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View Full Version : twin pregnancy with iugr: prayers needed


lgjjp
07-28-2009, 08:27 AM
I seldom post on this site but I lurk several times a day. My DD is expecting twin girls in october..last week at 26wks 4 days she went in for a routine ultra sound. We were told that baby A is perfect and healthy, but baby B is small and had a problem with blood flow thru her cord. Her head and stomach are in the 3% while her body is in the 10%. We are devastated to say the least. Her first pregnancy was very difficult and we almost lost our DGD1. Doctors are not giving us much hope that baby B will survive. Right now she has a strong heartbeat and still moves, so we are praying she will last another few weeks so that they can deliver both babies without causing any harm to baby A. Please pray for 4 - 6 more weeks for our precious baby B.

MagicMe
07-28-2009, 11:14 AM
:grouphug: My thoughts and prayers are with you, your daughter and your future grandchildren. I pray that everything works out as your hope.

snoopybabe
07-28-2009, 08:23 PM
Said prayer for you, your daughter & future grandchildren. I will continue to keep you all in my prayers. :grouphug:

quasar4legs
07-29-2009, 05:28 AM
I am very sorry to hear that your daughter and whole family are facing such a difficult time. I shall be thinking of you and especially your precious grandchildren.

Big koala cuddles to you all:grouphug:

Trish

luvmarypoppins
07-29-2009, 02:02 PM
:hug: Prayers for your precious dd and grandbabies

lgjjp
07-29-2009, 04:31 PM
Thank you for the prayers, we appreciate them more than you can know. Tomorrow we see the perinatologist, keep your fingers crossed that we get better news than we got at the doctors on monday.
Thank you all so much,
Laurie

Mackey Mouse
07-29-2009, 08:46 PM
As a Nana myself, that got me.. definitely praying for both of them.. Please keep us in the loop... take care all of you..

MineMail
07-29-2009, 09:11 PM
Hope the perinatologist gives you a much better scenario. Hugs and prayers for all of you.

karen l
07-29-2009, 10:21 PM
I'll be saying prayers for your daughter & her babies. I hope the doctors are able to help your family get through these next few months.

lgjjp
07-30-2009, 10:47 AM
Thank you for all your prayers, they must be helping. The news today was very encouraging, While its not a great situation, its not as bad as they made it out to be last week at the hospital. We will have more tests on monday... if they come back the same or hopefully a little better - we wait another week for another round of test. If they come back bad - we deliver mon or tue. that will only be 28 weeks, so not good odds for both babies. But as of today we are feeling optomistic that we will have a good outcome.
Thanks again for listening and praying for us.
Laurie

karen l
07-30-2009, 09:45 PM
Laurie,
I'm so glad there's more encouraging news from the doctor. Continued prayers for your family. I hope the news next week is positive. All the best.

JerseyMamaBear
07-30-2009, 11:18 PM
:hug:

frdeb1999
07-31-2009, 06:54 PM
Hope all turns out well. You'll be in my thoughts and prayers. :hug:

MagicMe
08-03-2009, 03:47 PM
Continuing to keep you and the little ones in my thoughts and prayers.

lgjjp
08-03-2009, 08:37 PM
We had another ultra sound today along with ob appt and perinatologist appt today. There is no change in baby b, no better but thank god she is no worse. we will have scans and appts 2x per week till they arrive. The peri feels that baby b will not last more than 4 weeks and that they will probably be delivered in 2 weeks, 3 at the most. so we will be having babies in the next few weeks. Then we start on the long road in the NICU, but we have been thru that before and know what to expect. Thank you for all the support and prayers, they are very much appreciated.
Thanks, Laurie

KiKi Mouse
08-04-2009, 03:32 PM
Just wanted to say I am thinking of your family. Thank goodness your daughter has such a caring mother :)

magic mouse
08-08-2009, 07:46 PM
:grouphug: My little one had IUGR and was born at 38 weeks at only 4pounds. We both went home 3 days later! Today I have a healthy and happy 7 year old today! Wishing your daughter the best. Not sure if this helps but I had high blood pressure before and during (still have it) the pregnancy. I laid on my left said alot. (I guess it bring more oxgen to the baby and was told that would the baby grow.) I also drank the ensure drinks during my pregnancy as well.

magic mouse
08-08-2009, 07:48 PM
My little one also had a two vessal cord and the doctors did not give us much hope so hang in there! You will be in our prayers!

magicallyDisney001
08-10-2009, 07:09 PM
Praying for your family and precious baby B :grouphug: Hope it all turns out well.

lgjjp
08-10-2009, 10:07 PM
Babies were born today at 29 weeks. Baby b would not have lived much longer.
Willow Gracelynn born at 4:00pm 2 lbs 8 oz. Rowan Evalynn born at 4:01pm 1 lb 3 oz. She is a fighter tho and is doing well. now to wish away the next 8 weeks or so till they are home with us. please continue praying for our little ones.
Thanks,
Laurie

karen l
08-10-2009, 10:11 PM
Laurie, I'll continue to pray for your precious babies & your DD. Wishing your family all the best.

zalansky
08-11-2009, 07:27 PM
Congratulations to you Grandma, keep us posted our prayers are with you all!

lgjjp
08-12-2009, 07:38 AM
Very scary night.. we almost lost Rowan. Her lungs started to fill with blood. She needed cpr and had to be put back on the vent (I think they took her off to soon, she was less than 24hrs old) They called us in and let us all stay with her. After being put on a different kind of vent and getting some blood, she stabilized and we felt comfortable enough to go home. this is going to be a long rough road for us all.
Thanks for listening.
Laurie

disneyismyname
08-12-2009, 07:47 AM
:hug: sending my prayers to your DD and grandchildren.

lgjjp
08-13-2009, 07:31 AM
our precious baby Rowan is now a beautiful little angel. At 8:45pm last night she lost her battle to survive. We are heartbroken and can't imagine life without her. Please pray for her sister Willow. She is stronger then Rowan but has such a long hard road ahead of her. I just pray that God won't take her also. I don't think I can survive another loss. i can't understand why God had to take her away from us. We had her for only about 52 hours and loved her more than words can say. She was so beautiful and she fought a hard battle. It was just too much for her tiny little body to take.
Thank you,
Laurie

zalansky
08-13-2009, 08:40 AM
Oh Laurie, I am so sorry to see this news this morning. My heart breaks for you & your daughter. I was so hopeful after the delivery that things were going to be ok with her. Again, so sorry, many hugs.

Willow will be in my thoughts and prayers. I love her name! Keep us posted.

KiKi Mouse
08-13-2009, 10:21 AM
Laurie,

I too am very very sorry for such a devastating loss. Thankful you had 52 hours with your precious angel.
Were you able to get some pictures done of her with everybody? Sometimes that helps with the grief/healing.

We will be praying for Willow and for your family for having so go through all of this.

luvmarypoppins
08-13-2009, 11:36 AM
:hug: So sorry to hear this news about your precious Rowan. Keeping Willow in prayer. So sorry for your loss, sending prayers and deepest sympathy. May you know Gods peace,comfort and strength in the days ahead. Blessings to your family.

karen l
08-13-2009, 06:24 PM
Please accept my condolences. I'm very sorry for the loss of your precious Rowan. God Bless Rowan, Willow & your family. I'll be praying for your family. :grouphug:

aleask
08-14-2009, 09:17 PM
May God's Love surround you in this grieving and sadness. I can't imagine what you are going through but my thoughts and prayers are with you and your family.

Blessed are those who mourn,
for they will be comforted. Mathew 5:4

For Him,
Adam

lgjjp
08-16-2009, 08:09 AM
Rowens memorial service was yesterday. It was so incredibly hard, it is something I hope no one ever has to go through. The hospital arranged for a photographer to come in and take pictures of Rowan. By the time he got there my husband and I were the only people who were still there with my daughter and sil. He took the most beautiful pictures. He went above and beyond for us with a short slideshow of some of the pictures to play during the visitation hour. He did it free of charge. It is the most heartbreaking thing to watch, but I treasure it more than you can imagine.
Willow is doing a little better, she has gained a few ounces and is breathing easier, they did find a pda in her heart, I dont remember what is stands for but, she is on medication to try to close this vessel. The 1st round did not close it, but they are trying a second round of meds. Please pray that this works and she will not need surgery to close it.
My daughter got to hold Willow yesterday. It was something that she desperately needed to do, especially yesterday. We are very hopeful that Willow will be home with us in 8 -10 weeks.
Thanks again for all you kind words and prayers. It does help to know so many people are praying for us.
Laurie

MagicMe
08-16-2009, 12:03 PM
Laurie - I am so sorry to hear about little Rowan. I'm so glad you had some time with her and that you were able to get some pictures of your precious little angel. :grouphug:

My thoughts and prayers will be for little Willow. Remember, Willow has her own little angel in her corner! :cloud9:

lgjjp
08-18-2009, 09:39 AM
Willow is doing well. She likes to sleep on her belly and her nurse yesterday put her on her back. She wiggled and squirmed until she got herself on her side. She couldn't get completely over on her belly because of all her tubes and wires, but she was happier on her side. She will probably need surgery for her pda. The meds are not closing it. They say it is a routine procedure. We will try 1 last round of meds before they take that step though. She is up to a whopping 2lbs 10.1oz. she is quite the heavyweight, over her birthweight now.
Keep praying for her, hopefully she will be strong enough to come home even earlier than expected.
Thanks, Laurie

safetymom
08-19-2009, 05:49 AM
I am so sorry to hear about Rowan. Willow sounds like a fighter. I will keep you all in my prayers.

Scoot95
08-19-2009, 11:27 AM
I am so sorry to read about Rowan. I cannot even imagine what you and your family are going through now.

I will be praying for Willow.

I can relate to this situation as my Daughter Jackie was born at 28 weeks, 5 days. Scariest time of my life. She had all kinds of blood transfusions and procedures done on her while in the NICU. We were told at the time she was born that she had only an 80% chance of survival and a 50% chance of not having severe learning complications. That was almost 6 years ago, and I know they have made a lot of medical advances since then.

Jackie was in the hospital for 7 weeks and today she is a beautiful 5 year old who is starting kindergarten in 2 weeks with no complications what-so-ever. In fact she is fully reading.

Jackie beat the odds and I know Willow will too. Keep your chin up.

lgjjp
09-10-2009, 05:33 PM
Just a quick update. Willow is 1 month old today and has gained 1 lb over her birthweight. she is now 3.5 lbs. Her pda did close with meds...so NO surgery. She is doing well and now gets 2 bottles a day that she drinks half her feeding and the other half thru the tube into her belly. We can now hold her whenever we want, so that is wonderful. She is only on room air thru her nasil canula. She is now considered a feeder / grower. We are hoping to have her home in 3-4 weeks. Please keep her in your prayers.

Thanks, Laurie

Pirate1+Princess4
09-27-2009, 10:03 AM
I am so sorry for your loss of little Rowan. My oldest is a surviving twin (he just had his 9th birthday). Our angel was on earth for 7 months. He spent 5 months in the hospital and 2 wonderful months at home with us.

Wonderful news about Willow. Would love to hear an update.

I have some resources for families who have lost multiples. Please PM me and I can put you in touch. It's a horrible place to be in....rejoicing in the life of one while mourning the loss of another. There are others who understand and can provide your family with support.

Blessing to you and prayers to the whole family for healing and peace.

frdeb1999
09-27-2009, 08:02 PM
So sorry on the loss of your daughter Rowan. A very hard thing I can relate to. But wonderful news on Willow. Your family will be in my continued thoughts and prayers. :hug:

lgjjp
10-03-2009, 08:42 PM
Willow is over 5 1/2 lbs now and is drinking almost all feed from a bottle. she still needs oxygen when feeding due to occasional dsats but only has room air thru her canula when not feeding. Hopefully in the next week or so she will be moving to a transitional facility. There her parents and myself ( I will be staying with Willow and her older sister Alivia during the day while my daughter and sil work) will be taught how to care for her with the monitors and oxygen that she will be coming home with. I pray that her stay there will be short and then she will be home with us.

lgjjp
10-22-2009, 09:54 PM
Willow came home yesterday morning. She is doing great, on a small amt of oxygen (only 1/32 of a liter) and a heart monitor. Her doctors feel that she will only need these for a month or 2. She now weighs 6 lbs 9oz. All feeds are by bottle now. She spent 58 days in the NICU and 14 days in a transitional care home. We are so happy to have her home with us.

Elfstar
10-22-2009, 10:19 PM
Congratulations on Willow's homecoming and continued improvement. That is truly a blessing and a milestone!

My sympathies on Rowan's loss, I'll keep you all in my prayers. You're a strong family!:hug:

karen l
10-23-2009, 06:00 PM
Congratulations! I hope Willow continues to improve. Best wishes to your family.

MagicMe
10-24-2009, 04:10 PM
great news!!!! She will definitely flourish with all the love surrounding her day and night! Time to enjoy!