PDA

View Full Version : anyone up at this time? Could you say a prayer?


lisajl
03-24-2007, 11:08 PM
My DS-9 has been sick on and off for over a month now. Been to the doctor, said it was viral. A week and a half ago he had a seizure, no fever, vomited after, first time ever that this has happened.
Tonight not feeling so well, had been on omnicef antibiotic. Fever 101.
My DH and I decide he should go to ER. Well, they think it is serious enough for a CT scan. They have an IV in him and took some blood. As soon as the IV makes him drowsy enough they will take him to CT.
Please, please say a prayer for my little guy. I am sitting here crying my eyes out for him. I told my DH it's a good thing he is there because I would be a basket case. My DH told me he knows that, and he is glad I am at home too.
This little guy means so much to me...so do my other two, but he is the baby.

Sorry to go on, I am just so worried.

Thanks for letting me vent.



UPDATE POST 36!
Lisa

angel*lady
03-24-2007, 11:20 PM
Lisa,

I am still up and am saying a prayer for you and your little boy. I pray that you will get a quick answer and that the problem will be something simple. May God send his angels to surround you with His love as you wait at home for more news.

Sending you a hug too! :hug:

Ava31
03-24-2007, 11:32 PM
I'm so sorry that you're going through this. I'll pray that your son's doctors can pinpoint what's causing his illness and treat him accurately. My thoughts are with your family.

lisajl
03-24-2007, 11:51 PM
Thank you both! I am still waiting for another phone call or for them to walk through the door.

Lisa

discruiselovers97
03-25-2007, 12:10 AM
I have never been on this forum before but your thread caught my eye. I hope your son is ok and I said a prayer for him. I have had a personal experience with this also. My daughter had 3 seizures when she was little and then they just ended. Last year she had couple more and we took her to the ER and they found the problem. Now she is just fine. Please keep us updated. God Bless.

lisajl
03-25-2007, 12:29 AM
I have never been on this forum before but your thread caught my eye. I hope your son is ok and I said a prayer for him. I have had a personal experience with this also. My daughter had 3 seizures when she was little and then they just ended. Last year she had couple more and we took her to the ER and they found the problem. Now she is just fine. Please keep us updated. God Bless.


I'm so glad your DD is okay now. It is so scary when you don't know what is going on.
They just got back and the CT scan was clear. It is a big case of sinus infection. We have to get two prescriptions one for prednisone and one for an antibiotic.

Thanks everyone!

Lisa

JunieJay
03-25-2007, 05:15 AM
I'm so glad your DD is okay now. It is so scary when you don't know what is going on.
They just got back and the CT scan was clear. It is a big case of sinus infection. We have to get two prescriptions one for prednisone and one for an antibiotic.

Thanks everyone!

Lisa

Whew!!!! Thank GOD its nothing serious!!! Hope your boy feels bbetter very soon. :grouphug:

angel*lady
03-25-2007, 08:56 AM
What a relief!!! So glad it was just a sinus infection!!! The meds should knock that out pretty quickly! Hope all is back to normal in your house very soon! :goodvibes

safetymom
03-25-2007, 08:59 AM
I am glad to hear they found out what the problem was. I will say a prayer for all of you.

escape
03-25-2007, 08:40 PM
Oh, how scary!

Hope your DS is feeling a little better tonight. :goodvibes

4nana
03-26-2007, 08:29 AM
I can imagine how frightening this was. Glad to hear it was nothing too serious and send prayers he is on the mend. :hug:

lisajl
03-26-2007, 08:37 AM
This is why I love Disboards. When I need a place to come and vent or find some comfort, it is on 24/7. You all are the best!
Sean is still not too great. Gave him the antibiotics this morning, he threw up about 30 minutes later. He is not too hungry so is munching on toast when he is awake. When he wakes up will give him the prednisolone.
Luckily the fever has come and gone. I decided to stay at home with him today due to our light schedule at work. Trying to get some housework done while he is resting.
What a weekend!
Again, thanks everyone for your concern. It really helped me through that rough few hours waiting for answers.

Lisa

rhiannonwales
03-26-2007, 08:55 AM
As scary as the seizures are, it can be normal with some infections, especially with fevers that rise and fall rapidly.My nephew went through this for a year until they found the source of the infection and the seizures started at only age 1.He had really bad adnoids that were infected on the inside and kept reinfecting his system.

Heres hoping that your DS feels better soon.
Sherrie

Goofyluver
03-26-2007, 10:35 AM
So glad your son is doing better! My DS has chronic sinusitus, and he gets pretty sick, although never seizures. Let us know how he is doing. If I had one tip for you, it would be that the prednisalone can also cause upset tummies. Have him take it with food! My son takes this year round. If he is taking it in liquid form, have a drink to chase it with. It tastes really yucky! Hope you son gets to feeling better soon!

Ava31
03-26-2007, 01:29 PM
WooHoo...so glad to hear it's easily treatable! :cool1:

TruBlu
03-27-2007, 09:25 AM
I'm so glad everything turned out OK. How is he feeling today?

lisajl
03-27-2007, 11:13 AM
Well, it has not been a good morning. I stayed home yesterday with him due to the ER run. This morning I went to work, my DH went to the dentist and then home to check on Sean. Sean had gone in the bathroom and he told his dad that he had a seizure. We are not sure if that is what happened or he blacked out. We took him to the doctor and he has referred us to Childrens Hospital in Columbus for an EEG. I am waiting to hear from them when we can bring him in. I am hoping and praying it will be this week.

Thanks for your concern everyone, it is much appreciated.

Lisa

Goofyluver
03-27-2007, 11:36 AM
Please keep us updated. I hope that he gets to feeling better and that you have your answers.

TruBlu
03-27-2007, 12:33 PM
Oh Lisa, I am so sorry that he isn't feeling well today. I'm sure the docs at the children's hospital will figure out what is going on. Please try not to worry too much until you have some answers. :hug:

lisajl
03-28-2007, 12:13 PM
ok..Childrens Hospital cannot see him until May 8th. Our doctor said that was not good enough. Childrens said if my son has an abnormal EEG, they would see him sooner.
So, we are going to have an EEG done next Wednesday. Then we will go from there. Not sure how long it will take to get an answer.

Thanks everyone! I am just trying to keep everyone here at home together. I am trying not to break down in front of him. My DD, 21, just got back from class and broke down. She is headed to New York tomorrow with friends and does not want to go now. I told her to pack her bags and get out of this town!!
I know she is worried, but there is really nothing else to do but wait.

Lisa

mommasita
03-28-2007, 01:09 PM
:hug: to your family, and Prayers:grouphug:

TruBlu
03-28-2007, 02:16 PM
Lisa,
Did you call the children's hospital yourself or did the doctor's office call? I know that is a strange question, but when DS7 had a bone tumor a couple of years ago our children's hospital was going to take a couple of months to get him in. Well, I called them, cryed, and begged them to work him in sooner. It worked. He was seen in two weeks by the best doc on the staff. The apointment person worked us in, but I really did have to talk her into it. I asked to be put on a call list if they had any cancellations, but while I had her on the phone I explained my urgency. It might be worth a try.

Please let us know how the EEG turns out.:hug:

lisajl
03-28-2007, 02:30 PM
The doctors office called. But, honestly, this is the first thing we would have to do anyway. My sister had to have an EEG done, I had completely forgotten about it. She possibly has MS. So, I was talking to her about it.
I called the number I was given to try to get him in this week, but they are booked. So, if they have a cancellation they will call.
I am going to be on pins and needles until then!

How did you handle all this with your child?

Lisa

angel*lady
03-28-2007, 06:08 PM
:grouphug:

hematite153
03-28-2007, 07:48 PM
I'm sorry to hear he's still ill. You'll be in my prayers. Good luck with the EEG and the children's hospital appt.

TruBlu
03-29-2007, 12:39 PM
How did you handle all this with your child?

It was one of the hardest things I've ever done! I felt the lump giving him a hug. The x-ray showed a small bone tumor that the radiologist told me was probably benign unless it started growing, then it would be malignant. Well that thing doubled in size in two weeks! That was when they sent us to the Orthapeadic Oncologist at the Children's Hospital. I couldn't have survived without prayer and support from family, friends and our church. I also didn't tell DS what was going on. He knew about the lump, but we really didn't want him to worry. We didn't even tell him when we scheduled surgery to remove it (they used a chisel and hammer :scared1: ). We went to the beach, had a great time, drove home on a Monday, and had the surgery early Tuesday morning. I told him about it on the way to the hospital. I still didn't make a big deal about it, so he wasn't worried at all. I never let him know how bad it could have been - as they say on the breast cancer thread "Don't bleed before you are shot." I suited-up and walked him to the OR. They had me lift him onto the operating table and kiss him as they started the gas. I smiled and talked to him until his eyes closed, then I LOST IT! They had to lead me out of the room because I was crying so hard. I scared DH to death when I walked back into the waiting room sobbing.

After the surgery they came to get me because they thought he was asking for food. They thought he wanted blueberries, but he was really asking for his bear "Blue Beary". After he got him he was fine! :goodvibes

Anyway, our story has a very happy ending!!! It was benign!!! We are two years out with no re-growth. They have even stopped doing the x-rays every 6 months now. :cool1:

PM me if you want to talk. I've been there and I know exactly what you are feeling. It is so hard, but we do what we have to for our kids.

Do you have anyone you can talk to? It really does help.
:hug:

TruBlu
04-04-2007, 06:28 AM
Lisa,
How did the EEG go yesterday?

lisajl
04-04-2007, 10:38 AM
EEg was this morning. In fact, we just got back. It went pretty well. They only let me stay in with him until they got the electrodes attached to his head. We got out of there in about an hour and a half. Took him to the Disney store at the mall, he found nothing there. Stopped at the grocery store so we could get some croissants, his favorite.
I think we are both ready to crash! We won't know the results for, as the nurse said, 10 business days. She told me not to count this Friday, no one would be there. So, nbw the wait.
Thanks for checking up on him!
Lisa

TruBlu
04-04-2007, 12:20 PM
Sorry Lisa, I got my days mixed-up. I could have sworn today was Thursday. :upsidedow

I know you are glad to have the show on the road. Isn't it a relief to be making some progres?:goodvibes

I'm really glad that the procedure went well. Now we just wait... Try not to let it consume you. During the waiting-to-hear-something time I always think that if they found something they would call sooner. It makes me feel better about waiting.:goodvibes

Just know that you have friends here around the clock ready to give you a big :hug: !

:) Tracey

lisajl
04-06-2007, 06:48 PM
Got a call from our doctors office today, the EEG is NORMAL!! Hooray!
We are still going to the neurologist, it is on May 1st not the 8th. The nurse got the day and times mixed up! So, that is good news. I am sure the neurologist may tell us to monitor him. Hopefully, he won't have anymore seizures.
Thanks for all your support, concern and especially the prayers.
Lisa

angel*lady
04-06-2007, 08:10 PM
Lisa -

That is wonderful news!! Thanks for the update and we will keep praying that it is smooth sailing from now on! :)

Blessings to you and your family!

TruBlu
04-12-2007, 08:37 PM
Hi Lisa,
I hope your DS is still doing well. I had an eventfull day here. I found another lump on DS7! :scared1: I have been checking it for a few days now, but it didn't go away. So, I took him in for an x-ray today. Thankfully our prayers were answered! The xrays looked great! :woohoo: I thought about you as I was sitting there waiting for the results. It isn't much fun is it?

Tracey

angel*lady
04-12-2007, 09:58 PM
Tracey,

What a terrible scare for you!!! So glad everything is ok with your son.:thumbsup2

lisajl
04-13-2007, 04:06 AM
Hi Lisa,
I hope your DS is still doing well. I had an eventfull day here. I found another lump on DS7! :scared1: I have been checking it for a few days now, but it didn't go away. So, I took him in for an x-ray today. Thankfully our prayers were answered! The xrays looked great! :woohoo: I thought about you as I was sitting there waiting for the results. It isn't much fun is it?

Tracey

Oh Tracey! I am so glad he is okay! Do they know why he gets these lumps? No, it is not much fun. I know when something happens to my kids my stomach goes to my feet and my head starts reeling. We just want our kids to be okay and have a normal childhood. My friend Lisa, her son has so many issues and has had brain surgery, etc. I just keep thinking how lucky I am and how thankful I am my kids are doing as well as they are.
Will keep you in our prayers, Tracey.
Lisa

P.S. Thanks for asking about Sean, he is almost back to himself. He is talking more, becoming more active, etc.

Mackey Mouse
04-13-2007, 05:05 AM
Hugs all around. I am following this thread. Please do let us know how they are both doing.

I think we never stop worrying even when they are adults. *sigh* Hang in there you two, I have you in my prayers. why can't we just go through life without all this sickness and worry....

lisajl
05-01-2007, 07:28 PM
An update on our neurology doctor appt. We went this morning and it sounds like good news. The doctor told us that 80,000 kids pass through Childrens Hosp. with a seizure, 70% of them only have one seizure their whole lives. This is the news we have been wanting to hear.
On the other hand, he wants to be sure he is not missing anything.
He has ordered another EEG on May 9th, Sean's bday, he'll be 10! And he will also have an MRI the same day.
Then we go back for a recheck in Aug. Things are looking up here.
Thanks for all your support! I love the DIS!

Lisa

angel*lady
05-01-2007, 07:49 PM
Thanks for the update! Glad to hear the visit to the neuro went well. Hope you will be celebrating a great EEG and MRI on the 9th! :banana:

chip91
05-02-2007, 05:32 AM
Just read through the thread, I'm glad to hear the positive's to this point, I'll say a prayer for you guys that no more seizures happen and the 2nd test, comes back normal.. It's so hard to have the sick and not have answers!

Prayers, hugs & pixie dust..

Chip