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got2luvtink
03-02-2008, 11:02 AM
I just read a post by chaospearl in which she wrote about people with "invisible disabilities" She wrote about how rude people can be when they don't have an obvious disability. Her experience at Disney was astonishingly cruel. I have not that kind of experience personally, as she is someone who uses a ECV. However, I do have children with disabilities, and they wear their disabilities on the inside(as opposed to those who wear theirs on the outside.) So, I can absolutely relate to chaospearl's thread. I find in amazing how intolerant some people can be. I've had parents, grannies, cashier's, bank employees, nurses, and others who have come over to my children to try and disapline them. Yes, just bypass me or my husband and try and tell them what to do. I'm writing an example of an experience we had down below, skip it if you want to move on, and I know that there will be spelling errors in this post, please excuse them, as I think the message is more important then the spelling. Thanks :thumbsup2


(For example, I was in the bank with my son when he was 4, I had to take him in because my husband didn't get off of work till the bank closed, and I needed to handle some business inside. My son was talking about Spiderman rather loudly,while we were in line. He was totally oblivious to his surroundings, but I kept reminding him to use his quiet voice when we are inside. There was a lady about 3 people behind up who had Tourette's. about every minute or so she would le out this loud sort of yelping, hiccup sound. It kind of startled me at first, but when I saw that it was coming from this lady, I flashed her a quick smile, and kept attending to my son. So after about five minutes waiting in line, one of the bank employees comes over and tells my son, loudly so everyone can hear, YOU NEED TO BE QUIET. THIS IS A BANK. Needless to say, I was seething.:furious:, but I was also embarresed, and at a loss for words, as this was the first time anything like that happened, and I was trying to figure out what was the right response in that situation.(I wanted to model, good behavior in front of my son, but my gut instinct was to pounce on her :rolleyes1 ) BTW, no one ever said a word to the woman with Tourette's, AND THEY SHOULDN'T HAVE, but it brings home my point about the disparity between the way that people with obvious disabilities, and those with "invisible" ones get treated.)

So anyway, chaospearl joked that when asked, "Why do you need an ECV," or "you don't look like you have a disability," or "What's wrong with you?" She responds, "I have a highly specific and debilitating allergy to rudeness, and it makes my knees and ankles swell up so that I can't walk..."
I LOVE IT!:lmao:

If anyone else has any quips, that could be used in these situations, please post them here. Thanks:goodvibes

Earstou
03-02-2008, 01:13 PM
Not quite the same, but I had a friend that used a leash on her child. When people made negative comments about it, she would say "I keep him on a leash ever since he bit the mailman".

Cheshire Figment
03-02-2008, 02:07 PM
I, very sweetly of course, offer to give them my personal ECV if they will take all the disabilities and infirmities that go along with it.

got2luvtink
03-02-2008, 02:22 PM
I, very sweetly of course, offer to give them my personal ECV if they will take all the disabilities and infirmities that go along with it.
Nice!

got2luvtink
03-02-2008, 02:25 PM
Not quite the same, but I had a friend that used a leash on her child. When people made negative comments about it, she would say "I keep him on a leash ever since he bit the mailman".

Funny.

BeckyScott
03-02-2008, 03:00 PM
We haven't had too many problems because Justin flaps alot. So while it's "invisible", it's a pretty obvious sign that most people are familiar with. I remember last summer when we went to Silver Dollar City and went to guest services (they have something similar to a GAC) I told the lady "invisible disabilities, turned around and Justin was flapping and spinning like a madman, and we both started laughing, I told her I guess maybe it wasn't so invisible.

About the best one came from our older son. Someone was doing the eye-roll, and with the bravery (and the total lack of "polite" that one acquires with adulthood) just stared back at them with that DUH look and said "Justin has autism."

Being reprimanded by a 10-year-old. Priceless.

(caveat: we do not teach our children to be snippy to adults. But this situation did warrant it, and he said something before I could, 'cause I was getting ready to, and I wouldn't have been so nice. In his case, it's a rare thing that he stands up for his brother)

livndisney
03-02-2008, 04:26 PM
I have posted this before but.....

My DD is 6, when an older child (who should have known better) rudely asked her-"eeew what happened to your hand?" without missing a beat she replied "eeew what happened to your manners?

ecki
03-02-2008, 04:30 PM
Kayla has a more or less "visible" disability -- Down syndrome. But she also has autism and all those lovely behaviors. I always get a kick out of people who tell me that Downs kids are so loving -- at the same time Kayla is trying to bite my face or having a major meltdown!

got2luvtink
03-02-2008, 06:10 PM
About the best one came from our older son. Someone was doing the eye-roll, and with the bravery (and the total lack of "polite" that one acquires with adulthood) just stared back at them with that DUH look and said "Justin has autism."

Being reprimanded by a 10-year-old. Priceless.

(caveat: we do not teach our children to be snippy to adults. But this situation did warrant it, and he said something before I could, 'cause I was getting ready to, and I wouldn't have been so nice. In his case, it's a rare thing that he stands up for his brother)



My DD is 6, when an older child (who should have known better) rudely asked her-"eeew what happened to your hand?" without missing a beat she replied "eeew what happened to your manners?

From the mouth of babes...:angel:

livndisney
03-02-2008, 06:23 PM
Sorry about the attempted multiquote. I'm new to this. Cindee's quote is also included:)

No worries, I still have not mastered the multiquote thing.:guilty:

That's OK, I fixed it - Cheshire Figment

got2luvtink
03-02-2008, 06:25 PM
Kayla has a more or less "visible" disability -- Down syndrome. But she also has autism and all those lovely behaviors. I always get a kick out of people who tell me that Downs kids are so loving -- at the same time Kayla is trying to bite my face or having a major meltdown!

Thanks for the reply. Read your blog. Hope you and Kayla are feeling better. If not, sending you prayers and pixie dust to help you thru. :tink:

ireland_nicole
03-03-2008, 12:01 AM
Usually when we get the eyerolls and such, I try to ignore it. But when someone makes a comment, to me, all bets are off. I try to tailor comments to the situation

When someone says, "Isn't your child to old to be doing that?" etc. if I'm feeling nice, I just say "Adventures in Austism" w/ a smile

When they just won't stop staring, I have used the tried and true: "Do you need to borrow a camera? I'd hate to see you strain your neck and a picture would last a lot longer.

And when I'm feeling really mean, "You don't look disabled" Cool. "Well, you don't look ________(what I want to say is stupid, but I've taught my kids that that's wrong, so I usually substitute rude", but looks can be deceiving."

By the way, love the leash comeback; We don't leave home w/out 2, so I can't wait to use it... & the manners comeback? Awesome!:rotfl2:

Nicole

mazz1
03-03-2008, 03:40 AM
a phrase i use a lot is "not all disabilities come with a wheelchair" and another one that pops out now and then " mmm now where did i put those instructions for you Jo? ahh yes i remember, the lord didn't bless us with any" i usually follow this with me saying to Jo "but we're doing great without aren't we honey" to which she answers yes (she answers yes to all questions) ;)

i also have perfected "a look" that my husband calls my "stay away and keep out of it look" he said it scares the life out of him so should warn off all but the most stupid or ignorant of people

i've never heard of having to be quiet in a bank? is it a american thing as not something i've ever come across in the UK, a library yes there is a need to be quiet over here but a bank is a puzzle to me

perhaps the member of staff was a former library employee :laughing:

OneLittleSpark
03-03-2008, 08:19 AM
:rotfl: Love all the ones everyone here has come up with! They're brilliant!

BeckyScott, you have no need to explain your son's response to us. I'm sure we all fully understand why he said what he said, and I for one applaud him, rather than thinking less of him for answering back to an adult. There is a world of difference between being rude and standing up for yourself or a loved one!

I'm a wheelchair user due to Fibro (only just got the diagnosis last week, yay!), so my invisible disability comes with a visible 'fashion accessory'. I've not yet had any 'nasty' comments (though I have caught the odd look), but I have had a fair few "why do you use a wheelchair?" kind of comments. Now, I don't really mind people that I've recently met asking this, if they're genuinely concerned / politely curious, but some people have been down right rude in the way they ask. I even had a guy who was serving breakfast at a restaurant just come right out and ask me "did you have an accident?"! Well, at first I thought he meant that I'd spilt food in my lap or something, and silly little me was looking around trying to work out what he was on about! :rotfl2: Normally for these kind of things, I just briefly explain my condition (widespread pain and chronic fatigue), but I have been tempted once or twice to give them a deadpan response of "Dinosaur attack".

I've got a couple of comebacks lined up, just in case I do get any nasty comments. ;)

If I'm feeling a bit sarcastic, I have (in a fake sincere tone) "Oh, I'm so sorry that my crippling pain condition causes you so much of an inconvenience!". This one could be adapted to just about any disability, so have fun!

For the starers: "Look, I know I'm gorgeous, but really, I can't cope with this constant observation and adoration any more!" (again, not had a chance to use that one yet).

Another fairly flexible one "Darn it! Did I come out with my 'please be rude to me' sign on my forehead again?!". The 'sign' can be changed as necessary ('please ask me personal questions in public', 'please discipline my disabled child', 'please stick your nose in where it doesn't belong', 'please pass judgment on me / my family / my kids / my parenting skills' etc. etc.).

There's always the short and blunt "I'm sorry, did I ask for your opinion on my disability / my child's behaviour / my need for a mobility aid?" (reserved only for the rudest, most obnoxious idiots).

For those who accuse you of 'faking': "Yes, because hauling my self around in this chair, staring at people's backsides all day is the best way I can think of to spend my holiday" :rolleyes:.

Yeah, as you may be able to guess, I can get a little bit sarcastic at times ;)



WARNING: The author absolves herself of all responsibility for any 'fisticuffs' that may occur from incorrect application of the above quips ;)

ntsammy5
03-03-2008, 08:34 AM
"Dinosaur attack".


My favorite!

livndisney
03-03-2008, 09:35 AM
:grouphug: to all who have had to endure nasty comments.

SandrainNC
03-03-2008, 10:46 AM
People can just be so rude and need to mind their own business. My oldest son also has Down syndrome, so we don't get a lot of comments since his is not an invisible disability. Sometimes we do get the staring. And I don't mean the looking and smiling because he is cute (which he is of course ;) and that happens also). I mean the staring. I have started saying "cute isn't he?" when this happens.


I always get a kick out of people who tell me that Downs kids are so loving -- at the same time Kayla is trying to bite my face or having a major meltdown!

My son does not have autism, but he is definitely not always loving. LOL. I always tell people that is not true. People with Down syndrome have different personalities just like everybody else does.

Sandra

got2luvtink
03-03-2008, 11:57 AM
Hey everyone!

I just sat down at the computer to finally read all the new replies :surfweb: I must say, I have been cracking up the whole time. :happytv: I have been laughing so loud, my kids keep looking over at me. Thanks guys, for all the posts. You really have made my afternoon:thumbsup2 :thumbsup2 :thumbsup2
Keep them coming:hippie:

ecki
03-03-2008, 12:11 PM
I was so embarrassed one day because my older daughter (age 6) was the one doing all the staring. We were at McD's (without Kayla) and there was a group of kids in wheelchairs there. She just kept STARING at them. I kept telling her that it wasn't polite to stare and did she have any questions she wanted to ask me. She said she wasn't staring, just looking. But she was STARING. And as we were leaving she had to comment (loudly) "I'm never going to be in a wheelchair until I'm old like granny." OMG, I could have just DIED. Of course, this is the day I don't have Kayla with me! Maybe they at least saw me get in the car with the autism bumpersticker! I had a long "chat" with my older one on the ride home!

ireland_nicole
03-03-2008, 12:12 PM
OOOHH; love the Dinosaur attack one :rotfl2
I'm inspired by ya'lls kid's comments; It is so awesome to see young ones standing up for what is right!
Nicole

kimsuenew
03-03-2008, 12:37 PM
I was so embarrassed one day because my older daughter (age 6) was the one doing all the staring. We were at McD's (without Kayla) and there was a group of kids in wheelchairs there. She just kept STARING at them. I kept telling her that it wasn't polite to stare and did she have any questions she wanted to ask me. She said she wasn't staring, just looking. But she was STARING. And as we were leaving she had to comment (loudly) "I'm never going to be in a wheelchair until I'm old like granny." OMG, I could have just DIED. Of course, this is the day I don't have Kayla with me! Maybe they at least saw me get in the car with the autism bumpersticker! I had a long "chat" with my older one on the ride home!

I have worked with with special needs for 23+ years, 12 years with children at a school and the rest with adults in a workshop setting. I recently quit full-time to go to college to become a special education teacher (lifelong dream) and miss it so much (I still sub when my schedule allows).

My best friend Susie (we met back in the 80's working in the workshop) has a story that is priceless. We were always encouraged to involve our own children at work (they could volunteer, visit, help with fundraisers, activities, and dances, and so on). Susie and I both always did that and our children were around whenever the opportunity was there. Sadly, Susie and her son Cody moved away, where she took a similar job in Cincinnati.

She called one time and said she had to tell me a story that I would appreciate. They (her and Cody) were travelling on a small get-a-way and were at McDonald's when a van (perhaps a group home) full of special needs adults came in. Susie caught Cody staring and was mortified. She said she bent over and quietly reamed him about staring, to which he innocently replied "Mom I am just trying to see if I know any of them!" :rotfl:

goofieslonglostsis
03-03-2008, 01:17 PM
I must admit I can be a handfull.

I'm known for saying things like 'I got the chair because I'm lazy'. I can do this in such a manner some people even start to wonder if I'm serious before they get my point. ;)

Other classics of mine are 'I'm not walking off' when people try to reassure me I'm not in their way while I'm obviously are and they obviously feel uptight about me moving to make way. Combine it with a smile, and people most of the time start to relax and act normall.

Standing in line and people complaining or staring at me? "Poor all of you, having to stand and wait. I don't care, I'm sitting, how do you're feet feel?"

Men staring? "yeah, I know I'm irresistable, but I'm out of your league, sorry".

People really going overboard? I'll let them know what I think of it in a situation suitable way if I feel lke it. For instance, once I ran into some obnoxious guys that found it so funny to try and make a fool out of me, by 'playing the cripple'. Somehow they thought I had spasms, or that should have been funny? Well, 'crippled' me had a big 'spasm' just when we passed their table. Of course I couldn't help it that my arm 'accidently' hit one of their glasses of beer and oops...... knocked it right over the t-shirt and trousers'. Poor crippled spasmed me. :rotfl2:

Most of the time a subtle hint is enough. I'm just too much of a person to take myself with a grain of salt in that department and actually like joking around about for instance the chair too much to not do it regularly.

OneLittleSpark
03-04-2008, 07:33 AM
People really going overboard? I'll let them know what I think of it in a situation suitable way if I feel lke it. For instance, once I ran into some obnoxious guys that found it so funny to try and make a fool out of me, by 'playing the cripple'. Somehow they thought I had spasms, or that should have been funny? Well, 'crippled' me had a big 'spasm' just when we passed their table. Of course I couldn't help it that my arm 'accidently' hit one of their glasses of beer and oops...... knocked it right over the t-shirt and trousers'. Poor crippled spasmed me. :rotfl2:

:rotfl: :lmao: :rotfl2: Love it!!!!

I sometimes go for the 'shock factor' to knock some sense into people. I tend to call myself a cripple loudly in public places, especially if everyone around me is treating me like one (just want to add, I would never, ever call anyone else this, other than a friend of mine who is well and truly 'in on the joke').

Most of the time, however, I just try to provide gentle reminders that actually I'm not all that different. I was at a huge Folk festival over the weekend with music, dancing and ceilidhs going on from the early hours of the morning to... well... the early hours of the morning! I did get one or two people come up to me and tell me they were so impressed that I was dancing despite having a wheelchair. I know they meant well, so resisted the temptation to return with a sarcastic remark, and instead just smiled and said "I'm just doing the same as everyone else, except that I'm on wheels". It was sooooooooooo tempting to reply with "And I'm so impressed that you're dancing on your feet, I can't manage that!", but I thought that would be mean ;).

Love the comments, keep them coming!!

Cheshire Figment
03-04-2008, 07:43 AM
Most of the time, however, I just try to provide gentle reminders that actually I'm not all that different. I was at a huge Folk festival over the weekend with music, dancing and ceilidhs going on from the early hours of the morning to... well... the early hours of the morning! I did get one or two people come up to me and tell me they were so impressed that I was dancing despite having a wheelchair. I know they meant well, so resisted the temptation to return with a sarcastic remark, and instead just smiled and said "I'm just doing the same as everyone else, except that I'm on wheels". It was sooooooooooo tempting to reply with "And I'm so impressed that you're dancing on your feet, I can't manage that!", but I thought that would be mean ;).
Several years ago I knew a woman who was legally blind since birth (actually could see but only a 4 degree field of vision and then not better than 20/50).

A group of us were in Annapolis and all of a sudden a woman comes out of a store and runs into Margaret. The woman was upset but then she saw the white cane and starts falling all over herself trying to extricate her foot from her mouth.

She ended up making the unfortunate statement of "I didn't see you", to which Margaret smiled and said to her "That's OK, I didn't see you either".

got2luvtink
03-04-2008, 09:46 AM
I'm inspired by ya'lls kid's comments; It is so awesome to see young ones standing up for what is right!
Nicole

I wholeheartedly agree with you! It's so great to see siblings/children sticking up for one another.


:grouphug: to all who have had to endure nasty comments.

Thanks Cindee. Here goes one from me too.:grouphug:


And to everyone else that's shared an oh so clever comment, THANK YOU! They're GREAT!

Keep 'em coming!::yes::

SandrainNC
03-04-2008, 11:12 AM
I was so embarrassed one day because my older daughter (age 6) was the one doing all the staring. We were at McD's (without Kayla) and there was a group of kids in wheelchairs there.

I would not be mad at a 6 year old for staring. Little kids don't know any better. And honestly, the little ones usually will ask questions instead of just looking. Which is fine. :) As long as they aren't being mean on purpose. Which I know little kids can do too because I have seen it at daycare.

My nephew, who is 20 now, has a type of Aspergers (sp?) but with cognitive delay (took forever to diagnose him because of the delay). Anyway, he was afraid of wheelchairs when he was little. He would see one and get very upset. It embarassed my sister because she didn't want the person in the wheelchair to get their feelings hurt because of the way he reacted. And because his is a hidden disability, people didn't realize what was going on with the reaction. He got over the fear thank goodness.

Sandra

Sandra

mamaloya
03-04-2008, 11:19 AM
I really didn't get any rude, not intentional anyway, comments. I did get looks of concern. There were a few times when I got looks waiting in the w/c line at a ride from those in the regular queue. They quickly changed from looks of aggravation to looks of pity when they saw me get up and get on the ride, especially PotC and SW. Anything that requires me stepping down or up. The moving walkways were a little awkward as well. I actually did have a CM grab me once when he thought I was going down. Unfortunately that did more harm than good since I am so tender.

I did get a few people politely ask why I was in a chair. It was not intended to be rude, but you know "I look healthy and young." I would simply tell the truth, "RA and lyme disease". Most were like "OH, I am SOOO sorry." There was one guy one night on the boat to FW who was in line talking to me and asked. He also asked why my friend and I were there w/ all our little ones and no dh's. So, he was just a nosy guy. Well, after we got off the boat, he , being a guy, wanted to "fix" my problem by recommended supplements and such. I simply smiled and thanked him for his advice and that I would look into it. Then I had a stranger begin pushing me part of the way from the boat to the bus stop. That was really awkward and I wasn't sure how to respond. My friend was pushing the stroller and I had 2 kids in my lap w/ ds8 pushing me. I guess we looked helpless. I assume he was the type that would have grabbed my groceries and carried them for me if I needed it. Just didn't know what to say/do since I could not even see him.

I have to say though that I REALLY love the "dinosaur attack" remark. I will have to use that one. It will serve to put people in their place politely and lighten the mood.

I also saw a shirt through one of the links somewhere on here that is me to a T (pun intended). "I used to be cute, now I am just fun to watch." I may have to put that in my sig here.

Thanks for all of the comments, I am going to start taking notes and committing these things to memory.

scojos
03-04-2008, 12:13 PM
i have a similar story...
my boys 10 and 8 argue all the time. When out, an adult was moaning about joshs behaviour (he has aspergers) my ds 10, who has add, turned round and sais " well at least HE is not rude"
errmm, what do you say, it was true???;)
Tracy

Talking Hands
03-04-2008, 02:41 PM
I will often get didn't you hear me from people who don't realize I have a hearing impairment. My answer "I have to see you to hear you, sorry" If you are behind me or to the side I may not hear you or may not realize you are addressing me. I read speech very well so most people have no idea I have a hearing loss.

DisneyWheeler
03-04-2008, 09:21 PM
On our trip to Disney World in January. I had two kids who both looked about 12/14 years old that were staring at me when we were at Hollywood Studios. We were walking right behind them, so they'd keep looking back at us-particularly me, with one of those Looks on their faces like they wanted to say something cruel or funny in a not-so-nice way about me to each other with my mom and 6ft., 2inch godfather right with us.

I had the heart to say, "You wouldn't want someone to make fun of you if you were in my situation, or born with my syndrome." That, and "If you keep staring at me. I might do a trick." Growing up with the syndrome I have isn't easy for those who were born with it. I would give anything if I could have toes that wiggled so that I can wear thong sandals in the summer. Or, the hearing in my left ear to be perfectly normal, and not completely gone.

Samantha

alizesmom
03-04-2008, 11:01 PM
I usually find people to be very kind but curious about my kids who have obvious disabilities. The one time I was floored was when I had my son out to a restaraunt. The hostess asked if I was taking care of him (he's obviously not mine). I told her no that I was adopting him. She got this dumbfounded look on her face and asked "Why?". Karen

DisneyVillain
03-05-2008, 12:26 AM
My DD is 6, when an older child (who should have known better) rudely asked her-"eeew what happened to your hand?" without missing a beat she replied "eeew what happened to your manners?Excellent!

wildeoscar
03-05-2008, 01:12 AM
I have posted this before but.....

My DD is 6, when an older child (who should have known better) rudely asked her-"eeew what happened to your hand?" without missing a beat she replied "eeew what happened to your manners?

best answer ever.

got2luvtink
03-05-2008, 09:15 AM
Excellent!

best answer ever.

I know. :cool1: LOVE IT! :cool1: Very impressive.

livndisney
03-05-2008, 12:08 PM
I usually find people to be very kind but curious about my kids who have obvious disabilities. The one time I was floored was when I had my son out to a restaraunt. The hostess asked if I was taking care of him (he's obviously not mine). I told her no that I was adopting him. She got this dumbfounded look on her face and asked "Why?". Karen

Oooh I have HAD this conversation:mad: I have had people walk up to me and tell me "you don't want her, I'll get you a good baby". I am proud to say I did not clock anyone. :laughing:

But more importantly-congrats on your adoption!!!!!!!!:grouphug: :grouphug: :grouphug:

jenniferlt
03-10-2008, 04:06 PM
I work with senior citizens and I often observe that they are treated like children in the same way a disabled person is marginalized. People say things like "isn't she cute" as if 1. the older person is deaf 2. the older person is more like a kitten than the highly educated, experienced and unique individual that she is. People often speak to me instead of the older person. I often reply "I don't know ask her." It's funny though, people really don't get why it is not okay to call an old person cute or precious. Sorry I don't have any funny quips, but I'll have to remember these!

starrzone
03-11-2008, 03:18 PM
Several years ago I knew a woman who was legally blind since birth (actually could see but only a 4 degree field of vision and then not better than 20/50).

A group of us were in Annapolis and all of a sudden a woman comes out of a store and runs into Margaret. The woman was upset but then she saw the white cane and starts falling all over herself trying to extricate her foot from her mouth.

She ended up making the unfortunate statement of "I didn't see you", to which Margaret smiled and said to her "That's OK, I didn't see you either".

This reminds me of something my grandmother told me that still makes me SO angry and sad when I think of it...not a big thing at all in the long run, but still...:mad:

Mygrandmother has macular degeneration, which means that her eyesight is very poor. She is actually completely blind in one eye and can barely see out of the other one, but she manages very well and can still write cheques, etc. and read words if they are dark and large. My grandmother has an absolute heart of gold and would do anything for anybody, and opens her home and heart to people of all backgrounds.

She was in a large, major discount store once (she doesn't go out shopping much any more, partly because of her eyesight and partly because she's just getting older) and needed help with the price of something (anyone else notice that writing on tags is VERY small and hard to read?). She asked a young cashier for help, and the girl said, and I quote, "It's right there!" and walked away.

See, I told you it wasn't a big thing, but it made me VERY mad when she told me this and still burns me up to this day. I almost wish I had been there, because I would have said something like "Oh, it's right there? I thought an employee was 'right here' too, but I guess I was wrong. Perhaps customer service can help!", and walked over and given them the "employee's" name.

Christine43
03-13-2008, 11:14 AM
Not quite the same, but I had a friend that used a leash on her child. When people made negative comments about it, she would say "I keep him on a leash ever since he bit the mailman".

I have an autistic son and I hope you don't mind if I use that someday; that was priceless.

Christine43
03-13-2008, 11:26 AM
I have had people walk up to me and tell me "you don't want her, I'll get you a good baby". I am proud to say I did not clock anyone. :laughing:

:

Seriously???!!! My God, what is WRONG with some people??? I have three boys on the autistic spectrum and I have had my share of staring and comments and have a repertoire of answers depending on the person. I am a fairly calm person but if someone said something like that to me I honestly think I'd go into some kind of crazed ninjamommy mode and take them out. Why are these sociopaths walking free?

Matt'sMom
03-13-2008, 12:10 PM
Seriously???!!! My God, what is WRONG with some people??? ... Why are these sociopaths walking free?

Well, since you asked...

In the majority of cases, I believe they simply are not as informed/educated in regards to what it is like to live with certain disabilities and conditions on a daily basis. I really do not believe most of them mean any harm. They are often either just curious, or simply do not realize how hurtful some of their comments might be.

For example, I am a survivor whose life was impacted by a genuine (diagnosed as such) sociopath. I know first hand what a 'real' sociopath is like, how twisted their mind is and how thoroughly terrifying they can be to deal with--thankfully most people will never have that experience in their lifetime. As a result of my experience, I would never casually call a person a sociopath, even in jest, simply because they made a comment that I did not like. But at the same time, I am confident that Christine did not mean any harm (and I took no offense) when she made the above 'sociopath' comment. :hug:

Sometimes we need to stand strong and try to develop a bit thicker skin... for our own sake & the sakes of our family members. A snipy come-back in the heat of the moment might make one feel better, momentarily--if only in a 'get even' sort of way. But that sort of behavior only spreads the bad feelings. Education can go a lot further towards making this a more pleasant (& empathetic) world for all of us. :goodvibes

mechurchlady
03-14-2008, 05:39 AM
I like what Matt's Mom said. Most of the time it is foo-in-mouth disease, not knowing all the facts, having a bad day, preconceived notions (often from the media), and previous experience.

Today a women had a hissy fit in a chat room over TMJ. Mel explained a symptom which to me was a classic TMJ symptom and I started to explain what to do. The hissy fit woman posts lots of info on TMJ and was an expert because once she had her wisdom teeth removed and got temporary TMJ. She was the expert. Honey I have had TMJ off and on for the past 2 decades and have spent long days and nights in the bathroom crying and overdosing on aspirin. I am symptom free for now. That is the way some people are. They think they know better and demand that they be deemed the expert.

Some people scream "Shut up that brat" because they are stressed out from work, loss of family, car accidents, annoying clients, and all the bad things of life. They may be under the influence, might be reacting to something, or have mental health problems.

There is no excuse for rude behavior but at the same time we do not know why that person was rude. It could be poor training when they were a child, quirks like I have (thanks mom), a mean boss or something else troubling them or an illness lke low sugars or alchoholism. In my case the hissy fit lady has a history of needing to be superior, showing off her brains and game skills, and snapping to a judgment before thinking through the situation. I feel sorry for the rude people and hope one day they see the light, so to speak, and realize how they were rude.

Hugs