Question on child with diabetes

[AMVmom]

Hello! I've been poking around the site and read alot about the first aid stations and the hotels accomodations for insulin storage. My 4 year old son was diagnosed with type 1 diabetes 2 months ago and this is the first time we are going to Disney with him having been diagnosed. We'll be going in March. We booked reservations at POP Century for 7 nights. Should I call ahead and ask for a fridge in the room for his insulin? Should I invest in a bag to carry his insulin around? Should I get a GAC? How would that even benefit him (do I show it at the first aid stations so they will let me store the insulin?). I don't consider him a boy with a disability and was going to treat him as usual but I've been getting conflicting advice from friends. I want him to have the best time he can without keeping him back and making him stand out from other kids. I'd appreciate any advice from parents who've gone through this already! Thank you in advance! :confused:

[Princess Disney Mom]

Let them know at Pop Century you need a medication fridge. They have small ones for free just for meds. Check with Disney if the first aid stations have fridges in the parks. If not you can take ice packs and store in a locker.
You will not need a GAC card.

[Cheshire Figment]

Hi and :welcome: to disABILITIES!

First thing to realize is that opened containers of insulin do not have to be refrigerated; they can be maintained at room temperature for up to 30 days. Only if you are bringing unopened bottles is it a good idea to keep them refrigerated.

Explain (through reservations) that you need a small refrigerator for medicine storage. It should be provided at no charge.

Each Park has a First Aid station staffed by at least two RNs and it is open from the time the first Guests are allowed in the Park until after Park closing.
They will store any medications for you while you are in the Park, refrigerating those where it is needed or useful. They will also provide you with a private space to do any injections and have Sharps Containers available. They will provide alcohol swabs, but you must provide your own medication and syringes.

You might want to look at www.coolerconcept.com for Frio Cold Packs. I, and several others here, use them and they work very well. The inner pouch has crystals which turn into a gel when the pack is soaked in water. As the water evaporates the gel will go back to being crystals. It will keep the temperature in the pack around 60, which is very good for mst medications, and will keep them cold for up to 48 hours.

Normally if I know I will be giving myself an insulin shot I will load a syringe in advance and only take the syring (and an alcohol swab) in the cold pack instead of carrying around the bottles. However, I am on a fixed dose so this may not apply if his dose varies.

[gardendame]

Pop Century will put a fridge in your room, if you tell them that you have medication to keep chilled. There is no charge.
As far as a bag with insulin for the parks, that all depends on his dosing schedule. You will, however, need a way to carry his meter, strips and lancet device so that you can do a blood sugar check at meal time and/or if he feels low (at age 4, you will have to watch for the signs, as I am sure you know!) At that age, and with the excitement of the day, the visible signs of a low may not be apparent until the low is extreme. Carry juice boxes, airhead candy, etc., for a quick treatment for the low. We carried all of this in a small, drawstring-type backpack.
And, YES, get a GAC. You may not have to use it, but you will have it should you see that it may be helpful. There is nothing worse than standing in a 90 minute wait for "Soarin" and having to get out of line because of a blood sugar crisis. No one will "hold" your spot in line. For the time of year you are going, the lines should not be very long, and the temperatures should not be too extreme, so it is possible that you will not need the GAC. There is no penalty for getting one and then not using it.
I have two diabetic kids so, believe me when I tell you, get the GAC. Some people on this board suggested I get one, while others insisted that diabetes was not an illness that should justify one. Only you can know your situation. Since your son is newly diagnosed, his blood sugar levels will be very unpredictable - even with the best of planning.
There are quite a few parents of diabetic children on these boards! People are very helpful and willing to share info, even not Disney related. I'm sure they will pop in and offer you encouragement.
Enjoy your trip! We love Disney!

[SueM in MN]

If you have not read the information about GACs in post #6 of the disABILITIES FAQs thread, I would suggest you check that out. There is a link to the disABILITIES FAQs thread in my signature.
GACs are not given for diagnosis, but for needs. Some people with diabetes feel they do not need a GAC and don't get one. Other people do have needs that can be met with a GAC.
You might also want to look in post #3 of the disABILITIES FAQs, where there are some links to past threads.

As gardendame mentioned, because he is newly diagnosed and you are all learning, plus the fact that he is only 4, his blood sugar may fluctuate a lot more than it will after you all have had more time dealing with diabetes. You can always request one and use it as 'insurance'; not necessarily used, but there if you need it.

As was already mentioned, you don't need a GAC to use First Aid. Considering where First Aid is in each park, you may not want to store his insulin there. Using it might mean backtracking to get there. Most insulin is stable for at least one month stored at room temperature - since the outside temperature while you are walking around the parks is likely to be considerably warmer than that, you may want to look into one of the packs that were mentioned.

[mechurchlady]

Also know where the companion bathrooms are so you can have privacy if you need to take care of his sugars or testing. The law is that any person even of opposite gender may accompany a disabled person into a restroom. The baby centers also have areas where you could do testing and stuff in an emergency.

As gardendame mentioned carry small juice boxes as well as candy for a quick sugar boost. Carry a small tube of cake icing for sugar lows which is a cheap and quick way to raise sugars and if not have glucose pills. Always have protein with the sugars to help them not go down fast. Mom and I and a lady I knew all had lowered sugars later on in the day after eating beans.

I read that a mother of an autistic kid always keeps a set schedule like at home. Try to keep him on the same routine as at home but you will have to compensate for the extra walking and stress. You could get a stroller for him then park it and do rides which would save him lots of energy. Don't baby him but do try to save him some of the walking that can add up to miles. You could even keep the bags of snacks in the stroller. Check his feet for blisters but not sure how often. Sharing is caring and if it is snack time share some popcorn with him for example. Start a family tradition of sharing so that it will be normal for him to have a bit of snack but not so much as to get sick.

If you have to leave the line then have one person inform the CM greeter and they will often arrange for you to come back to the line without the extra wait. Diabetics have limitations at times but people with limitations are called disabled yet most diabetics are able bodied and very active. I think you should get it as you can explain to the Guest Services the boy's limitations and that you may have to suddenly leave the line or show. They can then tailor the GAC to his limitations. The GAC saves CMs time by them reading the limitiations instead of having to spend lots of time talking with the guest. It is a tool and like all tools does not have to be used.

In time you will be able to read your son's sugar levels by his moods, energy level, etc. Right now I can tell mine are around 100 right now and after this site it is snack time. Don't worry as you are in good hands with WDW.

[Eeyores Butterfly]

I want to second about informing a CM should you need to leave the line. I worked in Fantasyland Attractions and have done this for people numerous times. If somebody had to leave the line for circumstances beyond their control, I would arrange it so they didn't have to go through it again. I wanted everybody to be able to experience the attractions.

[AMVmom]

Thank you for all the replys! I think I'm going to get the cooling pack and the med fridge; I don't think I can backtrack to first aid all the time especially since my 1 year old has become a monster . . . I mean typical toddler. Most of the time we just can't read Max very well. He gets very whiny when he's in the 400's but he can also be like that when he wants attention or is tired for a nap. Then he can be down to 30 and still be coloring or teasing his sisters. I guess I'm most worried about being in line and having to leave and having that impact on the 5 year old; since the hospitalization with Max, his older sister has gotten much less attention and cries a lot more, much more sensitive. I don't want her to resent him if we have to leave quickly because he is having problems.

[mechurchlady]

There are lots of moms here who have talked about what to do for the siblings of disabled kids who at times do not get enough attention, have their life interrupted for the disabled child, or whatever. I would suggest talking to her about his diabetes and what would happen if you had to leave lines, shows, or the park. Reassure her that if he is really sick that daddy can take her her back to the park, ride or show late. Set aside some quality time with her. Let her choose the movie you watch or have a special Mommy and Me day at a spa while dad gets the kids. At WDW you dress her as her favourite princess, give her an autograph book for collecting characters, and if you son sees her being spoiled then whisper that girls need pampering, lol.

Since you have the youngest one you might want to check out the baby swapping pass where one parent rides a coaster then the other takes the pass and rides. Good luck on your trip.

[bopper]

Another thing to keep in mind is a change in his level of activity. If he is going to be mostly walking, then keep that in mind when figuring the insulin dosage. If he will be in a stroller, then that is not as much activity.

[honugirl]

If you haven't already, I would speak to his endocrinologist and see if you need to change his ratios or anything like that for the trip. With the possibility of extra walking and stuff he may need more or less insulin than he uses at home. It's also hot there (although, I don't think quite so much right now) so that can play into things. Make sure he stays hydrated too because I think that can wreak havoc with his blood sugars. Have a good time.

[visitingapril09]

First, have a wonderful time. I have a child who is very medically complicated and a daughter with type 1 who was diagnosed at 10. She is now 14 and uses an Animas pump. She went to Disneyland this past April when still on injections. She carried a small backpack with all supplies and testing and lows. We cut back her am insulin dose a bit to compensate for walking alot. We were, however, turned down when we asked for a GAC for her for the reason of lows in lines, needing to leave to test etc. We were told that, if that shoudl occur, we need to tell the CM and they would give us our place in line again but they would not issue a GAC. Perhaps you will have different luck. Again, have fun. The CWD board is very helpful for all diabetes management issues.

[Jeff Fillmore]

Thanks for this thread- we are Disney regulars and just found out our 8 year old daughter has Type-1 in October. We have been to the parks several times since then but it is different for sure. Lots more planning.

[Schmeck]

Just to note - a GAC may not shorten your wait in line, (may even make your wait longer) so it is no guarantee to avoid having to leave a line. I think your best bet would be to use Fastpass where available.

I spent a great day with a young lady (age 5) with type 1 diabetes. Her mom tested her blood sugar levels in lines, and had proper snacks available on her at all times. There was no need to leave and come back, as everything that needed to be done was done in line.

[monica31671]

My son uses an insulin pump now, but he was on shots for almost 2 years.

His day-time shots were done using a pen-type syringe so those supplies were easy to transport. He took a nightly dose of Lantus every evening at 9:00. To make sure we stayed on track, I carried the dose in a pre-filled syringe in a case like this:

http://www.diabetesandmore.com/A-Single-Syringe-Case-Solid-P544C15.aspx

Have a great trip!

[Janet Hill]

I spent a great day with a young lady (age 5) with type 1 diabetes. Her mom tested her blood sugar levels in lines, and had proper snacks available on her at all times. There was no need to leave and come back, as everything that needed to be done was done in line.

I travel with my kids and Type 1 husband. He generally has everything he needs; however, once after standing in the Soarin line for 55 Min and we were close to boarding we had to leave as he had run out of Gluco Tabs. On our way out I told the attendent the problem and she gave me a pass to use on our return. Went to the food court for a coke, then went back to Soarin via the fastpass line.

[Eeyores Butterfly]

I could see where you might want to leave the line for a hypo even if you have tabs or Glucagon with you. When I hit 45 after the OGTT, I literally thought I was going to pass out. Hypos make me feel ten kinds of nauseous and very irritated so I don't want to be around people (really fun when it happens while I'm teaching). I find that when it happens to me I want to find a quiet place to sit down until I feel better. I would definitely not want to go on a ride, especially a high thrill ride.

Unless you don't want your child waiting with a whole bunch of other people in case she goes hypo or needs to inject, I don't really see how the GAC is going to help you since as others said it is not going to decrease your wait time on most rides. Fast pass is your friend. Also, as mentioned, CM's are very good about helping you get back in line if you have to leave for whatever reason. I did it all the time in Fantasyland.

[Selket]

Definitely read this website: Disney with Type 1 Diabetes: http://allears.net/pl/diabetes.htm

It is written by the parents of two type 1 kids and covers most of the bases. Their children were old than yours when dx'd so you will face some challenges that they might not cover - but they cover most.

My son was dx'd when he was 26 months and is almost 7 now. He also has a couple of life threatening food allergies (peanuts/shellfish) which make eating a challenge (dining out that is). We first took him to WDW after diagnosis when he was 3 yrs. old and we go back often.

My son is almost 7, as I said, and still doesn't often recognize his highs and lows. By the time your son is that age maybe he will - maybe he won't. But don't feel bad if *you* cannot tell either - it is a very subtle thing with many kids. And when they are excited (like at WDW) - they often do not want to stop to let you know they feel bad.

You will almost certainly have issues at WDW that you do not face at home on a routine basis. You are going when the weather is mild so that is in your favor. The heat has seemed to be the hardest thing for my son to deal with. Walking/exercise is only recently an issue (he was also hypotonic at birth and didn't walk until he was about 2 - and was not walking the parks until he was 5-6 or so). I highly suggest using a stroller for when your child wants to ride. Maybe he isn't a stroller kid but it will save some energy and perhaps prevent lows from all the exercise.

Your one year old probably won't care if he/she rides something or not but the 5 year old will (and your 4 year old). I suggest splitting up at times if your child with diabetes is having an issue.

You do NOT need to go in the bathroom to handle anything - testing, shots, whatever. Take all that stuff with you and do it where you are. If you prefer privacy - that is fine - but there is no need to do it because you worry about what people will think. We test and treat in public. I have changed his infusion set at the park and I do that at First Aid in a private room. First Aid is awesome - very helpful.

Many people here who will offer advice - are much appreciated - but also NO ONE BUT YOU knows your circumstances, issues, limitations, etc. So when it comes to getting a GAC, do what you think you need to do. You can always get one after a day or two if things are going poorly. Diabetes in a 4 year old vs. diabetes in a 10 year old or an adult is sometimes two different things all together. I find the time that we have *really* needed it was when it was very hot out (July hot). If you ever get to go to the Children With Diabetes Friends for Life conference (held in July 2009 at Coronado Springs - FYI), you may find that they have cast members on site to give families a GAC. There are guidelines issued by the conference for using it. Nothing wrong with knowing what a GAC is - whether you need it depends on your unique situation. I've said enough about that in previous posts. Anyone who tells you that you won't need a GAC does not understand that the GAC is issued for a person's issues and not for a diagnosis.

What I recommend more than anything is to go with a good touring plan. If you are going during spring break (I sincerely hope not) - you will need a good touring plan and a choir of angels on your side...heh! But seriously, we use Tour Guide Mike - and I know it is hard to follow his advice with little kids but his plan is flexible and you will NOT be waiting in any lines. You will be fast passing most things. His touring plans are without equal - IMHO.

And finally, with young kids and one with type 1 - plan now that you will *not* see it all, do it all, eat it all, experience it all, etc. Lowered expectations have served me very well - especially when my kids were young. Sometimes it is just fun to hang out and let them play in one of the interactive Epcot areas, or at the splash fountains, etc.

I wish you all the best! Feel free to email me if you have other questions.

[jayandstacey]

AMVmom - you're in good hands here and have lots of great advice. I would research and plan, research and plan. Take the time now and you won't lose time on vacation.

My 7 year old daughter was diagnosed at 13 months. Very young kids, like yours, can get bloodsugar numbers all over the map in this kind of situation - so I would suggest testing often - in addition to your normal times, also maybe everytime you get in line for a ride. Lots of little tweaks (a little insulin, a little sugar) will help keep you on track and help you catch any issues before they get out of hand.

I would also get some OTC ketosticks and check for ketones once a day. The fix is easy - if you see keytones, drink lots of water until they are flushed out. Again, the idea is to stay ahead of minor ketones on one day that might turn into throwing up the next day. And since you drink water to flush ketones, and throwing up gets rid of that water, that can end up with a hospital visit. Ketostix are easy, he just pees on the end of the stick. Like a litmus strip, you see the results immediately. They are also very cheap.

We took my daughter when she was 4 and had a blast. I'm sure you will too!

[Bethkf]

AMV mom,

You have gotten a lot of good advice, but i thought I would address your concern over the siblings reaction to diabetes management and your time. My 19 year old son was diagnosed at age 11. My daughter was 9 at the time. I understand the concern you have for your 5 year old and making sure she gets time from you as well. Although my kids were older when my son was diagnosed you can probably adjust some of what I did to fit your children's ages. My daughter loves math so I got her involved in counting the carbs and determining the ratios of insulin. She also carried glucose tabs and gel with her when we went on rides. It made her feel important to be involved in helping her brother. In fact she took the "fast food" pamphlet we got from the doctor and memorized carb counts so she could tell her brother what he needed. She also attended diabetes camp with him when she got older and LOVED it. I would highly reccommend it for both kids. For my daughter it was an eye opening experience. She had to test her blood sugar along with the diabetics and stick to similar schedule. It gave her a sense of what it was like for her brother on a daily basis. Hope this helps you.

[daneenm]

Lots of good advice here already. Just jumping in to second the comments about T1D in a 4 year old vs. older children. DS was diagnosed at 20 months and had numbers all over the map (still at 8 we have some unexplained numbers, but it is not usually as variable in a single day as it was while he was a toddler and in pre-school). He could be 300, and an hour later 50. The best advice, in my opinion...test, test, test. You just never know how his body is reacting to the heat/exercise/excitement/etc.

In 2 months, you may not have it nailed down yet, but you will soon know his likely triggers as well. For DS heat and exercise send him plummeting. We visited WDW in August (not a good time heat/crowd wise for DS, but could not be helped) and were quite worried about the heat. Based on the info from this site and the TGM site, we decided to keep our options open for a GAC - we would get one at the first sign we needed it. For that trip, we had a really good touring plan (Thanks TGM!) and wound up avoiding long hot lines for the most part, so did not wind up getting a GAC. Another plan, may have been different. We did however get a GAC in DL on our first trip after he was diagnosed (6 years ago) - although I understand DL is not allowing these any longer. We wound up not using it, since we were visiting in the spring and it was cool and we had no issues with him dropping.

We test and dose anywhere we are in 'real life' and do the same at Disney. We did this while DS was on shots and this summer when he was on a pump. The frio pack is a great idea if you are traveling in the heat, otherwise, we just carry his insulin vials at room temp. Do not feel you have to go to First Aid each time, unless that is what you or your child wants.

I do carry a medicine cabinet with me when we travel so i can be prepared for anything - really, it takes a whole suitcase, which DH just loves :) . For DS and his T1D management, this includes our blood ketone meter and strips, 3X the number of test strips we think we will need, 2-3X the amount of insulin we think we will need, lots of extra syringes and lancets, an extra lancing device and a Phenergan suppository (in case of lengthy vomiting due to severe stomach bug). Of course, we always have the standard supplies with us at all times, granola bars, glucotabs, juice (when he was younger as he would not eat glucotabs), glucose gel, glucagon, etc. Fortunately we have never even had to get into the medicine cabinet suitcase, but I felt better that I had it all with me.

Most of all, have a great time. Honestly, I was quite worried on both our first trips to DLR and WDW and they were easier to manage than I ever expected.

--Daneen

[AMVmom]

Thnak you all for the great advice. It makes me feel better prepared for our trip now and I just want to thank everyone for your responses. I've always read the boards and finally decided to join and I am so glad that I did. I heard a lot of great advice and caring from everyone. Happy New Year!:grouphug:

[mnosky]

I am an adult with type 1. We went to Disney shortly after I was diagnosed when I was 12 years old. Just a few comments:

-I requested room in fridge and got it for free because of medical need (but had to remind them it was for meds and ask it to be taken off my bill).

-I just learned that you can have an extra bag for free on airlines if it carries only medical supplies - has anyone done this - does it work??? This would be great as half my suitcase is diabetes supplies, back-ups, glucose tabs, juice etc.

-Don't forget glucagon kits.

-I have a pump and CGMS and keep my glucoses pretty well controlled. But at Disney they just aren't that great and I accept that. I have had a few bad lows there at night (after all that walking) and now lower my basal insulin, which works great for some days and makes me high some mornings. I used a pedometer one trip and then was able to adjust my overnight basal based on how many steps I walked that day. My last trip was tougher because I was pregnant and didn't want to be very high but the CGMS was a lifesaver.

- I was never able to get carb info from disney - was told it varies too much and isn't listed anywhere so just . For example, I think fruit or ice cream is better for dessert because I can more easily count the carbs - but certainly won't pass up something yummy if I really want it.

[SueM in MN]

I am an adult with type 1. We went to Disney shortly after I was diagnosed when I was 12 years old. Just a few comments:

-I requested room in fridge and got it for free because of medical need (but had to remind them it was for meds and ask it to be taken off my bill).
Good news about refrigerators - if you stay at a Moderate, Deluxe or Disney Vacation Club resort, your room will have a refrigerator already in it at no charge.
If you are at Value resort, you will need to request one (and may have to remind them that it is for medical reasons). They may provide a small, dorm size refrigerator or an even smaller one, about the size of a shoe box.
-I just learned that you can have an extra bag for free on airlines if it carries only medical supplies - has anyone done this - does it work??? This would be great as half my suitcase is diabetes supplies, back-ups, glucose tabs, juice etc.
If you have a carry on bag that is medical supplies, it can't count against your carry on allowance. It needs to have ONLY medical supplies. If it has other things as well, it doesn't count as medical baggage. When you get to the gate, let the agent know that you have an additional bag of medical supplies related to your disability.
We don't have diabetes supplies, but do have 2 carry on bags for our DD's supplies (her communication computer, etc).
If you check the bag (which may not be a good idea for medical equipment), then most airlines will not charge for it as a courtesy. I have heard that they are checking up on these bags to make sure they contain only medical devices (it seems some people are sticking a piece or 2 of medical equipment in their bag of general baggage to avoid having to pay a fee for their luggage).
- I was never able to get carb info from disney - was told it varies too much and isn't listed anywhere so just . For example, I think fruit or ice cream is better for dessert because I can more easily count the carbs - but certainly won't pass up something yummy if I really want it.
Other people with diabetes have reported the same difficulties in getting carb counts from Disney.

[mechurchlady]

-I just learned that you can have an extra bag for free on airlines if it carries only medical supplies - has anyone done this - does it work??? This would be great as half my suitcase is diabetes supplies, back-ups, glucose tabs, juice etc.

YEP. You can pack a suitcase, bag or box with all your special medical needs and it will be free. There is no limit on how many you can take but be reasonable. You can take onto the plane medical supplies that you do not trust to the airline's baggage handlers like pumps and other electronic equipment as well as other special needs items like ensure, food, drinks. testing equipment, and medical equipment.

Is is for medical special needs?
Are you disabled?
If you say yes to both then it is free.

[AMVmom]

The carry on baggage advice is great. I always have a bag for his diabetic supplies. Thanks!:thumbsup2

[zurgswife]

I sent you a PM..

[Belle & Ariel]

Remember to bring your glucagon. We had to use it at Disney because my son was enjoying Disney so much, he did not realize how low he was.
Bring a lot of simple sugars, too. You don't want to stand in line for a Coke every time he goes low. I bring a lot of juice boxes. I like the Capri Sun type because of their shape over the square boxes.

[buffettgirl]

Also know where the companion bathrooms are so you can have privacy if you need to take care of his sugars or testing. ICK!!!!! ICK!!! ICK!!! No way. Testing and shots happen wherever we happen to be - the most unsanitary place is the bathroom. Blech.

Just to note - a GAC may not shorten your wait in line, (may even make your wait longer) so it is no guarantee to avoid having to leave a line. I think your best bet would be to use Fastpass where available.

I spent a great day with a young lady (age 5) with type 1 diabetes. Her mom tested her blood sugar levels in lines, and had proper snacks available on her at all times. There was no need to leave and come back, as everything that needed to be done was done in line.

We've never gotten a GAC for my son with diabetes. And we've had lows happen while in line. But you know, the lines move so slowly that we usually just have him sit on the ground and nosh on his glucose tabs and scoot along as the line is moving. by the time we are ready to ride his bg is back where it should be and we've lost nothing. We also carry all our supplies in a backpack and so everything we have is at hand. :)

WE also plan on lots of extra snacks. Those mickey bars hit the spot. :)

for carb counts - you can load the USDA's database onto your palm pilot and you can have good carb counts for most foods - may not be specific disney related but they're pretty good.

For the airplane - we put all of DS's supplies in one backpack and tell the screener what's in it. We've not had any trouble with juice boxes etc. We also pack supplies in all the other suitcases so taht if one suitcase gets lost we still have supplies.

Room fridges - they have been known to FREEZE insulin. There was one episode at a FFL conference were everyone had their insulin frozen. Get a frio and use it. :)

Most of all - ENJOY!!!!!!!!!!!!!

[Eeyores Butterfly]

ICK!!!!! ICK!!! ICK!!! No way. Testing and shots happen wherever we happen to be - the most unsanitary place is the bathroom. Blech.



We've never gotten a GAC for my son with diabetes. And we've had lows happen while in line. But you know, the lines move so slowly that we usually just have him sit on the ground and nosh on his glucose tabs and scoot along as the line is moving. by the time we are ready to ride his bg is back where it should be and we've lost nothing. We also carry all our supplies in a backpack and so everything we have is at hand. :)

WE also plan on lots of extra snacks. Those mickey bars hit the spot. :)

for carb counts - you can load the USDA's database onto your palm pilot and you can have good carb counts for most foods - may not be specific disney related but they're pretty good.

For the airplane - we put all of DS's supplies in one backpack and tell the screener what's in it. We've not had any trouble with juice boxes etc. We also pack supplies in all the other suitcases so taht if one suitcase gets lost we still have supplies.

Room fridges - they have been known to FREEZE insulin. There was one episode at a FFL conference were everyone had their insulin frozen. Get a frio and use it. :)

Most of all - ENJOY!!!!!!!!!!!!!

Do you have the link to that database and can you download it onto more than just a palm? I've been trying to find something I can put on my phone (I have an iPhone type phone) so that I don't have to carry a big honking book around.

[daneenm]

Do you have the link to that database and can you download it onto more than just a palm? I've been trying to find something I can put on my phone (I have an iPhone type phone) so that I don't have to carry a big honking book around.

I have two apps for my iphone that I find really helpful. They are Restaurant Nutrition and Calorie Tracker from Livestrong.

Restaurant Nutrition has info on many national chains, and they add more frequently. The Livestrong app has a much bigger database with 'homemade,' pre-prepared (like frozen from the grocery store) and restaurant food.

They were both free when I downloaded them.

[AMVmom]

ICK!!!!! ICK!!! ICK!!! No way. Testing and shots happen wherever we happen to be - the most unsanitary place is the bathroom. Blech.

We've never gotten a GAC for my son with diabetes. And we've had lows happen while in line. But you know, the lines move so slowly that we usually just have him sit on the ground and nosh on his glucose tabs and scoot along as the line is moving. by the time we are ready to ride his bg is back where it should be and we've lost nothing. We also carry all our supplies in a backpack and so everything we have is at hand. :)

WE also plan on lots of extra snacks. Those mickey bars hit the spot. :)

for carb counts - you can load the USDA's database onto your palm pilot and you can have good carb counts for most foods - may not be specific disney related but they're pretty good.

For the airplane - we put all of DS's supplies in one backpack and tell the screener what's in it. We've not had any trouble with juice boxes etc. We also pack supplies in all the other suitcases so taht if one suitcase gets lost we still have supplies.

Room fridges - they have been known to FREEZE insulin. There was one episode at a FFL conference were everyone had their insulin frozen. Get a frio and use it. :)

Most of all - ENJOY!!!!!!!!!!!!!

This sounds horrible but I think I would feel more comfortable letting him eat the snacks that I would not normally let him eat at home just because I know with all his walking, excitement and rides he'll be lower than expected. Now I don't feel so bad feeding him part of a mickey ice cream or itzakadoodle (his favorite before the dx) since the endocrinologist told us he's too young for the tablets. I figure it tastes better too! :cool1:

[daneenm]

This sounds horrible but I think I would feel more comfortable letting him eat the snacks that I would not normally let him eat at home just because I know with all his walking, excitement and rides he'll be lower than expected. Now I don't feel so bad feeding him part of a mickey ice cream or itzakadoodle (his favorite before the dx) since the endocrinologist told us he's too young for the tablets. I figure it tastes better too! :cool1:

Nothing horrible about that in my book. He needs to be on vacation too. In our house, while we work very hard to manage Diabetes, we do not let it run our lives. As I think I have said before, on day 1 of diagnosis, our endo recommended ice cream as an excellent night time snack because it would keep him nice and even during the night (that great combo of carbs, fat and protein). Everything in moderation ... less moderation on vacation :)

I am interested in your comment about glucose tabs. We were given tabs when DS was diagnosed (20 months old). Now, he did not like them, but that is different than 'being too young for them.' Actually, it was only this spring (at age 7) that he started preferring glucose tabs to raisins or juice. Did the endo elaborate on this?

[AMVmom]

The endo felt that Max would not take the tablets as willingly as an older child (too young to comply I guess). She recommended juice or milk instead. I've given him peanut butter cups before but I really don't feel like having a mushy melted mess in my backpack at Disney. A previous poster did mention glucagon and I have those; hopefully will never have to use. Our overall plan was to let him run a little higher than usual (about 150-200) to try to avoid the lows; we do that before his 1/2 day at preschool and by the time he gets home about 4 hours later he usually is about 90-100 and then he gets lunch. I opted to do the Counter Service dining plan with the thought that we can easily get food/snacks every couple of hours into him and not worry about dining reservations.

[daneenm]

The endo felt that Max would not take the tablets as willingly as an older child (too young to comply I guess). She recommended juice or milk instead.

That makes sense, based on our experience. I'm sure you know by now that juice will act much faster than milk, depending how low he is.

Sounds like you have a great plan for a 4 year old. Of course, it is very much like how we handled DS at 4, so I WOULD like it :rotfl2:

[buffettgirl]

Nothing horrible about that in my book. He needs to be on vacation too. In our house, while we work very hard to manage Diabetes, we do not let it run our lives. As I think I have said before, on day 1 of diagnosis, our endo recommended ice cream as an excellent night time snack because it would keep him nice and even during the night (that great combo of carbs, fat and protein). Everything in moderation ... less moderation on vacation :)

I am interested in your comment about glucose tabs. We were given tabs when DS was diagnosed (20 months old). Now, he did not like them, but that is different than 'being too young for them.' Actually, it was only this spring (at age 7) that he started preferring glucose tabs to raisins or juice. Did the endo elaborate on this?
Nothing horrible about it in my book either. Like I said, those mickey bars hit the spot! glucose tabs - my son was dx at 5 and wasn't over joyed with them until he hit about 5 1/2 and then he realized they were tasty (try lots of different brands and flavors). Initially I would break them in half for him but quickly realized that he had no trouble chewing them up whole. He adores them now. CVS brand are our favs. Grape, watermelon and raspberry and tropical fruit. anything but orange.


The endo felt that Max would not take the tablets as willingly as an older child (too young to comply I guess). She recommended juice or milk instead. I've given him peanut butter cups before but I really don't feel like having a mushy melted mess in my backpack at Disney. A previous poster did mention glucagon and I have those; hopefully will never have to use. Our overall plan was to let him run a little higher than usual (about 150-200) to try to avoid the lows; we do that before his 1/2 day at preschool and by the time he gets home about 4 hours later he usually is about 90-100 and then he gets lunch. I opted to do the Counter Service dining plan with the thought that we can easily get food/snacks every couple of hours into him and not worry about dining reservations.
A little higher is a great plan during the day. We did this too and only had a few minimal lows. Nothing major. One thing I wasn't prepared for during our first visit after dx though is that we saw a ton of "fat spikes" at night - from all the restaurant / counter service foods. So this time I'm going to try to take that into consideration with evening meal boluses and/or adjust night time basals accordingly. Last time we were there we were still on shots. This time we're pumping.

[My3CasBoys]

What are fat spikes?

Thanks for all of the tips as we are planning a trip later this year. DH has been Type I for 20 years. DS was dx in 2007 at age 3. (He likes the CVS glucose tabs too! And, he will chew a glucose tab in his "sleep.") When you have the option to go on a pump, we highly recommend it. DS has been on the Animas 2020 since July. DH went on the Animas Ping in September. DH dropped his A1C one point in the first six weeks!

[Selket]

My younger son was dx'd at 26 months and at that age the glucose tabs (and other small candies) are a HUGE choking hazard. There is some evidence that giving peanut butter to young children is more likely to give them a peanut allergy - and I speak from experience - you do NOT want your type 1 child to have a peanut allergy (as mine does). Sunbutter (made with sunflower seeds) has the about the same protein/fat/nutrition and would be less likely to trigger a food allergy.

Fat spikes are when you have a high fat meal and the blood sugar rises slowly over a long period of time. Sometimes if you give all the insulin at once to cover the carbs of a high fat meal (like pizza and birthday cake for example) - the person will go too low about an hour later - and needs to eat some carbs - but then goes too high maybe 4-8 later (or longer) - from the food and fat being absorbed more slowly. With a pump you can spread out the insulin (bolus) over many hours. I've also noticed that for high fat foods that my son needs more insulin than the for just the carbs he has eaten - something like a krispy Kreme donut will raise his blood sugar for up to 8 hours afterwards. Not every food that causes a fat spike for one person will cause it for another - so you have to learn what does for you or your child.

[andrea2639]

Hello! I've been poking around the site and read alot about the first aid stations and the hotels accomodations for insulin storage. My 4 year old son was diagnosed with type 1 diabetes 2 months ago and this is the first time we are going to Disney with him having been diagnosed. We'll be going in March. :

My youngest son, age 4, was diagnosed 11/24/08. We are also heading to Disney the end of February, on the 23rd for 7 nights at the Wilderness Lodge. It'll be our first trip dealing with this too. My DH also is type 1 and has been on the Minimed Pump for 2 years. Previous trips before with my DH do show some severe lows from the heat and walking. I worry about the same with my son. As you know in a four year old things happen sometimes for no reason and I'm VERY worried about severe lows while being in line and on rides and attractions. Since it's cold and snowy up here in the Northeast we haven't had much experience on how to lower dosages with exercise and I'm hoping to get some guidance soon on that.

My endocrinologist recommended getting a GAC card because of the unpredicatability of Cameron and the unrecognized lows but it seems from previous posts that Disney denies the GAC for diabetics and hypoglycemia (which in my opinion is VERY ignorant as a 4 yr. old diabetic is VERY different than an adult diabetic). I have yet to really find any direct answers on what exactly the GAC card will do and it's benefits. If we have to get out of line (I understand you can test and treat in line but sometimes coming out of the sun and heat into a cooler place also helps regulate lows and if it's a high then we will need a restroom to test for Ketones) than what will the GAC card do for us then? Without one I'll have to take the time to explain everything to the CM? I do feel like that we should have and qualify for the GAC card as a reassurance to our son and our family. Fact is that we don't know how he will react and if it's poorly than we should still be able to experience Disney....thoughts? He will be having his 5th birthday at Disney and I just want this vacation to be really special as this diagnosis has been extremely hard for our whole family...

[andrea2639]

Pop Century will put a fridge in your room, if you tell them that you have medication to keep chilled. There is no charge.
As far as a bag with insulin for the parks, that all depends on his dosing schedule. You will, however, need a way to carry his meter, strips and lancet device so that you can do a blood sugar check at meal time and/or if he feels low (at age 4, you will have to watch for the signs, as I am sure you know!) At that age, and with the excitement of the day, the visible signs of a low may not be apparent until the low is extreme. Carry juice boxes, airhead candy, etc., for a quick treatment for the low. We carried all of this in a small, drawstring-type backpack.
And, YES, get a GAC. You may not have to use it, but you will have it should you see that it may be helpful. There is nothing worse than standing in a 90 minute wait for "Soarin" and having to get out of line because of a blood sugar crisis. No one will "hold" your spot in line. For the time of year you are going, the lines should not be very long, and the temperatures should not be too extreme, so it is possible that you will not need the GAC. There is no penalty for getting one and then not using it.
I have two diabetic kids so, believe me when I tell you, get the GAC. Some people on this board suggested I get one, while others insisted that diabetes was not an illness that should justify one. Only you can know your situation. Since your son is newly diagnosed, his blood sugar levels will be very unpredictable - even with the best of planning.
There are quite a few parents of diabetic children on these boards! People are very helpful and willing to share info, even not Disney related. I'm sure they will pop in and offer you encouragement.
Enjoy your trip! We love Disney!
Hi, I was reading your post about traveling to Disney with your diabetic children and the beneifit of a GAC card. My son was diagnosed on 11/24/08 with type 1 he is 4 yrs old. Although, my husband is type 1 too it seems to be a whole different story with my son. He still has unexplained highs and lows and doesn't recognize symptoms to either one. We haven't had much experience with adjusting exercise to dosing yet but I'm hoping to learn. I'm also worried about the carb counting and having to guestimate my way through the entire 7 days....any suggestions on how you do that? Also, my endo and some moms from a support group we attend recommend the GAC card...but I'm not sure how to approach it with guest services....can you give me some guidance on how to explain why we need the card for my son? I would sincerely appreciate it. We really need this trip to be "magical" as we've had the worst 2 months in our lives.

Thank you and I appreciate all the advice! Andrea

[daneenm]

Fact is that we don't know how he will react and if it's poorly than we should still be able to experience Disney....thoughts? He will be having his 5th birthday at Disney and I just want this vacation to be really special as this diagnosis has been extremely hard for our whole family...

So sorry for your son's recent diagnosis. My son was diagnosed at 20 months, 6 years ago. I could not agree more about the difference between very young children with T1D and older people with it. We find that DS is easier to manage even now, at 8, than he was at 2, 3 and 4 - still not a piece of cake, but at least he can help by telling us how he feels now. To take it a step further, IMO, most 'policies' around Diabetes (including insurance limits on test strips per month, etc) seem to be geared toward T2D presumably because that is what is more prevalent. If only they had different names...but I digress.

Your questions are like you are channeling me before our trip to WDW when DS was 6. He is very effected by heat and exercise and can drop 200-300 points in less than an hour. The advice we got was to ask for a GAC that allowed DS to wait in a cooler location, since our concern was heat related. In the end, we never wound up getting a GAC because we had such a great touring plan (thanks Tour Guide Mike!) that we rarely waited more than 10-15 minutes for anything. We visited in August, so I was very relieved. I know it has been said many times, but it bears repeating... test, test, test...

I'm sure others can tell you specifically what they ask for on their GAC. Had we asked for one, I would have been asking for him to wait in a cooler location with an adult and meet up with the rest of us when we got to the front of the line.

Have a terrific birthday trip!

[AMVmom]

My youngest son, age 4, was diagnosed 11/24/08. We are also heading to Disney the end of February, on the 23rd for 7 nights at the Wilderness Lodge. It'll be our first trip dealing with this too. My DH also is type 1 and has been on the Minimed Pump for 2 years. Previous trips before with my DH do show some severe lows from the heat and walking. I worry about the same with my son. As you know in a four year old things happen sometimes for no reason and I'm VERY worried about severe lows while being in line and on rides and attractions. Since it's cold and snowy up here in the Northeast we haven't had much experience on how to lower dosages with exercise and I'm hoping to get some guidance soon on that.

My endocrinologist recommended getting a GAC card because of the unpredicatability of Cameron and the unrecognized lows but it seems from previous posts that Disney denies the GAC for diabetics and hypoglycemia (which in my opinion is VERY ignorant as a 4 yr. old diabetic is VERY different than an adult diabetic). I have yet to really find any direct answers on what exactly the GAC card will do and it's benefits. If we have to get out of line (I understand you can test and treat in line but sometimes coming out of the sun and heat into a cooler place also helps regulate lows and if it's a high then we will need a restroom to test for Ketones) than what will the GAC card do for us then? Without one I'll have to take the time to explain everything to the CM? I do feel like that we should have and qualify for the GAC card as a reassurance to our son and our family. Fact is that we don't know how he will react and if it's poorly than we should still be able to experience Disney....thoughts? He will be having his 5th birthday at Disney and I just want this vacation to be really special as this diagnosis has been extremely hard for our whole family...


We opted not to get the GAC card as I don't feel it will really help in any respect. As you well know four year olds are ACTIVE and my only clue was when we took Max to Sesame Place he dropped down to 30 at one point and was still asking to go on the carousel! I only checked him as I had opted not to give him his lunchtime insulin as usual because I expected that the sugars may be lower than expected and (bad mom that I am) decided to dose him after the fact if needed. As PP had suggested and I thank everyone for their advice, I will be bringing tons of strips to test him often. I also am going to let him eat snacks like ice cream to help increase his sugars a bit.

I did finally decide to get a medical id for him. I got one from www.idonme.com that I can just fill in the info myself and isn't too obvious. I was leary of the metal ones as I could see problems with wearing it and I do not want his name and condition in plain site for everyone to see. He thinks this bracelet is a watch; it's also adjustable so no need to worry about having to buy the right size. (By the way, I have no stock in this company!).

The CMs are VERY attentive. Once about a year ago our duoglider stroller tipped over (we hung too many bags from the handle :blush: ) and withing a second 2 CMs were running over to help us! Luckily no kids in there but I don't think a GAC card would make things any different as the help is always there. However I have had friends tell me that it wouldn't hurt to just have it; if you don't have to use it then that is great!

Feel free to e-mail or PM me if you would like anytime! :)

[andrea2639]

Please PM me so I can respond! You need to have 10 or more posts to PM. Why don't you think the GAC pass will help? I'm still not sure so any input is greatly appreciated. I read another thread labeled "GAC and diabetes" and was so angered by it that I was shaking. I get really annoyed with people who pass opinions on things that they have no personal experience about like a 4 year old newly diagnosed diabetic child....seriously I would trade a healthy child and 6 hours in line than a chronically sick child and a "fast pass"....

[AMVmom]

Please PM me so I can respond! You need to have 10 or more posts to PM. Why don't you think the GAC pass will help? I'm still not sure so any input is greatly appreciated. I read another thread labeled "GAC and diabetes" and was so angered by it that I was shaking. I get really annoyed with people who pass opinions on things that they have no personal experience about like a 4 year old newly diagnosed diabetic child....seriously I would trade a healthy child and 6 hours in line than a chronically sick child and a "fast pass"....


I PMd you.

[SueM in MN]

Please PM me so I can respond! You need to have 10 or more posts to PM. Why don't you think the GAC pass will help? I'm still not sure so any input is greatly appreciated. I read another thread labeled "GAC and diabetes" and was so angered by it that I was shaking. I get really annoyed with people who pass opinions on things that they have no personal experience about like a 4 year old newly diagnosed diabetic child....seriously I would trade a healthy child and 6 hours in line than a chronically sick child and a "fast pass"....
If you have not read the information about GACs in post #6 of the disABILITIES FAQs thread, I would suggest reading that to help you make a decision about whether or not a GAC would be useful in your situation.

One thing people with many kinds of chanllenges have posted they found was that knowing when to be in the parks and/or what area of the park to be in to avoid crowds was much more useful to them than a GAC. The GAC is not meant to be a "Pass" or let people bypass or eliminate waiting in lines (that is printed right on the card). Because of that, you may find that the same is handled differently on the same attraction at a different time on the same day. How it is handled is going to depend on things like how busy it is, what accomodations are available right then, etc. So, it's not always a predictable thing.
If you know what park to be in and when, you can find wait times of 10-15 minutes on many attractions that have hour or longer waits at different times. Many people have posted good experiences using Tour Guide Mike.

[buffettgirl]

Hi, I was reading your post about traveling to Disney with your diabetic children and the beneifit of a GAC card. My son was diagnosed on 11/24/08 with type 1 he is 4 yrs old. Although, my husband is type 1 too it seems to be a whole different story with my son. He still has unexplained highs and lows and doesn't recognize symptoms to either one. We haven't had much experience with adjusting exercise to dosing yet but I'm hoping to learn. I'm also worried about the carb counting and having to guestimate my way through the entire 7 days....any suggestions on how you do that? Also, my endo and some moms from a support group we attend recommend the GAC card...but I'm not sure how to approach it with guest services....can you give me some guidance on how to explain why we need the card for my son? I would sincerely appreciate it. We really need this trip to be "magical" as we've had the worst 2 months in our lives.

Thank you and I appreciate all the advice! Andrea
We bring a small travel scale with out when we go out to eat - and will carry it with us at Disney. It makes weighing/measuring food so much easier. Get a Calorie King book as well - many common kid foods you can figure out from looking at that. :) You'll do fine!

It seems an equal number of people with D get GAC as do not. It's all very individual. When we were there last, we didn't. I never felt like we needed it, BUT, my son was 6 and we were over a year past our DX. So it was a bit easier for us. I don't plan on getting one when we go in July either, but I do know that at the friends for life conference they do have Disney Guest Services people on site during the conference to help people get their GAC. So AFAIK disney generally does not give people with D trouble about getting a GAC - especially a newly dx child. :)

Good luck with your trip. I hope it's totally magical! Those first few months of D are just nightmarish.

[Eeyores Butterfly]

Speaking as a former attractions CM- if your concern is the heat there are several things you can do:

-rent a stroller to minimize walking.
-ask to wait in an alternate area to avoid crowds (if that is a concern) and ask to wait out of the sun.

If your concern is the length of time in line, the GAC cannot help you. The GAC is not designed to bypass the lines. The alternate entrances simply provide a place for you to wait that is not as crowded, does not have stairs or other obstacles that can be difficult for people with disabilities to navigate, and is typically out of the sun. If using an alternate entrance, you should expect to wait at least the same amount of time- sometimes longer. I'll give you an example:

For spring break last year my friend rented a wheelchair. We used the alternate/wheelchair entrance at Safari. Although she was perfectly capable of transferring out and many people in the alternate entrance did not have wheelchairs with them, we all had to wait for the wheelchair accessible vehicle but that is the only loading dock the alternate entrance goes to. The Safari is about a 20 minute loop and on that day they only had one vehicle. The vehicle also sat for several minutes to see if any more guests would need the accessible vehicle- so we waited longer than we would have in the normal line.

Fastpass if your friend. Fastpass early, fastpass often. Scout out the indoor rides, many have lines inside the airconditioning so the heat shouldn't be a problem (Space Mountain, Philharmagic, Soarin', etc. etc.) Keep a meter and tabs/gel/glucagon with you at all times should your child go low.

If you have to leave a line, find a cast member. Believe me, I did this all the time for people. You most likely will not be the first or the last person that CM has had to do this for. Typically I would give that person a re entry pass or modified fast pass of some sort so that instead of waiting in the regular line again they could go in the fastpass line. We deal with this a lot and most should be able to help you no problem. You don't have to go into a ten minute explanation. As you are leaving just say, "We had to take care of a medical problem and leave the line. Is there anyway we can avoid going back through the line?" Every ride with a fastpass entrance or height requirement will have a greeter. Most other rides do as well, believe, we are everywhere! You should be able to find a CM to help you.

Point is, get the GAC if you think you need it, but do not expect it to allow you to bypass lines- it does not. There are other ways to deal with the line issue. It can be scary not knowing what to expect, but you all will be fine. Good luck on your trip and have fun!

[Selket]

I'm also worried about the carb counting and having to guestimate my way through the entire 7 days....any suggestions on how you do that? Also, my endo and some moms from a support group we attend recommend the GAC card...but I'm not sure how to approach it with guest services....can you give me some guidance on how to explain why we need the card for my son?

I found that getting a Salter nutritional scale helped me a great deal in learning to eyeball portion sizes. With the scale you can set a bowl on it and pull up something like cooked pasta - and it will give you the carb count for however much of it you put in the bowl. It is preprogrammed for tons of foods like that - we use it all the time for pasta, rice, fruits, and to weigh cereal, milk, etc. This is the one I have: http://www.amazon.com/gp/product/B000JNU95Y

As for the GAC - for a late Feb. trip when the weather is cool and the crowds wouldn't be much I would not think you will need it so much. Of course, as the Zurg's say, YDMV (your diabetes may vary). I highly recommend a good touring plan - like Tour Guide Mike. I have been using his site since before my younger son was dx'd with type 1 (he was 26 months old) - he has been going to WDW with type 1 (and severe food allergies) since he was 3 yrs old. The thing that has really gotten him was the heat, combined with the exercise, excitement and the food. Heat seemed to be the worst of it. We seemed to have difficulties with the insulin in his pump losing effectiveness (he wore his pump on an undershirt on his back so it was especially warm perhaps). If you aren't pumping this may not be an issue.

If you want more info about getting a GAC I am happy to discuss it with you - I will PM you so that might let you use the PM system. You cannot get a GAC because of the diagnosis - it has to be for needs. I realize you don't know what those are at this point!

[buffettgirl]

and one more big tip (and I"m sure Carol & the Zurgs will agree) : you should definitely visit the forums at Children with Diabetes to get tons of great info and support for traveling with a child with D.
http://forums.childrenwithdiabetes.com/index.php

[Talking Hands]

ICK!!!!! ICK!!! ICK!!! No way. Testing and shots happen wherever we happen to be - the most unsanitary place is the bathroom. Blech.



We've never gotten a GAC for my son with diabetes. And we've had lows happen while in line. But you know, the lines move so slowly that we usually just have him sit on the ground and nosh on his glucose tabs and scoot along as the line is moving. by the time we are ready to ride his bg is back where it should be and we've lost nothing. We also carry all our supplies in a backpack and so everything we have is at hand. :)

WE also plan on lots of extra snacks. Those mickey bars hit the spot. :)

for carb counts - you can load the USDA's database onto your palm pilot and you can have good carb counts for most foods - may not be specific disney related but they're pretty good.

For the airplane - we put all of DS's supplies in one backpack and tell the screener what's in it. We've not had any trouble with juice boxes etc. We also pack supplies in all the other suitcases so taht if one suitcase gets lost we still have supplies.

Room fridges - they have been known to FREEZE insulin. There was one episode at a FFL conference were everyone had their insulin frozen. Get a frio and use it. :)

Most of all - ENJOY!!!!!!!!!!!!!
I have been a type 1 diabetic for 30 year and been going to WDW for the same length time several times a year. I the hotel room I do not refrigerate the insulin vials I am using. The extras I refrigerate but am sure to place them away from the freezer compartment. I have never had them frozen. In the cooler months I just place the insulin in a glasses case with a syringe and stick it in my bag. In summer I use a small cooler with a freeze pack and keep all my meds I will need in that. Toss that in the backpack or attach it with a caribiner clip.

I find that the CM at Disney are wonderful and very helpful if you let them know the situation. They will get you juice or a can of coke in a real pinch. Let them know what you need.

Oh and I never ever use the bathroom for my shots or testing. That is just plain nasty. No way, no how. If the person next to me is bothered they can turn away. Why are the looking anyway. It is none of their business.

[andrea2639]

As for the GAC - for a late Feb. trip when the weather is cool and the crowds wouldn't be much I would not think you will need it so much. Of course, as the Zurg's say, YDMV (your diabetes may vary). I highly recommend a good touring plan - like Tour Guide Mike. I have been using his site since before my younger son was dx'd with type 1 (he was 26 months old) - he has been going to WDW with type 1 (and severe food allergies) since he was 3 yrs old. The thing that has really gotten him was the heat, combined with the exercise, excitement and the food. Heat seemed to be the worst of it. We seemed to have difficulties with the insulin in his pump losing effectiveness (he wore his pump on an undershirt on his back so it was especially warm perhaps). If you aren't pumping this may not be an issue.

If you want more info about getting a GAC I am happy to discuss it with you - I will PM you so that might let you use the PM system. You cannot get a GAC because of the diagnosis - it has to be for needs. I realize you don't know what those are at this point!

Selket, I am unable to respond but I would like to learn more. My email is apt2639 at gmail dot com I would love to talk.

Thanks everyone!:beach: