View Full Version : back to the real world...

02-14-2001, 02:02 PM
Reality bites. While I was at WDW, 2 family members died - not close, but still... I had seen both of them this summer, one at my dad's funeral and the other at my mom's 80th birthday. It was not a surprise for either of them, but it hurts nonetheless. I have the usual household stuff - the place looks like a hurricane hit after I left, and they did a quick tidy before I got back, but under all those piles are messes that must be dealt with. Then there is that pile of bills and letters...

Two of the letters were from therapists who are helping my daughter at her school. One was a nastygram from the speech therapist saying that I had been expected to sign off on her home exercise sheet every week to assure compliance with the program, and I wasn't doing my part. News to me, and I am paying for this out of my pocket, the tone really struck me as rather severe. The other one really hurt, though... it is from a new occupational therapist who started working with my DD this school year, an update and justification to the school district for continuation of services. We have been to 7 previous OTs for both my kids, so I have seen many excellent reports with good and bad news, but this report was all bad news. There was nothing positive to say to soften the blows of the evaluation, it was all prediction of a poor outcome. My daughter is a sweet, kind, happy, loving, gentle, wonderful girl, full of gifts of the heart, intelligent and perceptive, sensitive and giving... and this report reduced her to a list of problems that may never be solved.

This therapist is excellent, the report is one of the best I have seen for clarity and content, and the clinical evaluation is right on the mark in terms of the kinds of issues she has to deal with for the rest of her life, but it hurts to know that this report about her body will be in her permanent record forever, and her soul got left out. Know what I mean?

"My brain takes a vacation just to give my heart more room..."

02-14-2001, 02:45 PM
I think I know exactly what you mean. So much for your respite trip! re: your new OT - we had a neurologist we called Dr. Doom and Gloom. He never said anything good. No matter how good he was as a dr., it was hidden by this terminally bad news. We eventually left him.

I hope you can work with this excellent in all other ways OT, and maybe get SOME kind of a highlite from her.

RE: relatives - so sorry!! The cost of living really stinks sometimes.

Try not to let the post-trip depression hit you so hard. As I've been telling everyone on the community board, Spring Training is starting!!! Doesn't help much, though does it?? sorry - here's a {{{{{hug}}}}}


<img width="200" src="http://www.geocities.com/dmurphydis/cleveland.gif">

SueM in MN
02-14-2001, 04:29 PM
Wow, you really got back to reality! You need some Calgon (Calgon, take me away!).
It does hurt to get those scathingly honest reports. Even if you already knew it, it hurts to see it sitting there right out in front of you in black and white. If your school district is like mine, maybe this report will get buried.

SueM in MN
Co-Moderator of disABILITIES (http://wdwinfo.infopop.net/OpenTopic/page?q=Y&a=frm&s=40009993&f=38009194)

02-14-2001, 05:40 PM
Please tell us you at least had a good time while you were away. Hope tomorrow brings a little sunshine your way!

'81CR, Poly

02-14-2001, 07:52 PM
I had a lot of quiet time, and some fun as well. Several posts over on the Community Board. I didn't want to dampen spirits there.
Feb Meet Post (http://wdwinfo.infopop.net/OpenTopic/page?q=Y&a=tpc&s=40009993&f=55009194&m=924091309)

Lots of quiet time... my neck was hurting from my arthritis, I couldn't ride any rides. Spent a lot of time on the porch of my studio at OKW, reading, when I wasn't at a meet. It was nice. Well, I did ride one ride on the last day, the haunted mansion.

"My brain takes a vacation just to give my heart more room..."

02-15-2001, 07:16 AM
Tons of {{{{{{{{{{{HUGS}}}}}}}}}}} and pixie dust coming your way, Teri! We all know how strong one must be when life throws us these darn loops and curves, usually when we least expect or need them.

Keep the Helen Reddy song in mind, "I am Woman, Hear Me Roar." We know you're a special woman and I, for one, can hear you roaring way out there in California.

02-15-2001, 03:52 PM
So sorry for your losses Teri.

You know your DD is not just a clinical study and she has so many talents they will come forward regardless of the other things. I can't wait to meet her at the convention!

WDW http://www.wdwinfo.com/sites/family/daisy.gif
Offsite ? - 1976, Vistana - 1988
Vistana/Contemp - June 2000, OKW - Feb 2001
BWV - DIS Convention Nov 2001
Disneyland - 1998

02-15-2001, 05:11 PM
Hugs to you Teri! You are an incredible, strong woman who will help your family to suceed! I have been going through some of this on a different scale and it does hurt to have someone assess your child from a "professional" viewpoint, when you KNOW what a wonderful child he/she is! I have shed many tears over reports this week also, but with the great support of friends, family and these boards it becomes more bearable. Best of luck to your DD and many hugs to you for being such a great mom to both of your precious children!
I am so glad I had the chance to meet you and share a few "carefree" moments!

02-15-2001, 11:25 PM
Thanks, guys. I knew you would understand.

"My brain takes a vacation just to give my heart more room..."

02-17-2001, 05:54 PM
Hi Teri, It is so hard to come back to reality. So sorry for the loss of the family members. You write so lovingly of your daughter, she has a great mom and I know that everything that can be done will be done for her! Don't let the "cold, hard, facts" get you down. You know far more about her ability and capabilities. Hugs to you and your family. You know we're all here for you.