Becca's Wish Trip........Update:September 2011.....Photo's....Sorta :)

[jessica52877]

Thank you so much for the wonderful pictures and commentary!!!! Teresa is going to be bawling when she sees the pictures of Becca and how happy she looks! I know I am a bit teary-eyed myself.

She looks beautiful in both outfits! Wow! I love them!

Just so you know, pettiskirts are appropriate attire for a quick trip to Walmart, church, the mall, the grocery store, etc...Just ask my nieces, or my daughter! :thumbsup2

I was hoping Heather or Teresa would chime in with appropriate places for pettiskirts! :thumbsup2

What beautiful pictures! I really love the step by step also! Teresa is one special gal, sending some special things to an amazingly special girl!

[teresajoy]

http://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/th_IMG_0303Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/th_IMG_0305Medium.jpg http://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/th_IMG_0307Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/th_IMG_0313Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/th_IMG_0361Medium.jpg
http://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/th_IMG_0367Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/th_IMG_0371Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/th_IMG_0374Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/Petti%20Skirt/th_IMG_0317Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/Petti%20Skirt/th_IMG_0319Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/Petti%20Skirt/th_IMG_0327Medium.jpg
http://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/Petti%20Skirt/th_IMG_0334Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/Petti%20Skirt/th_IMG_0342Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/Petti%20Skirt/th_IMG_0348Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/Petti%20Skirt/th_IMG_0340Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/Petti%20Skirt/th_IMG_0355Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/Minnie%20petti%20skirt/th_IMG_0380Medium.jpg
http://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/Minnie%20petti%20skirt/th_IMG_0385Medium.jpghttp://i68.photobucket.com/albums/i10/llurgy/Minnie%20Dress%20and%20Petti%20Skirt/Minnie%20petti%20skirt/th_IMG_0382Medium.jpg

Really, really Thanks Teresa. She loves the Dress and Loves the petti. She knows that I think the Petti is just a piece of 'play' clothing but she says she doesn't care because she loves it:thumbsup2

Oh, my little sister knows me well!!!!!!!! http://gi244.photobucket.com/groups/gg36/Z2DYWCPOQ/b72ffce3.gif Just bawling, that's me! Oh my goodness, the happiness and joy I get out of seeing Becca so happy just can not even be described in any words known to man! THANK YOU!!!! http://bestsmileys.com/touced/2.gif

My girls often make Pettibouquets too!!! The Marge hair had me laughing so hard! And, as Heather said, pettis are everyday wear around here! Walmart, Meijer, McDonald's, the park, the zoo, the mall, religious meetings, or they are mighty comfortable for just lounging about the house. Not that I have ever personally done that myself. :rolleyes1

You can even hang from a tree in them!
http://photos-g.ak.fbcdn.net/photos-ak-snc1/v370/73/24/677208159/n677208159_1032606_5918.jpg

These are the BEST pictures Mandy! Please thank Becca for being such a good model for us!

ETA: I've had lots of practice stuffing pettis into small bags and boxes! They are amazing resilient those pettis! Twirl them about for a bit and they puff right back up!

[gcast1]

These wonderful pics of our Becca make me want to don a petti and twirl a couple of times, just because! What absolutely fabulous outfits on an equally fabulous Becca! Can't wait to see pics of her in action at Disney.

And no, before you ask (Heather and Teresa), I don't actually OWN a petti so it's a virtual twirl I'm going to do.:thumbsup2

Glenda

[teresajoy]

These wonderful pics of our Becca make me want to don a petti and twirl a couple of times, just because! What absolutely fabulous outfits on an equally fabulous Becca! Can't wait to see pics of her in action at Disney.

And no, before you ask (Heather and Teresa), I don't actually OWN a petti so it's a virtual twirl I'm going to do.:thumbsup2

Glenda


Oh Glenda! You NEED a petti!

[teresajoy]

I just showed these pictures to my husband, and I think for the first time he "gets" why I do these Big Gives!! You should have seen him smiling at these pictures!!

[Kate and Pete]

I just discovered your trippie - and have now read every single post. I see the trip is happening VERY soon now! You must all be so excited (especially Becca, who now has the absolute prettiest wardrobe I've ever seen to wear to Disney!). Here's wishing your family the most wonderful trip! I can't wait to see pics. of Becca at Disney when you return!!! princess:

[kimmylaj]

love love love it. becca is the best and her expressions when she sees her packages i cant take her she is too cute. she looks so sweet in her animal print minnie dress and the pettiskirt...too much fun

[llurgy]

On Saturday we received a Big Give Parcel from Momma2dakidz (Becky)
Thank You Soooo much Becky

First photo up…..The Opening
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20covers/IMG_0388Medium.jpg

What is this??? It’s Very colorful and big
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20covers/IMG_0390Medium-1.jpg

It’s a Tote bag stuffed full of Goodies! The bag itself is quilted with pale pink satin fabric on the inside and a pocket. On the outside there are 2 pockets on the front and back and 2 pockets on each of the sides.
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20covers/IMG_0394Medium-1.jpg

There was a large Tink (Fairies) water bottle stuck in one of the side pockets
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20covers/IMG_0404Medium.jpg

A Tink seat cover and back cover for Becca’s Wheelchair, WOW
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20covers/IMG_0399Medium-1.jpg

An Animal Print back cover for her wheelchair
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20covers/IMG_0401Medium.jpg

And if that wasn’t enough Becca finds Mickey Head back cover, all for her Wheelchair!! Oh, and a cat :)
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20covers/IMG_0408Medium.jpg

A close-up of the back cover where it says her name – She was as pleased as punch at this. The Mickey head is made out of furry fabric, which she loves
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20covers/IMG_0479Medium-1.jpg

A Seat cushion with a red cover to go with the Mickey Head. But, what you cant see is that the red cover comes off to reveal a silky black seat pad that will match the animal print and the Tink cover fits on the seat pad too!
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20covers/IMG_0411Medium-1.jpg

So Becca says……..This is neat!! When I change my custom clothes my wheelchair can change its clothes too!!! My wheelchair has three brand new outfits!

[llurgy]

Next up some Monsters Inc!

The Tote still held something else
http://i68.photobucket.com/albums/i10/llurgy/Monsters%20inc/IMG_0416Medium.jpg

A little round container (on the red seat pad)which Becca is going to use for allsorts (she cant make up her mind) and a box of notelets. These are both Monsters Inc
http://i68.photobucket.com/albums/i10/llurgy/Monsters%20inc/IMG_0419Medium.jpg

Some a couple of disposable cool packs, multi-color pens and some markers with those fuzzy felt coloring pages, again, Monsters Inc
http://i68.photobucket.com/albums/i10/llurgy/Monsters%20inc/IMG_0421Medium.jpg

A Finding Nemo activity book
http://i68.photobucket.com/albums/i10/llurgy/Monsters%20inc/IMG_0425Medium.jpg

The Nemo book has Stickers 
http://i68.photobucket.com/albums/i10/llurgy/Monsters%20inc/IMG_0428Medium.jpg

Some Monsters Inc tattoos
http://i68.photobucket.com/albums/i10/llurgy/Monsters%20inc/IMG_0432Medium.jpg

All the goodies laid out in all of their glory
http://i68.photobucket.com/albums/i10/llurgy/Monsters%20inc/IMG_0473Medium.jpg

A cat!! I have no idea where she came from  The other cats leg is in several of the photos too
http://i68.photobucket.com/albums/i10/llurgy/Monsters%20inc/IMG_0482Medium.jpg

You can see the tote closer up in these photos, it is a really nice one and very pretty too, Becca loves it.

[llurgy]

We are going to have a Wheelchair fashion show now, starring……
You have to imagine I am commentating.
Presenting………
The Wheelchair!! And Becca 

First down the runway comes the Tink Two-Piece
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20modeling/IMG_0460Medium.jpg

You can see that the red seat pad has been transformed into a Tink seat pad
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20modeling/IMG_0461Medium.jpg

Next down comes a versatile little number being a two-come-three piece
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20modeling/IMG_0487Medium.jpg

You will note the Animal print back with the silky seat pad
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20modeling/IMG_0489Medium.jpg

Just a two minute change and we can also have a dashing red seat pad with the animal print
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20modeling/IMG_0453Medium.jpg

Third down the runways struts this striking little two-piece in red
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20modeling/IMG_0434Medium.jpg

One added benefit to this outfit is that it wont be lost by its Momma, the name just shouts its flamboyancy out loud
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20modeling/IMG_0438Medium.jpg

Of course, no runway show would be complete without the other half of the team….Presenting the complete outfit….
Becca, wheelchair and Tote
http://i68.photobucket.com/albums/i10/llurgy/Wheelchair%20modeling/IMG_0467Medium.jpg

Thanks again Becky (Momma2dakidz)…. I cant believe you made all these, they are brilliant!
In Becca’s words….They are AWESOME!!!

Mandy

[tinytreasures]

those wheel chair covers are so cool
Avy would flip for one of those
I had to make her a huge padded seat for hers since the seat is way to big :rolleyes:

[mindymouse1]

That is so awesome.... I am at a loss for words!!! Awesome, fabulous, stupendous, beautiful, perfect all seem to fit. You Big Give gals have really made a happy girl!!!

[jessica52877]

Oh my goodness! These are GREAT! I love all the covers, the bag and the stuff AND the commentary is the BEST along with Becca's smile! That was a HUGE box of stuff!

[mom2lilnick]

OMGOSH!! how awesome! I will be able to find you guys now!

[Tink rules]

Wow... with all these great things... ya think she's gonna faint when she gets to Disney??? (In a VERY good way of course!!!)

[eyor44]

All I can think is.....Oh Wow! What wonderful gifts. The disboutiquers are awesome.
I love the pettiskirt.

[jham]

Wow! You had me laughing and crying at the same time! I LOVED the wheelchair fashion show! :rotfl2:

[kimmylaj]

wow. amazing

[HeatherSue]

WOW!!!!! WOW!!!!! What a bunch of fantastic things!! I love the wheelchair covers, especially the personalized Mickey head one! The bag is great, and all the goodies- WOW!! Becky really outdid herself!

The fashion show was absolutely hilarious! You crack me up, Mandy!

[msce2]

How beautiful!!!! Can't wait to see those pictures but with a different background! Like maybe Cinderella's castle?

[3princesses+aprince]

I read momtolilnicks pretrip report yesterday and that's how I found yours. I see that they are already there, and you only have 2 days to go. How exciting!!! We are going for the first time in May and I cannot imagine how HAPPY we will all be when we are counting down in single digits. I hope your trip is wonderful and can't wait to hear all about it when you get back.
And have a blast meeting up with another diser..... How Fun

[maroo]

I am completely floored!!!!

What an amazing assortment of very cool and very practical gifts! That seat cushion will help soooooo much! We know all about that. :rolleyes1

I love the cat. He/She wanted to check it all out! I mean, who wouldn't!! :)

She is going to be the life of the party on this trip! She will turn some heads with that awesome wheelchair! And she can use that stuff when she gets home!

I love, love, love the bag on the back. What a great idea!!

I want one of those for Lauren's w/c. She would love that. I gotta learn to sew!

[teresajoy]

OH WoW!!!! When Becky said she was making seat covers, I had no idea how absolutely cool they would be!!!! Becca is going go have people trying to get her autograph, I mean, who but a celebrity would have such cool stuff!!! :confused3 :goodvibes

The fashion show had me laughing so hard!!! I love how much fun you guys are!!! Are you sure you don't want to go back to Disney in May?? :thumbsup2

[Momma2dakidz]

I am so happy Becca liked everything. That Mickey head was my very first applique. Becca is one special girl and I am sure she will be treated equally special while at Disney. Enjoy and i cant wait for trip pics!!!!

ps so glad the cats got on the covers, the cat hair hopefully hid the dog hair. LOL

[SueM in MN]

pretty cool fashion show and the red wheelchair looks good with all its new fashion choices.

Something I saw at the dollar aisle at Target might be nice. They had some plastic glow in the dark hearts for Valentine's Day. Some of them were the outside outline of the heart and some were a solid heart. They are made of a fairly thin plastic and I was thinking that the outline ones could be tied onto the wheelchair if you didn't want to put tape or anything.

[llurgy]

great pictures she looks so happy all the time
sorry about your bracelet but I have to agree with her she needs both :lmao:

We have come to an agreement, I get whichever one she doesnt wear that day :)

I love all the latest photos! Becca is a great model! She makes me laugh. I make my DD11 wear leggings under her skirts all the time, but especially at Disneyworld!
I have packed allsorts, she is going to be such a mix up, it all depends on the weather....freezing here, warmer in Orlendo, but not by much at the moment, kinda hovering just below the 70's.


I think Becca needs to come give Dallas some lessons on being appreciative! I try to hard but he just isn't the way I would like him to be.

Becca's smile alone couldn't fake anything, she is just so sincere and I love that. I love the way she reads all the notes!

Anna's outfit looks great on! I love all the poses.

She loves getting letters!! The difference between Becca and Dallas.......Girl/Boy I am afraid:rotfl2:

I love the outfits....and the bracelets....and the autograph book. I want to learn how to make those and the crayon roll-ups. Aly wore leggings under her skirts most days we were there as it was quite chilly. I just bought the simple plain ones from WalMart and they worked great.
I am gonna have to learn the roll-ups too, I think they are so neat!
The leggings I bought by coincidence are in fact from Wal-Mart, cheap and cheerful but do the job :)

I can see from her face how sincere she is. I just love that! What a wonderful child!

I LOVE all the outfits you posted today!!! Shannon's shirt and capris are so cute on Becca!!! And Anna's skirt and top look great!!!! Thank you for all the pictures Mandy!!

Becca is basking in all of the attention....I dont know how we are going to live with her after this is all over. Thats one of the reasons I dont want it to happen yet, I want to look forward to it forever because I dont want to deal with the aftermath! Aw well, it is her Birthday at the end of April, she will have to look forward to becoming a teen.
I cant believe she will be a teen. Being an only child and homeschooled and because of her medical condition ,not being round kids all that much she is very very young of heart and very naive about the ways of the world. Its nice really, the fact that she is so young though :)

Mandy

[llurgy]

Great TR!!! And I hope you have an incredible time visiting WDW!!!

Tell Becca that she has a smile that lights up the room :cheer2:

And also please tell her that I LOVE her Mickey Mouse colors on her wheelchair!!!

Have fun and take lots of pictures... :grouphug:
We will take loads of pictures (hopefully) I am in charge of the photos, David the video....I have this horrible habit of forgetting that I have the camera.

I love Becca, she is the best. I can't wait to meet up with you guys! I need to send you a PM after I get home from church.

Great clothes and what a beautiful model!
See you there Amy, even though you are already there and you arent reading this anymore :lmao:

I'm so glad to see these pics! Thanks so much for posting them! I hope you all have a magical trip - ENJOY!
It was a pleasure, thank YOU for giving such wonderful customs to Becca:grouphug:

Thank you so much for the wonderful pictures and commentary!!!! Teresa is going to be bawling when she sees the pictures of Becca and how happy she looks! I know I am a bit teary-eyed myself.

She looks beautiful in both outfits! Wow! I love them!

Just so you know, pettiskirts are appropriate attire for a quick trip to Walmart, church, the mall, the grocery store, etc...Just ask my nieces, or my daughter! :thumbsup2
They would look at us as if we were crazy if we wore them to Wal-Mart around here........Maybe in the summer we will try, it seems in the summer anything goes.

WOW!!!!!!!! Becca sure looks Happy in all these pics:goodvibes . Not too much longer for you guys and you will be there!!!! And we won't be far behind!!!:cool1:


She really is a beautiful girl with a wonderful smile!!!:thumbsup2 ;) :) :angel: :flower3: :wave2: ::yes::
Thank you :) It's exciting having something like this to look forward to isnt it? Though now the excitement has been overshadowed by sheer panic!!

those are great pictures :cheer2:
Thanks:thumbsup2

I was hoping Heather or Teresa would chime in with appropriate places for pettiskirts!

What beautiful pictures! I really love the step by step also! Teresa is one special gal, sending some special things to an amazingly special girl!
Becca loves the clothes! She loves the dress, but it is a tiny bit overshadowed by the petti at the moment....she plays with the petti. She calls it Jelly because it bounces like a jellyfish

Oh, my little sister knows me well!!!!!!!! Just bawling, that's me! Oh my goodness, the happiness and joy I get out of seeing Becca so happy just can not even be described in any words known to man! THANK YOU!!!! http://bestsmileys.com/touced/2.gif

My girls often make Pettibouquets too!!! The Marge hair had me laughing so hard! And, as Heather said, pettis are everyday wear around here! Walmart, Meijer, McDonald's, the park, the zoo, the mall, religious meetings, or they are mighty comfortable for just lounging about the house. Not that I have ever personally done that myself. :rolleyes1

You can even hang from a tree in them!
http://photos-g.ak.fbcdn.net/photos-ak-snc1/v370/73/24/677208159/n677208159_1032606_5918.jpg

These are the BEST pictures Mandy! Please thank Becca for being such a good model for us!

ETA: I've had lots of practice stuffing pettis into small bags and boxes! They are amazing resilient those pettis! Twirl them about for a bit and they puff right back up!

That red petti is gorgeous, I love it! Becca hasnt decided when she is going to wear what yet but I think the petti is for Magic Kingdom.
The petti in the bag.....LOL....Becca did call it a pink football:rotfl: when she opened the bag it sorta just fell out onto the floor and rolled away, It will forever be a pink football to me:lmao:
Thankyou so much for your giving heart Teresa
These wonderful pics of our Becca make me want to don a petti and twirl a couple of times, just because! What absolutely fabulous outfits on an equally fabulous Becca! Can't wait to see pics of her in action at Disney.

And no, before you ask (Heather and Teresa), I don't actually OWN a petti so it's a virtual twirl I'm going to do.

Glenda
Awww......:sad1: I wanna see Glenda twrlin' in a petti!!

Oh Glenda! You NEED a petti!
I agree wholeheartedly:thumbsup2

I just showed these pictures to my husband, and I think for the first time he "gets" why I do these Big Gives!! You should have seen him smiling at these pictures!!
Aw, thats sweet, glad we made him smile. Becca sends him this to make him smile again :clown:

Mandy

[llurgy]

I just discovered your trippie - and have now read every single post. I see the trip is happening VERY soon now! You must all be so excited (especially Becca, who now has the absolute prettiest wardrobe I've ever seen to wear to Disney!). Here's wishing your family the most wonderful trip! I can't wait to see pics. of Becca at Disney when you return!!! princess:
Becca has got a pretty wardrobe, so has her wheelchair :)
I dont think she will sleep tomorrow night, she is excited about everything, the fact that we are getting picked up and driven to the airport, the flight, the rental van, GKTW and of course the WORLD!! Ill bet she wants to go to bed really early to make the next day come all that sooner.

love love love it. becca is the best and her expressions when she sees her packages i cant take her she is too cute. she looks so sweet in her animal print minnie dress and the pettiskirt...too much fun
She adores her new clothes....I cant wait till we have to decide what she is going to wear each day

those wheel chair covers are so cool
Avy would flip for one of those
I had to make her a huge padded seat for hers since the seat is way to big :rolleyes:
Becca cant belive that her wheelchair is so good looking now, from institution black to a Supermodel wheelchair:lmao:

That is so awesome.... I am at a loss for words!!! Awesome, fabulous, stupendous, beautiful, perfect all seem to fit. You Big Give gals have really made a happy girl!!!
The DisBoutiques are my heroines/heroes:grouphug:

Oh my goodness! These are GREAT! I love all the covers, the bag and the stuff AND the commentary is the BEST along with Becca's smile! That was a HUGE box of stuff!

OMGOSH!! how awesome! I will be able to find you guys now!
I dont think you will be able to miss us!!

Wow... with all these great things... ya think she's gonna faint when she gets to Disney??? (In a VERY good way of course!!!)
I think she will be pretty much overwhelmed, she has no idea how much fun she is going to have

All I can think is.....Oh Wow! What wonderful gifts. The disboutiquers are awesome.
I love the pettiskirt.
Its name has been changed to Jelliskirt:rotfl2:

Wow! You had me laughing and crying at the same time! I LOVED the wheelchair fashion show! :rotfl2:
It didnt start off like a fashion shw, it just finished off that way, Becca said her wheelchair should get in on some of the action seeing as it has all new togs

wow. amazing
Aren't they just?? REALLY amazing!!

Mandy

[llurgy]

WOW!!!!! WOW!!!!! What a bunch of fantastic things!! I love the wheelchair covers, especially the personalized Mickey head one! The bag is great, and all the goodies- WOW!! Becky really outdid herself!

The fashion show was absolutely hilarious! You crack me up, Mandy!
I like the Mickey Head best too, It is really striking! Furry too :)
That is the one that the wheelchair is wearing to the airport on Wednesday, without the cushion, *** we dont wanna lose it.
Becky DID out-do herself. Thanks again Becky :thumbsup2

How beautiful!!!! Can't wait to see those pictures but with a different background! Like maybe Cinderella's castle?
I am sure you will see allsorts of backgrounds as long as I remeber to take the photos that is

I read momtolilnicks pretrip report yesterday and that's how I found yours. I see that they are already there, and you only have 2 days to go. How exciting!!! We are going for the first time in May and I cannot imagine how HAPPY we will all be when we are counting down in single digits. I hope your trip is wonderful and can't wait to hear all about it when you get back.
And have a blast meeting up with another diser..... How Fun
We are excited!! I'll bet you are too, May isnt all that far away and you are going to have a lot of fun planning it.
We are excited to see Amy and gang too, Becca is looking forward to meeting up with Kayla.

I am completely floored!!!!

What an amazing assortment of very cool and very practical gifts! That seat cushion will help soooooo much! We know all about that. :rolleyes1
I love the cat. He/She wanted to check it all out! I mean, who wouldn't!! :)
She is going to be the life of the party on this trip! She will turn some heads with that awesome wheelchair! And she can use that stuff when she gets home!
I love, love, love the bag on the back. What a great idea!!
I want one of those for Lauren's w/c. She would love that. I gotta learn to sew!

We were amazed at the stuff that came out of that wonderful bag....they just kept on coming, it was never ending :)
The grey cat is called Mya, she is a she and the seal point is Bitsy, a he......They like to get in on everything!

OH WoW!!!! When Becky said she was making seat covers, I had no idea how absolutely cool they would be!!!! Becca is going go have people trying to get her autograph, I mean, who but a celebrity would have such cool stuff!!! :confused3 :goodvibes

The fashion show had me laughing so hard!!! I love how much fun you guys are!!! Are you sure you don't want to go back to Disney in May?? :thumbsup2
Go back to Disney in May?? I wish!!::yes::
Becca and her wheelchair will certainly turn some heads, she has already experienced what just painting it does to the attention she has gotten since Wheelchair had a color make-over, I do not know what will happen now that Wheelchair has new clothes too!

I am so happy Becca liked everything. That Mickey head was my very first applique. Becca is one special girl and I am sure she will be treated equally special while at Disney. Enjoy and i cant wait for trip pics!!!!

ps so glad the cats got on the covers, the cat hair hopefully hid the dog hair. LOL
The Mickey Head was your first applique??? Wow, color me impressed!
Becca loved everything and we all thank you again for making such wonderful things!
There was no dog hair:rotfl2: :lmao: :rotfl2:

pretty cool fashion show and the red wheelchair looks good with all its new fashion choices.

Something I saw at the dollar aisle at Target might be nice. They had some plastic glow in the dark hearts for Valentine's Day. Some of them were the outside outline of the heart and some were a solid heart. They are made of a fairly thin plastic and I was thinking that the outline ones could be tied onto the wheelchair if you didn't want to put tape or anything.

I may try those when we come back for Valentines.....The outline ones would be good tied to the spokes. Thanks for the suggestion:thumbsup2

Mandy

[llurgy]

I dont know whether or not I will have any time to be on the board tomorrow.
If not I will see you when we get back, hopefully with a Gazillion Pictures!!

Big Give DISBoutiquers........From the bottom of mine, Davids and Becca's heart we thank you for the wonderful gifts you have given us:grouphug:
I dont know if I have ever come across such generous people in my life and people in our future would have to be pretty special to surpass what you have done for us in making Becca's trip of a lifetime so much more special!
Thank you, Thank you, Thank You :grouphug: :cheer2: pixiedust: :flower3: :goodvibes :wave2: ::yes:: :cheer2: :grouphug:

Love
Mandy

[Khalana]

I just wanted to give you a big :hug: and wish you an amazing, amazing trip. You are in for a treat, Mandy. :goodvibes Just soak it all up, breath it in and enjoy! Becca deserves every last bit! ::yes::

Lots of pixiedust:

[teresajoy]

I dont know whether or not I will have any time to be on the board tomorrow.
If not I will see you when we get back, hopefully with a Gazillion Pictures!!

Big Give DISBoutiquers........From the bottom of mine, Davids and Becca's heart we thank you for the wonderful gifts you have given us:grouphug:
I dont know if I have ever come across such generous people in my life and people in our future would have to be pretty special to surpass what you have done for us in making Becca's trip of a lifetime so much more special!
Thank you, Thank you, Thank You :grouphug: :cheer2: pixiedust: :flower3: :goodvibes :wave2: ::yes:: :cheer2: :grouphug:

Love
Mandy

OH Mandy, you've gone and made me cry again! We all think you guys are very special too!!! Thank you so much for letting us have a little part in your trip! :grouphug:

And, are you should get the Photopass CD!!! Then you could be in the pictures! It's so worth the money!

[Momma2dakidz]

I am in tears too. Becca is one amazing little girl surrounded by a family just as amazing! Have fun in Disney!!!!
Becky

Ps I would take the covers off and bring them with you on the plane. She can sit on the cushion. and fold the back into a bag. you might be surprised at how dirty the chair can get in the belly of the plane.

[AshleyMWC]

Wow, what an amazing update!! All you Big Give people are just amazing! I can't beleieve it is already time for Becca's trip :cool1: I hope you guys have the most amazing time at the most amazing place in the world. May your trip be filled with many many magical memories!!!

[jmskinner]

Becca's has such a great smile. Thanks for posting the pics and spreading that smile around!

Hope you have a wonderful trip and can't wait for the TR!:goodvibes

[jham]

HAVE A WONDERFUL TRIP!!!

[kimmylaj]

i'm thinking of you hoping you are having tons of fun:goodvibes

[tinytreasures]

safe travels

[eyor44]

Mandy, you, David and Becca have a wonderful time. I know you will. When you walk under the train bridge, something magical seems to happen.

[Tink rules]

Have a great time!!!!

Don't forget to ride the Monorail!!!

& tell Tink I said Hi!!! ::yes:: ::yes::

[mindymouse1]

Can't wait to read all about it.

Hope you are having a BLAST !!!!pixiedust:

[jillalvarez2003]

Hope you have a safe and magical trip!

[revrob]

I got the sweetest note from Becca today thanking me for the outfit I sent her. She even drew Mickey for me! What a sweet, sweet girl! I hope you guys have the time of your life!

[Khalana]

I hope you guys are LOVIN' it right now!!!! :)

[mom2lilnick]

I know they are loving it right now! Have a great last couple days of your trip!!

[mom2lilnick]

Welcome home! I want details!!!

[mindymouse1]

Are they back??? Maybe we should let them get settled ---- nah!!!! How was it???

[mom2lilnick]

Well.. by my calculations they should be home tonight! lol.

[Khalana]

YAY, you guys are home!!!! :wave2: Can't WAIT to hear ALL!!!!!!!!! ::yes:: :cheer2:

[tinytreasures]

Welcome HOME

[maroo]

Welcome home!! :)

[llurgy]

We're home:)
Got home yesterday late afternoon but the leccie went down because of the weather.
Had a fantastical trip!
Met Amy, Jeff, Kayla, Noah and of course the "Full of Beanz - Never to be stopped - Little Nick" :)
Amy and I were bumping into one and other left-Right and center, twas fun, never knowing if they were going to be at Dinner, breakfast or one of the events GKTW put on nightly.
I have to get my piccies sorted, both for here and to send some off to MAW so they can develop some for us. We havent done anything to do with the trip since we got home.
Our weather here is atrocious. We just missed a boatload of snow yesterday morning and it started to freeze/rain last night and never stopped, it is still doing it now, we have about an inch of ice covering everything and trees and branches are crashing down to the floor by the minute.
I am just going to stop this message here and post just in case we lose our electricity again. I just wanted to post and say we ARE home and I will post more details as soon as we have stabilized.

Love
Mandy
PS: Thanks to Darla for the costume, Becca loved it!! Pictures coming soon :)

[Khalana]

I'm so happy to hear that you're home safe and sound!!! :) I soooo look forward to seeing lots of pictures of Becca on her many adventures. :) And can't wait to hear your stories and magical moments. :)

[Tnkrbelle565]

:welcome: home!

[mom2lilnick]

Oh what cruddy weather to come home to! I thought ours was bad when we scanned the tickets and it said.. Omaha 5 degrees and snowing. That is better than ice tho!

I can't wait to see pics, Kayla has drawn a whole slew of pics for Becca!

[maroo]

We're home:)
Got home yesterday late afternoon but the leccie went down because of the weather.
Had a fantastical trip!
Met Amy, Jeff, Kayla, Noah and of course the "Full of Beanz - Never to be stopped - Little Nick" :)
Amy and I were bumping into one and other left-Right and center, twas fun, never knowing if they were going to be at Dinner, breakfast or one of the events GKTW put on nightly.
I have to get my piccies sorted, both for here and to send some off to MAW so they can develop some for us. We havent done anything to do with the trip since we got home.
Our weather here is atrocious. We just missed a boatload of snow yesterday morning and it started to freeze/rain last night and never stopped, it is still doing it now, we have about an inch of ice covering everything and trees and branches are crashing down to the floor by the minute.
I am just going to stop this message here and post just in case we lose our electricity again. I just wanted to post and say we ARE home and I will post more details as soon as we have stabilized.

Love
Mandy
PS: Thanks to Darla for the costume, Becca loved it!! Pictures coming soon :)

Woo hoo!! I am so glad you guys are home and safe!

I am so sorry that you are getting all of that ice! I hope you keep your power. Check back with us, if you are able to...

I can't wait to hear all about your trip! :)

[oklamomof4boys]

Welcome home! I can't wait to hear all about it!

[Momma2dakidz]

WELCOME HOME!!!!!!!!!!!!! I can't wait to see pics and hear all about it!!!!

[teresajoy]

Welcome home guys!!!! I'm glad Becca liked Darla's package!!! I can't wait to hear all about your trip! :cheer2: :cheer2: :cheer2:

[Rebecuberduber]

Hey, I'm joining in late. I read through your pre-trip report once you were already there. I can't wait to hear all about the trip! :wave2: Thanks for sharing with us!

[fairygoodmother]

waiting...patiently...:rolleyes1

I'm hoping you have power and are not freezing back there!

[tinytreasures]

glad you had a great trip I can't wait to hear all about it

[llurgy]

Hi All,

I will get writing our trip report soon.

Becca came down with something yucky on Thursday, she is okay but has been either sleeping or lying around, I think she is having a come down from all we put her body through whilst there and a bit of cold/flu and just general "the holidays are over" blues, and I have been in an “I-Cant-Be-Bothered-To-Do-It” mood since returning.
Add to that the shoveling of Tons and tons of snow, the power outages and just general getting back into the swing of things :)

We have even gotten around to looking at the photos from GKTW village yet!! We are so bad aren’t we??
We do intend to look at the photos from GKTW this afternoon after we try and rid our 100 foot plus driveway of a mixture of snow and ice so that David will be able to get into work tomorrow - and home again.

Once I get started on the trip report I will be ok, its just starting it that is the problem, it looks a bit overwhelming. I also have to takes some stills from the video that David shot to try and fill in gaps from my photo taking - or sometimes lack of.
I took no notes what-so-ever whilst we were there so I have to totally rely on photos to jog my memory.
Please forgive the silence....It will be rectified soon.

Love Mandy

[teresajoy]

No problem Mandy!! We can wait!! There is pleanty of popcorn! popcorn:: popcorn:: popcorn:: popcorn:: popcorn:: popcorn:: popcorn::

I hope Becca gets feeling better soon! Lydia was sick last week with the flu. We are now going on FOUR days with no one being sick!!! :cheer2: :cheer2: :cheer2: That's the longest stretch since October!

Take your time, and take care of yourselves first!! Just try not to forget about us!!! :grouphug: :coffee: :goodvibes

[mom2lilnick]

Hugs! I feel Becca's pain. Everyone here seems to have gotten over all their ill's but mine are still hanging on.

[llurgy]

Hi all :)

I finally got my big behind into some sort of gear and did some reporting.......
Not trip reporting yet I am afraid, but a report on some Fairy Dust pixiedust: we received.
Fairy dust report will be in the next post. pixiedust: pixiedust: pixiedust:

Becca still isn't very well, she has aches and pains, no appetite, a low grade fever and doesn't want to do anything bar sleep. She is not getting better, but at least she isn't getting really bad. I thinks she just needs to ride out the storm, we are just really thankful that whatever she has came AFTER the Disney trip and not before or during!!::yes:: ::yes::

Anyways.....onto the next post and Pictures!!:cheer2:

[llurgy]

I am going to start trip reporting……….Soon :blush: :upsidedow

First I am going to tell you all about the “Fairy Good Mother” parcel Becca received from Darla whilst we were down in Florida!:goodvibes
Darla actually shipped Becca’s parcel 2 times, the first time the shipping label got wet and destroyed and the parcel got shipped to back to her.
She decided to send it directly to GKTW because time was running short and she wanted to make sure that Becca received it in time.
TeresaJoy had given me the heads up that a Big Give/Fairy Dust package was going to be sent to GKTW and to ask about it if it wasn’t given to us. It got to Thursday and nothing had been said about it so I went down and asked. They couldn’t find anything at that moment but said they would have a good look around.
We got a message that night after coming back from Universal that yes a package was waiting for Becca - someone had put it safe so it wouldn’t get lost but the place had been too safe :lmao: and it had been overlooked. I went down for it the next morning and still had to wait because the person whom had found it the day before had placed it in another safe :rolleyes2 location which was too safe :rotfl:
This was one package that was determined to get to Becca against all odds!!

Photo’s now :cheer2:

Sat in GKTW villa Friday morning tearing into an unexpected gift
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/IMG_0210.jpg

One of those Red envelopes that Becca loves, so that had to get a picture
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/IMG_0211.jpg

Taking a peek inside to see if there is a letter
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/IMG_0212.jpg

And yes there is a letter, Becca loves letters, especially ones from her “Fairy ‘GOOD’ Mother”
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/IMG_0213.jpg

Now to the pressie……..
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/IMG_0214.jpg

She isn’t actually pulling a face here  She is saying “ooooh, what is it?” but I clicked the camera button at a stupid time…..LOL
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/IMG_0215.jpg

Becca is very happy to get a very pretty UN-Princess dress!!! She knew it was a Drizella dress straight away
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/IMG_0216.jpg

There is even a headband bow to go with the dress!
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/IMG_0217.jpg

Had to try it on immediately and poses pretty
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/IMG_0218.jpg

She then poses Princess
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/IMG_0219.jpg

Last but not least she poses as someone wearing this dress should pose :lmao:
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/IMG_0220.jpg



Suffice to say we finally got the beautiful dress, Becca loved it! She isnt a fan of the princesses as you know but she knew it was a Drizella dress straight away, she loved it because she could LOOK like a Princess without actually being one, and whoa betide anyone who called her a princess the day that she wore it, :snooty: she very quickly put them right!

Thanks so much Darla for being Becca’s very own Fairy Good Mother, she enjoyed wearing the dress and said it felt really comfortable, it fit perfectly and she got lots of comments whilst wearing it.
Thank You so Much :grouphug:

Love
Mandy

[jmskinner]

I'm sorry to hear Becca still isn't feeling well. Here is some pixiedust: !

We must have posted at the same time, but you just beat me. Love the Drizella dress!

[3princesses+aprince]

Glad you guys had a nice time, and can't wait to read the trip report.

[Tnkrbelle565]

Can't wait to read more!!! :thumbsup2

[jessica52877]

Love the last pixie dust package! The last pose is the best! Can't wait to read more, but right now taking care of Becca is #1. I am sorry she isn't feeling well. I can't remember the last time we came back from disney not sick.

[Rebecuberduber]

Wow, I'm so glad the dress made it to you guys! That would have beensuch a shame to miss that one!! Hope Becca's better soon. (I'm a Becca, too, btw, but I'm Bekah-with-a-K.);)

[teresajoy]

I am going to start trip reporting……….Soon :blush: :upsidedow

First I am going to tell you all about the “Fairy Good Mother” parcel Becca received from Darla whilst we were down in Florida!:goodvibes
Darla actually shipped Becca’s parcel 2 times, the first time the shipping label got wet and destroyed and the parcel got shipped to back to her.
She decided to send it directly to GKTW because time was running short and she wanted to make sure that Becca received it in time.
TeresaJoy had given me the heads up that a Big Give/Fairy Dust package was going to be sent to GKTW and to ask about it if it wasn’t given to us. It got to Thursday and nothing had been said about it so I went down and asked. They couldn’t find anything at that moment but said they would have a good look around.
We got a message that night after coming back from Universal that yes a package was waiting for Becca - someone had put it safe so it wouldn’t get lost but the place had been too safe :lmao: and it had been overlooked. I went down for it the next morning and still had to wait because the person whom had found it the day before had placed it in another safe :rolleyes2 location which was too safe :rotfl:
This was one package that was determined to get to Becca against all odds!!

Photo’s now :cheer2:

Sat in GKTW villa Friday morning tearing into an unexpected gift
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/th_IMG_0210.jpg

One of those Red envelopes that Becca loves, so that had to get a picture
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/th_IMG_0211.jpg

Taking a peek inside to see if there is a letter
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/th_IMG_0212.jpg

And yes there is a letter, Becca loves letters, especially ones from her “Fairy ‘GOOD’ Mother”
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/th_IMG_0213.jpg

Now to the pressie……..
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/th_IMG_0214.jpg

She isn’t actually pulling a face here  She is saying “ooooh, what is it?” but I clicked the camera button at a stupid time…..LOL
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/th_IMG_0215.jpg

Becca is very happy to get a very pretty UN-Princess dress!!! She knew it was a Drizella dress straight away
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/th_IMG_0216.jpg

There is even a headband bow to go with the dress!
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/th_IMG_0217.jpg

Had to try it on immediately and poses pretty
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/th_IMG_0218.jpg

She then poses Princess
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/th_IMG_0219.jpg

Last but not least she poses as someone wearing this dress should pose :lmao:
http://i68.photobucket.com/albums/i10/llurgy/Darla%20Big%20Give/th_IMG_0220.jpg



Suffice to say we finally got the beautiful dress, Becca loved it! She isnt a fan of the princesses as you know but she knew it was a Drizella dress straight away, she loved it because she could LOOK like a Princess without actually being one, and whoa betide anyone who called her a princess the day that she wore it, :snooty: she very quickly put them right!

Thanks so much Darla for being Becca’s very own Fairy Good Mother, she enjoyed wearing the dress and said it felt really comfortable, it fit perfectly and she got lots of comments whilst wearing it.
Thank You so Much :grouphug:

Love
Mandy

Mandy I love the pictures!!!! Just great!!! That lost pose is great!!! It looks like it fit perfectly! And Becca makes a lovely un-princess!

I am glad I told you to ask for the package! I had to chuckle at all the "safe" spots they put it in!!! I'm glad they were able to locate it for you!

Please tell her that I hope she gets feeling better very soon! It breaks my heart to think of her not feeling well!

[eyor44]

Hello Mandy
Welcome home and glad you had a great trip. Can't wait to hear about the trip. Understand about getting to the trip report. You are so down about being back home that you don't even want to think about. We'll wait......patiently......kind of.

[kimmylaj]

tell becca i hope she feels better soon, and i love how unprincessy she looks in her gown. it is fabulous isnt it? i cant wait to hear all about your trip

[mom2lilnick]

Hi all :)



Becca still isn't very well, she has aches and pains, no appetite, a low grade fever and doesn't want to do anything bar sleep. She is not getting better, but at least she isn't getting really bad. I thinks she just needs to ride out the storm, we are just really thankful that whatever she has came AFTER the Disney trip and not before or during!!::yes:: ::yes::

:

Hugs! :grouphug: I couldn't have said this better myself. Our MAW volunteers and coordinator's are supposed to be coming tomorrow but Nick is laying on the couch with Jeff with 101 fever. So I totally 100% agree with the glad it is now and not during statement. I really hope Becca gets back to herself soon tho!

[fairygoodmother]

Mandy thanks so much for posting those pictures! I'm so glad that Becca liked the dress. Her smile really warmed my heart tonight. I can't wait to hear all about the entire trip.

Blessings, and get well wishes for Becca!

[llurgy]

REBECCA IS IN HOSPITAL.

It is 11.35pm and at this moment in time she is having brain surgery to aspirate a rarther large and deep rooted abcess in her brain. We are hoping that they will be able to aspitate the abcess through a small hole but she may have to have a full blown craniotomy.

I will update as soon as I know any more.

Your prayers and good wishes are needed.

Thanks
Mandy

[Tink rules]

Oh Mandy...

Lots of love, prayers and :tinker: Pixie Dust coming Becca's way!!!


Take good care of her and yourselves and know that we are here for you... :grouphug: :grouphug: :grouphug:

[teresajoy]

Mandy, we will be praying for Becca. :grouphug: :grouphug: :grouphug:

[GoofyG]

Prayers being SAID!!!!:grouphug:

[fairygoodmother]

Mandy, we are praying for Becca, and for you as well.

"For I know the plans I have for you," say the Lord, "Plans for good and not for evil, plans to give you a future and a hope." Jeremiah 29:11

[NaeNae]

Prayers are being said for Becca and the rest of you.

[LuvGoing2Disney7]

Mandy just wanted to let you know we are praying for Becca too. And for you and your dh

[Tnkrbelle565]

Prayers being said :grouphug:

[LindaBabe]

Prayers for Becca and family.

[jillalvarez2003]

My heart just sank. Many thoughts and prayers for you and Becca. :grouphug:

[Stephres]

Oh Mandy, thank you for updating us. There are a lot of prayers being said for you and Becca!

[mom2lilnick]

Many, many, many prayers being said.

[revrob]

Praying for a successful procedure and a quick, painless recovery!

[JustcallmeHappy]

We will be praying for you :grouphug:

[mindymouse1]

I hope Becca is feeling better real soon! Mandy you need to get lots of rest too (easier said than done --I know)!! Thanks for the update!


I absolutely ADORE that stepsister dress!!!

[maroo]

REBECCA IS IN HOSPITAL.

It is 11.35pm and at this moment in time she is having brain surgery to aspirate a rarther large and deep rooted abcess in her brain. We are hoping that they will be able to aspitate the abcess through a small hole but she may have to have a full blown craniotomy.

I will update as soon as I know any more.

Your prayers and good wishes are needed.

Thanks
Mandy

Oh my goodness!!!

Praying here!

The strangest thing happened the other day...Lydia's mom posted that Lydia was not doing well and needed our prayers. And for some reason, in my wacky brain (or maybe it was a God thing), I thought about Becca. So I have been praying for Becca for several days now. Praying for Lydia, too...and Noah...all of you guys are having such a hard time!

Our sermon in church on Sunday was about persistent prayer. So...I am persistently praying for all of these Wish Kids...and specifically for Becca right now!

Hang in there!!!!

[gcast1]

Mandy - please add my prayers to those being said for Becca and you guys. Hoping for a speedy recovery and complete healing for our precious girl!

Glenda

[jham]

Lots of prayers for you and your beautiful girl! :grouphug:

[mommyof2princesses]

Lots of prayers for Becca.:grouphug:

[3princesses+aprince]

oh my god, I will pray for her as well. I will keep checking for your update, can't wait to here if everything is Okpixiedust:

[ibesue]

She is in my prayers. I hope everything went well with the surgery.

[Khalana]

Oh Lord... Please be with Becca right now. Guide the surgeons' hands. Fill that operating room with your angels. Please surround Mandy and dad with your comforting presence. Amen.

:grouphug: :grouphug: :grouphug: :grouphug: :grouphug: :grouphug:

[maroo]

I just came back to see if we had an update...

Does anyone have contact with Mandy outside of the DIS?

We are still praying!!!!!!!!!!!!

[3princesses+aprince]

I was just coming back to see if there was an update as well. I've been thinking about Becca and Noah all morning, i'll come back and check soon.

[Khalana]

Yes, I've come back to check a few times too. I know that Noah is doing better today. We're still praying for Becca. :grouphug:

[Momma2dakidz]

Maroo, I have chatted with Mandy a few times off disboards. I did some lil investigating and I have teh hospital info where she is at. I am going to call there in a few minutes and see how she is. I will tell her that we are all pulling for her. If i get Mandy's approval I will let everyone know all the info i have.

Becca..........Get better soon!!!! We cant wait to see your smiling face!!!!!!!

Love and prayers,
Becky

[llurgy]

Becca has had her surgery and is in PICU.

At around 2 hours after taking her to surgery the brain surgoen came and told us that he had drained the abcess but unfortunately she had blood in the stuff they aspirated out and after a CT scan they had found that she was carrying on bleeding and filling the cavity they had just created by draining the abcess. Blood and bacteria had also managed to get into the left ventrical of the brain so we are in a fingers crossed and wait pattern at the moment.
She has a drain in her skull going down into the brain to try and drain the left ventrical and is on a whole slew load of antibiotics to combat the infection. We are waiting to see infectious desease people to try and pinpoint the bacteria she actually had growing in the brain. The abcess was spherical in shape measuring around 3cmx3cmx5cm plus a whole load of water that had gathered around it. The abcess is still there but is now full of blood instead of bacteria.
Becca hasnt really regained consciousness as "Becca" as yet, she has been awake and a little bit aware but doesnt really acknowledge us or anyone around her. We have been told that this is due to the trauma she has suffered, but they cant tell us whether or not this is a long lasting thing or will disappear soon.
She is presently having a CAT scan to see where she is at.

We are looking at at least 2 to 3 weeks in hospital with 3 to 6 months of antibiotics via a IV PIC line.

We are devastated and just want to see OUR little girl.

We will update as we can, it is hard when in PICU because we arent allowed electronics etc and have to rely on the hospital computer being free in the parents room.

Thanks for all of your prayers
Mandy

[AwaitingMagic]

I haven't ever posted on a trip report, but have read Becca's story faithfully. She is an amazing little girl with a huge personality - she is definitely in my prayers, as are you and your husband. She's lucky to have such a dedicated mother.

[Khalana]

Crazy.... Will be praying for her still and for the two of you. It is so hard to spend time in the hospital.... Lots of :grouphug: :grouphug: :grouphug: and pixiedust: pixiedust: pixiedust: coming your way.

[maroo]

Oh Mandy...:sad1:

I am so sorry! :grouphug: :grouphug: :grouphug: :grouphug: :grouphug:

We are praying for you guys. I am sitting her in tears at my desk just thinking about how hard this is for all of you guys.

We are praying. We have a church retreat tonight and I will let them know, as well, to pray for a sweet girl named Becca!

Keep us posted, as much as you are able. We love you guys!!! :sad1:

[maroo]

Maroo, I have chatted with Mandy a few times off disboards. I did some lil investigating and I have teh hospital info where she is at. I am going to call there in a few minutes and see how she is. I will tell her that we are all pulling for her. If i get Mandy's approval I will let everyone know all the info i have.

Becca..........Get better soon!!!! We cant wait to see your smiling face!!!!!!!

Love and prayers,
Becky

Becky....thank you so much! If it is ok with Mandy, we would love to get updates on her progress.

Thank you so much for posting and keeping in touch with her!

[The Moonk's Mom]

Prayers being said...:grouphug:

[teresajoy]

Mandy, thank you for the update. :grouphug: My heart is hurting for you guys! :grouphug: I hope you have your Becca back really soon!

Teresa

[QueenMomof2]

:grouphug: Becca, you and your whole family will continue to be in our prayers.

I hope you have your little girl back soon.

Praying that she makes great progress quickly. Hospital stays are the worst, we have one coming up and I'm not looking forward to it, unexpected ones are even more painful. Try to take a little time for yourself while you are there even if it's 10mins. :grouphug:

[CampbellScot]

I haven't posted before, but I wanted to add my prayers to the bunch! I will light a multitude of candles for Becca on Sunday and add her to the continuous prayer list.

I hope and pray your Becca will be feeling better soon.

God Bless!

[babytrees]

Becca has had her surgery and is in PICU.

At around 2 hours after taking her to surgery the brain surgoen came and told us that he had drained the abcess but unfortunately she had blood in the stuff they aspirated out and after a CT scan they had found that she was carrying on bleeding and filling the cavity they had just created by draining the abcess. Blood and bacteria had also managed to get into the left ventrical of the brain so we are in a fingers crossed and wait pattern at the moment.
She has a drain in her skull going down into the brain to try and drain the left ventrical and is on a whole slew load of antibiotics to combat the infection. We are waiting to see infectious desease people to try and pinpoint the bacteria she actually had growing in the brain. The abcess was spherical in shape measuring around 3cmx3cmx5cm plus a whole load of water that had gathered around it. The abcess is still there but is now full of blood instead of bacteria.
Becca hasnt really regained consciousness as "Becca" as yet, she has been awake and a little bit aware but doesnt really acknowledge us or anyone around her. We have been told that this is due to the trauma she has suffered, but they cant tell us whether or not this is a long lasting thing or will disappear soon.
She is presently having a CAT scan to see where she is at.

We are looking at at least 2 to 3 weeks in hospital with 3 to 6 months of antibiotics via a IV PIC line.

We are devastated and just want to see OUR little girl.

We will update as we can, it is hard when in PICU because we arent allowed electronics etc and have to rely on the hospital computer being free in the parents room.

Thanks for all of your prayers
Mandy


I just spent the last few hours reading about the amazing Becca and the anticipation of her trip.

She will be in my prayers (as will you all)

[kimmylaj]

prayers for all of you,
Becca we all love your contagious smile, you bring joy to all who see you and i hope you get well very soon. Praying really hard for you

[Tink rules]

Mandy...

Tell Becca we're pulling for her!!! :grouphug: :grouphug: :grouphug:

[mom2lilnick]

Praying so hard for Becca, if you get a chance and there is anything we can do for you or Becca, PM me and I will send or do anything from our end that you can think of. Hugs and prayers.

[mrsmiller]

Praying for you and for Becca to recover soon!:grouphug: :grouphug: :grouphug:

Linnette

[disneymommieof2]

We are thinking of your family and keeping you in our prayers. I hope she has a speedy recovery! :grouphug: :flower3:

[tinytreasures]

prayers for you all

[Plantlady]

Becca and the entire family are in my prayers.:grouphug:

[Dreamer & Wisher]

Prayers being said for your lovely DD. I just read about her having surgery on the Disboutiquer thread and popped over here to read your report.

Prayers for you and your DH and your sweet little girl.:grouphug:

[jessica52877]

Prayers beind said for you, Becca and famiy. I read this last night and just froze and started praying. Becca just got back from a wonderful trip from disney and now in the hospital having brain surgery. :confused3 I am sorry and sending tons of pixie dust and well wishes your way. Please let me know if there is anything I can do to help out!

[feedthebirds]

Prayers for you all. I just found and read your trip report. Wishing Becca a speedy recovery.

[scoutsmom99]

:grouphug: :grouphug: Prayers said. I will keep Becca and your family in my thoughts and prayers.

[Rebecuberduber]

I'm praying, too! Major prayers for Becca, and for her mom and dad.

[jmskinner]

I also have you in my prayers.

[ndloewen]

I just read your update. So very sorry to hear what you are all going through. Praying for healing for Becca and strength for you and your family. Thinking of you lots today.

[Shannalee724]

Hi Mandy,

New to Becca's story, but wanted to post and let you know that I am pulling for all of you. My thoughts and prayers are with you.

[coteau_chick]

I am praying for Becca and your family too. :grouphug:

[twinmum]

I haven't been back on the boards much since our son Mark's Wish Trip, but something compelled me to check in. I remember reading about Becca's Wish being granted while we were planning our trip.

I saw the message about Becca's surgery and wanted to pass along my thoughts - you are all in my prayers too. We will all be checking and hoping for a positive update soon.

Several of the Wish Kids on these boards and their families have faced major health challenges recently, I see now. I am reminded of how precious life is, and how our love for our families not only gives our children strength, but also sustains us through difficult times.

So...know that you are supported, and the subject of a multitude of prayers, from fellow Wish families near and far (we're from Toronto, Canada).

Alison

[llurgy]

Hello all,
First of all I would like to thank everyone for all of your prayers, thoughts and good wishes, we are very grateful and need your continued effort.

Towards the end of the day yesterday Becca did start to come into consciousness a little bit. She still hasnt talked but does seem to know when someone is talking to her. She will squeeze your hand if you ask her to but not much else. She looks through you, not at you and because of the greater awareness she seems to be suffering from pain more than before.
We cannot tell if she recognizes myself and David but we do know that when she hears us talking it seems to disturb her a great deal.

At the moment they are pumping copious amounts of antibiotics into her to treat the bacteria which leaked into her brain. She is also on steriods for the swelling in her brain but they cant give too many of those because they interfere somewhat with the antibiotics. They feel that the bacteria is the life threatening condition at the moment and that overides the swelling so the bacteria takes precedence.
As for the pain, they are only able to treat with tylonol or a very, very mild opiate. Nothing stronger because they need to see that she stays stable neurologically and opiates mask reactions that they need to see in her.

We had 2 hours sleep yesterday from 10am till 12pm in a parents room in the hospital, this was the first sleep we had from 6am the previous day so we were walking zombies. We have a room now at the McDonald house so we got some sleep overnight.

We went over to see becca this morning, it must have been the shortest visit ever!
She has had a restless night with pain and was sleeping when we went in.......Until she heard our voices! She became very agitated and was moaning and tossing and turning and was just very unhappy. We calmed her down (she still doest show any outward sign of knowing us) and she went back to sleep.
We touched base with the nurse about overnight happenings and learned that she had been having more discomfort and had required more pain meds. As she heard our voices she again became agitated and started struggling again so we calmed her down again. We kept quiet for a while and just listened to the nurse talking to us and telling us about the over night happenings. At some point we had to talk again, becca noticed and again became agitated so we left.
We think that Becca does recognise when we are there now and it frustrates her that she cant reach us and we cant reach her. Or just frustrates her that we, her mummy and Daddy cant make her hell stop. Whatever, we are not helping being with her at this point so we are staying away for a while. We will go back throughout the day to see if the situation changes.

Thats it for now, I will carry on updating as I can.
Love
Mandy and David

[kimmylaj]

oh i wish i had something to do or say to make this all better but all i can say is.. i am still praying for becca

[3princesses+aprince]

Oh, I am crying reading this, how terrible it must be to see her like this. I will keep praying for her and hope she gets better soon, thanks for updating, we're all thinking about her.

[autumnpalm]

I just read through your whole PTR and I am so sorry you are having to go through this.:grouphug: Your darling Becca will be in my thoughts and prayers all day... as will you and your husband. What a brave fighter you have.

[Khalana]

I'm so sorry, Mandy.... :sad2: That must be so tough, not being able to be with her. It seems like she knows who you are, though. It's the most helpless feeling in the world, not being able to help your suffering child.... :sad1: Lots of prayers and :grouphug: :grouphug: :grouphug: coming your way.

[teresajoy]

Oh Mandy, sweetheart, I'm so sorry. My heart is breaking for you guys. I pray that they can do something to help Becca's pain. Mandy, there is so much stuff in my heart that I want to say, but I can't even find the right words to express it! Know that I am praying and thinking about you guys and I hope that you can gain some peace from all the prayers coming your way! :grouphug:

[mom2lilnick]

Still praying for Becca.

[maroo]

Mandy,
Words can't do justice with how much I am hurting for you guys. I will continue to pray for you guys!!!!!!!

[FSUDisneyGirl]

Prayers being said down here, too!

[coteau_chick]

I am going to stop everything and hit my knees to pray right now. Just know that we are all praying for you and for Becca.

[bclydia]

Know that we are all praying for your family and for Becca specifically. I am sorry she is going through this.

[gcast1]

Mandy - thanks for keeping us posted on our precious girl's recovery. We love you guys and will continue to lift you all up in prayer. Can't wait to see Becca's wonderful smile again!

Glenda

[revrob]

I can't even express how sorry I am that this is happening right now. Just know that I'm still praying for all of you!

[CampbellScot]

My continued prayers are with you. Becca will be specially mentioned at mass tomorrow as someone who is in need of prayer and healing.

hugs to all of you.

[TwistofLemon]

Sending prayers and good thoughts to Becca and her Mum and Dad.

I can only imagine what you must be going through, and what you will have to face in the weeks to come. I know it's not much, but maybe knowing you have support from people all over the world will ease your minds just a bit.

God bless
:grouphug:

[EnchantedPrincess]

I will be praying for Becca and your family. I am so sorry that you are going through this...my heart is breaking for you. You will be in my thoughts and prayers.

[tinytreasures]

more hugs and prayers coming your way

[Tink rules]

mandy... Stay strong... I'm sure when Becca hears your voices she just wants you to know that she can... I hope it gets better for her very soon.

We will continue to keep her in our thoughts and prayers... and you and David too... :grouphug: :grouphug:

[Sandy321]

Mandy and David,

Know that I am holding you all in my thoughts and prayers! Having just struggled with my son in a hospital for a mere 5 days, I cannot begin to know the struggle you are now in - may you have all the armor in God's army in your heart! May you all feel His peace and find comfort in His Love! The greatest is LOVE!
:grouphug:

[llurgy]

Quick update.

Things are holding steady.
We have not been with Becca that much today. After seeing how much our presence seemed to aggravate her this morning we have been visiting her aproximately for an hour every 3 hours.
She has been prescribed Morphine for her pain and so was much more settled at the times we saw her. We kept visiting more for us than for her, it was nice to see her sleeping and not in obvious pain.
I dont think much else will happen medically over the weekend, they are testing her bloods,urine and brain drainage all of the time to make sure nothing changes for the worse, she is still the same as before in status only now she isnt in as much pain.
We are in for the long haul here but hopefully it will be sooner rather than later that we see light at the end of the tunnel. This is horrible, it is horrible seeing your child do things that you have never ever seen them do before, writhing and arching and grunting......No words, no smile, no recognition.

Thanks all for your much needed prayers, till tomorrow......we are going to settle down for the night.

Love
Mandy and David.

[mom2lilnick]

We are all just praying so hard for Becca, I just called Jeff at work to read him your latest update. Give Becca's hand a squeeze for us. Hugs.

[Dreamer & Wisher]

Praying for strength for you and your DH and healing for your Becca. I am praying that her bright smile will return soon. I really loved the pictures of her with her gifts. She has such a warm spirit it just glows out of her through her smile! I am glad to hear that they are helping her with her pain.
:grouphug:

[Donald is #1]

Oh I am so sorry. My thoughts and prayers are with you for Becca's recovery. :grouphug: pixiedust: pixiedust: pixiedust:

[crazytp93]

Quick update.

Things are holding steady.
We have not been with Becca that much today. After seeing how much our presence seemed to aggravate her this morning we have been visiting her aproximately for an hour every 3 hours.
She has been prescribed Morphine for her pain and so was much more settled at the times we saw her. We kept visiting more for us than for her, it was nice to see her sleeping and not in obvious pain.
I dont think much else will happen medically over the weekend, they are testing her bloods,urine and brain drainage all of the time to make sure nothing changes for the worse, she is still the same as before in status only now she isnt in as much pain.
We are in for the long haul here but hopefully it will be sooner rather than later that we see light at the end of the tunnel. This is horrible, it is horrible seeing your child do things that you have never ever seen them do before, writhing and arching and grunting......No words, no smile, no recognition.

Thanks all for your much needed prayers, till tomorrow......we are going to settle down for the night.

Love
Mandy and David.

Prayers. Give her our love.

[kenyadh]

I pray that God will make Becca every wit whole, mind, body, soul and spirit, in the name of Jesus, the Great Physician.

[feedthebirds]

More prayers being said for Becca.

[maroo]

Lord, You are such a good God. And we know that You give good gifts to your children.

Lord, we just ask that you will be with Becca tonight. Specifically that she would not be in much pain. That she would rest peacefully. Lord, I pray that the antibiotics will do their job in getting rid of all infection! And I pray that she would rebound quickly...with lots of strength and flash that Becca smile that we all have come to love.

Lord, I also pray for Becca's Mom and Dad. How difficult this has been for them. Lord, I pray that they would be able to get a very good nights sleep. I pray that they would sense Your Presence. I pray You would give them peace.

Lord, this is such a hard situation. I am so thankful that they started prescribing pain medicine for Becca. That will make everything better!

We love you. In Your Son's Precious Name - Amen


I just felt like I should really be specific tonight. We love you guys. And we are praying...persistently.

[teresajoy]

Mandy, David, Becca, my entire family is praying for you guys! I am so glad they were able to give her more pain meds. I hope that helps you all get through this. Seeing your baby in such pain must be almost unbearable. We are all here for you, praying our hearts out fot you guys. Thank you for your continued updates. I know it can't be easy for you to do, we appreciate it so much though. :grouphug: I hope you all get some rest tonight.

[msce2]

I wish I could offer words of comfort. I will be praying for you and your husband and Becca.

Father in heaven, We commend Becca into your loving care. Relieve her pain, guard her from all danger, and restore her. Please watch over her parents and give them strength. In Jesus name. Amen.

[The Moonk's Mom]

Continuing to pray for you all...:grouphug:

[llurgy]

Thank you all so much for your continued support.
It means a lot to us. Being 90 miles away from home is hard, our main source of support at home is our adopted family her in the US, Becca's adopted Grandma and Grandpa. They are getting on in years and so we are holding off on them visiting until Becca is a tiny bit more stablized, it would upset them both greatly to see Becca like she is. So.......the support pouring out on these boards and in emails from our family in England we are taking great support.

Becca is around the same today. They are keeping her doped up on pain meds. Luckily she goes well beyond her prescribed time for the meds, she is allowed them every 2 hours but tends to go about 3.5 to 4 hours before needing more.
They are taking her catheter out today and her arterial line. They are trying to eliminate areas where infection could get into her body and the arterial line and the catheter are 2 lines that she doesnt need so desperately at the moment.
They are going to put a tube down into her duodenum today to feed her. They dont want to put it into her stomach for fear of her vomiting and aspirating into her lungs, but they feel that she has gone too long without food and so they have to put the feed line in. When the line goes in she with probably have to have a nurses assistant at her bedside all of the time to make sure she doesnt pull it out. She does have someone there for most of the time but if there is a tube in she has to have someone there every minute.
Even though she is not really there she is still being very stubborn. Everytime she comes around just the tiniest bit she is trying to pull the nasal canulla giving her oxygen away, whoa betide they put a mask on, she gets really mad then! Once the morphine goes in she settles and no longer tries to pull things out but you can see their quandary with her feeding tube and the risk of her pulling that out. Food in her lungs is one more big complication we dont need.

They grew a culture on the bacteria that came out of the abcess, it was strep and so they will try and put a regime of antibiotics to those cultures to see which set of antibiotics will fight it best. When they find this out they will be able to narrow the range of antibiotics they are giving her. At the moment she is on a really broad range. She still has a risk of Ventrical meningitis and so this stage is critical.
Becca still has the drain in her brain. I would say it is very productive, she is draining more blood and liquid now than she was doing in the hours immediately after the surgery. We do not know what this means, we wont really know until she goes for another CT scan either tomorrow or the next day.
Things are holding steady, no better but no worse.

I will update more as we find out.

Love
Mandy and David

[teresajoy]

Mandy, I'm so sorry you guys are alone physically out there, but know that we are all there with you in spirit. We love you very much and are praying for you constantly! I hope they can keep Becca's pain under control and get rid of the infection. The day we see that wonerful Becca smile again will be a day of celebration! :grouphug: :grouphug: :grouphug: :grouphug: You are all loved very much Mandy!!! :grouphug:

[maroo]

Mandy,

We are praying for you guys!! Thank you for the updates. It helps so much in knowing specific things to pray. I am checking back constantly. I am writing from my iPhone. I am persistently praying.

I am so thankful they have her pain under control. And I am glad she is being a little fiesty! A good sign, I think.

We are here for you and your situation is being shared with many others you can't see. Just know we care. And are here for you. And we will keep the encouragement coming!!

[fairygoodmother]

Mandy, prayers are being said for Becca all over this country!

Mary is right, it helps to know specifics to pray for. Our God is an awesome God and knows her needs, but rather than a general "heal Becca" we can ask for specifics and then praise Him when we see them happen :)

Davis Park Church of Christ in Modesto, California will be praying today for Becca's healing and for David's and your peace!

[3princesses+aprince]

I'm so sorry to hear that things have not gotten better, but glad to see they are not worse. We all think about you all day and are all wishing Becca is better soon.

[The Moonk's Mom]

Prayers said everywhere for you...continued healing for Becca and strength for your family.:grouphug:

[Momma2dakidz]

Mandy, I am praying for Becca, you and your family. Is there anything you need? I am only a few hours away so if you need ANYTHING at all please do not hesitate to ask.

Becky

[kimmylaj]

we are all certainly still praying for your beautiful little girl, and we all appreciate the updates.
it means so much to me because even though we read about you guys on the computer i feel like we know you guys. so here is a virtual hug:grouphug: and many many prayers

[tinytreasures]

http://i3.photobucket.com/albums/y75/5tinytreasures/signs/footprints200620-1.jpg

[autumnpalm]

More prayers.:grouphug:

[maroo]

http://i3.photobucket.com/albums/y75/5tinytreasures/signs/footprints200620-1.jpg

ah...

perfect.

[revrob]

I pray that you will feel His presence all around you! I pray that you will know that you are never alone. I also pray, in faith, believing, that Becca will receive healing. I pray that the wisdom given to the doctors will be supernatural. That God will fill the doctor's minds and hearts with the wisdom that they need to treat Becca swiftly and completely.

We believe for Becca!

[CampbellScot]

today when Father Mike said mass he "remembered in a special way a dear little girl with a fighting spirit who needs even more power of prayer behind her..."

even though you don't know us, there is a lot of prayer coming from New Jersey with a lot of love and good wishes.

blessings to you all.

:grouphug:

[kath1210]

More prayers for you, David and Becca are being said here in western Maryland. My daughter is going to add Becca to her school's prayer request list tomorrow morning.

I just know we will all see Becca's beautiful smile again soon. :grouphug:

[Plantlady]

More prayers for the entire family. :grouphug:

[jessica52877]

Thank you for the update! I know you have alot going on, but it is wonderful to hear that Becca has not gotten worse. I"ll continue to pray for her to get better and quickly!

[mom2lilnick]

Up this morning thinking and praying for Becca, hope today is a better day.

[Clutterbug]

Mandy, I am so sorry to hear about all that Becca is going through right now. I don't even have words to express what I am feeling. All of you will be in my thoughts and prayers.

[maroo]

:grouphug: :grouphug: We are still praying for you guys!

Just wanted to let you know! :grouphug:

[fairygoodmother]

Prayers for you, David, and especially sweet Becca!

[llurgy]

Hi all.

Thanks for the continued prayers.
Becca still remains the same, no worse which is so good.

We went into see her this morning at just after 5am and she was stable and sleeping.
David went to work today......This will be ongoing so he is going to drive the 90 miles to work in the morning and drive back after work.
I will remain at the hospital except for today, today I have come home with David so that I can get our house in order, pay bills, pack some clothes for the long haul. We are returning this evening.

We took some photo's of our darling yesterday. One in particular may be a bit upsetting to some so skip past that one ok? :)
There are 4 photo's, it is the 4th that may be a bit upsetting.

http://i68.photobucket.com/albums/i10/llurgy/Hospital/IMG_0886Medium.jpg
http://i68.photobucket.com/albums/i10/llurgy/Hospital/IMG_0888Medium.jpg
http://i68.photobucket.com/albums/i10/llurgy/Hospital/IMG_0893Medium.jpg
http://i68.photobucket.com/albums/i10/llurgy/Hospital/IMG_0894Medium.jpg

Love
Mandy

[kpgriffin]

We are all praying for you and your beautiful little girl. Would it be alright to send cards or pictures to decorate her room?

[Khalana]

Mandy.... I don't even know what to say........ :sad2: All I can say while looking at those pictures is: Oh, Lord Jesus... :sad1:

I am so so so so sorry!!!!!!

She is beautiful, shaved head and all...

Lots of :grouphug: :grouphug: :grouphug: :grouphug: and prayers....

[maroo]

Oh Mandy...:sad1:

We will continue to pray for you guys!!!

Thank you so very much for the updates! :) We really, really appreciate knowing how she is doing and how you guys are doing!

I am praying for rest for Becca and for peace for both you and David. :grouphug: :grouphug: :grouphug:

[maroo]

We are all praying for you and your beautiful little girl. Would it be alright to send cards or pictures to decorate her room?

We ARE going to send stuff to this sweet child! :) And hopefully some Pixie Dust to her parents.

If you are interested in providing some pixie dust, please PM me.

[3princesses+aprince]

Oh, poor baby girl. I still continue to think about Becca everyday, thank you so much for letting us know how she is doing.

[tinytreasures]

huge hugs and prayers

[teresajoy]

Mandy, thank you for checking in with us today. And, thanks for the pictures. Becca looks so little in them, like a baby. :hug:

[fairygoodmother]

Mandy, thank you for the update. Prayers for you today while you're away from her. Know she is in good hands. Poor sweet baby.
Blessings to you all.

[teresajoy]

We ARE going to send stuff to this sweet child! :) And hopefully some Pixie Dust to her parents.

If you are interested in providing some pixie dust, please PM me.


I have the information as well, if anyone wants to PM me. I'll clear my inbox out! :thumbsup2

[CampbellScot]

every time I think of Becca i stop what I'm doing and say a prayer for her. God bless that dear sweet girl. God Bless you and her father.

continued prayers for all of you!

[visitingapril09]

I am praying for the healing of your sweet girl and for strength and peace for you.

[QueenMomof2]

We've been praying for Becca and the family. I'm glad to hear she is stable and I hope things start to improve soon.

I haven't stopped thinking about Becca and you since you let us know she was in the hospital. We will continue to send prayers and positive thoughts. :hug:

[Donald is #1]

More prayers coming your way. :grouphug: :grouphug:

[Tnkrbelle565]

Prayers from Boston coming your way :grouphug:

[autumnpalm]

Oh, your darling girl. There are no words.:guilty: :grouphug:

Please know that I pray continuously for both her and you. Huge hugs.

[bclydia]

We are also praying for you and for Becca. I wish I had words to offer that would help...

[TwistofLemon]

Add another to the list....continued prayers for you all

:hug:

[eyor44]

Oh Mandy. I am so sorry. I can't even imagine what you and David feel right now. I just got on to read your updates. Becca has been on my mind the past couple of days and now I know why. I'm praying with everyone else....for all of you. :grouphug:
Lisa

[nikkers]

I have been faithfully reading your trip report. I am so sorry to hear about Becca. My family has been keeping Becca and your family in our prayers. Thanks for keeping us updated and sharing some pictures.
God bless!

[teresajoy]

Just checking in to see if there is an update. We continue our prayers here in Michigan! :hug:

[maroo]

Thinking about you guys this morning.

I hope you are resting well, sweet Becca!

And praying for peace and comfort for Mandy and David, too.

We love you guys!!

:grouphug: :grouphug: :grouphug:

[iu97alum]

Oh my goodness! I haven't been on the boards for a few weeks and I read al about Becca! Prayers coming quickly from us!!

[llurgy]

Good afternoon all.
Little has changed regarding Becca's status from yesterday to today.
When we came in yesterday evening she was quite restless and had been since late afternoon. They had tried slowing down on the morphine around lunchtime but all this did was make her mad...lol
Trouble is is that when she gets annoyed she is holding her breath and her sats go way down. She usually runs around 72% to 74% when healthy, since the surgery she has been running in the 80's because she is on full time oxygen. When she gets annoyed it goes way down and takes ages to get back up again. There have been several times today that we have seen her sats go as low as 42% and that is not good.
Anyways...still the ongoing battle between medicating to make her comfortable but not masking neuro signs that they need to watch.....so the Pain team came around today.
They have prescribed one of those button things for the nurse to operate....she is allowed it every 15 minutes, she is also to get meds every 4 hours into her NJ tube, I think it is called oxymorphan?? Both meds are still opiates so they are also giving her Narcal??? - a drug to stop the opiate effects of the other meds. So she should be pain free but not asleep/knocked out all of the time.
The physical therapist has also started to come around to work with her on her arms and legs.
I dont know whether I said before but she has been showing that she has a marked weakness on her right hand side. She will wiggle her toes if asked but only on the left, she will grip with her hand but only on her left.

They think her speech loss is caused by where the needle went into her brain to do the aspiration, they feel that it may have bled down the track of the needle and when that blood clears up her speech may come back.

The neurologist came in today to see if her disturbances were neuron based versus tissue pain based, he feels that he thinks it is just straight pain or agitation and that for now he is not going to do anything with her, which he says is good as he says the less we have to do with him the better and he hopes not to see us again :) :)

We asked the neuro surgeon how long the brain drain was likely to be in and he said probably 7-10 days. At the moment it looks like strawberry punch, it has to go through a thick dark 'motor oil' stage and then a tea looking stage before finishing. If it finishes before then that is not good as it means the clot has not been dissolved and it is still in there which means it would have to be removed via surgery. A CT scan yesterday showed no lessening of the mask nor any growth of the mass, that is all holding steady.
The neuro surgeon also mentioned that after all of this is over there is a less than 50% chance that Becca's brain will have the ability to naturally drain its own ventricals and that she may finish up having to have an internal brain drain fitted.

David didnt go to work today with Becca being so unstable last night but he is thinking of going in tomorrow. It depends on what time we get to sleep tonight, with it being a 90 minute commute David has to make sure he has the energy to do the commute both ways, do a days work and still have energy left over to go and see Becca in the evening.

I think thats it for now........I shall update again as things happen. It is kinda hit and miss the times I can update.

Love
Mandy

[gcast1]

Mandy - thanks so much for the update. Continued prayers for Becca and especially for David as he commutes to work - and of course for you as you hold down the fort. We love you guys!

Glenda

[MaryAz]

Prayers are being said for your whole family. I hope that things improve and that David is able to commute safely.

[kimmylaj]

continued prayers for all of you.... thank you again for the update

[CampbellScot]

praying so hard for you all. It sounds like Miss Becca has a feisty spirit! She's my kind of girl!!

:hug: to you all!!

[The Moonk's Mom]

We are all praying for you guys! Recovery for Becca, safe jouneys for David, and strenght for you, Mandy. May God hold you all close to him as you go through all of this.:grouphug:

[teresajoy]

Mandy, thanks for the update. We appreciate you taking the time to do this. Continued prayers for you, David and precious Becca!

[twinmum]

Mandy, we so apreciate you taking the time to keep us informed. Many of us know from personal experience that it can be difficult to pull away form our babies and communicate outward.

Please know that prayers are being said in Toronto for Becca, you and David.

Alison

[tinytreasures]

hugs and prayers

[littlewarriorsmom]

I have a candle burning for Becca and am sending prayers your way.

[Dreamer & Wisher]

Praying for you and your DH. Praying for Becca to heal.
:hug:

[eyor44]

:grouphug: We are here for you. :grouphug:

[ndloewen]

Thinking about you today...many prayers.

[fairygoodmother]

Prayers for Becca tonight, and for you and David. May God grant you peace and a restful night!
:grouphug:

Darla

[TwistofLemon]

Thanks for keeping us updated.

Continuing prayers from North Carolina.

[maroo]

Mandy,

Thank you so much for the updates!! I really appreciate it! I know it is so hard to regurgitate everything for us...but it helps so much in knowing how to pray for you guys. :)

I am glad she is stable...but I am going to pray specifically for those O2 sats to start going up! 40's...goodness! I feel bad when I hit the 80's... yikes.

:)

[dvc at last !]

Hugs and prayers for all of you.

[Shanka]

Oh Mandy, I am so very sorry to hear about Becca. We were at the village when you were. Becca really enjoyed our dog. (The yellow lab seizure alert dog) She was so sweet about asking to pet her. Oh I wish I could bring River over to sit with her. Oh Mandy, my heart is aching for you guys. My prayers are with you.

[3princesses+aprince]

I was just coming on to check on becca. I read the post before mine about the family you met with the service dog and how she wishes River could come and sit with Becca, and that is so sweet I am crying. Oh, how I hope Becca is better soon.

[Shanka]

I was just coming on to check on becca. I read the post before mine about the family you met with the service dog and how she wishes River could come and sit with Becca, and that is so sweet I am crying. Oh, how I hope Becca is better soon.

Oh dear, Sorry I made you cry. Just checking in this morning to see if there is any news on Becca.

[HeatherSue]

Oh Mandy, I heard about Becca while I was on vacation and I've been praying for her ever since. :hug: :hug::hug::grouphug::hug::hug::hug:

[llurgy]

Day 7
David didnt get to work yesterday because Becca was up and down all day, she is basically the same today but we cant do anything to help so David has gone to work today. I am taking a quick break for a coffee and some computer time.

Becca is still the same, she is pretty steady in most things barring her oxygen sats. They still keep dropping and tanking out. She is on 10 liters 100% oxygen plus a blow by on 5 liters when she needs it.
She either wakes or someone disturbs her and it takes only 30 seconds for her oxygen to tank out down to the mid forties/low fifties. It then takes about 30 minutes to get them back up to a respectable 70%-75%.
They are trying to leave her alone so they are doing lots of things all in one to try and minimize the desaturation.

A lady just came to our room with Valentines/Get Well cards that people have sent Becca through the online hospital facility.....They print them out like posters on thick card stock, they are very sweet and I read them to her whilst she was sleeping.

I will try and update some later.

Love
Mandy

[iu97alum]

Thanks for the update! Know that we're thinking about her and you and David. Many hugs to you all!!!!

[jmskinner]

My family's prayers are still with all of you.:grouphug:

[Tnkrbelle565]

Still praying :hug:

[kimmylaj]

just checking in... still praying... really hard

[autumnpalm]

More prayers. I wish I could write the perfect thing to comfort you, but I pray to God that He might heal Becca's body and your hearts. What wonderful parents she has been blessed with. What a wonderful daughter you have been blessed with. I pray constantly that God will work miracles in Becca.

[teresajoy]

Mandy, I'm glad the cards were able to brighten you day a little. :hug:

[MaryAz]

Still praying for Becca. Hope things continue to be stable. And those o2 sats go up up up.

[jenb1023]

Just wanted to add my thoughts and prayers. I have been checking in a few times a day for updates but haven't posted yet. I am glad to hear that Becca is holding her own and not getting worse. I hope the knowledge that a whole community of people, the DISers, are praying and thinking good thoughts for you provides a tiny bit of comfort during this trying time.

:grouphug: to all of you!
Jen

[CampbellScot]

just checking in...praying praying always for all of you. :hug: :hug: :hug:

[Shanka]

Thank you for the update. I am praying that the O2 stats get better. You are such a strong mama! Hang in there.

[maroo]

I am so glad that you are able to stay with her now, some. I think I was thinking that she might still be getting upset at hearing your voice (because she wants you, of course!)...but I am so glad that you are able to spend some time in there now!!!!

I am continuing to pray for those 02 sats!!!

We love you guys!!

[tinytreasures]

praying she can hold up those stats

[MAGICFOR2]

Adding my prayers for Becca - just found this report. I'm so sorry your sweet baby girl is going through this.

[FSUDisneyGirl]

more prayers for becca! i'm glad to hear things are going steady, i hope things get better very soon!!!

[dmbfan]

Mandy, praying hard for Becca, many thoughts and prayers your way

[teresajoy]

Hi guys, Mandy had David put me on the email update list for Becca and asked me to post the updates for her here, since she has limited internet use. I know she will be checking in when she can though. Here is the email I just got from David:

Becca Update


Today has been a big debate about whether Bic's aggetation is due to pain or neurological. She had a restless night and similar day. The nurses are attempting to cram all their activities into one time slot to minimize disturbances. Even so, she has been getting agitated and her oxygen sats have plummeted. They have been down in the 40's a couple of times today and taken a long time to recover.

ICU are very disappointed with the neuro specialists in their response to help and advice. If you recall they said there was nothing they could do! The ward have some specific questions that they want answering and for some reason, these have been avoided.

There was a change to Bics pain meds today. They felt the on demand med was not doing anything worthwhile, so they dropped that. They have doubled the oral pain med to once every 2 hours from every 4 hours. That seems to keep her rested for one hour. The second hour is then a constant battle with restlessness and falling oxygens. We are aware that the pain managment experts are at a loss as to what is going on and have had discussions with neuro about the best course of treatment.

Another change today was the reintroduction of a catheter. She has been holding on and it was realized that taking the catheter away coincided with the aggetation problems. That was done at about lunch time, but it hasn't made any difference. Everyone is clutching at straws.

I get the impression that PICU are thinking about moving Bic to a ward, but until this is resolved, she isn't going anywhere.

Physical therapy were round again today, but they abandoned their work because it upset her too much.


Bic had a small bleed from where the drain goes into her scalp. Neuro investigated and didn't think it was anything to be troubled about. They talked about re-doing the dressing in the next day or two.

A finger stick for glucose came back okay for Bic, so at least one thing is good! They also took a complete blood count sample, but we don't have any results back on this nor do we know why they want to do the test.

David

[CampbellScot]

This prayer was said by Father Mike at Mass. He gave me the card after Mass and I wanted to share it with you. I hope that it brings you comfort and strength!

~Father of goodness and love, hear our prayers for dear Becca and her family, who are in need of your comfort and healing. During this time of trial and illness may they find comfort in your healing presence. Show your mercy as you heal Becca and free her family from fear. May this darling girl and her family find lasting health and deliverance, and so join us in thanking you for all your gifts. We ask this through the Lord Jesus who heals and comforts the sick and downcast. Amen.~

much love to you all!

:goodvibes

[kimmylaj]

thanks so much for more updates everyone. you guys are great

[llurgy]

Quick update.
Becca has been taken off the pain meds because they were not working. She has been agitated now for 2 days and not getting much rest. This am they gave her a sedative and she is now sleeping like a baby so we are very happy about that :) :) She needs the rest and they were scared that she was going to pull out her brain drain because she was forever going at it with her hand or scratching her head on the bed and making it bleed.
Things are status quo at the moment so we will continue to look for improvement over the days not the hours.
They have approved her having the sedative regularly, not just a one time use so I am releived about that, she may be able to start healing from the inside rather than just fight everything.

Love
Mandy

[MAGICFOR2]

Thanks for the update. I am glad Becca is finally more comfortable - I'm sure the sleep will be very healing for her.

[The Moonk's Mom]

Mandy- I am so glad to hear Becca is getting some rest. I hope that you guys get some answers soon. Continued prayers for you all.:hug:

[maroo]

I am so glad she is resting better!!!

Sounds like a sedative is a good start!

Have her O2 sats gotten any better? Bless your heart! I know this is hard.

Are you guys getting any rest? We are praying for all of you!!!!

[teresajoy]

I'm so glad that Becca is able to get some much needed rest. Let's pray that this helps her heal. Take care of yourself too Mandy and David :hug:

[fairygoodmother]

I'll join those who are grateful that Becca is able to rest! :)
Praying for God's blessing of healing for Becca, and comfort, peace, and rest for you and David!

Darla

[feedthebirds]

Continued prayers for you all. I'm glad to hear she will be able to get some rest.