now. I agree with everyone, write letters, letters and more letters to whoever you can.

I will make sure that I keep this tucked in my mind for our future vacations and whenever I hear of anyone going.
I spent a long time on the phone with someone from nursing administration about FL Hospital as a result of my letter. I also got a call from someone there who was really interested in the PA's role in all of it. I got the impression she would be reprimanded. I recieved a carefully worded letter where they only apologzed for customer service related issues. Read:They don't want me to sue for negligence and bad Care. I am not going to sue. The truth is the only thing that suffered was our vacation and nothing more. We are fine and grateful for it. But I will spread the word-as I promised them i would-about how bad their hospital is. Let them try to come after me for libel!

Thanks for your thoughts and prayers. We have a great trip comin up and our cruise in 2012. I can't wait!
Here is the PTR for my Feb trip:
http://www.disboards.com/showthread.php?t=2786392

disney dog lover
08-24-2011, 01:09 PM
Holy Cow! what is just horrible. I am glad every one is ok, but how horrible was that to go thru.
When my DS was 1, we went to WDW for his birthday and he came down with the rotavirus, I called my pediatrician first. She said as long as he was eating and drinking he was ok. He was lucky because he was eating and drinking, but kept vomiting for 8 of the 10 days we were there. needless to say Me my DH and my mom all came down with it and took turns missing parts of our trip, but luckily none of us had to go to the ER.

999ghostslover
09-12-2011, 10:38 PM
Holy Cow! what is just horrible. I am glad every one is ok, but how horrible was that to go thru.
When my DS was 1, we went to WDW for his birthday and he came down with the rotavirus, I called my pediatrician first. She said as long as he was eating and drinking he was ok. He was lucky because he was eating and drinking, but kept vomiting for 8 of the 10 days we were there. needless to say Me my DH and my mom all came down with it and took turns missing parts of our trip, but luckily none of us had to go to the ER.

Oh gosh. You too. That is terrible. Yes, if the fool would have drank or eaten we could have rode it out at the hotel but he was like catatonic. He is very picky anyway. I knew he would only drink juice out of a juice box and the hospital only has juice cups. We tried every sippy cup and even baby bottles. He is so stubborn. I'm glad you didn't have to go to the hospital. Not fun at all.

Royster83
09-13-2011, 03:01 AM
I'm so glad that he's ok :group hug:

I hope this tread turns into a the Underwood Animal Hospital type... you can still Google that and Pete's thread on here is number 1 result. As he said, I think it's further on in the thread (it could possibly have been on the Podcast I forget) "Upset me and I will make you Number one result on Google".

I believe I will take those immortal words "Avoid Florida Hospital in Celebration Like the plague"

Roy