Noah's Wish Trip (Wings ~ July 29, 2009)

[maroo]

Love it!!

I can tell that Noah was feeling pretty good on this day! :goodvibes I love to watch him giggle and smile so big!!!!

The private meet and greets look so AWESOME!

[pixidustmom]

I think this is my first post in your TR. I came in very late. Anyway, Noah sure looked so happy and much more alert than prior days. It really made me smile to see him so happy.

Side note, your family is so precious. Your such a strong woman as a mother has to be right? Noah is one special little guy with a great support team. You can see the love his bother and sister have for him. I am sorry you didn't get to stay the whole trip but the memories of the days you had will last a life time.
My sister had leukemia as a child. We were lucky to share in her wish to go to Hawaii. There are amazing people out there that are willing to help a child have a wonderful wish come true.

[maroo]

This is just a shameless bump...

I would add some popcorn...because I am hoping for more!! :) But I promised I would not add any popcorn to your TR! :) :hug:

[ndloewen]

Our special meet/greet with Cat in the Hat, Thing 1 & 2, and whoever that yellow guy is...ndloewen

I looked it up this morning. It seems that it is "Sam I am" from the green eggs and ham book.

Oh, yes! "Sam I am"! Thanks! :thumbsup2

this is by far one of my favorite updates to date. i am completely a disney girl, but noah just looks absolutely amazing thrilled in these pictures. i love it. every trip i say i will go to universal , it just hasnt happened yet, but seuss landing is quite appealing i think.

Oh, you have to try universal! No, it's not Disney...but it's fantastic in it's own unique way. I didn't think my kids would love it as much as they did. The Harry Potter Castle that they were working on looks like it will be amazing too. Can't wait to go back and see it. :)

Love it!!

I can tell that Noah was feeling pretty good on this day! :goodvibes I love to watch him giggle and smile so big!!!!

The private meet and greets look so AWESOME!

Yes, this was one of our really good health days. And I loved how they set up these private meet/greets.

I think this is my first post in your TR. I came in very late. Anyway, Noah sure looked so happy and much more alert than prior days. It really made me smile to see him so happy.

Side note, your family is so precious. Your such a strong woman as a mother has to be right? Noah is one special little guy with a great support team. You can see the love his bother and sister have for him. I am sorry you didn't get to stay the whole trip but the memories of the days you had will last a life time.
My sister had leukemia as a child. We were lucky to share in her wish to go to Hawaii. There are amazing people out there that are willing to help a child have a wonderful wish come true.

Thank you so much. Wow, Hawaii would be fantastic. :cloud9: If this had been MY wish to choose, that's where I would have gone!

This is just a shameless bump...

I would add some popcorn...because I am hoping for more!! :) But I promised I would not add any popcorn to your TR! :) :hug:

:rotfl: I'm still around...been a busy week with appointments. Maybe tomorrow I'll start working on more. Tonight I need a break...trying to get my head around going to Toronto Sick Kids for a while. We've been throwing around the idea for a while about going there for a second opinion, but I didn't want to go until after summer. I just really wanted a break. But today I was told by our surgeon that it is either now or never...she won't do surgery until we get another opinion. Just waiting on a date to go now...we could be there up to a month, away from the rest of the family! :scared1: So guess this is our next trip :sad1: I'm not looking forward to it...for my own selfish reasons...I just wanted a break from it all for a while. So I'm having a little pity party tonight. :sad2: But, as always, if that's what we need to do for Noah, then I will pick myself up by my bootstraps and we will get it done.

[WishMom09]

We LOVED Island of Adventure!
Sounds like y'all had fun too!
I LOVE the pic of Noah getting the thing's nose!!
He has the cutest smile! It just lights up his whole face!!
I can't wait to read more!!

[kdzbear]

I love the picture of Noah with the Coke can. I loved the new update! I am so glad Noah was having a good day on this day. It looks like you made some great memories! :yay:

[Eeyore's-tail-tack]

You sound like you and DH need a night to be alone. Here's hoping you get the peace of mind you are searching for. I hope all goes well with Noah. It is amazing the strength that you as a Mother have shown. You will get it back, you are just that kind of person. Until then, here :hug:.

[maroo]

:rotfl: I'm still around...been a busy week with appointments. Maybe tomorrow I'll start working on more. Tonight I need a break...trying to get my head around going to Toronto Sick Kids for a while. We've been throwing around the idea for a while about going there for a second opinion, but I didn't want to go until after summer. I just really wanted a break. But today I was told by our surgeon that it is either now or never...she won't do surgery until we get another opinion. Just waiting on a date to go now...we could be there up to a month, away from the rest of the family! :scared1: So guess this is our next trip :sad1: I'm not looking forward to it...for my own selfish reasons...I just wanted a break from it all for a while. So I'm having a little pity party tonight. :sad2: But, as always, if that's what we need to do for Noah, then I will pick myself up by my bootstraps and we will get it done.

Aw...I am so sorry! I am sure you have been really enjoying this semi-break from all of the things that you guys have been dealing with. Bless your heart!

I am sorry that you have to go away for that long. Toronto is far away!

Anyway...I am praying for you guys...especially you right now... that you will find some peace and feel better about all of this. Maybe they will shed some light on something you guys are not even aware of...(although you guys seem so well versed, you might teach them a few things!) ;)

Hang in there!!! :hug:

And don't worry about this TR! I just wanted it bumped so people will keep reading it and posting to it!! :) Your family deserves that and it is a great TR! :)

[MRNsMommy]

:rotfl: I'm still around...been a busy week with appointments. Maybe tomorrow I'll start working on more. Tonight I need a break...trying to get my head around going to Toronto Sick Kids for a while. We've been throwing around the idea for a while about going there for a second opinion, but I didn't want to go until after summer. I just really wanted a break. But today I was told by our surgeon that it is either now or never...she won't do surgery until we get another opinion. Just waiting on a date to go now...we could be there up to a month, away from the rest of the family! :scared1: So guess this is our next trip :sad1: I'm not looking forward to it...for my own selfish reasons...I just wanted a break from it all for a while. So I'm having a little pity party tonight. :sad2: But, as always, if that's what we need to do for Noah, then I will pick myself up by my bootstraps and we will get it done.

Just wanted to say that I'm praying for y'all...stay strong!

Loved this update! I would love to try and go to the Universal parks on our next trip. We just always run out of time! I might have to schedule it into our Dec. 2010 trip! I loved all the pics! You can really tell that this was a great day for Noah!

[eyor44]

Just wanted to say hello. :wave2: Love the pics and glad that Universal treated you all so well. We like Universal and IOA. They are different and we just keeping reminding ourselves that we aren't in Disney anymore. I'm really glad that they treat Wish families so well.

[ndloewen]

Just got a date for Toronto Sick Kids...they have a bed for him next tuesday!!:scared1::scared1::scared1: :scared1::scared1: (I needed a few of those for emphasis). Frantically trying to work out all the details. Originally it was for a week, now I have heard to expect a minimun of 2 weeks, probably longer. Very sad to be leaving my kids behind.

[Eeyore's-tail-tack]

My prayers go with you and your family.

[princesskelz]

Hugs to you and your family!:hug::hug:
still keeping you family in my prayers.


i loved your IOA update! its been FOREVER since i was in Universal Studios FL.:guilty:

[3princesses+aprince]

Hey, I've been following your pre trip and trip report, I just came on to see what was up!!! How is everything going? Everything Ok?

[twinmum]

Hello! I thought I'd pipe in with a little update on Noah - I know that Nichole is very busy, but she does post on her blog daily. Noah and Nichole have been here in Toronto for 19 days now, with Noah staying at the Hospital for Sick Children (aka Sick Kids). He's in great spirits and his health is good right now. And he is remarkably patient given all the tests and procedures and therapy he's having. Nichole has been staying at Ronald McDonald house. A little over a week ago, Noah had some surgery, mostly exploratory to check out the "real deal" on his stoma and anatomy around the stomach, and a biopsy related to some other tests.

They are hoping for biopsy results early this week so that perhaps some additional OR time can be available later in the week. If not, Noah and Nichole will likely return to Winnipeg and return at a later date for surgery.

While I think Nichole has been quite pleased with the team at Sick Kids, it's pretty lonely without Brad and the kids. Noah usually gets day passes on the weekends, so they have explored Toronto a bit. I had the pleasure of meeting them both and hope to see them again.

So there, in a nutshell, is the scoop!

Alison

[maroo]

URGENT Prayer Request...


NOAH is in the hospital and does not sound well...

Here is his blog...

Please, please pray for Noah and his family.

http://noahgrantjohn.blogspot.com/

[oklamomof4boys]

URGENT Prayer Request...


NOAH is in the hospital and does not sound well...

Here is his blog...

Please, please pray for Noah and his family.

http://noahgrantjohn.blogspot.com/

Maroo- thank you so much for posting this. I hadn't checked their blog in a week. We are certainly praying for that precious boy and their entire family. Maroo, you are such an asset to all the wish families- God bless you!

[DisneyMom5]

Thanks for posting that here! I forget to check blogs, but I get notifications here. Praying!

[princesskelz]

Thank you Maroo for posting this
praying for the family and little Noah:guilty:

[maroo]

This precious boy has beaten the odds no less than 4 times since I have "known" them last year. Christmas, January, February and on the way home from his Wish trip.

I know he must be really tired. He does not seem to be responding to the things he normally responds to.

Here is the last update in the words of his Mom and then his Dad...

Please, please pray for all of them!! :grouphug:


Things are rough here...we are living hour to hour...things are still critical. The night was very rocky with worsening blood gases. Noah is proving to be very difficult to ventilate. His asthmatic issues really complicate things, causing these long, forced expirations, that do battle with the breathes the ventilator is trying to give him. Ketamine has been added to his ever growing list of drugs to help with the asthmatic issues, as well as lots of ventolin. Many ventilator changes to try and find a happy place for Noah, but we still don't seem to be there yet. Gases are still bad, but not worsening this evening. Noah's blood pressure has begun to drop...he recieved more albumin and a dopamine infusion was started. He is still spiking crazy high fevers and his kidneys are not functioning well. Nothing has grown so far on any of the cultures and H1N1 results won't be back until tomorrow. So really, not definative diagnoses yet other than ARDS (acute respiratory distress syndrome).

Line access, as always, has been a major issue again, as Noah is needing more and more meds. Since our central line is only a single lumen and Noah needs that for his TPN, more access was quickly needed. The docs managed to get a double lumen PICC line in his femoral vein, but because of so much scarring, were unable to thread it much. Hopefully it will at least buy us some time.

Praying once again for another miracle.

(Update: 2:00 am July 29 ... Nichole called me (Brad) in early this morning because Noah was going downhill very fast. The Doctors were not sure if he would make it through the night. Noah is currently on medication to sustain his blood pressure and effective heart beat, he is also on the oscillating ventilator and kidneys have shut down. More updates to come as there are any.)

[VroomVroomLightning]

I was just getting ready to come on here and update everyone. This family needs a lot of prayers right now.:grouphug:

[Figment73]

We are praying for little Noah. May god bless this family. You are in our thoughts and prayers.

[Lynn5700]

Sending prayers to precious Noah, and your family.:grouphug:

[Applemomma]

praying hard here.......come on Noah, you can do it.

Nicole and Brad, just know that so many of us are lifting you up to God. :grouphug:

[maroo]

Thank you all so much for praying for this precious family!!!!!!!


Please keep praying and spread the word.


Nichole - we love you guys. :grouphug: :grouphug: :grouphug:

[Feralpeg]

Praying for another miracle for little Noah!

[saveaquarter]

Noah is in our thoughts and prayers. Hang in there little guy. :grouphug:

[maroo]

URGENT Prayer Request...


NOAH is in the hospital and does not sound well...

Here is his blog...

Please, please pray for Noah and his family.

http://noahgrantjohn.blogspot.com/

This precious boy has beaten the odds no less than 4 times since I have "known" them last year. Christmas, January, February and on the way home from his Wish trip.

I know he must be really tired. He does not seem to be responding to the things he normally responds to.

Here is the last update in the words of his Mom and then his Dad...

Please, please pray for all of them!! :grouphug:


Things are rough here...we are living hour to hour...things are still critical. The night was very rocky with worsening blood gases. Noah is proving to be very difficult to ventilate. His asthmatic issues really complicate things, causing these long, forced expirations, that do battle with the breathes the ventilator is trying to give him. Ketamine has been added to his ever growing list of drugs to help with the asthmatic issues, as well as lots of ventolin. Many ventilator changes to try and find a happy place for Noah, but we still don't seem to be there yet. Gases are still bad, but not worsening this evening. Noah's blood pressure has begun to drop...he recieved more albumin and a dopamine infusion was started. He is still spiking crazy high fevers and his kidneys are not functioning well. Nothing has grown so far on any of the cultures and H1N1 results won't be back until tomorrow. So really, not definative diagnoses yet other than ARDS (acute respiratory distress syndrome).

Line access, as always, has been a major issue again, as Noah is needing more and more meds. Since our central line is only a single lumen and Noah needs that for his TPN, more access was quickly needed. The docs managed to get a double lumen PICC line in his femoral vein, but because of so much scarring, were unable to thread it much. Hopefully it will at least buy us some time.

Praying once again for another miracle.

(Update: 2:00 am July 29 ... Nichole called me (Brad) in early this morning because Noah was going downhill very fast. The Doctors were not sure if he would make it through the night. Noah is currently on medication to sustain his blood pressure and effective heart beat, he is also on the oscillating ventilator and kidneys have shut down. More updates to come as there are any.)


Just bumping this to the last page - will update more as I know...

[VroomVroomLightning]

(Update: 12:00 pm July 29 ... This morning at around 9:00 Noah's blood pressure dropped to a critical low and he went into Cardiac Arrest. There was very little the doctors could do except some last effort medications. After almost 2 minutes, Noah (and God) had his own plan and returned to spontaneous circulation. He is still fighting and will have a tough day ahead. Thank you for all the prayers... God is real, he is listening, and answering...)



This is the latest update from their blog. Keep this family in your prayers! :grouphug:

[HeatherSue]

We're all praying for little Noah and his family. :grouphug:

[kimmylaj]

praying really hard

[Applemomma]

I was in tears all afternoon at work thinking about Noah. I was dreading checking for updates when I got home but I'm so thrilled to see that miracle.....keep 'em coming please God!!!! Here come the tears again......

[GoofieRuthie]

RIP Noah.

From her blog.

Wednesday, July 29, 2009
Wings
It is with great sadness and a heavy heart that I write this blog.

Noah earned his wings today. Just after 2pm this afternoon he went to be with Jesus.

No more tubes...no more pain...he is whole.

[aspen37]

RIP Noah.

From her blog.

Wednesday, July 29, 2009
Wings
It is with great sadness and a heavy heart that I write this blog.

Noah earned his wings today. Just after 2pm this afternoon he went to be with Jesus.

No more tubes...no more pain...he is whole.

Thank you for the update.

RIP Noah! :sad1: No more suffering.

[tnmom25]

:sad1:

[Applemomma]

:sad1: words are so inadequate right now

[Renysmom]

May the love and happiness that Noah brought to you these past 3 years sustain you and comfort you over this time of loss.

Your right, there is a new angel today and there is no doubt in my mind that his name is Noah.

[maroo]

:sad1:

no words

[VroomVroomLightning]

I just got home and went right to their blog. Noah is now with God and he is in no more pain. :sad2: This family will continue to be in my prayers.

[christinou]

I am so very sorry for you and your family....

[DebIreland]

:( My sincere condolences Nichole, Brad, Kailyn and Joshua. Rest in Peace beautiful Noah. :angel:

[purplepeg]

My heartfelt condolences to your beautiful family:sad1: There really are no words to say.

[Lynn5700]

:( I'm so sorry. RIP little Noah.

[llurgy]

:( So Sorry, RIP Noah

[Britgirlus]

Oh, Noah, I am so very sorry little guy. My thoughts and prayers are with the whole family - your little angel is now at peace.

[princesskelz]

no no no no! this cant be true:sad1:
:guilty::guilty::guilty::guilty:
words cant express how i feel right now. this is awful!
R.I.P Noah.
God bless the family. Me and my family are thinking of you guys right now:hug:

[WebmasterCorey]

I just want to send my thoughts and prayers to Noah's family. It was truly an inspiring story. I added a new angel to the DIS in memory of Noah. :littleangel:

[DisneyBrideToni]

My condolences to your entire family. RIP Noah. :angel::littleangel:

[sherabby]

I am so sorry for your loss. Your family will be in our thoughts and prayers. Noah is no longer suffering.

[RunningGirl]

So sorry - inadequate words. You are all in my prayers. :littleangel:

[VroomVroomLightning]

:littleangel: Noah will now be with us always here on the Dis....I have kept this family in my prayers and will continue to for many days to come.

[Figment73]

I am so sorry for the loss of little Noah:littleangel:. He was a beautiful little man. May God bless you in your time of need. I am thinking about you and your family and still praying for you.:littleangel:

[woodleygrrl]

I starting reading your report yesterday and I just wanted to say thank you for sharing your story with all and that I am very sorry for your loss.

Jennifer

[Clutterbug]

I have followed your TR and blog on and off and have been inspired by the stregnth of your family and little Noah. His smile is such a bright light and it will now shine down over us from Heaven. :littleangel: I will continue to pray for peace for your family.

[2trips06Mom]

I followed Noah's Wish Trip report and his blog for a while now. I'm saddened to hear of Noah's passing. He truly was an angel :littleangel: with such a beautiful smile. He seemed to bring such brightness and joy to everyone. I'm wishing his family condolences and strength at this time.

[qcmommy]

Your family is in my thoughts and prayers.:hug:

[Laurycurr]

Thoughts and prayers go out to all of you and those who got to know Noah. May you find peace.:littleangel:

[PrincessCaitlin]

I just wanted to send my condolensces to Noah's family and let them know they are in my prayers

I also wanted to thank them for sharing Noah's story on the Disboards he inspired me to start helping out with the Big Give and for that I am so thankful

[maroo]

There are many of you guys asking me for a way to honor Noah and his family...

We have several ideas, but would love some input from you guys...


If you are interested in participating this, please check out this separate thread...

Honoring Noah (http://www.disboards.com/showthread.php?p=32942485)

[bubie2.5]

My condolences to his family.

[DWGal210]

:littleangel: My heart and prayers are for your family. :hug:

[AuntRoeRoe]

Rest in peace Noah. Heartfelt condolences to Noah's family. :grouphug:

[Jenvenza]

I just started reading this thread today and my emotions were up and down throughout the whole thing and I could not be sadder to hear that Noah passed. I have no words. I am so deeply sorry. :sad1:

[Tink's Pixieduster]

My most heartfelt condolences and thanks to this very special family for sharing Noah's journey with us.

God bless.

[DisneyMom5]

I am so sad. Praying for your family!

[VroomVroomLightning]

I have been following along with this family ever since they came on to the Dis. Any help that I can give I will give if possible!

[crashbb]

Condolences to the whole family.

Rest easy Noah.

[robinb]

Nichole, I am sorry for your loss {{hugs}}.

[baby1disney]

I just wanted to say that I'm so sorry for your loss!! I actually just happened to stumble across this story today. I didn't read all 38 pages, but I know maroo a lil bit and I remember her talking about Noah. PLus...my nephew's name is Noah!!!:goodvibes

I have sat here at work and lost it!!!:sad1: I'm so, so, so, so, so sorry for your loss!!! I know he was the light of everyone's eyes and heart around him. PLease know that you have the WHOLE DIS COMMUNITY behind you. As you can see, we all are attached to this little man...even if we have never met.

:cloud9:GOD BLESS YOU AND YOURS AND YOU WILL BE IN MY PRAYERS TONIGHT!!!! YOU AND YOUR FAMILY ARE VERY INSPIRING TO THE REST OF US!!! :cloud9:

TO everyone else: This just goes to show just EXACTLY how precious LIFE is!!!:hug: WHoever you love/adore/like in your life, please let them know!! You never know what tomorrow may bring!! I'm glad this little angel got to experience some of the best things in this world and the kindest people he and his family could find!! I'm going to hug my DS extra special tonight as well as DH!!

:littleangel:Precious Noah:littleangel:

[mainegal]

Noah was a blessing to all who knew him.
Godspeed to you, Noah!

[toystoryduo]

A friend of mine posted the information about Noah this morning and I came over here to read your report. I am so sorry for your loss. :sad1: May God bless you and give you His strength and peace at this difficult time. We are praying for you and your family.:grouphug:

:littleangel:

[Dani C]

My prayers are with you all. :littleangel:

[peanut1967]

My thoughts are with you. there is so much I want to express but dont know how to.

[Piglets Mommy]

My prayers are with you at this difficult time. May God Bless you.:angel:

[mamaminnie]

I am so sorry for your loss. Our thoughts and prayers are with your family.:hug:

[rpbear]

My thoughts and prayers are with you and your family. I am sorry for your loss.

Lucy

[macntosh]

Hey guy's I posted on the blog and I know it's been a while since I've been on here, but I'm glad we got to spend some time with y'all at GKTW. You are one of thes families ours will never forget. God Bless!

[ClareH37]

I am so sorry, you will be in my prayers. God bless Noah. x

[tlinus]

I just started on this yesterday, but wanted to pass along my heartfelt condolences to your family. Noah :littleangel: was and still is a beautiful little man. You are in my thoughts and prayers and may you be calmed and comforted knowing he is at peace. No more pain.

[Dreamer04]

I believe that God picks special people to be parents of special children.

Noah was as blessed to have you, as you were to have him.

Free of pain, now and walking hand in hand with Jesus....he'll always look out for you.

Your family is in my prayers.

[HeatherSue]

I'm so sorry. :hug:

Little Noah touched many hearts, including mine. :sad1:

[ptcrn]

I was so sorry to hear this sad news. I have read through a little of this thread and Noah was a beautiful and special little boy.

Your family is in my prayers. :hug:

[Nancyg56]

I am so sorry. Little Noah is in my prayers. :hug: Praying for strength for your family as well.

[MouseTriper]

:littleangel: Oh my heart is breaking for all of you. It was heart wrenching to read about Noah passing away. I am so sorry. He was a beautiful child and is now a beautiful angel. My heart goes out to you all, many prayers and thoughts coming your way. Bless your little heart Noah!!!:littleangel:

[Avalon_toon]

I am so sorry for your loss, I found your blog only today, but I can see he was truly a miracle and a blessing. P&PTs for your family...

[ndloewen]

Thank you all for your many prayers and kind words. This morning I felt drawn back to the boards where we have such special memories. I am overwhelmed. We were all so touched by the special angel smilie face. Our hearts are broken.

I am so lost without my sunny little boy.

[VroomVroomLightning]

Thank you all for your many prayers and kind words. This morning I felt drawn back to the boards where we have such special memories. I am overwhelmed. We were all so touched by the special angel smilie face. Our hearts are broken.

I am so lost without my sunny little boy.

Your family will be in our continued thoughts and prayers. :grouphug:

[MouseTriper]

Thank you all for your many prayers and kind words. This morning I felt drawn back to the boards where we have such special memories. I am overwhelmed. We were all so touched by the special angel smilie face. Our hearts are broken.

I am so lost without my sunny little boy.

I am so sorry, my heart aches for all of you. Our thoughts and prayers will remain with you. May God help you through this very difficult time. :littleangel:

[Wis2InTink]

Little Noah touched my heart, and now it aches for you and your family. You
have my sincere sympathy. Thank you for sharing your family with us.
Ruth in Indiana :littleangel:

[tinytreasures]

I am so sorry for your whole family

I feel so lucky we got to meet Noah and your sweet family at GKTW we will never forget him or you:hug:

[KathyRN137]

http://i145.photobucket.com/albums/r215/masonsmuhmuh/Jesus-Children-14.jpg

Jesus loves the little children



:littleangel: My heartfelt condolences to you and your family,



Kathy

[pixidustmom]

My heart is broken over you loss. I know he is now in a beautiful place running around playing and laughing. May you and your family find some peace in such hard days. My prayers and thoughts are with you.

[IBelieveInTheMagic]

I have such a heavy heart after reading your sad news. Words can't express how terribly sorry I am for you and your beautiful family. I read along with your trip report and thought what a remarkable child Noah was and you were as a family for everything you endured. My thoughts are prayers are with you and your family...:grouphug:

Heather

[maroo]

There are many of you guys asking me for a way to honor Noah and his family...

We have several ideas, but would love some input from you guys...


If you are interested in participating this, please check out this separate thread...

Honoring Noah (http://www.disboards.com/showthread.php?p=32942485)


Also...have you guys seen the recent pics on Noah's blog...

:littleangel:

[VroomVroomLightning]

[SIZE="3"]

Also...have you guys seen the recent pics on Noah's blog...

:littleangel:


Yes I did! They were too precious. :littleangel:

[Queenofallthings]

I started reading your report today...I have no words....my heart is breaking for all of you:hug:

You will be in our thoughts and prayers:littleangel: Thank you for sharing your story with us.....:angel:

[IDoDis]

http://i145.photobucket.com/albums/r215/masonsmuhmuh/Jesus-Children-14.jpg

Jesus loves the little children



:littleangel: My heartfelt condolences to you and your family,



Kathy


Awww, this little guy looks a lot like Noah.

I'm so very sorry to hear of your precious son's passing. What a wonderful gift you were given and what a wonderful gift it will be when one day you will be with him again in heaven.

[Plantlady]

I'm so sorry for your loss. Your family will be in my prayers.:littleangel:

[bigbabyblues]

There is nothing I can add that hasn't been said, but I wanted to say I'm so very sorry and your family is in my prayers.

[Cafeen]

I just wanted to stop by and offer my own condolences as well. Just found this yesterday and was touched by the story, the ups and downs and the strength of the family are astounding.

You, your family, and everyone who has been touched by this story are deeply in my thoughts.

[miprender]

I had posted a few months ago when I stumbled upon your TR. The name Noah caught my eye because I have a little Noah too.

:littleangel: I am so sorry for your loss. His smile was so precious that he will be truly missed but his memory never forgotten.:sad1:

[chrisw127]

I am so sorry for your loss.

My thoughts are with you and your family.

[AmandaSparks730]

I'd been wondering who this little Noah was, having had read about him on the Community Board.

In order that I read this TR:

1) I'm a former Wish Kid myself :)

2) GKTW has changed a lot since my Wish Trip! I went with Make-a-Wish in 1999, and the movie theater was JUST being built. No mini-golf, no train, no spa, no pillow-machine (darn!)...just the House of Hearts, the carousel, the Castle of Miracles, Gingerbread House, and Amberville.

We went in December, so it was already set up for Christmas, but the celebration looks fantastic :)

It looks so much better now! Ahh, to be 6 again (the age I was when I took the trip).

10 years later, I am 16 years old, and feel so lucky to have gone!

Maroo, you are so lucky to work at such a lovely place :hug:

3) My deepest sympathies for your loss. I feel terrible, he died the day before my birthday. :(

I lost a dear friend to an accident this past May.

The pain lingers, but time heals :hug:

[FormrCastMbr]

I would like to offer my sincere condolences to your Family...thank you for sharing your darling son with us. His smile is one that I will always remember. :littleangel:

I will be making a donation to GKTW in memory of Noah...

My continued prayers for all of you.

[daisy2]

Just wanted to send my condolences to your family. The pictures are adorable of your family. Noah is truly and angel sent down by god to enter to your heart and make you believe in miracles and make you love and cherish every little bit of love Noah gave to you and this world. You were lucky to have Noah touch your heart and make you smile and bring sunshine to you. God Bless you and your family. My prayers and sympathy go out to you and hope this brings you comfort in your days ahead.

God Bless,
Bonnie

[Scot-n-Michelle]

Our thoughts and prayers go out to you and your family. I am so-- sorry for your loss. :grouphug:

[Kitty 34]

Thank you for sharing Noah with us. :hug: So sorry for your loss. :sad1:

May GOD Bless little Noah and your family.

[mousebymarriage]

I am so sorry for the loss of your sweet little Noah. My thoughts and prayers are with you and your family during this very difficult time.

[jacksmom]

I am so,so sorry for your loss! Thank you for sharing his wonderful story. I can only imagine how much you miss him. May God give you peace.

[SunnieRN]

I am so sorry for your loss. May God give you a peace that transcends all understanding.:grouphug:

[ellie+finnsmum]

I just read your story about your gorgeous boy Noah - I am so sorry he had to leave you so soon - you were such a devoted family to an amazingly brave little boy.

Our thoughts are with you

[DebbieinWA]

I am so sorry for your loss. I just found your trip report today. Noah was a beautiful child. My thoughts and prayers are with you and your family.

[burly]

It is with a heavy heart that i send my condolences to you and your family.
Bless you and may God give you peace.

[VroomVroomLightning]

I just wanted to let everyone know that there are some very moving videos on Noah's blog. Such a sweet little boy with a big smile. :littleangel:


http://www.noahgrantjohn.blogspot.com/

[MouseTriper]

I just wanted to let everyone know that there are some very moving videos on Noah's blog. Such a sweet little boy with a big smile. :littleangel:


http://www.noahgrantjohn.blogspot.com/

:littleangel: I agree....the video memories of Noah are absolutely beautiful. You can hear Noah's laughter and it is music to your ears. His smile just lights up the world. :littleangel:

[ndloewen]

Thank you all for your prayers, cards and just for caring. I am devastated and heartbroken...these days have been incredibly painful and I have no clue where to go from here. Nothing can prepare you for the emptiness the loss of a child brings. It gives me some comfort to know that so many of you care and that Noah touched so many lives. Thanks.

[MouseTriper]

Thank you all for your prayers, cards and just for caring. I am devastated and heartbroken...these days have been incredibly painful and I have no clue where to go from here. Nothing can prepare you for the emptiness the loss of a child brings. It gives me some comfort to know that so many of you care and that Noah touched so many lives. Thanks.

Oh Nichole, I am so very sorry. I can not imagine anything worse than losing a child. My heart breaks for your sorrow and for the emptiness you now feel without your sweet Noah. He truly has touched so many lives, mine included, and I know I will never forget your little Noah. Many hugs, thoughts and prayers to you!

[llurgy]

Thank you all for your prayers, cards and just for caring. I am devastated and heartbroken...these days have been incredibly painful and I have no clue where to go from here. Nothing can prepare you for the emptiness the loss of a child brings. It gives me some comfort to know that so many of you care and that Noah touched so many lives. Thanks.

:sad1::sad1::littleangel:
So Sorry. As your videos say so eloquently "He is now Free" but you are still here and missing him so much. After what we went through a few months ago with our Becca and nearly losing her, I really feel for you and your family. I will always remember your "Peanut" and his wonderful smile.

Love
Mandy

[Mom2apirate&princess]

I'm so sorry for your loss.

[kdzbear]

Nichole,

I am so sorry for your loss. My family loved hearing about Noah and his trip. Even my husband read along. He will be missed. I wish I had some words that would be comforting. I am so sorry! :grouphug:

[DebIreland]

Oh Nichole. I can't begin to imagine the pain you are in. Wishing you continued strength as time goes on. :hug:

[aheape1979]

My prayers are with you and your family. Your faith and strength are an inspiration. May you find peace knowing he is in the arms of the One who made him, and is patiently waiting until you one day join him in paradise!

[DebIreland]

Just bumping this Nichole to let you know that you are still in our thoughts - and your beautiful angel Noah is too. :littleangel:

If you need to vent, scream, cry or just talk we are all here. :hug:

[Applemomma]

If you need to vent, scream, cry or just talk we are all here. :hug:

I second that Nicole....use us......rant here...scream here....we will try and help you through this. You can say things to us that you may not want to say to your family, your friends....we will love you through this.

[maroo]

I just want all of you guys to know that over $600 was donated to Give Kids the World in Noah's memory.

Enough to donate a Paver in Noah's Memory (which was ordered today!) and for two other children!

Those of you guys that donated will get an official letter of thanks from Give Kids the World. But I also want to thank you all, too....Give Kids the World is a wonderful place!

[DebIreland]

Enough to donate a Paver in Noah's Memory (which was ordered today!) and for two other children!

That's wonderful. :hug:

[FormrCastMbr]

I just want all of you guys to know that over $600 was donated to Give Kids the World in Noah's memory.

Enough to donate a Paver in Noah's Memory (which was ordered today!) and for two other children!

Those of you guys that donated will get an official letter of thanks from Give Kids the World. But I also want to thank you all, too....Give Kids the World is a wonderful place!

Thank you so much for the update...I did receive a letter from GKTW and will continue to donate when I can. Noah and his family continue to be in my thoughts and prayers. :littleangel:

[llurgy]

I just want all of you guys to know that over $600 was donated to Give Kids the World in Noah's memory.

Enough to donate a Paver in Noah's Memory (which was ordered today!) and for two other children!

Those of you guys that donated will get an official letter of thanks from Give Kids the World. But I also want to thank you all, too....Give Kids the World is a wonderful place!

Wow!! Do we know whom the other pavers are going to be donated to or is that up to GKTW. Jonah comes to mind is all :(

[teresajoy]

Wow!! Do we know whom the other pavers are going to be donated to or is that up to GKTW. Jonah comes to mind is all :(

I think Jonah is a must. He was such a special little guy too. :hug:

[MouseTriper]

I think Jonah is a must. He was such a special little guy too. :hug:

I agree...I think a special paver for Jonah would be amazing too.

[MousekaMaddi]

I so enjoyed traveling with your family via my computer, your little Noah was a joy to behold. Its wonderful that you have sooooooooo many spectacular photos for you and your family to enjoy. Thank u for sharing your lil tigger with us, he will be in the hearts of many of us always! Thinking of you all and sending our deepest sympathies. Heaven is so lucky to have him!!!:flower3:

[HeatherSue]

Wow!! Do we know whom the other pavers are going to be donated to or is that up to GKTW. Jonah comes to mind is all :(

I agree, it would be wonderful if we could do something like this for sweet little Jonah, too.

[ndloewen]

Thank you all for your kind words. I am so touched that there will be a paver in Noah's memory. And we hope to be able to go see it in December. In the spring we made plans to go to Disneyland. That was supposed to happen next week. But we have cancelled the trip. There is no way I could go, after having planned it all around Noah. Thankfully our kids never knew about it.
Hopefully we will be able to emotionally handle a trip by December.

I am so very thankful that Noah was able to have his wish...that we were able to have that amazing time together. Hopefully someday I will be able to sit down and finish this trip report, before I start to forget all those wonderful memories. I had wanted to wait until November to go, since Noah would be a bit older. But my hubby urged me to do it right away, just in case something happened. I just never imagined that this would really happen. I never imagined we would lose Noah this summer.

Of course, losing Noah was always a possibility. It was the whole reason we were granted his wish. But he was such a fighter. I always thought we'd get "just one more miracle"...just one more time. I don't know why we didn't get our miracle this time. I don't understand it. I hate that this is our new reality. I don't remember how to live and breathe without my son. But I cling to His promises, believing that there is a greater plan and a greater purpose that we cannot see. And somehow, that helps me get through each long, lonely day.

[kdzbear]

Nichole,

My oldest still asks lots of questions about Noah. She followed him so closely on your trip report since he is little like Tyler. This past weekend we lost our 14 year old cat to a tragic accident in the garage. Bre is not understanding why the cat had to die. I told her that Noah was lonely in heaven and he needed a pet. I hope this is ok. She felt like she knew Noah and the fact that her beloved cat has a sweet child to care for her helped to ease the pain. I am amazed that you can still come to the boards and post. I know that your world revolved around Noah and hopefully someday you will realize his purpose. I think he touched many lives on his short time on this Earth. We will miss him greatly even though we never had the chance to meet him in person. Our prayers are still with you and your family. :grouphug::grouphug::grouphug:

-Kristin

[MouseTriper]

Thank you all for your kind words. I am so touched that there will be a paver in Noah's memory. And we hope to be able to go see it in December. In the spring we made plans to go to Disneyland. That was supposed to happen next week. But we have cancelled the trip. There is no way I could go, after having planned it all around Noah. Thankfully our kids never knew about it.
Hopefully we will be able to emotionally handle a trip by December.

I am so very thankful that Noah was able to have his wish...that we were able to have that amazing time together. Hopefully someday I will be able to sit down and finish this trip report, before I start to forget all those wonderful memories. I had wanted to wait until November to go, since Noah would be a bit older. But my hubby urged me to do it right away, just in case something happened. I just never imagined that this would really happen. I never imagined we would lose Noah this summer.

Of course, losing Noah was always a possibility. It was the whole reason we were granted his wish. But he was such a fighter. I always thought we'd get "just one more miracle"...just one more time. I don't know why we didn't get our miracle this time. I don't understand it. I hate that this is our new reality. I don't remember how to live and breathe without my son. But I cling to His promises, believing that there is a greater plan and a greater purpose that we cannot see. And somehow, that helps me get through each long, lonely day.

Oh Nichole, my heart aches for you and your family. I wish you could have had "just one more miracle" too....oh how I wish that could have been true. I am so sorry! Oh I am so glad that you did not want for Noah's Wish Trip. I just know that trip and that time together as a family will be something you all cherish and remember forever. I am so thankful that you have all those memories of Noah. Noah is always in our thoughts and prayers!!

Hugs!
Beth

[maroo]

Thank you all for your kind words. I am so touched that there will be a paver in Noah's memory. And we hope to be able to go see it in December. In the spring we made plans to go to Disneyland. That was supposed to happen next week. But we have cancelled the trip. There is no way I could go, after having planned it all around Noah. Thankfully our kids never knew about it.
Hopefully we will be able to emotionally handle a trip by December.

I am so very thankful that Noah was able to have his wish...that we were able to have that amazing time together. Hopefully someday I will be able to sit down and finish this trip report, before I start to forget all those wonderful memories. I had wanted to wait until November to go, since Noah would be a bit older. But my hubby urged me to do it right away, just in case something happened. I just never imagined that this would really happen. I never imagined we would lose Noah this summer.

Of course, losing Noah was always a possibility. It was the whole reason we were granted his wish. But he was such a fighter. I always thought we'd get "just one more miracle"...just one more time. I don't know why we didn't get our miracle this time. I don't understand it. I hate that this is our new reality. I don't remember how to live and breathe without my son. But I cling to His promises, believing that there is a greater plan and a greater purpose that we cannot see. And somehow, that helps me get through each long, lonely day.

I still have no words.

We love you so much and are praying for your whole family each and every day.

:grouphug: :grouphug: :grouphug: :grouphug: :grouphug::grouphug:

[maroo]

Wow!! Do we know whom the other pavers are going to be donated to or is that up to GKTW. Jonah comes to mind is all :(

I think Jonah is a must. He was such a special little guy too. :hug:

I agree...I think a special paver for Jonah would be amazing too.

Yes! Jonah is definitely the third child we want to do...but I don't have contact information for them and she has not answered my PM. (Which does nto surprise me, I don't think she is on much.) Does anyone have an email? If so, PM me so I can email her.

We are doing Noah (of course) and Alize (alizesmom). Alize was one of the first children to go on a wish trip on the wish trippers thread.

We have also raised another $670 (so far) for MORE pavers...so we should be able to take care of any child (my goal is $2000 - but won't stop there!) that passes away that was a GKTW child.

[Madisonsmom45]

Nicole and family,
What a beautiful child. I just came across your report and read everything.
I watched the videos of your child, and even if I do not know you and your family, my heart was touched and I will never be the same for reading the journals you have created. You and your family were truly blessed to have Noah in your lives. My prayers are with you and your family.
Thank you for sharing this incredible journey with us.

Bonnie

[ndloewen]

It's been a while, but I've been lurking on the boards alot lately, and felt the need today to post.

It's been 2 months since our world crashed down around us. We are still just trying to keep our heads above water. I hate the reality of our lives...the loss of everything that was Noah.

I am still so very lost. :sad1:

We have booked a return trip to Disney for November 26-December 9th. We all have such a longing to go back to the place that holds so many memories...to visit GKTW and see Noah's paver. (And free dining was a good motivator to book). The plan is to spend the first few days at Cocoa Beach, and then head to the CBR on the 29th. I have mixed emotions about the trip as it will be a very, very different trip. Praying that it will be an enjoyable time for our family, and that I won't spend the WHOLE trip in a puddle of tears.

A huge thank you to those of you who have sent emails, cards and little gifts recently. How they brighten up the day, and remind us that Noah is not forgotten. I hope to get back to this trip report soon, before all the little details are forgotten.

[maroo]

Huge cyber hug to you, my friend!

:grouphug:

We love you!

[kdzbear]

It's been a while, but I've been lurking on the boards alot lately, and felt the need today to post.

It's been 2 months since our world crashed down around us. We are still just trying to keep our heads above water. I hate the reality of our lives...the loss of everything that was Noah.

I am still so very lost. :sad1:

We have booked a return trip to Disney for November 26-December 9th. We all have such a longing to go back to the place that holds so many memories...to visit GKTW and see Noah's paver. (And free dining was a good motivator to book). The plan is to spend the first few days at Cocoa Beach, and then head to the CBR on the 29th. I have mixed emotions about the trip as it will be a very, very different trip. Praying that it will be an enjoyable time for our family, and that I won't spend the WHOLE trip in a puddle of tears.

A huge thank you to those of you who have sent emails, cards and little gifts recently. How they brighten up the day, and remind us that Noah is not forgotten. I hope to get back to this trip report soon, before all the little details are forgotten.

I am glad to hear you are planning a trip back. We miss hearing about little Noah's journeys, but I bet he is on a more important one right now. Your trip misses Tyler's Wish trip by one day. We go home on the 25th. Our family would have loved to have met yours! :grouphug:

[MouseTriper]

It's been a while, but I've been lurking on the boards alot lately, and felt the need today to post.

It's been 2 months since our world crashed down around us. We are still just trying to keep our heads above water. I hate the reality of our lives...the loss of everything that was Noah.

I am still so very lost. :sad1:

We have booked a return trip to Disney for November 26-December 9th. We all have such a longing to go back to the place that holds so many memories...to visit GKTW and see Noah's paver. (And free dining was a good motivator to book). The plan is to spend the first few days at Cocoa Beach, and then head to the CBR on the 29th. I have mixed emotions about the trip as it will be a very, very different trip. Praying that it will be an enjoyable time for our family, and that I won't spend the WHOLE trip in a puddle of tears.

A huge thank you to those of you who have sent emails, cards and little gifts recently. How they brighten up the day, and remind us that Noah is not forgotten. I hope to get back to this trip report soon, before all the little details are forgotten.

Oh Nichole, my heart still aches for all of you. Not a day goes by that I do not think of your sweet little Noah! Noah truly touched so many hearts and he will NEVER be forgotten!!!!!!! I can't even imagine all you must be going through. I'm happy to hear that you have this trip planned. I hope you are able to smile thru the tears when the memories of Noah at Disney come flooding back. I'm so glad that Noah got his Wish trip and that you all had that time as a family. My thoughts and prayers are with you!:littleangel:

[Applemomma]

There isn't too many days that go by that I don't think of Noah or check your blog to see how you're doing. :hug: I'm so glad to hear you are planning a trip. It gives you something to head towards. I'm sure the trip will be difficult and different in many respects but remember you are allowed to have tears .... and you are allowed to smile; remember that too.

Keep breathing and know we're here for you.

[Piglets Mommy]

I am happy to see that you are planning a trip in December. i'm sure it will be a bittersweet one, but I know that you will find comfort in the Disney magic.:grouphug:

[twinmum]

Nichole: I think of you daily, and just wish we could all bear some of your pain. Yes, it will be a difficult trip, but I am glad that you are planning some time together. Hopefully this time at WDW will rekindle the happy memories of Noah's Wish Trip. And, most certainly, the Disney magic will bring some measure of happiness to you all.

[eyor44]

Nichole
I think of Noah often and pray that you and your family are doing okay. I too wish you the best and hope you all have a wonderful trip full of wonderful memories. :goodvibes

[Wis2InTink]

Nichole,
My daughter and I will be at CBR the same week. Thank you for sharing your story with us. I sincerely hope that your writing is good therapy for you during this difficult time. :grouphug: This trip is something that your family can look forward to. :littleangel:

[carrie6466]

I followed your trip report as well, even though I didn't say much. I'm glad you are going to go back. I hope it will be everything you want it to be. I also will be at Carr. Beach at the same time from 12/3 until 12/8.

[ndloewen]

Thank you all for your kind comments.

kdzbear, it's too bad we won't be there during Tyler's wish trip. Our family would have enjoyed meeting him.

Perhaps we will run into some of you that are staying at CBR while we are there. :)

We have been told by a few people that we must be crazy to be going back to Disney...to a place that holds so many memories of Noah. I have told them that I can't imagine going somewhere where we didn't feel surrounded by Noah. Right now I need to be surrounded by everything that was him. So, yes, I know there will be many tears. (Disney brings me to tears at the best of times). But I am hoping that there will be joy too...that we will be able to smile and enjoy the magic that is Disney...that it will be a time of memory making for our family. :littleangel:

[macntosh]

Miss you guys, and think of y'all often. Hope you can get some pin trading in.

[Jenvenza]

I just wanted to bump this and let you know I was thinking about Noah today. My heart still aches for you. I hope you have a wonderful trip. :littleangel:

[ndloewen]

We are off to the World in 9 days! I have very mixed emotions...

[HeatherSue]

We are off to the World in 9 days! I have very mixed emotions...

:hug::hug::hug::hug:

[maroo]

We are off to the World in 9 days! I have very mixed emotions...

:hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug: :hug:


Totally understandable!

We love you! :grouphug:

[CoP Luv]

Hi Nichole - I read your blog and my heart just aches for you. BUT I do hope you have a GREAT trip with you family. It may be just what you all need. :hug:

[FormrCastMbr]

My thoughts have been with you and your family. It is totally understandable to have mixed feelings about your trip. I wish you all the best for safe and happy travels. :hug:

[cathie1327]

We are off to the World in 9 days! I have very mixed emotions...

:hug::grouphug:

Try to have a great time.

Thinking about you guys.

[tinytreasures]

so glad you are going back :hug:

[MouseTriper]

We are off to the World in 9 days! I have very mixed emotions...

Awww, major hugs to you Nichole. I imagine you will have both tears of sadness missing Noah but tears of joy in watching Kailyn and Josh. My thoughts and prayers are with you.

[twinmum]

We are off to the World in 9 days! I have very mixed emotions...

Of course, this is totally understandable. I hope you have a wonderful trip!

[kdzbear]

Have a wonderful trip! :grouphug:

[cathie1327]

I have been thinking of you all very strongly recently, Nichole....and praying for you guys. I hope your trip is very magical, and therapeutic for you all. It will be filled with moments of sadness to be sure, but I am praying that there will also be wonderful moments of memories and they outnumber those of sadness.:hug:

[ndloewen]

Thank you all for your wonderful comments.

2 days and we leave. I'm feeling pretty stressed and just very anxious. Hoping I will get somewhat excited. The kids are very excited about going so I'm very glad for their sake that we are doing this.

[maroo]

Me too...

I hope you will start to feel excited once you get there.

I am sure there will be a major mix of emotions.

We love you and are praying for you. Praying that you will have some moments with your family that make you momentarily forget the pain of the past few months and make some fresh memories with your precious kids.

Please tell Kailyn and Joshua that I am thinking about them and was bragging about what a great big brother and sister they are to my friends the other night - they are legends, even here in MS. And tell Brad that I said hello.

We are praying for all of you! :grouphug:

[Applemomma]

:grouphug::grouphug:

[thegreggersmom]

:hug::hug::hug:

[twinmum]

Nichole: I hope you all have a wonderful trip. I have been thinking of you and wishing you all a time of remembering and healing. I'm glad Kailyn and Joshua are excited. Hopefully they will sweep you up into their excitement and the joy in their faces will be reflected in your heart, giving you some respite from your pain.

:grouphug:

Alison

[carrie6466]

Have a great trip. You never know, maybe we'll run into each other at CBR :)

[Jenvenza]

I hope you had a wonderful trip. :hug: