finally have a date . . . updated 19/2 pg4

[buzz for boys]

Well after another nightmare day ending with a 2 and half hour wait at hospital with Cam we finally have a date for his op.
All your lovely cards and gifts will be given to him on 15th March - wish I knew how to feel about it though.

1/2 of me thinks finally a chance to make everything normal and god knows after 7 years he deserves normal but the other 1/2 of me thinks that the bad stomach wrenching feeling I have concerning this operation should be listened to and I should refuse to let him have it.
The play specialist asked if I wanted our other kids to be re prepped for this op and i politely refused - trust me love they have not forgot what you said to them !!

Wish I had a crystal ball that could tell me if Cam was going to be in the 70% that made it out of theatre or not :sad1:

[joolz1910]

At least you're not in limbo with the date any more. None of my children has needed major surgery, (thank god) so I have no idea how you must feel. I can only imagine your anxiety.:hug:

[Jets fan]

Am really glad that you finally have a date. You're bound to be nervous as that's what mothers do, they worry - it's their job - or so my mum tells my sisters and I. We're in our 40s and she still worries about us!

Cam's a real fighter and I'm sure he'll be thinking about the wonderful holiday that you've planned and not the op coming up.

Good luck and lots of hugs to you all.

Tina xx

[Chilly]

Sending you lots of hugs.

[mark&sue]

so sorry you have to endure over a month waiting, but glad you got the date you so badly wanted.

all of us here are thinking of you and your family


susan

[T16GEM]

I was only thinking about Cam today, I'm glad that you have finally got a date for the op, Cam is a fighter and I am sure that he will do well. You know that we are all here for you if you need anything :hug:

[Dimplenose]

1/2 of me thinks finally a chance to make everything normal and god knows after 7 years he deserves normal but the other 1/2 of me thinks that the bad stomach wrenching feeling I have concerning this operation should be listened to and I should refuse to let him have it.



Any time something bad happens someone always says "I felt that something bad was going to happen, I wish I'd listened to my feelings." But they totally forget that they had the same feelings when nothing bad ends up happening. (I think I've phrased that very badly but I hope you know what I mean.)

Sending a big hug :grouphug:for you and lots of pixie dust pixiedust:pixiedust:pixiedust: for Cam

[hildasmuriel]

Thinking of all of you. :grouphug:

[Tinks1984]

Lots of :hug: for you all to get through the next couple of months! Cameron will fight Louise, you know that. Strong little boy!

:wizard: :wizard: :wizard:

[Ware Bears]

Any time something bad happens someone always says "I felt that something bad was going to happen, I wish I'd listened to my feelings." But they totally forget that they had the same feelings when nothing bad ends up happening. (I think I've phrased that very badly but I hope you know what I mean.)


Libby, I know exactly what you mean and you are so right.

Louise, sending hugs for you all :hug: :hug: :hug: and lots of pixiedust: pixiedust: pixiedust:

[Muscateer]

I can't begin to know what you have gone through but maybe a wee bit. My DD had major heart surgery when she was 5. We were told she would need this op when she had her three year assessment but they said they needed to wait until her heart was a bit bigger. For the next 2 years I went through all the emotions of should she get it, maybe if I buried my head in the sand it would all go away. The first date we had had to be put off as she had a really bad cold but the op day finally came and the 5 hours op seemed like 5 years. I went for a walk as couldn't stand being in the hospital any longer. I ended up outside the Disney shop funnily enough and bought half the shop. On the way back I kept thinking will my DD see all this goodies I had just bought her. She did and is now nearly 19.

Keep that vision of you, Cam and the rest of the family all having fun in Disney later on in the year. Sending you all the luck in the world:hug:

[mandymouse]

:hug: Thinking of you all

[natalielongstaff]

thinking of you :hug:

[Pegasus928]

All your Dis friends are always here for you Louise -so come and keep us all up to date with the progress - good or bad - and we will do all we can to help Cam, you and the rest of your family through it all.
I'm sure Cam will love opening all his cards when the time comes and hopefully all the good wishes and pixie dust that everyone has sent will work their magic.

[Snowy-girls]

So glad you got the date through.You're feelings are natural-you know that :hug:.I wish you all well+will be thinking of you :hug:.x.

[jns]

Sending you lots of hugs. :hug::hug::hug::hug::hug::hug:

[fav_is_tink]

Sending you and Cam bestest wishes :grouphug:

:tinker:

[The Fetherstons]

Sending you all:grouphug::grouphug:and:wizard::wizard:

Best wishes Louise and take care:hug:

[buzz for boys]

Any time something bad happens someone always says "I felt that something bad was going to happen, I wish I'd listened to my feelings." But they totally forget that they had the same feelings when nothing bad ends up happening. (I think I've phrased that very badly but I hope you know what I mean.)

Sending a big hug :grouphug:for you and lots of pixie dust pixiedust:pixiedust:pixiedust: for Cam

Hi I know what you mean and in my heart of hearts I know that this operation is his only chance - its not a case of being able to say no anyway so what ever I feel is totally irrevalent anyway.

I can't begin to know what you have gone through but maybe a wee bit. My DD had major heart surgery when she was 5. We were told she would need this op when she had her three year assessment but they said they needed to wait until her heart was a bit bigger. For the next 2 years I went through all the emotions of should she get it, maybe if I buried my head in the sand it would all go away. The first date we had had to be put off as she had a really bad cold but the op day finally came and the 5 hours op seemed like 5 years. I went for a walk as couldn't stand being in the hospital any longer. I ended up outside the Disney shop funnily enough and bought half the shop. On the way back I kept thinking will my DD see all this goodies I had just bought her. She did and is now nearly 19.

Keep that vision of you, Cam and the rest of the family all having fun in Disney later on in the year. Sending you all the luck in the world:hug:

Thanks for Sharing that I know what you mean when Cam had his first ever operation we walked back to the hospital with so much stuff for him it was like christmas !!
As the years have gone by he has took to calling it bravery presents and we have took to calling it guilt money - the bigger the guilt the bigger the pressie he gets !!! :rotfl2:

he is at home with us today because we cant get his eye to stay in and he didnt want to go to school so today he has sat on the internet and has mde a list of all the things he would like for his bravery present and we like all good parents do ordered the lot !!! :lmao: In my defence it is his birthday the week before his operation too so some of it will be for that.

Today we have to make the decision about school and wether its a case of putting in him school with no eye in or let him stay with us - my head says he should be in school my heart says stay with me so i can wrap him in cotton wool :hug:

You guys are amazing so thank you x

[jamjar84]

I don't really know much about your story, but I can't imagine how you must feel.

Thinking of you and sending lots of positive vibes. :hug:

[wils]

Glad you have a date but I can only imagine the worry. Thinking of you :hug:

[SammieG]

it must be such a difficult dilemma for you louise.. any parent can sympathise with you.. but he will be just fine... :) Thinking of you x x x x

[tennisfan]

Pleased you finally have a date for Cam's op:hug:

[buzz for boys]

After a really eventful day yesterday Cam is nowon an emergency list for 24th Feb - basically this is the quickest they can put in him as the consultant is off on his hols as of today and thats the day he returns !!

I dont reallyt know what to think the team were concerned that if left now he has no eye in he will get an infection and then make the operation 10 x harder and they were also worried about the possibilty of a big bleed from his socket scared me half to death :scared1: im so pleased its half term next week so I can have him here with me without feeling guilty about missing school.

Im so disappointed that itsnow happening before his birthday and he broke my heart last night when he said all he wants forhis birthday is to not be in pain. If only I could promise that be would the case but sadly I believe he will be and I cant do anything about it.

[Chilly]

:hug::hug::hug::hug:

[jjk]

:hug::hug::hug: for you xxxxxxxx

[Pinky166]

:hug: :hug: :hug:

[mikki.young]

:hug: for you both. Hope it goes well and that Cam can get his birthday wish.

[mandymouse]

:hug::hug: Big hugs to you all :hug::hug:

[Muscateer]

Thinking of you all:hug:

[T16GEM]

:hug:

[wils]

:hug: Love to you all

[thelittlemermaid83]

:hug: :hug: :hug:

[wideeyes]

:hug::hug::hug:

[mumloveseeyore]

thinking of you :hug::hug::hug:

[Pegasus928]

Hang in there Louise.

There is light at the end of your tunnel and things will now be happening quicker than you thought - which has to be a good thing for Cam. He has lots of birthdays to come, each of which will be extra special for all of you after what you have been through.

[Jets fan]

Poor Cam, when is his birthday Louise?

Love to you all

Tina
xx

[jockey]

:hug:thinking of you all

[The Fetherstons]

:hug::hug:

[catherine]

:hug: Thinking of you all :hug:

[buzz for boys]

Thank you everyone - im never really after a repky I just write it down to vent and whenever I come back on here and see so many replies I always feel so humbled so thank you.
Ive managed to hurt my back this afternoon - so much for keeping busy :rotfl2: So now I have a lot of thinking time - fab timing or what :lmao:

Hang in there Louise.

There is light at the end of your tunnel and things will now be happening quicker than you thought - which has to be a good thing for Cam. He has lots of birthdays to come, each of which will be extra special for all of you after what you have been through.

yeah I know last year he celebrated his birthday with stitch at wdw so he had a fab day last year and I said to wayne tonight if that was his alst birthday we did him proud without knowing it !!
Cam has had his 2nd birthday on chemo so his brithday was already a bitter sweet day and every year theres always a tinge of sadness and an air of gratitude that he reached another birthday so this will not really change that.:confused3
Poor Cam, when is his birthday Louise?

Love to you all

Tina
xx

Tina his birthday is 7th March so he has just under 2 weeks after the op - so he will definatly be at home but cant promise him anymore than that :guilty:

[Tinks1984]

Thoughts with you all Louise, massive hugs to you also :hug: I hope your back gets better soon! :wizard: :wizard:

[strawberry blonde]

Hang on in there Louise. You're doing a great job with all your family. Have a great half-term with the kids. :wizard::hug:pixiedust:

[Kirsteen]

Thinking of you honey :grouphug::grouphug::hug::hug:

[KatieG73]

Just wanted to send you and your family some:hug::hug:

[buzz for boys]

So sorry to bring all this here again just need to say this and then get on with the day.
We recieved the official letter today telling us what time cams op will be and where to go for it. Having a piece of paper in my hand meant I could no longer pretend it wasnt happening.
I then had to ring them up as we have a million and one questions and now im stiffling tears as once again the information i wanted was propbably better not knowing till the day.
His operation is going to be an approximate gut churning 8 hours :sad2: and then he will stay in for at least 1 day probably upto 4 days.
Ive told Cam he needs to stay in for longer than we thought ( we thought 1 night) and Cam has gone into meltdown which so far has lasted 45 mins and I cant say anything to make it better. Im gutted that we will be in for longer as there are so many bad memories associated with that place and I was just about coping with the idea of 1 night more will just be excrutiating - im being a tit i know I am. So 5 days to go . . .

[Chilly]

It might not be nice but you know its the best place for him to be. :hug::hug::hug:

[joolz1910]

:hug: Can't imagine how hard this must be.

[wideeyes]

:hug: :hug:

[Pegasus928]

You have definately done the right thing telling him Louise. We know from experience that you can't 'spring' these things on kids like ours and the more time they have to adapt the better they cope with it.
You know in your heart that Cams needs are best served in hospital, as much as you both may hate it, and I am sure once he starts getting his cards and prezzies and all the other attention that comes with a stay in hospital he will feel like the special little boy that he is.

[Jets fan]

:grouphug: Big hugs Louise. You absolutely did the right thing in telling Cam as it would have been far worse for you, if he got there and had to stay longer. Stay strong for little Cam, if anybody can do it, you can. Will be thinking of you all.

Take care
Tina xx

[jockey]

Sending you :hug::hug:

[jen_uk]

Sending you :hug: :hug: :hug:

[Goofysmate]

:grouphug:

[thelittlemermaid83]

:hug: :hug: :hug:

[scottish mum]

:grouphug::grouphug:

[KatieG73]

:grouphug: Thinking of you all. I can't imagine how you must be feeling just now.

[Ware Bears]

:hug: :hug: :hug:

[jamjar84]

:hug: Thinking of you.

[T16GEM]

:hug:

[Tinks1984]

Thinking of you all Louise and sending my hugs and pixie dust for the coming weeks :hug: :wizard:

[wils]

Hugs, prayers and pixie dust! Hope these help :)

[mikki.young]

:hug:

[Kell-Bell]

:hug::hug::hug::hug:
Sending you all hugs. As Pegasus says the cards and presents he'll be getting will hopefully sweeten the deal. And of course you did the right thing telling Cam, he can try and prepare himself, and he is a very brave little boy, cause he has a very brave mummy.

[wicket2005]

It will be fine Louise, he will be in the 70%. x

[chocolateMinnie]

Found you on this section of disboards Louise. Don't usually visit it. good luckxx Take care of yourself too.

[wideeyes]

good luck,:wizard: hope it all goes well.

[fizz13]

big hugs to you all and to Cam, and I just know with all this support and love of course he will pull through and have the happiest of homecomings. I'm not going to pretend I know how much pain you are in or how anxious you must be, a mothers love knows no bounds and its the worst feeling in the world when the power is taken away from us, but you have done everything you possibly could do and clearly are a wonderful mother.
I send my prayers and pixiedust and will look out for good news:hug: