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buzz for boys
01-30-2009, 05:40 AM
Ok guys I promise ill only do this once but if i dont let this out im afraid im going to burst :scared:

I took my ds (7) to a hospital appointment yesterday he has eye cancer and had his eye removed a spart of the treatment and needed a new eye the nearest place that can do this for children is a 2 hr drive - that didnt bother me as we have been before and I knew it was going to be horrendous.
Well it took us nearly 3 hours because of roadworks on the motorway and I was a little stressed as ds had been sick by the time we got there :crazy2:

We were kept waiting for ages and then when we did go in she looked at him and said he was too uill for her to mess with him and she will schedule us back in for another appointment on weds !! *** he will look the same then if we get stuck in traffic :rolleyes2

Im so mad and exhausted mentally and physically I just cant face the journey again next week . I dont really want to moan to friends and family *** thats all i seem to do at the moment. Can i have some pixie dust pixiedust: and a slap so I can pull myself together

Thanks guys Louise x

Cinderella2006
01-30-2009, 05:52 AM
Aww i feel for you Louise, you sound like you need a touch of ... pixiedust: pixiedust:

Motherhood can be exhausting at the best of times let alone what you and your family are going through at the moment.

I hope your little one gets the treatment he needs and sooner rather than later.


Take care :)

CustardTart
01-30-2009, 05:54 AM
Of course you can moan, Louise! :hug: :hug: :hug: Please vent as much as you like - it can only help...

Sounds like you and your son have been through such a lot, hon and I'm sending you tons of pixiedust: pixiedust: pixiedust: that the journey on Wednesday is better and you both arrive in good shape... :grouphug:

natalielongstaff
01-30-2009, 05:55 AM
oh no :grouphug: i can see why you need to have a moan, i hope the appt goes better next week. just leave in plenty of time and try not to get too stressed about it x x

eyoreaud
01-30-2009, 06:24 AM
Hi Louise :grouphug:

I'm sure no one will mind if you let off some steam here, a lot of us have done so in the past and it does help :thumbsup2

I'm so sorry to hear your poor son has been ill and i wish him a speedy recovery so heres some pixiedust: pixiedust: pixiedust: pixiedust: pixiedust: For him and some hugs for you :hug: :hug: :hug: :hug: :hug: :hug: Sounds like you need them! :grouphug: xXx

Pinky166
01-30-2009, 06:27 AM
Oh what a nightmare. You poor thing it's no wonder you are stressed. I hope everything goes well on Wednesday. Rant away to us as much as you like....:grouphug:

Would it help if you got there an hour earlier than you appointment time so your son can sit down & have a drink/time to recover from the journey before your appointment? I don't know any car sickness remedies but wish you luck & lots of pixie dust. pixiedust: pixiedust: pixiedust:

wils
01-30-2009, 06:44 AM
Just sending you a :grouphug: and some pixiedust:

I can understand your exhaustion and frustration. I hope that next Wednesday provides a less stressful and more productive trip :)

Snowy-girls
01-30-2009, 07:34 AM
Moan away all you like :thumbsup2 .I hope goes well on Wednesday,sending lots of pixiedust: pixiedust: :flower3: .x.

buzz for boys
01-30-2009, 07:53 AM
Hi guys,
Thanks for the hugs and pixie dust I seriously did need to vent !! I try so hard to keep it together for the kids and hubby *** he thinks he lets me down when he has to work and cant come with us I dont mind ut he dont get it !!
Please dont pity us ds was diagnosied 6 years ago so this really is normal life for us its only when we have a rubbish appointment like yesterday that it really gets to me the rest of the time we are a normal family :thumbsup2
Thanks again guys for allowing me to vent !!

mandymouse
01-30-2009, 08:29 AM
:grouphug: Sending you lots of hugs Louise pixiedust: and I hope that the journey is a lot less stressful next week

irisheyes123
01-30-2009, 08:33 AM
sending you a :grouphug: hope everything goes to plan on Wednesday sending you some pixiedust:

wicket2005
01-30-2009, 08:59 AM
pixiedust: pixiedust: :grouphug: :grouphug: :grouphug: Vent away as much as you like and can understand your frustration it is only natural. It will all get sorted out.

jjk
01-30-2009, 09:14 AM
sending you a :grouphug: and pixiedust: pixiedust: hope everything goes to plan on wednesday xxx

Lizzy Lemon
01-30-2009, 10:05 AM
That's dreadful. We've had to go from Burton to Birmingham Childrens Hospital for appointments and been kept waiting ages. They are very good now, but when he was very young the waiting time seemed forever. In October this year my DS is being handed over to adult care - where's my baby gone! We make a day of it now and go on the train, is that an option for you if your DS is not a good car passenger? I imagine the appointments are stressful enough without adding an horrendous car journey to the equation.

jen_uk
01-30-2009, 10:36 AM
Sending you some hugs and PD :grouphug: pixiedust: :grouphug: pixiedust:

jackieleanne
01-30-2009, 10:58 AM
So sorry to hear about your son. :grouphug: and lots of pixiedust: coming your way. Hope it all goes ok on wednesday.

Ware Bears
01-30-2009, 06:55 PM
:grouphug: and pixiedust: for you

Minniespal
01-31-2009, 02:01 AM
As others have said previously Louise, moan away.

Hope it all goes well on Wednesday:grouphug:

higgy66
01-31-2009, 07:41 AM
That's terrible - she should have offered to see you a couple of hours later when he had chance to get over his travel sickness.

Have you tried joy rider travel sickness pills - these really help my girls.

Good luck for your next visit - I hope it's more sucessful. :grouphug:

buzz for boys
01-31-2009, 11:00 AM
Ive never tried any travel sickness pills or remedies as he refuses to take anything ! my neighbour said it helps if he wears a sweatband so we will try that next time !! I did phone the childrns hospital yesterdy and explained how bad the appointment was - as well as chasing our fit to fly form - and she said that on weds we can go there instead and the artificial eye woman will have to come to us ! RESULT !!! Im now feeling a load better about weds keep ur fingerd crossed for me that we also get our fit to fly certicate then we can start to get properly excited - we are actually most of the way there then !!!
Thanks again guys for listening !!

orlandothebeagle
01-31-2009, 11:17 AM
Louise you are a hero in my book, I hope your poor son gets well soon, Is there a cheapy travel lodge maybe you could stay at the night before, It is so stressfull traveling!!

My niece has those bands with the little stud on the inside of her wrist, she swears by them.

Beth__WDW23/6/02
01-31-2009, 11:20 AM
Sending you all pixiedust: pixiedust: pixiedust: pixiedust: pixiedust:

Sorry to hear it was an horrendous journey,please vent away sending my love x

wicket2005
01-31-2009, 12:56 PM
Keeping everything crossed for you and your little soldier.:goodvibes Not long to go till your holidays.

buzz for boys
02-04-2009, 01:13 PM
I just wanted to sat a big thanks to everyone who sent lovely messages last week and I wanted to let you all know that Today was so positive for the 1st time in ages I didnt walk away from the hosp in tears. I actually think I was smiling :)

The consulatant has started a whole new treatment which is as close to 100% chance of working as you can get!! How fab is that ::yes::

There is a negative that at the end of april he will need another op but then that should finish the treatment for good :groom:

I know its gonna be a long haul with the new regime but they think my son is going to live so I am the happiest person on earth today :goodvibes

orlandothebeagle
02-04-2009, 01:41 PM
Brilliant news, enjoy your holidays:thumbsup2

Pinky166
02-04-2009, 01:42 PM
I just wanted to sat a big thanks to everyone who sent lovely messages last week and I wanted to let you all know that Today was so positive for the 1st time in ages I didnt walk away from the hosp in tears. I actually think I was smiling :)

The consulatant has started a whole new treatment which is as close to 100% chance of working as you can get!! How fab is that ::yes::

There is a negative that at the end of april he will need another op but then that should finish the treatment for good :groom:

I know its gonna be a long haul with the new regime but they think my son is going to live so I am the happiest person on earth today :goodvibes

That is FANTASTIC news!!! :cheer2: :cheer2: :cheer2:

You must be over the moon!!! I am so pleased for you.

CustardTart
02-04-2009, 01:50 PM
I just wanted to sat a big thanks to everyone who sent lovely messages last week and I wanted to let you all know that Today was so positive for the 1st time in ages I didnt walk away from the hosp in tears. I actually think I was smiling :)

The consulatant has started a whole new treatment which is as close to 100% chance of working as you can get!! How fab is that ::yes::

There is a negative that at the end of april he will need another op but then that should finish the treatment for good :groom:

I know its gonna be a long haul with the new regime but they think my son is going to live so I am the happiest person on earth today :goodvibes
Awww that is wonderful, Louise!!! So glad you've shared it with us... Hugs :grouphug: :grouphug: :grouphug: to you, your son and your family... Have a magical holiday... :goodvibes

wicket2005
02-04-2009, 01:51 PM
Fantastic news and have a lovely holiday.:)

scottish mum
02-04-2009, 01:54 PM
:thumbsup2 What brilliant news for your whole family. You will be able to go and enjoy your holiday

TracyK
02-04-2009, 02:06 PM
That is asolutely wonderful news :)

Tracy

Tink2312
02-04-2009, 02:23 PM
What wonderful news! :) Just hang in there and think, hopefully in 3 months it'll all be over. I'll send some pixiedust: for that! :goodvibes

natalielongstaff
02-04-2009, 02:24 PM
What fantastic news :thumbsup2 im so pleased for you and your family x

Natasha&Matt
02-04-2009, 02:29 PM
That is such good news my thought are with you pixiedust: pixiedust: pixiedust:

Snowy-girls
02-04-2009, 03:13 PM
Oh how lovely to hear your happy news,excellent :cool1: .x.

wils
02-04-2009, 03:51 PM
That is wonderful news :grouphug:

Ware Bears
02-04-2009, 05:30 PM
Wonderful news, I am so pleased. :grouphug: