My 14 yr old daughter has been diagnosed with osteosarcoma and I need help [Archive] - The DIS Discussion Forums

Mskanga

07-12-2007, 12:05 AM

I am in the hospital right now still with her. She is getting a port put in tomorrow for her chemo treatment and I would like to start getting ready for when she loses her hair.
Can anyone direct me where I would be able to find a good wig for her ? I am so overwhealmed by this that my head is spinning in 1000 different directions. Thank you in advance.

withay

07-12-2007, 12:45 AM

First of all, I want to say that all of my thoughts and prayers are with you and your family. :grouphug: I wanted to give you a bit of advice... I think you should contact the Locks of Love organization. This organization accepts donations of hair from people and makes wigs for children (by children, meaning the wigs only go to kids up to the age of 18). I donated 12 inches of my hair to this foundation in December and I am in the process of growing it out to donate again.

I am praying for the best for you, your daughter, and your family.

stemikger

07-12-2007, 12:54 AM

My prayers are with you.

I used to be a hair stylist and the one thing I can recomend is that you stay away from the hair replacement places because they mark the wigs up so high, you can usually get them wholesale for hundreads less.

The trick is getting a thin base so it is comfortable and not hot for your daughter and getting someone to cut it correctly. If you know a good hairstylist that can cut it, it will help make it look more natural.

Good Luck and keep positive.

CarolAnnC

07-12-2007, 02:13 PM

I would contact your health insurance provider as sometimes they will cover in full, however, with a preferred vendor only.

Best wishes for your daughter's speedy recovery!

Mackey Mouse

07-12-2007, 09:01 PM

apres

07-13-2007, 12:05 PM

help - i've tried to post - keep getting;
Could not find phrase 'error_postcount_too_low_post_links'.

Goobergal99

07-13-2007, 10:03 PM

:grouphug: First of all I am so sorry, I can only imagine what you and your family must be goibg through :sad1:

Try locks for love, many of my friends grow their hair out and donate every couple of years. It's real human hair made into a wig so it looks and feels natural :)

apres

07-14-2007, 07:23 AM

i'll try breaking this up into a couple of posts.
sorry you have to deal with this. a few notes from experience with my 15 year old - your daughter may not want to wear a wig - they can be hot and itchy - there are lots of other choices - bandana's, (anyone that can sew could whip up a bunch of different colored scarves), baseballs cap's with ponytails already sewn in, etc. around home, in the car, or at the hospital my girl went smooth ;-) lots of info on the internet.

Mskanga

07-16-2007, 08:38 AM

OMG Kanga....I am so sorry. We are here to help you with whatever you need, prayers, hugs or just to listen when you need to vent. Someone recommended locks of love, I would start there and as Carol said contact your insurance company to see if they will help you with that expense, I would do that also.

I am glad they are putting in the port, it makes it much easier to administer the chemo than trying to find a vein each time.....Will she have a meter on as well to administer the chemo or will she go once a week? When Tom had his port and chemo it was administered by meter 5 days a week, 24 hours a day, with weekends off......He did ok.... please know that I will keep you and your daughter in my prayers and keep us updated.. please.

Hugs!!!!!!

Marsha we are at a stand still point right now waiting for the results from the mayo clinic , part of her biopsy came back that is not consistent with osteosarcoma but it could be a benign tumor called chondroblastoma. We are waiting to get the results sometime today because the samples were sent to them for further analisys.
I am hoping and praying that this is the case but we have to wait more......the wait is killing us !
Stay tunned , we should know something by tomorrow.

luvwinnie

07-16-2007, 10:41 AM

Praying for you!

Towncrier

07-16-2007, 11:41 AM

Oh my gosh, I am so sorry to hear this news. I will keep you and your daughter in my prayers.

Mackey Mouse

07-17-2007, 05:47 AM

I do hope it is benign.......and that it is not what they originally thought. Keep us in the loop on this Kanga and know that we are thinking of you. It is so hard when it is your children, hard enough when it is your husband. I have done it both ways actually as one of my daughters had thyroid cancer, that was over 10 years ago and she is doing well, no thyroid and will take medication for the rest of her life, but she is well.

Hugs to you, keep your chin up and gear up to do battle if you have to. Hopefully, you will not have to, wouldn't that just be terrific??

CarolynU

07-17-2007, 06:20 PM

Olga I have just read this and I'm stunned. I know that Simon will be too. I lost DH and Simon and Rebecca's dad to cancer almost 1 year ago, so we know how you must be feeling. Keep strong, and let's hope that the news is positive.
Carolyn

Mskanga

07-17-2007, 06:49 PM

Marsha we still don't have the results back from the mayo clinic , the doctors are also waiting on those to proceed with the proper treatment.
Now we may even have to wait until thursday.
Carolyn is nice to see you around here but I am so sorry about your husband , please hug Rebecca and Simon from me too . BTW my other child's name is Rebecca too !
I am gearing for the worst , we just want to start with whatever treatment she needs and out this all behind us as quick as possible.

Deesknee

07-17-2007, 08:47 PM

no advice or suggestions, just prayers and well wishes.

CarolynU

07-18-2007, 05:19 PM

Olga thank you for the hugs for Simon and Tam. I'll give a real one to Bec, but Si now lives in Vancouver with the love of his life who is Canadian and who was a fellow CM at Epcot, so he will have to have a virtual one LOL.
I do so hope that things work out for you and your family. I did a quick search yesterday, and the prognosis did seem good in most cases, so I will keep thinking of you all, and hoping for a good outcome.

Mskanga

07-18-2007, 07:42 PM

Deesknee

07-18-2007, 07:52 PM

Prayers and well wishes

apres

07-19-2007, 07:05 AM

is there a reason i can't post a link? trying to send listserv info for osteo to Msknaga.

anne

addicted_to_WDW

07-19-2007, 04:16 PM

MsKanga - your precious daughter will be in my prayers.

Apres - I think you have to have 10 posts before you can post a link.

djblu883

07-19-2007, 06:35 PM

The diagnosis is final now and it is osteosarcoma , we are starting chemo on monday. The diagnosis came in today after the people at the mayo clinic compared the results with the x-rays and MRI's .
Now it's time to kick the beast out of the body for good.....she is one amazing kid and is giving me the strength.

I'm glad your daughter is able to cope so far...in times to come she may feel a need to talk to others...see is they have a group of kids who are also going through this she can chat with if possible! My prayers are with you! my DGD has a benign brain tumor that they are watching so I certainly feel your pain....even benign its sooooooo scary:hug: :wizard:

Mackey Mouse

07-20-2007, 05:46 AM

Be tough Kanga.....she will need you to be tough and she will have her inner strength and the strength she will get from you.

Not sure how long her treatments will be, but make sure you are armed with plenty of magazines, maybe crossword puzzles something to entertain if they do not have TV's for you to watch. At Mass General, their chemo area was state of the art, separate TV's for each patient, people coming around with carts offering drink and cookies, they like them to eat as the chemo burns calories. Also, I am not a great knitter, but I would knit while I was there, scarfs, whatever, just to keep my hands busy. Also, I found people are just so kind to each other in these places, the nurses were wonderful.

One the Cape where I live now, and although 5 minutes from the house, the chemo treatment was the same, but not state of the art. People would not look at each other and did not talk, nurses were not that friendly. If Tom has to have more treatment, I have told him it is Boston and if we have to get a room or something to do it, we will.

Take care of each other, and if we can answer any questions, not that all of have had the same kind of cancer in their family, but general questions we are here for you..

Stay strong!!!!!! HUgs to your daughter and to your family and of course prayers being said.

This is a PS.... avail yourself of whatever they offer you.. if they have groups for her to sit in on and discussions with her peers, have her do it, you as well. I agree with the previous poster talking about this is cathartic.....for family and for the patient. Hence this board.. Hugs again!!!!!

Mskanga

07-20-2007, 07:04 AM

Marsha we went yesterday to see the center where she will receive the treatments and everyone was very nice. They have individual rooms ( I think they have like two chairs per room but they use the second chair for the companion if needed ) , they also have a tv with directtv , vcr , dvd player , the only thing they don't have is internet access. They also have a bookshelf full of books and tons of magazines.
There are a couple cancer centers closer to where we live but I will go to philadelphia just to have the wonderful doctors that we have.

apres

07-20-2007, 08:07 AM

can i post the links directly to mskanga instead of waiting until i have ten posts to post to the board? my daughter had osteo - i have info for her.

CarolynU

07-20-2007, 04:07 PM

Simon was shocked when I spoke to him today, and sends his love to you
and DD. Keep strong. We are all there for you.

Mskanga

07-21-2007, 10:09 AM

Apres , I sent you a PM with my e-mail address so you can send it to me , I truly appreciate it.

Carolyn , you can tell Simon that everytime we go to Epcot I think of him and miss him , we had one of the best times ever the night that he went out with us at Discon , he was a blast , and I have never been in a car with feathers again since ! ROFL.

mommasita

07-21-2007, 12:32 PM

Prayers for your daughter, and more prayers of strength for your whole family.:grouphug:

Mskanga

07-22-2007, 07:28 AM

Thank you all , very much appreciated. Now if I could just get to understand insurance companies politics I would be happy......on top of all of this , I need to figure out what and how much they cover things.....as if we didn't have enough !

Mackey Mouse

07-22-2007, 07:13 PM

Insurance companies should cover most of it.... once you have satisfied your deductible...if you have one. You have to read one of my many rants on insurance companies, but here's the thing, stand up to them, question everything and do not pay anything until all bills are settled....In other words, the hospital bills them, they pay a portion, then the hospital bills you, you call the insurance company, they resubmit it and pay a little more. It is like a game, keep accurate files and stay on top of it because they try to wear you down.....

Hugs Kanga.. I am thinking of you and your daughter and family, this is not easy, but you will do it. You get like this inner strength and you just gear up and do battle....Sometimes when I look back at Tom's surgery and emptying drains and changing bandages and helping him walk, getting him to radiation 5 days a week in the middle of that horrid winter we had in 2004/2005, I wonder how we did it, but we did it as a family.....You will too... HUgs again.

apres

07-23-2007, 12:14 PM

mskanga,

thanks for the PM. i sent you a couple of links for osteo.
re: insurance. get a book for all the insurance paperwork. with the vast amount of billing you will go thru, there *will* be mistakes. (i had one bill that listed me as the patient) i organized ours by month - seemed to help me find papers when needed. don't be afriad to question everything. if you have anyone in your family who is good at this - enlist their help - it can be a full time job - and you'll need/want to spend time with your girl - not paperwork.

hang in there.

anne

lookingforward

07-23-2007, 05:15 PM

My thoughts and best wishes are with you and your daughter and family. Keep us up to date on her progress and we will keep you all in our prayers. :grouphug: :grouphug:

CheerExtreme

07-23-2007, 11:04 PM

I am from the teen board and have been pm your daughter lately. I just want you to know that even those on the teen board are thinking about here and praying for your family. My brother had cancer when he was 5 so I know what you are going through.

Ellasgirls

07-24-2007, 08:10 AM

My prayers are with you and your family. One of my close friends has a 2 year old that has been battling ALL for a year now and uses Caringbridge to update friends and family as well as an outlet for her fears and praises through this process. Let me know if you want or need more information about it. God bless and protect your little one....

Grandma Bear

07-24-2007, 08:32 PM

My heart and prayers go out to you. Your daughter is a very brave young lady. Her positive attitude is what will pull her through. I have asked your names be placed on the church prayer list. We have we seen many miracles
come to pass. I teach middle school and many teachers have donated hair to Locks of Love. They are a great group. My team partner had to undergo
Chemo twice for breast cancer. She preferred the scarves or hats to the wigs as she said they were not as hot. Remember you have many people praying for you and that are concerned for you and your family.:grouphug:

CarolynU

07-25-2007, 03:52 PM

Olga.
Yeah the feathers were ummm different LOL! I searched for your DISCON photos the other day, but couldn't find them. Hiding the evidence eh.
We are all routing for you and your DD. Si's words were " what on earth has a kid done to deserve this. "
Keep strong all of you. We are thinking of you, and still remember all your kindness not only for Si, but also for Bec when you said that you would help her with her visit to NYC if required. You were a great comfort and I hope that I can be the same for you.

Mskanga

07-25-2007, 09:43 PM

Thank you all very much for the kind words. Yes Sonya is one very brave young lady , she is my hero.
Today she doesn't feel very well , she is tired but the good news is that she has not vomited in the entire treatment , today the 24 hour hydration treatment has stopped and now she only has two more days to be hooked up on the IV for four hours a day.
We are determined to kick this thing , we have a wonderful team of doctors and this was caught very very early , a wonderful group of friends who are supporting us along the way and faith that we are going to be ok , the road may be long and bumpy sometimes but we are going to win.
Thank you all for your support , they mean a lot to us at this time.

JennCa

07-28-2007, 02:11 AM

Your family sounds fabulous, so loving and strong! Take each day at a time and enjoy each moment. I was thrilled to hear you were going to Philly, I have heard it is the BEST!!!

Jenn

PS Thanks for your email about Steven.

Mskanga

07-28-2007, 09:06 PM

Jenn that is what I heard too and truthfully I have all faith.

Grandma Bear

07-29-2007, 01:24 AM

Just checking in to let you know I have not forgotten you!
:grouphug: and Prayers. Your faith will bring you though this
and you will be stronger when it is done.

JunieJay

07-29-2007, 06:45 PM

My goodness Olga, I am so very sorry to hear this. Saying many prayers for your DD and all the good thoughts I can. Keep us posted. :grouphug:

Judi/Snoopy

Mackey Mouse

07-30-2007, 06:53 AM

I just read it is 4 hours a day of chemo.. God Bless her, and you too.. It is not easy sitting in there and watching all the pain and suffering....so keep yourself up as well Kanga....I actually use to knit, and made some incredible scarfs for my kids, mindless stuff to just keep busy. Tom's chemo was approximately 2 hours a week, after he finished the 24 hours a day 5 days a week regime.. Sounds like they are going after her aggressively....good, that is the only way to go after this horrible disease..

More prayers said for all of you.....take care of you too..

fortheluvofpooh

07-30-2007, 07:54 AM

I have no advice, I just want to offer you my prayers. (((((hugs)))))

Grandma Bear

07-30-2007, 07:23 PM

Hi,
Just wanted let you know that I am thinking about you and wanted to give you a big:grouphug: I have kept you iin my prayers.
I am a third generation Disboard member along with my daughter( who is a
moose) and my 7th grade grandaughter. It is good to have words of encouragement and friends at times like these. May God give you the
wisdom you need everyday to do what you have to do!

Mskanga

07-30-2007, 07:49 PM

Thank you all for your kind words .

Grandma Bear

07-31-2007, 03:18 PM

:grouphug: Hi Mom,
Just checking in to say your not forgotten. What four languages can
you speak? Wow! Talk about a major feat! Hope your day is going okay.
Love and Prayers coming your way.

Grandma Bear

08-01-2007, 07:05 PM

I left Sonia's message on the caringbridge page; but this was the only way
I could see to let you know that your not forgotten. :grouphug:

Mackey Mouse

08-02-2007, 05:33 AM

Thinking about you Kanga and your sweet daughter. Hope treatment is going well and she is tolerating it without too much difficulty. Please know we are here for you when you have a second to update us..

Keep the faith.

Grandma Bear

08-02-2007, 08:03 AM

:grouphug: and prayers as you travel to Philly today. May God's grace sustain you and strengthen you this day. May He fill you with His perfect peace and all your needs be met.

Grandma Bear

08-02-2007, 09:52 PM

Just read the great report on the caringbridge page.:grouphug:
How encouraging! This has made my day!

Grandma Bear

08-04-2007, 03:03 PM

Just checking in today. Hope your having better days now.:grouphug:

imabrat

08-04-2007, 10:34 PM

Actually we did , she felt up to going out and doing things so we did , we went for the haircut , to the mall after that ( but were not there too long as she was getting tired ) and then we went to the movies to see the simpsons movie , all that with her friend and her sister for the movie as well. After that she asked to sleep over her friend's ( four houses away from home ) so that is where she is spending the night , hanging out with her friend. I figured plenty of bad days will come , let her enjoy the good ones.
OOppssss , this is Mskanga , but Sonya was logged in on my laptop.....LOL

Grandma Bear

08-05-2007, 12:42 AM

I am so happy for you! It is good to be able to spend time with family and friends and to be able to do the things that her friends are. Being able to go to the mall, the movies and do a sleepover are the joys of being a teen. This
should be an encouragement to her that she is overcoming! A big:grouphug: to all of you. Keeping you in my prayers.

andi.tallchief@cox.n

08-07-2007, 12:42 AM

Hi,
I would use the social workers on the unit for a starting point. They have resources that you would never think of. A lot of times they can lead you to organizations that will assist you at discounted cost.

My thoughts and prayers are with you.

Andi

Grandma Bear

08-07-2007, 02:59 AM

Just letting you know that I have not forgotten you. payers and hugs coming your way. Hope you had a good day!:wizard: :grouphug:

Mskanga

08-08-2007, 01:18 PM

Still around on and off , thank you all for your thoughts and prayers.

GSDRescuer

08-08-2007, 02:59 PM

:grouphug:

Grandma Bear

08-08-2007, 03:05 PM

Glad to hear your hanging in there. This is tough!
Good to see you getting lots of support from friends
and family members. You will make it!:grouphug:

Mskanga

08-09-2007, 08:53 PM

I know one thing , I got one amazing daughter !!!!

Grandma Bear

08-09-2007, 09:08 PM

I agree that Sonia is amazing! It is that positive
attitude which will bring you ALL through it!
I'm glad she found a cute wig to wear. I' m
glad to see you getting lots of love and support from friends
and family. It will give you the strenght you need to cope,
and knowing someone cares lightens the load. You are also
a remarkable Mom, so let's not forget that either. My office
now resembles a diaster area as I get ready to go back to work.
I teach middle school and were are getting a new science textbook,
so I'm now cleaning out stuff, figuring what can still be used;
and passing on stuff to be used by others. It never ceases to amaze me how
one person can collect so much stuff!!!!!!!!!!!!!!!!!!!!!!!!!!!
:grouphug: and prayers coming your way.

Grandma Bear

08-10-2007, 09:46 PM

I read Sonia's post and felt you needed a big :grouphug:

Mskanga

08-11-2007, 05:52 PM

That's ok , we will get through this. Thanks for the hug though.....

Grandma Bear

08-11-2007, 08:17 PM

I know you will get through this! It is also hard just to deal with the teen issues that come up. I have a thirteen year old granddaughter and
deal with about 168 thirteen year olds 10 months out of the year. I think
Sonia has done extremely well! More prayers and :grouphug: coming your way. You're doing a great job and the bond between you is going yo be stonger than ever.

Grandma Bear

08-14-2007, 02:43 PM

I read your update on the caringbridge page. I'm glad she had a good night!
As always you are in my thoughts and prayers.:grouphug:

Mskanga

08-16-2007, 06:43 AM

Yes she had a good night , the methotrexate seems to be easier on her than the other two combo medicines that she gets on the first session of each cycle. She has a good appetite with this one and I am grateful for it , anything she wants to eat she gets and I don't care what it is , as long as she eats.

Towncrier

08-16-2007, 08:49 AM

Thanks for the caringbridge updates. It reminds us all to keep you and your DD in our thoughts and prayers (for those of us who sometimes need reminding). I was glad to see that your friends went the extra step to make sure that Sonya was able to get the wig that she wanted. They are an extra special group of people and also deserve prayers of thanks from the rest of us.

Continued prayers for Sonya, for you, and for all of her caregivers, friends, and family.

Grandma Bear

08-16-2007, 10:24 AM

Thank you for the update. It is great to hear that she is doing better. You,Sonia and the rest of the family are in my thoughts and prayers. I am glad to see lots of love, support and prayers coming your way. May today be a blessed day for all of you!:grouphug:

Grandma Bear

08-17-2007, 11:57 AM

Wow! I just read the newspaper article about Sonia and Thomas.
What are the odds that two students that close to each other would come down with the same thing. I will add Thomas to my prayer list as well. It is
very coutageous of them to have their story put out in the paper and by doing so many others will be educated. Who knows how many lives can be saved and how many other teens will draw strength from what they have done. Sonia and Thomas have taken a thing that is negative and turned it into a positive. They are to be praised for their efforts.:grouphug: to all of you!

Mskanga

08-17-2007, 03:49 PM

Myrna they both decided to go public about this for two reasons , awareness and they do not want another child go what they have to go through , like every cancer early detection is the key and osteosarcoma is usually misdiagnosed because it's rare.
We know we cannot prevent anyone from getting it , but we can help detect it early if they know about it.

Grandma Bear

08-18-2007, 04:20 PM

I agree with what you said. When my boss came down with lymphomic cancer last November, he explained to the faculty, parents and students why
he was taking a leave of absence rather than hide it. The students then learned more about this in their health classes and decided to do a fund raiser to help him. We raise $1,900 and the money was donated to the lyphoma cancer fund in his name. We are overjoyed he is able to return to us
this September.

Grandma Bear

08-21-2007, 11:33 AM

I'm so glad she has finished the first round and is doing well!:grouphug: and prayers coming ypour way!

Mskanga

08-22-2007, 01:25 PM

She is not doing very well today , she's nausiated and tired so she is just laying in bed. The weather is not helping either.....

Grandma Bear

08-22-2007, 03:57 PM

Sorry to hear she's having a rough day. As always you and Sonia are in my thoughts and prayers. :grouphug: for each of you.

Mackey Mouse

08-22-2007, 05:35 PM

Hugs to her Kanga... remember this... she can eat whatever when you are on chemo it is all about getting the calories, which I thought was shocking, but Tom's oncologist had him eating fattening stuff to keep the caloric intake up so that the chemo did not knock him down. He was tired though, never too nauseous, just tired..

Hugs to her..

Grandma Bear

08-23-2007, 08:58 PM

Just wanted to give you a :grouphug:
Hope your day was better today.

Mskanga

08-24-2007, 01:15 AM

She is really having a hard time with the mouth sores , we had to increase her IV fluid intake for another two days because her methotrexate levels were a bit high. They went down and the doctor also says the hydration should help with the mouth sores. I hope it does , the poor kid is miserable.

Grandma Bear

08-24-2007, 01:30 AM

My heart goes out to you! I can only imagine how hard this is on both of you.
My thoughts and prayers are with you as always. It is so hard as a parent to watch your child go through pain. A big:grouphug: for both of you.
May the love and caring of your friends strenghten and comfort both of you.

CarolynU

08-24-2007, 10:47 PM

Olga I've been away but you've both been in my thoughts. Poor kid. PM me anytime you want for a chat.

Grandma Bear

08-30-2007, 10:58 PM

Just checking in and hope things are improving. Keeping all of you in my
prayers.:grouphug:

safetymom

09-01-2007, 07:03 PM

I will be keeping your family in my prayers.

Mskanga

09-03-2007, 04:12 PM

We are going for another treatment tomorrow , god willing everything will be fine and she will be able to tolerate it better than the first one.

Grandma Bear

09-03-2007, 05:04 PM

We had special prayer for Sonia in church yesterday. We also prayed for the whole family as well. You will be in my thoughts and prayers as well:grouphug:

Susiemae

09-03-2007, 09:02 PM

My daugther also has osteosarcoma. She too is 14 y.o. She was diagnosed April 2, 2007. Please, contact me. I too am having so much trouble coping and muddling through this ordeal. I am new to this site and cannot figure out if you can find my email or how to work the site well. PoisonRN@aol.com is my email. If I was not is the same sad situation I would not leave the email.
But, I sincerely hope you can email me. Perhaps we can help each other through this. It is hard.
For the mouth sores, glutamine started a day before her methotrexate and through to 7 days after along with prehydration, post hydration at a rapid rate and frequently rinsing with baking soda water,biotene and brushing with a soft brush. The mouthsores go away when the counts go up. Doxorubicin can also cause mouth sores. I am so glad the kids went public. Our case was caught late. Kelly was seen by her pediatrician who did xrays but nothing was seen. I went to a pediatric orthopedist who never re xrayed or did a MRI. He just kept having us come back. I even kept her home from school she could barely walk and they would not see her, just told me to keep her out of gym. It was not until she broke her leg, the tibia and on xray the ED doc saw this. She is cared for at Children's Hospital of Wisconsin. All the chemo is inpatient. Please, please contact me.

I would also like it if Apres could also email me.
Susie

Hedy

09-04-2007, 01:37 PM

:grouphug: :grouphug: :grouphug:

Mackey Mouse

09-04-2007, 05:17 PM

Keeping you both in our thoughts and prayers. I read about the mouthsores and they were always checking Tom for that, but he lucked out on that one as he never had them..

Hugs to you both.. let us know how she did, please, when you have a second.

Grandma Bear

09-05-2007, 08:03 PM

I'M SO GLAD THE TREATMENTS WENT BETTER THIS TIME.
GOD HAD ANSWERED MY PRAYERS. YOU ARE ALL IN MY THOUGHTS.
:grouphug: :grouphug: :grouphug:

Wonderlandmom

09-06-2007, 02:28 PM

This is a link from a little girls caringbridge page that I have followed for years. Anyone can post on it questions or prayer requests. Others may have helpful advice on how to deal with the effects of chemo too.
http://members.boardhost.com/tracysolomon/

Here is what she says about this site:
http://members.boardhost.com/tracysolomon/msg/1188292617.html

FIRST, THANK YOU FOR BEING HERE.

THIS MESSAGE BOARD IS PROVING TO WORK WELL DUE TO YOU AND OTHERS LIKE YOU

LET'S GET THIS THING HOPPING BY POSTING THE WEB ADDRESS (OR JUST POSTING THE WWW.LADYBUGKATIA.COM ADDRESS) ON ANY COMMUNITY, WORK OR PERSONAL FORUMS YOU ARE PART OF. OR WHEN YOU FOLLOW A LINK FOR PRAYER REQUEST, LEAVE THE WEB ADDRESS FOR OTHERS TO SEE. THE MORE PRAYER REQUEST, HELPFUL HINTS, HAPPY HEWS, UPDATES, QUESTIONS AND JUST FUN POSTINGS, THE MORE LIVES TOUCHED AND THROUGH PRAYERS, HELPED

Hope your DD is feeling better!

Grandma Bear

09-08-2007, 03:05 PM

Just checking in to see how your doing. :grouphug: , love and prayers coming your way.

Mskanga

09-10-2007, 02:26 PM

She is having a very difficult time dealing with nauseasness , I just picked up the zofran pills from the pharmacy because the ones she took until now did not work anymore , come to find out after that they prescribe those for anxiety and sometimes nausea but they did not work anymore. Zofran seems to be giving her some relief.....