Sleep Apnea

[hiwaygal]

Well, I thought I would make good use of this new board as well.

I was just diagnosed with sleep apnea and I'm going for my second sleep study this weekend. This second study will determine the settings for a CPAP (Continuous Positive Airway Pressure) machine to help me.

I posted something on the CB the other day and got lots of great advice and support (as usual!) and I'm hoping to start this thread for anyone out there who has sleep apnea (or thinks they might); for anyone who uses a CPAP machine (or VPAP or any other) and how they deal with using the machine for travel, etc.

Come share your stories and experiences!!!

[Lachesis00]

subbing :)

[Mackey Mouse]

I was suppose to have a sleep study done recently and I cancelled it......I probably should get it done as sometimes I wake up choking..like once a month. I do not sleep well at all and now with the added stress, I am up before the birds or the sun..

Please let us know how you are doing....and hopefully others will post and you can share...

[Haley Whippet]

My DH has Sleep Apnea, He uses a CPAP machine and has tried 4 different masks..
He really isn't fond of any of them. He keeps me awake with his snoring, and It is very frightning when he stops breathing 100+ times a night.
Be sure to get a mask you can live with..
Deb

[hiwaygal]

Hi Rachel!! Glad you popped in! I hope you will share your experiences here too!!

Mackey Mouse...the sleep study wasn't as bad as I thought it was going to be. I was pretty worked up about it before I went the first time. But the place was nice and I was able to sleep enough for them to determine there is a problem. After it was all said and done, it wasn't that bad...of course, I'm saying that now and still stressing a bit about the second test this coming Saturday :rotfl: From what I've heard (from the folks here on the DIS) if you have a problem and need the CPAP machine, it will help SOOOO much. I'm actually looking forward to that help...and feeling better! :grouphug: I hope you reschedule and start to feel better soon!!

Deb...the mask is one part that kinda worries me. I can probably get used to many of them, but comfort is key! I hope your DH can find one that is more comfortable for him. Does he feel the CPAP therapy has helped him?

[Denise W]

I was recently diagnosed with sleep apnea as well. I had an appointment with the sleep doctor yesterday to go over the report from my sleep study, and he has ordered my machine.

I am not looking forward to this on many levels - I felt a little claustraphobic with the mask on, and I am concerned on how the noise of the machine will bother my husband, not to mention what I will look like with the mask on. I always have to get up at night at least once to go to the bathroom, so I am concerned about how difficult it will be to stop the machine, and then come back and hook everything back up in the dark in the middle of the night.

I hated my sleep study because they told me I had to sleep on my back the entire time, and by the end of 7 hours my back was killing me. I usually sleep on my side. Of course the doctor told me yesterday that they should have let me sleep on my side part of the time!

I hope I can get this to work. I'd love to actually sleep through the night.

Denise

[brytorlyn]

My husband and I both have sleep apnea ( I am betting our 5 year old does too but they said they usually wait till 6 or 7 diagnose because of the mask issue). We were diagnosed about 2+ years ago. I wear a mask that has 2 small nubs that fit into the nostrils and I find this works for me and doesn't give you a claustrophobic feeling. My husband is a mouth breather and so he needs a full face mask. I would NEVER sleep without it anymore and even if I go away for 1 night I bring it and wear it because even if i find it a little annoying I know that I feel so much better with it that it is worth the discomfort.

I used to get a sore throat at night and even when I woke up, I felt like I had swollen glands. I had to get up ever night to go to the bathroom and I felt tired all the time. Now I sleep all night and no more sore throat. I feel so much better.

The sleep study really isn't so bad and the benefits of the CPAP make up for the bother.

[cassie]

I have sleep apnea and right now I am using a full mask. The new machines are very quiet, and they shouldn't bother your spouse at all. As for getting up during the night to potty, I just unclip the mask and go. I do not find the mask claustraphobic at all, and I can't imagine sleeping without it.

[hiwaygal]

Good Monday morning everyone!!

Well, I had my second sleep study on Saturday night. This was where they tested the CPAP machine on me.

I was a bit nervous, but it wasn't too bad.

We picked out two masks so if I wanted to switch during the night it could be quick.

I started with a full mask and thought that was going to be okay...but I guess about an hour or so after I fell asleep, something happened. Not sure what but it made me feel like I couldn't breath and I had to take it off. After that we went to the nose only mask and it turned out AMAZINGLY well!! There were a few moments of "panic", but really, that was to be expected (not being used to it and all).

When they woke me up to go home, I actually felt pretty good!

So, I go back on the 30th to see what happens next!

Thanks to Denise W, brytorlyn, and cassie for sharing your experiences!!! I hope those who have been using the machine can help us newbies learn how to adapt to all of this!!

[GDUL]

Good Monday morning everyone!!

I started with a full mask and thought that was going to be okay...but I guess about an hour or so after I fell asleep, something happened. Not sure what but it made me feel like I couldn't breath and I had to take it off. After that we went to the nose only mask and it turned out AMAZINGLY well!! There were a few moments of "panic", but really, that was to be expected (not being used to it and all).

When they woke me up to go home, I actually felt pretty good!


I'm happy to hear that the titration night went well and that you felt "pretty good" in the morning!

Just remember that if things aren't going quite right when you start using the machine at home to not stop using it per se. They can be adjusted in pressure, using BiPAP instead of CPAP, readjusting the mask, trying a new mask, trying CFlex or BiFlex, etc. There are so many other health benefits to using a CPAP machine beyond the obvious ............. for example, studies have shown a connection between OSA and CHF. Work with your doctor and the sleep lab until it works for you!

CPAP - it can change your life!

[Denise W]

I have an appointment next week for the Medical supply company to deliver my machine and show me how to use it. They are bringing all the different masks so I can try them all. I'll let you know what happens.

Denise

[hiwaygal]

I'm happy to hear that the titration night went well and that you felt "pretty good" in the morning!

Just remember that if things aren't going quite right when you start using the machine at home to not stop using it per se. They can be adjusted in pressure, using BiPAP instead of CPAP, readjusting the mask, trying a new mask, trying CFlex or BiFlex, etc. There are so many other health benefits to using a CPAP machine beyond the obvious ............. for example, studies have shown a connection between OSA and CHF. Work with your doctor and the sleep lab until it works for you!

CPAP - it can change your life!

You know, I was really surprised at how I felt that morning. Of course, it wore off pretty quickly, but it was noticeable.

I am interested in the other machine features, but I'm not sure when those are "prescribed". They only used the CPAP on me (even though I did ask about the one that has a different pressure for inhale and exhale...is that the BiPAP?).

I didn't really have a problem with the regular CPAP and just the nose mask. Or at least nothing I couldn't get used to...except the dryness. I will definitely need some kind of humidifier. But I like the cold air...and everything else seemed fine.

My only question now is how long will it take to get my machine and everything so I can have one of these nifty things AT HOME!!! :teeth:

[GDUL]

You know, I was really surprised at how I felt that morning. Of course, it wore off pretty quickly, but it was noticeable.

I am interested in the other machine features, but I'm not sure when those are "prescribed". They only used the CPAP on me (even though I did ask about the one that has a different pressure for inhale and exhale...is that the BiPAP?).

I didn't really have a problem with the regular CPAP and just the nose mask. Or at least nothing I couldn't get used to...except the dryness. I will definitely need some kind of humidifier. But I like the cold air...and everything else seemed fine.

My only question now is how long will it take to get my machine and everything so I can have one of these nifty things AT HOME!!! :teeth:

Many of the options that I mentioned are prescribed - changes in pressure, CPAP vs BiPAP, CFlex, BiFlex, etc. The homecare company that delivers your CPAP will be able to answer these questions for you in the future should they arise. If you are having problems with dryness, definitely have a humidifer ordered. You should be able to change the heater plate temperature so that you can cool it down a bit. You might even have the option of turning the heater off so that you are just using the humidifer as a cool passover. Just remember that as you decrease the temperature of the humidifier plate, you decrease the amount of humidity that you are getting. It may take some trial and error but hopefully you can reach a comfortable setting of both temperature and humidity.

"They only used the CPAP on me (even though I did ask about the one that has a different pressure for inhale and exhale...is that the BiPAP?)." Yes, this is BiPAP!

Feel free to PM me if you have any questions!

[Denise W]

I got my CPAP machine 2 days ago. I had a great therapist deliver it and instruct me in the use of it. She felt that based on my sleeping habits that the mask that goes in your nostrils would be best for me (I mostly sleep on my side, and usually do not breathe through my mouth). She said they consider you "compliant" if you use the machine at least 4 hours during the night. She said I could start out using it perhaps 45 minutes and try to work up to a full night within 30 days.

The first night I used it for 3 1/2 hours and last night I used it for 5 hours. Both times I took the mask off when I got up to use the bathroom and just didn't bother to put it back on. I didn't feel too uncomfortable with it on, as she programmed it to "ramp" up the pressure over 45 minutes so that I don't get the full "blast" right away. I felt that was a good option and it worked well for me. So, so far I am happy with the machine, and am hoping I'll actually start to get a good night's sleep.

Denise

[hiwaygal]

I got my CPAP machine 2 days ago. I had a great therapist deliver it and instruct me in the use of it. She felt that based on my sleeping habits that the mask that goes in your nostrils would be best for me (I mostly sleep on my side, and usually do not breathe through my mouth). She said they consider you "compliant" if you use the machine at least 4 hours during the night. She said I could start out using it perhaps 45 minutes and try to work up to a full night within 30 days.

The first night I used it for 3 1/2 hours and last night I used it for 5 hours. Both times I took the mask off when I got up to use the bathroom and just didn't bother to put it back on. I didn't feel too uncomfortable with it on, as she programmed it to "ramp" up the pressure over 45 minutes so that I don't get the full "blast" right away. I felt that was a good option and it worked well for me. So, so far I am happy with the machine, and am hoping I'll actually start to get a good night's sleep.

Denise

That's great news!! Thank you so much for sharing this info!

I have an appointment today with my sleep doc...I'm hoping they will tell me I can get one of these machines. I just don't know how long it will take.

I like the idea of letting it "ramp up" to a higher pressure over time.

Does your machine have a humidifier too? I really think I will need one, but I do want COLD air.

I really thought I would breathe through my mouth, but I found with the nose mask and having the pressure, I was able to breathe through my nose and it was nicer.

Are you feeling any better? Did you notice a difference at all?

ETA: I just read back through your posts...I was trying to figure out how long it took for you to get your machine. It looks like about two weeks or so. I think the appointment you had with your doc (that you posted about around the 14th) is the one I have today...guess I'll find out later for sure! :teeth:

[hiwaygal]

OMG!!! Great news!!! :yay:

I had my follow up with the sleep doc today.

They said the CPAP machine seemed to help and that my insurance allowed them to be the distributer...so I was able to bring a machine home TODAY!!!

I'm actually very excited!! I have it all set up next to my bed, DH bought me some distilled water for the little humidifier thingy, and I'm actually looking forward to using this thing tonight!

Basically...it's all "done"! I go back in February to make sure I'm using it properly. They said that it's considered a rental for the first two months, after that, if everything seems good, my insurance company will "buy" it.

So...I'm anxious to see how this all works!!!

[Denise W]

Yes, my machine does have a humidifier and heater. So far I have it on a low setting but I think i will turn it up slowly. I am having to cough from a dry throat, so I think I need to turn it up. I actually got a call from the medical supply people 2 days after my doctor's appointment wanting to bring the machine over, so they musthave lots in stock.

My insurance covers 90% so I had to pay about $35 up front and then rent the machine for about $5 for 10 months and then it is mine.

Last night I didn't use it at all becuase of some other personal issues, but now that it is the weekend I want to try to use it all night tonight and tomorrow night.

I haven't noticed and difference yet in my sleeping, but it hasn't been that hard to get used to, so far.

Good luck to you!

Denise

[hiwaygal]

Hmmmm...wonder if they ever did a study to find out if the name Denise causes sleep apnea! :rotfl: ;)

I think I did quite well last night...slept with it for all but maybe an hour or so. But I keep getting the feeling that I don't have the mask on right and it's leaking...so I'm afraid to move or anything. It's probably just that I have to get used to it

Good luck to you too!!!

[hiwaygal]

Night 2 with the CPAP machine.

You know, when I woke up this morning, my nose felt weird...numb sorta! :rotfl: But I did feel like I got a good fit on the mask last night...kept it on all night, and managed to find a way to sleep on my side! :banana:

I'm not sure I'm using the humidifier thing right (too many buttons to figure out :rotfl: ) and I wish they would re-set the "ramp up" feature to go longer than the 25 minutes they give me...I need more like 45 minutes or more...

[Denise W]

mmmm, something about the name Denise!!

I used my machine last night for the whole night for the first time, about 8 hours. I got up once to use the bathroom and disconnected the hose so I could keep the mask on. When I reconnected it in the dark (and being sleepy) I must not have gotten a tight connection, because when I woke up again in 3 hours I realized it was leaking air. But at least I made it through the whole night and the mask didn't bother me (too much). I think from now on if I have to get up during the night I'll just take the mask off.

What brand machine do you have? I need to read the whole book this weekend to make sure I am doing everything correctly, even though the therapist was very good about showing me the operation of it.

I know on my machine I can change the ramp up feature (of course I haven't figured out how to do it yet!), but mine is set for 45 minutes and that seems about right for me.

Denise

[hiwaygal]

I have this Fisher-Paykel (http://www.cpapsupplyusa.com/Fisher-Paykel-Hc233-Humidified-Cpap-Machine-Hc233.aspx) machine.

I don't think it allows me to adjust the settings. I can call the doc on Monday.

I think the 45 minutes you have sounds good for me too. I can't remember if she told me she set mine at 20 or 25 minutes, but it's not enough. I end up just starting to fall asleep and try to yawn when it's at it's max...and that is just too hard!!

I think I'll have DH read the manual again! :rotfl:

[corinnak]

My DH has had and used a CPAP for 6 years now. It has made such a difference to his ability to function, it's unreal. Of course his machine is about 6 years old now, has a humidifier and no heater and is pretty loud and bulky. I wonder how often they can/need to be replaced.

We have traveled a lot over these years and my DH used to crazily check the CPAP in his luggage. It took two times of it being delayed before I said "Dude....you have to carry that thing on - we need you awake!" And now he always does - packs it in a small rolling suitcase that fits in the overhead on most planes, gate checked for the tiny planes, or under the seat. When he started with the CPAP, he had a mustache, though, and had a hard time getting a good seal with his nose mask because of it. It took us a while to catch on to that, though.

Oh, one more question - my DH hasn't had a sleep study or follow up with the sleep doctor since the initial study was done. We get new hoses and masks and filters and humidifiers periodically, but I wonder if it is odd that there is just zero follow-up with the doctors.

So glad that you all are finding the CPAP to be so helpful as well.

[Grandmax3]

I have C-PAP machine. When I received it about 4yrs ago they gave me a case for it. I always take with me when I travel and hand carry it. It fits in the overhead storage with no problem. It does not count a personal carryon as it is medical equipment. It easily can go the the security machine and face no sideeffects.

[GDUL]

My DH has had and used a CPAP for 6 years now. It has made such a difference to his ability to function, it's unreal. Of course his machine is about 6 years old now, has a humidifier and no heater and is pretty loud and bulky. I wonder how often they can/need to be replaced.


Oh, one more question - my DH hasn't had a sleep study or follow up with the sleep doctor since the initial study was done. We get new hoses and masks and filters and humidifiers periodically, but I wonder if it is odd that there is just zero follow-up with the doctors.

So glad that you all are finding the CPAP to be so helpful as well.

If I remember correctly, most insurance companies will allow a replacement CPAP after 5 years. You'd have to check with your insurance company to find out their policy though. The same goes with follow-up sleep studies. There can be earlier follow-ups, of course, should the doctor feel that it's necessary based on new problems / symptoms that the user is experiencing. The other side of the coin is that if the doctor feels that everything has been going well, he / she might not feel that a repeat study is warranted - LOL!

You'd be surprised at how small and quiet CPAP machines have become! Here's one: http://mseries.respironics.com/home.asp. If you click on the "View the M Series Features" link to the right of the CPAP machine, it will open a second page. There, you will see 5 icons to the right of the machine - they will explain the various features.

[hiwaygal]

My DH has had and used a CPAP for 6 years now. It has made such a difference to his ability to function, it's unreal. Of course his machine is about 6 years old now, has a humidifier and no heater and is pretty loud and bulky. I wonder how often they can/need to be replaced.

We have traveled a lot over these years and my DH used to crazily check the CPAP in his luggage. It took two times of it being delayed before I said "Dude....you have to carry that thing on - we need you awake!" And now he always does - packs it in a small rolling suitcase that fits in the overhead on most planes, gate checked for the tiny planes, or under the seat. When he started with the CPAP, he had a mustache, though, and had a hard time getting a good seal with his nose mask because of it. It took us a while to catch on to that, though.

Oh, one more question - my DH hasn't had a sleep study or follow up with the sleep doctor since the initial study was done. We get new hoses and masks and filters and humidifiers periodically, but I wonder if it is odd that there is just zero follow-up with the doctors.

So glad that you all are finding the CPAP to be so helpful as well.

Hi Corinna!!!

Thanks so much for joining us!!

Personally, I'm still waiting for that "ability to function" to return! ;) But I'm definitely looking forward to it (it's only been 3 days).

My CPAP machine came in a cute little travel bag! I was grateful for that because when we do travel, it will make it VERY easy for security to check it!

I also concur what GDUL said...they told me my machine could be replaced every 5 years. And I would definitely see if your DH can get a new one! Especially if it is loud. My DH usually asks me a couple of times if mine is even on! He can't hear it at all (and really, neither can I!).

My doc also said that most likely, unless I was having problems, there wouldn't be any further sleep studies. I thought that was weird too, but I guess once you have this problem, the machine isn't really a cure, it's a treatment. (I think of it like diabetes or thyroid issues). The only way some folks might get off the machine is if they are very overweight and lose weight and the problem is minimized enough to not need the machine, but that wouldn't necessarily apply to everyone.

Let us know what you find out about a new machine!!!

[hiwaygal]

I have C-PAP machine. When I received it about 4yrs ago they gave me a case for it. I always take with me when I travel and hand carry it. It fits in the overhead storage with no problem. It does not count a personal carryon as it is medical equipment. It easily can go the the security machine and face no sideeffects.

Hi Grandmax3!!!

Thank you so much for sharing this info!! I didn't know that medical equipment didn't count as a personal carryon!!!

That's great...although I might not tell DH as this is one way I could get him to carry all the carry-on stuff, while I have my CPAP!!! :rotfl:

[tinabheart]

I just noticed this thread and am so excited to see so many of you newbie c-pap users. Don't give up - even if it gets discouraging or frustrating some nights.

I have had my machine for over 10 years. (Same machine!) I only had a follow up sleep study this year, because I figured my machine was certainly going to die soon, and knew that I needed a presciption for a new one. Well, my level hadn't changed, and my machine is working fine.

So many of your questions and concerns are familiar, and I can tell you that if you stick with it, you will notice a difference, and your life will change. It will never be 'perfect', but it will provide a dramatic change.

As far as traveling, I would never leave home with out it. My machine has been all over the country, and is ALWAYS with me as carry on luggage. I don't care what anyone says, the machine has never left my side! I've traveled with people who thought it was silly or ridiculous, but it's worth it to me to have it there. Yeah, that means there are places (such as camping) that is not going to be convienent to sleep - but it can be done if the people around you are willing to work with you.

I love naps, and I would never think of laying on the couch for a quick snooze. If I want to sleep for even 5 minutes, I lay down on my bed and quickly put it on. In the beginning, it's frustrating putting it on, but trust me, it will become as easy as putting on your slippers. You'll do it without even thinking.

When I first got my machine, I was 25 and a mom of a four year old. I realized that in the middle of the night I would take it off without realizing it, but once I started working outside the home, I became much more attached to it. And for the past 7 or 8 years, never have taken it off.

There are soooo many people out there with sleep apnea that have no idea that they have it. My uncle died of a heart attack when he was just 53 - had only had the cpap for a year before he died. Sleep apnea, when not treated with a mask, is very dangerous and harmful to your heart. Don't worry what your spouse will think about what you look like. If they truly love you - they will want you to wear it, because you need it. They wouldn't question you for taking a certain medication if needed it would they?

Before I got my machine, I couldn't stay awake driving even for 10 minutes in the car sometimes. In fact, my apnea was so bad that the morning after my first test, when the doctor go to the hospital that morning (after I had left) he was so conerned about me that he called to make sure I got home that morning. He said I had one of the worst cases he'd seen. At that point, he said I shouldn't even be driving, ever. So, yes, I encourage everyone i suspect who might have a problem with sleep apnea to seek treatment immediately. Literally, it could save your life!

[hiwaygal]

Wow tinabheart...thank you for sharing your experience!

I never suspected sleep apnea so I was surprised when my doc sent me for the study, and then even more surprised when it was diagnosed.

I'm excited for the positive effects that I know will come.

Last night (my 4th with my machine) was the first time I got frustrated and took it off after only 3 hours or so. I just couldn't seem to get a good seal on it and it was driving me nuts.

And, for the first time last night, I felt discouraged about having to do this every night for the rest of my life. I'm not concerned with the vanity issues, or anything like that...it's just a "restriction", you know? I know it will get better...

But I have a question for all of you who have had this for awhile...what specific products do you use to clean your machine? I've been trying to find mild UNSCENTED cleaners, and I'm not having any luck. DH is going to a hospital supply place today to see what they have, and I've only found one product online (and it was kinda pricey).

[GDUL]

Last night (my 4th with my machine) was the first time I got frustrated and took it off after only 3 hours or so. I just couldn't seem to get a good seal on it and it was driving me nuts.

And, for the first time last night, I felt discouraged about having to do this every night for the rest of my life. I'm not concerned with the vanity issues, or anything like that...it's just a "restriction", you know? I know it will get better...

But I have a question for all of you who have had this for awhile...what specific products do you use to clean your machine? I've been trying to find mild UNSCENTED cleaners, and I'm not having any luck. DH is going to a hospital supply place today to see what they have, and I've only found one product online (and it was kinda pricey).

Try not to get discouraged - it really does become second nature with regards to using the machine (it will be 5 years next week for me - happy anniversary - LOL!). I don't even think about it anymore.

I usually use a slightly damp cloth to wipe down my CPAP machine after I unplug it. I've never found a need to use a cleaner on it. Make sure to check your gross air filter (the gray one probably) and wash that periodically with warm water and a mild dish detergent like Joy. Make sure that it's dry before you put it back into your CPAP. I also wash my mask every other day or so using warm water and Joy. I disinfect the mask once a week using a vinegar / water solution (usually 3 parts water to 1 part vinegar). I also put in 2 or 3 drops of vanilla extract into this solution - it gets rid of the vinegar smell.

[tinabheart]

GDUL - wow...you are following the directions perfectly with the whole cleaning thing.

For me, I simply make sure that my face is very clean. Even if I've taken off my makeup at 5pm, I wash my face before I lay down - even for a nap, so that does mean re-applying makeup.

I've never washed the filters - just replace them every six months or so. They are only $4 or $5. Actually, I didn't know you could wash them!

My mask - gets a rubbing alcohol rubdown every week or so - and that's it! In ten years, I've probably only had a new mask every other year or so. They seem to hold up well. I know they say not to use alcohol...but it works for me. I let it run for a minute or so, adn then the smell of the alcohol is gone.

I guess I'm not an example of how to take care of your mask, but it's worked for me, and I've had my machine for 10+ years.

I will say that I have central air, and we keep our house quite cool in winter and summer, so there isn't a lot of perspiration and little dust. Humidity or open windows could make a difference in the air filter I'm sure.

I also do not have a humidifier, so that could make a difference as well.

I'm happy to answer any questions anyone has.

[GDUL]

GDUL - wow...you are following the directions perfectly with the whole cleaning thing.

I have to - I'm a Respiratory Therapist - it wouldn't look good otherwise - LOL!

[hiwaygal]

I have to - I'm a Respiratory Therapist - it wouldn't look good otherwise - LOL!

:rotfl:

I'm taking my mask in tomorrow for a replacement. I think I want to try the nasal pillows.

I also want them to give me a copy of my prescription so I can maybe buy a different mask from another source (we found a hospital supply place nearby). I don't care about the insurance part on the masks, I'm more interested in comfort!!

Thanks for the advice on the cleaning! DH and I are having a VERY hard time finding any unscented products!

[tinabheart]

I have to - I'm a Respiratory Therapist - it wouldn't look good otherwise - LOL!

:goodvibes ...you're a good person!

[GDUL]

:rotfl:

I'm taking my mask in tomorrow for a replacement. I think I want to try the nasal pillows.

I also want them to give me a copy of my prescription so I can maybe buy a different mask from another source (we found a hospital supply place nearby). I don't care about the insurance part on the masks, I'm more interested in comfort!!

Thanks for the advice on the cleaning! DH and I are having a VERY hard time finding any unscented products!

You're welcome!

See if they have a ComfortLite 2 - a lot of CPAP users are having good results with this mask:
http://comfortseries.respironics.com/

[GDUL]

:goodvibes ...you're a good person!

Thanks!

[hiwaygal]

You're welcome!

See if they have a ComfortLite 2 - a lot of CPAP users are having good results with this mask:
http://comfortseries.respironics.com/

That's the one I have...but it's got the full nose mask...I want to switch to the pillow ones.

[GDUL]

That's the one I have...but it's got the full nose mask...I want to switch to the pillow ones.

The ComfortLite 2 has 3 different styles of cushions - one of which is a pillows type. The top picture in the link has a picture of this style. The "pillows" don't really go into your nose; they are positioned right at the nares (opening of the nostrils) so that when you turn on the CPAP machine, the pressure expands the pillows so that it creates a seal. This is why a lot of CPAP users like this mask - it doesn't really go inside of your nose. Did they only give you the "cup" style of cushion?

[hiwaygal]

The ComfortLite 2 has 3 different styles of cushions - one of which is a pillows type. The top picture in the link has a picture of this style. The "pillows" don't really go into your nose; they are positioned right at the nares (opening of the nostrils) so that when you turn on the CPAP machine, the pressure expands the pillows so that it creates a seal. This is why a lot of CPAP users like this mask - it doesn't really go inside of your nose. Did they only give you the "cup" style of cushion?

yeah, I think so...and it was fine for the most part...but when I try to sleep on my side it shifts and doesn't get a good seal and then it drives me crazy!!

I thought the pillows might work better...and I'd like to try them. It's kinda sad that you can't try different ones out for a week or so before you have to "commit" you know?

[GDUL]

yeah, I think so...and it was fine for the most part...but when I try to sleep on my side it shifts and doesn't get a good seal and then it drives me crazy!!

I thought the pillows might work better...and I'd like to try them. It's kinda sad that you can't try different ones out for a week or so before you have to "commit" you know?

I'd be surprised if they didn't have the "pillow" style cushions there for you to try. That way you wouldn't have to try and get used to a new mask, headgear, etc. Just switch one style cushion for another and keep the headgear, etc the same.

I know what you mean about wanting to try multiple masks before deciding on one. Unfortunately, masks are expensive and the companies that set up the CPAP and masks only get reimbursed for 1 mask at the time of the set-up. It doesn't take long for them to lose whatever profit margin they gain by setting up the machine if they run through masks quickly. Unfortunately, a sign of the times with regards to medical reimbursement these days. I would suggest that you check with your insurance company (or maybe the company that set up your CPAP for you could check) to see what their mask replacement policy is. Some allow for a replacement every 3 or 6 months - others every year. Not the best solution but at least you could try a different mask a couple times a year until you found one that worked for you.

[hiwaygal]

I know what you mean about wanting to try multiple masks before deciding on one. Unfortunately, masks are expensive and the companies that set up the CPAP and masks only get reimbursed for 1 mask at the time of the set-up. It doesn't take long for them to lose whatever profit margin they gain by setting up the machine if they run through masks quickly. Unfortunately, a sign of the times with regards to medical reimbursement these days. I would suggest that you check with your insurance company (or maybe the company that set up your CPAP for you could check) to see what their mask replacement policy is. Some allow for a replacement every 3 or 6 months - others every year. Not the best solution but at least you could try a different mask a couple times a year until you found one that worked for you.

Apparently, I can replace my mask every 6 months.

I'm going to get a copy of my prescription to take to another supply place. Some of the masks aren't TOO bad in cost. I'm willing to try one, maybe two and just consider them as "spares" if they aren't what I want, you know?

[GDUL]

Apparently, I can replace my mask every 6 months.

I'm going to get a copy of my prescription to take to another supply place. Some of the masks aren't TOO bad in cost. I'm willing to try one, maybe two and just consider them as "spares" if they aren't what I want, you know?

Glad to hear that you can replace your mask every 6 months! The key is to keep trying until you find a mask that works for you. One of the biggest reasons as to why users are not compliant is the mask. It's so important to use a CPAP if you've been diagnosed with OSA! Sometimes we just have to keep working at it!

I use a ComfortGel mask. It doesn't even feel like I have a mask on - I wear it pretty loose - the cushion over the gel mask keeps the seal when the CPAP is on.
http://comfortgel.respironics.com/

Good luck trying to find a mask that works for you!

[mamaprincess]

I have a 3 year old that has always had stop breathing episodes during the night. She breathes through her mouth at night or when sleep. When she has a cold it's frightening because she struggles so much harder to breathe when she is sleep during a cold. We sleep with her and shake her. Could she possibly participate in a sleep study. Could she have sleep apnea?

[hiwaygal]

I have a 3 year old that has always had stop breathing episodes during the night. She breathes through her mouth at night or when sleep. When she has a cold it's frightening because she struggles so much harder to breathe when she is sleep during a cold. We sleep with her and shake her. Could she possibly participate in a sleep study. Could she have sleep apnea?

Hi mamaprincess...sorry I didn't see this sooner!!

You know, I don't know if she could do a sleep study, but I would certainly talk to your pediatrician about it!!

Let us know, okay?

[King Triton]

I have sleep apnea too and have to use a CPAP. I'm so glad to see this post because at first I felt like the only person in the world going through this. Now I don't feel so all alone. All my best wishes and respect goes out to all who have sleep apnea.

[hiwaygal]

I have sleep apnea too and have to use a CPAP. I'm so glad to see this post because at first I felt like the only person in the world going through this. Now I don't feel so all alone. All my best wishes and respect goes out to all who have sleep apnea.

Hi there, Triton!! :wave:

I'm kind of a newbie to all this apnea stuff so that's why I started the thread...I want to be able to find out answers to my questions quickly...and I have been around the DIS long enough to know that there is someone who knows something about everything here! :teeth:

How long have you been using the CPAP? I've had mine for almost two weeks. And I'm still not completely comfortable with my mask...and I'm not sure how much of it is just getting used to it or needing to look for something that I am more comfortable with...

I'm glad you found a place where you don't feel alone!! IMO this is an easy "condition" to deal with...yes, the mask can be uncomfortable, but you do it in the privacy of your own home (unless you are at Disney ;) :teeth: )...and the alternatives are so much worse!!!

Did you notice a big difference in how you felt? I haven't noticed that change yet...but I know it takes some time!

Anyway...welcome to the thread and I hope you'll give us updates whenever you can!

[GDUL]

I have a 3 year old that has always had stop breathing episodes during the night. She breathes through her mouth at night or when sleep. When she has a cold it's frightening because she struggles so much harder to breathe when she is sleep during a cold. We sleep with her and shake her. Could she possibly participate in a sleep study. Could she have sleep apnea?

There are more and more sleep centers that are beginning to do studies on children due to sleep problems. They are finding that children have about as many sleep issues as adults, unfortunately. I'm not sure where you are in Illinois but I'm pretty sure that Rush Childrens, U of Chicago, and Children's Memorial in Chicago have done pediatric sleep studies. If you're not near Chicago, the best bet would be to call a Children's Hospital in your area and see if they have a sleep lab and if that lab performs pediatric studies. You would, of course, have to get a referral from your daughter's doctor. Has he / she given you any ideas about your daughter's sleep difficulties?

[King Triton]

Thanks Denise for the welcome!!! :wave2: I've been on my CPAP for about a year now. I do feel a big difference. Once I started using it, I started dreaming again. That's because I wasn't waking up all the time through out the night. I also felt more rested. It does take a while to get used to the mask. You just have to keep adjusting the straps to get that perfect fit. If the mask is still not comfortable for you, then look into getting a different mask. There are many styles to choose from out there. My wife loves my CPAP because she doesn't have to hear my snoring anymore. She would tell me my snoring would rattle the walls. :rotfl: When I traveled to Disneyworld, I brought my CPAP with me. IT was well worth it. Thank God for my CPAP - it's a god send. :banana: :banana: :banana:

[Hermosa11]

My DH has sleep apnea and uses CPAP (continuous positive airway pressure) machine for past 7 years. At first I was excited to not hear the snoring! We had moved dh into son's room and son was sleeping with me. I decided he (son) was getting to old for this and told dh to DO something about the snoring! He was diagnosed and received the machine. I use foam ear plugs to void out the air noise and I sleep like a freaking baby! now! I use the earplugs when he is away even! ha ha:rotfl:

[hiwaygal]

My DH has sleep apnea and uses CPAP (continuous positive airway pressure) machine for past 7 years. At first I was excited to not hear the snoring! We had moved dh into son's room and son was sleeping with me. I decided he (son) was getting to old for this and told dh to DO something about the snoring! He was diagnosed and received the machine. I use foam ear plugs to void out the air noise and I sleep like a freaking baby! now! I use the earplugs when he is away even! ha ha:rotfl:


Hi Hermosa!!

You should see if your DH can get a new machine! Even if the one he has is still good, the newer machines are SOOOOOO quiet! My DH often asks if I have it on!

[disney kid at heart]

I'm happy to hear that the titration night went well and that you felt "pretty good" in the morning!

Just remember that if things aren't going quite right when you start using the machine at home to not stop using it per se. They can be adjusted in pressure, using BiPAP instead of CPAP, readjusting the mask, trying a new mask, trying CFlex or BiFlex, etc. There are so many other health benefits to using a CPAP machine beyond the obvious ............. for example, studies have shown a connection between OSA and CHF. Work with your doctor and the sleep lab until it works for you!

CPAP - it can change your life!

:thumbsup2 you are soooo right. sleep apnea is extremely dangerous and there are so many that have it. I had pneumonia and my Pulmonary Doc made me have a sleep study. I am claustrophobic but I eventually got used to my bipap with o2. I won't lay down without it on now. My DH is on one also, but like you said work with them and they will get the pressures right. When we go to DW I call Apria and they send everything we need to where we are staying. I wish people knew all the problems it can cause by not getting the real rem sleep.

[disney kid at heart]

I have to - I'm a Respiratory Therapist - it wouldn't look good otherwise - LOL!

I knew you had to be in the medical field.:thumbsup2 I was til 10yrs ago.

[disney kid at heart]

Hi there, Triton!! :wave:

I'm kind of a newbie to all this apnea stuff so that's why I started the thread...I want to be able to find out answers to my questions quickly...and I have been around the DIS long enough to know that there is someone who knows something about everything here! :teeth:

How long have you been using the CPAP? I've had mine for almost two weeks. And I'm still not completely comfortable with my mask...and I'm not sure how much of it is just getting used to it or needing to look for something that I am more comfortable with...

I'm glad you found a place where you don't feel alone!! IMO this is an easy "condition" to deal with...yes, the mask can be uncomfortable, but you do it in the privacy of your own home (unless you are at Disney ;) :teeth: )...and the alternatives are so much worse!!!

Did you notice a big difference in how you felt? I haven't noticed that change yet...but I know it takes some time!

Anyway...welcome to the thread and I hope you'll give us updates whenever you can!

highwaygal, did you try the gel mask? I sleep on my side and it's easier for the gel to adjust to your movements.

[GDUL]

highwaygal, did you try the gel mask? I sleep on my side and it's easier for the gel to adjust to your movements.

Another nice thing about gel masks is that the warmth of your face allows the gel to "soften" and conform to the contours of your face resulting in less leaks.

[GDUL]

I knew you had to be in the medical field.:thumbsup2 I was til 10yrs ago.

Yep - I've been an RT since 1979 working in a trauma center, an open-heart hospital, and homecare. I've been a consultant for a major respiratory medical equipment company for the past 10 years or so working primarily with invasive and non-invasive ventilation. I still get involved with OSA issues and treatment quite frequently though (not to mention using a CPAP).

[hiwaygal]

highwaygal, did you try the gel mask? I sleep on my side and it's easier for the gel to adjust to your movements.

Hi dkah!

No, I haven't tried a gel mask...yet! :laughing:

I have a follow up with the sleep doc on Feb. 8 so I'm going to talk to them then and ask about switching masks and stuff.

Right now I have two different headgear thingys: THIS ONE (http://www.talkaboutsleep.com/third_tier/equipmentfair_resmed_swift.htm) and THIS ONE (http://comfortlite2.respironics.com/Default.asp) so I switch them up.

I'm beginning to think that none is perfect or will work for all situations, but I make do with what I have.

I was going to ask the sleep doc about one LIKE THIS (http://www.cpapsupplyusa.com/Somnotech-Cpap-Mask-With-Headgear-Wm258x.aspx) but I don't know...I'm so confused!:rotfl:

[tinabheart]

I was going to ask the sleep doc about one LIKE THIS (http://www.cpapsupplyusa.com/Somnotech-Cpap-Mask-With-Headgear-Wm258x.aspx) but I don't know...I'm so confused!:rotfl:


That's basically the style that I've had for 10 + years and I really like it. I had the gel mask for awhile and liked it, but for some reason went back to the regular kind. I don't remember why. I never thought about the part where your face would warm the gel to get a better seal...that makes sense. Maybe I'll try the gel again next time!

[disney kid at heart]

Hi dkah!

No, I haven't tried a gel mask...yet! :laughing:

I have a follow up with the sleep doc on Feb. 8 so I'm going to talk to them then and ask about switching masks and stuff.

Right now I have two different headgear thingys: THIS ONE (http://www.talkaboutsleep.com/third_tier/equipmentfair_resmed_swift.htm) and THIS ONE (http://comfortlite2.respironics.com/Default.asp) so I switch them up.

I'm beginning to think that none is perfect or will work for all situations, but I make do with what I have.

I was going to ask the sleep doc about one LIKE THIS (http://www.cpapsupplyusa.com/Somnotech-Cpap-Mask-With-Headgear-Wm258x.aspx) but I don't know...I'm so confused!:rotfl:

Give the comfort gel mask a try. It is really nice, also wanted to tell ya, if you notice your nose being sore in am from the dryness you can get the humidifier that connects to your machine. A lot of times in the beginning I would have that problem but not anymore. There has been times also when I have a cold that just a few squirts of normal saline in each and it was easier to breathe. There are all kinds of things that can make it easier to get used to. Once you find the right everything you'll not want to sleep without it. We'll all be here if ya need help.:)

[hiwaygal]

Give the comfort gel mask a try. It is really nice, also wanted to tell ya, if you notice your nose being sore in am from the dryness you can get the humidifier that connects to your machine. A lot of times in the beginning I would have that problem but not anymore. There has been times also when I have a cold that just a few squirts of normal saline in each and it was easier to breathe. There are all kinds of things that can make it easier to get used to. Once you find the right everything you'll not want to sleep without it. We'll all be here if ya need help.:)

Thanks so much for the encouragement! It means alot.

A few weeks ago, I was a little discouraged, but it's getting better now. I think because I'm really starting to see some difference. I notice I don't have to take pain pills (for my back) as often and I'm not as tired when I get home in the evenings.

My machine has a humidifier "built in"...I have to fill it with water every night. I don't turn the heat function of it on though, 'cause I like cool air. So, I'm lucky and don't have the dryness.

Actually, depending on which mask I wear, I sometimes notice my nose being sore from the pressure!! That usually happens when I wear the nasal pillow thingys. So then I switch to the full nose cover part.

Theres a medical supply place close by, and I'd like to get there and see if I can try on different masks before I make a decision. Right now, the problem is how my script is written (for a SPECIFIC mask) and I plan on asking my doc to change that.

I don't mind paying out of pocket for some of the masks, if it means more/better comfort...but there are SOOOOO many out there to choose from.

[corinnak]

Just a heads up - a few weeks ago we were flying out of MSP and my DH's bag with the CPAP inside got flagged to be screened separately, which has happened a few times, but mostly it has just gone through. The TSA agent then told us that there has been a recent change and that CPAPs should never go through without being flagged at this point, unless we take them out of the bag (like a laptop) and run it through in one of the bins, which we can do, of course. We just didn't know! Has anyone else experienced this in the last month?

I thought some of you other CPAP bearing air travelers might appreciate the forewarning and the opportunity to expedite your trip through security.

[hiwaygal]

Just a heads up - a few weeks ago we were flying out of MSP and my DH's bag with the CPAP inside got flagged to be screened separately, which has happened a few times, but mostly it has just gone through. The TSA agent then told us that there has been a recent change and that CPAPs should never go through without being flagged at this point, unless we take them out of the bag (like a laptop) and run it through in one of the bins, which we can do, of course. We just didn't know! Has anyone else experienced this in the last month?

I thought some of you other CPAP bearing air travelers might appreciate the forewarning and the opportunity to expedite your trip through security.


Thanks for the heads up. I'll bet that agents at different airports will do things differently (even though I don't think they're supposed to).

I don't travel by air very often, so I can't offer any experiences of my own.

[GDUL]

Just a heads up - a few weeks ago we were flying out of MSP and my DH's bag with the CPAP inside got flagged to be screened separately, which has happened a few times, but mostly it has just gone through. The TSA agent then told us that there has been a recent change and that CPAPs should never go through without being flagged at this point, unless we take them out of the bag (like a laptop) and run it through in one of the bins, which we can do, of course. We just didn't know! Has anyone else experienced this in the last month?

I thought some of you other CPAP bearing air travelers might appreciate the forewarning and the opportunity to expedite your trip through security.

I travel quite a bit with my job (anywhere from 1 to 3 times a week) - for the past several months, TSA has been pulling my CPAP out to check it. This has been happening at both large and small airports. It wasn't as frequent a happening prior to that.

[NJBlackBerry]

Apparently TSA is under "orders" to check CPAP machines. I travel a lot and my CPAP gets checked more than anything I've ever seen. I *always* carry it on - I would never dream of checking it. Ever.

There is a ton of good information in this thread - I've had Obstructive Sleep Apnea for years now, and a lot of information here (from making sure the mask has a good fit and how to properly clean it) is wonderful. Remember that the mask that works for you may be a disaster for the next person.

Good luck to everybody - this is a treatable condition. CPAP therapy works - if people comply and use their equipment properly!

[hiwaygal]

Apparently TSA is under "orders" to check CPAP machines. I travel a lot and my CPAP gets checked more than anything I've ever seen. I *always* carry it on - I would never dream of checking it. Ever.

There is a ton of good information in this thread - I've had Obstructive Sleep Apnea for years now, and a lot of information here (from making sure the mask has a good fit and how to properly clean it) is wonderful. Remember that the mask that works for you may be a disaster for the next person.

Good luck to everybody - this is a treatable condition. CPAP therapy works - if people comply and use their equipment properly!

Hi NJBlackBerry!!! Welcome to the thread!

I'm so glad you have joined us! Being a new user, the information and encouragement I have gotten here has been tremendous! I have started to notice a difference...just a little, but a difference none the less.

I have a mission...to find the right mask for me. So far, my doc and my insurance company seem to be flexible and understanding. I'll know more in a few weeks, I guess.

I haven't traveled with my machine yet, but as someone mentioned earlier, it doesn't count as a regular carry on so I will be carrying it on with me! :laughing:

Please share any other tips you might have!

[YachtClubWoman]

What do all of you do about the distilled water for the humidifier when you fly?

In the past, I took water in a Nalgene bottle for the humidier. The last time I flew was in April prior to the liquid ban. We are flying in Feb - any tips? Should I just buy it at our destination?

thanks in advance for any suggestions.

[hiwaygal]

What do all of you do about the distilled water for the humidifier when you fly?

In the past, I took water in a Nalgene bottle for the humidier. The last time I flew was in April prior to the liquid ban. We are flying in Feb - any tips? Should I just buy it at our destination?

thanks in advance for any suggestions.

Wow!! Good question!!

Sorry I can't answer it for you!:rotfl: But I know someone will!

[GDUL]

What do all of you do about the distilled water for the humidifier when you fly?

In the past, I took water in a Nalgene bottle for the humidier. The last time I flew was in April prior to the liquid ban. We are flying in Feb - any tips? Should I just buy it at our destination?

thanks in advance for any suggestions.

If I travel with my humidifier, I pick up water at my destination. I usually have a rental car so it's not a problem to stop somewhere between the airport and hotel. On a few occasions, I've used a cab to get to a store (asked about the store at the front desk or looked in a phonebook) to buy water. Just my preference but I've never wanted the hassle of dealing with water on a flight - it seemed easier for me to pick it up at wherever I was going.

[GDUL]

Apparently TSA is under "orders" to check CPAP machines. I travel a lot and my CPAP gets checked more than anything I've ever seen. I *always* carry it on - I would never dream of checking it. Ever.

That's my feeling too. It wouldn't surprise me that if one day we are told to put our CPAP machines into their own separate bin much like the way we do now with computers and video cameras. Maybe we should invest in the companies that manufacture those bins!

To be honest though, I was always mildly surprised that the TSA didn't scrutinize CPAP machines more in the past. It just seemed odd to me that they were closely looking at my shoes while I cruised through security with an electronic medical device. Go figure ...............

[YachtClubWoman]

If I travel with my humidifier, I pick up water at my destination. I usually have a rental car so it's not a problem to stop somewhere between the airport and hotel. On a few occasions, I've used a cab to get to a store (asked about the store at the front desk or looked in a phonebook) to buy water. Just my preference but I've never wanted the hassle of dealing with water on a flight - it seemed easier for me to pick it up at wherever I was going.

thanks - we will have a car this trip so I will do that.

[meandtheguys2]

Hey All! Just brought home a CPAP yesterday... I've got a headache, and my nostrils are pink... I didtched the amchine at 2:30.... Will it get better?

[hiwaygal]

Hey All! Just brought home a CPAP yesterday... I've got a headache, and my nostrils are pink... I didtched the amchine at 2:30.... Will it get better?

Hi Michelle!

I do understand how you are feeling!! It's been about 45 days for me and I'm still struggling with the mask part.

YES it will get better!!

Does your CPAP have a humidifier? That might help the headache. It could also be that the headgear is too tight.

My nose hurts most mornings from the "nasal pillows" but even that is getting better. With two headgear/mask combinations I am able to switch things up for my comfort.

They say 4-5 hours a night is considered compliant. I'm able to wear mine all night most nights. Every now and then the mask gets to me and I end up flinging it off in the middle of the night.

Give this mask/headgear combination a couple of days. If you are still having problems, go back to your doc/provider and ask them if you can try some other mask/headgear. There are so many options available and you might have to do some trial and error to get the right one for you!!

Keep us posted on how you are doing, okay?

[meandtheguys2]

You bet...love to have others to commiserate with!

[GDUL]

I've never been able to use a "pillows" style of mask - just not comfortable to me. I just tried this mask and it's one that I can use. I like that it doesn't block my vision at all.

http://optilife.respironics.com/Default.asp

[hiwaygal]

I've never been able to use a "pillows" style of mask - just not comfortable to me. I just tried this mask and it's one that I can use. I like that it doesn't block my vision at all.

http://optilife.respironics.com/Default.asp


Wow! This one looks interesting!

The mirage mask is very similar to this one (it also doesn't block vision) and I use it most every night

The part that goes into/under the nose is very similar to what I'm using now. I do have some irritation with them sometimes, but it's usually only after three to five days, then I switch to the other mask to get a break.

[GDUL]

Wow! This one looks interesting!

The mirage mask is very similar to this one (it also doesn't block vision) and I use it most every night

The part that goes into/under the nose is very similar to what I'm using now. I do have some irritation with them sometimes, but it's usually only after three to five days, then I switch to the other mask to get a break.

This one is somewhat different in style from the ones that I have tried. It has a strap that goes under your chin to support the mask and keeps the pillows from getting smashed into your nares. It's very comfortable. I also found that I can lay on either side while I'm asleep and the seal doesn't break, i.e., no leaks!

[BonnieA]

I'm also new to using a CPAP. I've had mine for a little over a week. I've tried 3 different masks and I think I've finally found one that works. The good thing is the medical supply company lets you try the masks for 10 days before you are commited to it. I had the first one for 6 days, the second for just overnight and the current one for 2 nights now. I believe this one will work.
I slept very little when I went for my sleep study. And after they determined I had sleep apnea and put on the mask, I never slept again that night. So I have to go back in a couple weeks for another study to see if the pressure is right.
I do have a problem with getting back to sleep if I get up at night. But I guess it will take some getting used to.

[GDUL]

I'm also new to using a CPAP. I've had mine for a little over a week. I've tried 3 different masks and I think I've finally found one that works. The good thing is the medical supply company lets you try the masks for 10 days before you are commited to it. I had the first one for 6 days, the second for just overnight and the current one for 2 nights now. I believe this one will work.
I slept very little when I went for my sleep study. And after they determined I had sleep apnea and put on the mask, I never slept again that night. So I have to go back in a couple weeks for another study to see if the pressure is right.
I do have a problem with getting back to sleep if I get up at night. But I guess it will take some getting used to.

I was originally prescribed a pressure of 11cmH2O but lost some weight. As a result, this pressure was too high and I changed from straight CPAP to an Auto-CPAP. With an auto, the physician will prescribe a high and low pressure - the machine will change the pressures during the night depending on what is happening with your airway. There are software algorithms in the auto to allow this to happen. As a result, my average pressure during the night runs from about 7.5 to 8.5 cmH2O, I don't have the problems that I was experiencing at 11cmH2O (air in the stomach), and my AHI is averaging about 2.5 to 3.0 - lower than when I was on straight CPAP. The nice thing is that an auto allows changes for variability during the night.

You might want to talk to your doctor about an auto if your CPAP pressure remains an issue. I do have to say that some doctors do not believe in autos (think that it may cause arousals) but it is becoming a more accepted treatment. My personal doctor didn't really believe in autos at first but I'm able to download compliance and pressure information from my CPAP (Encore software) - I showed him comparisons between my straight CPAP and the auto and now he doesn't have any trouble recommending an auto.

With regards to your having problems getting back to sleep when you get up, did the homecare company turn on the ramp feature of your CPAP (assuming that it has one)? You may want to change the time on the ramp if it is on to see if that allows you to fall asleep a little easier.

Hang in there with the CPAP - it does take some people a little bit of time to get used to it but the health benefits of using the machine are huge!

[BonnieA]

With regards to your having problems getting back to sleep when you get up, did the homecare company turn on the ramp feature of your CPAP (assuming that it has one)? You may want to change the time on the ramp if it is on to see if that allows you to fall asleep a little easier.


I do have the ramp on it and I can actually adjust that myself. But it is not the air pressure that keeps me awake. It is readjusting the mask and trying to get comfortable again.

[hiwaygal]

Hi Bonnie!! Welcome to the thread!

I live in Virginia too...which part do you live in?

Unfortunately, my ramp up feature was already set to maximum (25 minutes) for a long time I felt that wasn't long enough...now I don't even use that feature. My pressure is set to 11cmH2O and I turn it on full blast and haven't had any problems getting to sleep.

But I do understand the issues with the masks. I felt like a real pain the first few weeks...I kept asking for different masks and the people at my providers office didn't seem to be all that accommodating. So...I've dealt with what I have for now and I see them for my first follow up (60 days) in a couple of weeks. I plan to discuss the mask issues with them.

I have a similar problem...as I move or change positions through the night, the mask loses it's seal and I've quickly found there is nothing more irritating than a bad seal!

Lately I've been getting headaches at night (and waking with them) I ramped up the humidity of my machine and that seemed to help.

You will get used to the mask...I was surprised at how quickly I adjusted to it.

Keep us posted on your progress!!!

[BonnieA]

Hi Bonnie!! Welcome to the thread!

I live in Virginia too...which part do you live in?




I live near Charlottesville, VA.

My pressure is set at 7. I guess that's low. That's why I'll have to have another sleep study to see if it's doing the job. I feel like it is but I guess I'm not the one to make that call. I have my ramp set for 10 minutes and I don't really need it set at all. I think I can breathe better when it gets to its full pressure. I do have the humidifier on it, so drying isn't a problem. The thing is having to clean everything daily. I feel like I'm wasting good distilled water cause there is still some left the next morning. I was told to rinse out the container with soap and water each day and do a weekly cleaning with vinegar. The nosepiece is no problem since it pops off and just needs to be swished out.

[hiwaygal]

I live near Charlottesville, VA.

My pressure is set at 7. I guess that's low. That's why I'll have to have another sleep study to see if it's doing the job. I feel like it is but I guess I'm not the one to make that call. I have my ramp set for 10 minutes and I don't really need it set at all. I think I can breathe better when it gets to its full pressure. I do have the humidifier on it, so drying isn't a problem. The thing is having to clean everything daily. I feel like I'm wasting good distilled water cause there is still some left the next morning. I was told to rinse out the container with soap and water each day and do a weekly cleaning with vinegar. The nosepiece is no problem since it pops off and just needs to be swished out.

OH yeah!!! The cleaning gets to me too!! Every darn day!!! And I find that my hose needs to be cleaned about every 3 days. Mostly I just wash out the nose piece and the water container with anitbacterial soap every day (I don't worry about the vinegar cleaning). The hose gets cleaned out with the same soap and VERY hot water. I am considering looking into something that is more disinfectant but doesn't have a strong chemical smell.

I know what you mean about wasting the water...thank goodness it's fairly inexpensive.

Oh...and I'm at the other end of the state...in Hampton!

[GDUL]

I do have the ramp on it and I can actually adjust that myself. But it is not the air pressure that keeps me awake. It is readjusting the mask and trying to get comfortable again.

One thing that I've always suggested to people using CPAP; once you get the mask to where it's comfortable for you and it doesn't leak, take a waterproof marker and mark where the ends of the tabs are on the headgear. When you take it apart to wash it, you'll know right where to put your headgear back together when you are done.

[cassie]

One thing that I've always suggested to people using CPAP; once you get the mask to where it's comfortable for you and it doesn't leak, take a waterproof marker and mark where the ends of the tabs are on the headgear. When you take it apart to wash it, you'll know right where to put your headgear back together when you are done.

Now that's a good idea. Thanks:goodvibes I currently use a full mask that I ordered by mistake, and I love it. I find it more comfortable than the nasal one I had been using.

[meandtheguys2]

OK, kids, I'm miserable. I am 4 weeks into using this wretched machine, and am getting crabby. I tried taking ambiem to help me adjust to it, but the ambiem gives me a migraine about 1/2 of the time. When I don't take it, I am awake every two hours. Usually dump the mask on the second wake-up.

Anyone have any ideas? My husband keeps telling me to call the doctor, but frankly, calling the doc is what got me into this mess!

[hiwaygal]

OK, kids, I'm miserable. I am 4 weeks into using this wretched machine, and am getting crabby. I tried taking ambiem to help me adjust to it, but the ambiem gives me a migraine about 1/2 of the time. When I don't take it, I am awake every two hours. Usually dump the mask on the second wake-up.

Anyone have any ideas? My husband keeps telling me to call the doctor, but frankly, calling the doc is what got me into this mess!

Aww...Michelle! I'm so sorry you are having problems!!

What specific problems are you having? Is it with the mask or is it the pressure? If its the mask, tell your doc and he can try to help you find one that is more comfortable. If its the pressure, again, ask your doc about other options like the BiPAP or the Auto-PAP like GDUL has. Maybe one of these options will be more comfortable for you.

I would definitely talk to the doc about the ambien and the migraines it's causing...he can probably prescribe something else.

Just don't give up yet!! It's weird...the other day I was reading a newspaper article here in town about a local DJ who died. He was young, 30-something...and he died essentially from untreated sleep apnea!:scared1: (or at least, from a condition that was caused by sleep apnea). Reading that article made me realize that continuing this treatment IS a life saver.

[GDUL]

OK, kids, I'm miserable. I am 4 weeks into using this wretched machine, and am getting crabby. I tried taking ambiem to help me adjust to it, but the ambiem gives me a migraine about 1/2 of the time. When I don't take it, I am awake every two hours. Usually dump the mask on the second wake-up.

Anyone have any ideas? My husband keeps telling me to call the doctor, but frankly, calling the doc is what got me into this mess!

Definitely talk to your doctor about the issues that you are having! I'm assuming that you are having problems with the CPAP itself and not the mask (leaking, etc). It could be that the pressure needs to be adjusted somewhat. Another possibility is that there are some people that need CPAP but just can't handle a constant pressure - they have problems exhaling against it. That could cause you to wake up. If that's the problem, there are CPAP machines that have CFlex - basically a slight decrease in pressure right when you start to exhale and then it goes back up to the prescribed pressure. Another option would be to switch to a BiPAP device. With BiPAP, you have two pressures instead of a constant pressure. On inspiration, you have a higher pressure (IPAP - Inspiratory Positive Airway Pressure) and a lower pressure on exhalation (EPAP - Expiratory Positive Airway Pressure). Many people who have failed CPAP have success using a BiPAP machine because they find it much easier to exhale against the lower pressure and get the health benefits that it affords.

By any chance, does your CPAP machine have software in it that records compliance data, etc? They could download the info and try to see why you are waking up after a couple hours of sleep.

[meandtheguys2]

Thanks Denise! I needed someone to be nice to me...

I think the problem is that I forget how to breathe everytime I put it on. So when I wake up enough to realize it exists, instant panic attack! On top of all of that, my insurance, which told the medical place this was a buy andnot a rent, may only pay a small portion. So, I may owe a lot of money for a machine I hate!

eta: Will call about the other machines, though. That might help the panic issue! Thanks GDUL!

ANyway, thank you for the chance to just plain whine. I don't do it in real life, because my dear sweet husban feels it necessary to try to solve the problem!

[GDUL]

Thanks Denise! I needed someone to be nice to me...

I think the problem is that I forget how to breathe everytime I put it on. So when I wake up enough to realize it exists, instant panic attack! On top of all of that, my insurance, which told the medical place this was a buy andnot a rent, may only pay a small portion. So, I may owe a lot of money for a machine I hate!

eta: Will call about the other machines, though. That might help the panic issue! Thanks GDUL!

ANyway, thank you for the chance to just plain whine. I don't do it in real life, because my dear sweet husban feels it necessary to try to solve the problem!

Can you expand on what you said highlighted in red? Is it a claustrophobic feeling (mask on face, etc) or do you feel like you're not breathing at all?

[hiwaygal]

Michelle!:hug:

Glad we were able to maybe suggest some options for you! If your doc won't work with you...see if you can find someone else! Talk to your Primary care physician and ask for another referral...or ask for your prescription and go to a home medical/medical supply place on your own and see if they will work with you and your insurance company!

Definitely keep us posted on how things go!



GDUL!!! Glad you are here!!! I had such problems with the respiratory therapist yesterday...:mad: I am very close to looking for another doctor and getting a second opinion. I like my machine and have nearly gotten "addicted" to it (can't sleep without it 'cause I feel like I can't breathe) but the things they all said to me yesterday, and how they all acted...make me think they prescribed this thing under "less than ethical" means!

First off...they didn't seem to want to give me MY prescription. I asked for one that listed "mask of personal preference" so that I could investigate and try different masks until I find one that works for me. The RT argued with me about it until I finally asked if there was a reason they didn't want me to have it?:confused3 She stormed out of the office and the DOCTOR (who apparently had no intention of seeing me on this visit) returned to give me the script and asked me if I had a problem "with that girl". I told him, yes...she was condescending and that I didn't appreciate it!

THEN! They told me that I really didn't "need" the machine, it was precautionary. They did not check my compliance (which would have been fine) they just "took my word for it".

After leaving there, and thinking about this all night...it just seems like a really strange situation.

Anyway, I'm not sure how to handle this. I am thinking that I will talk to my PCP and see if I can get a second opinion. I am thinking about sending the sleep doc a letter to let him know how I feel. And (this is the scary part) I'm thinking of contacting my insurance company about this...but I'm afraid they'll take my machine away!!!:laughing:

What are your thoughts?

[meandtheguys2]

I wouldn't say claustrophobic, I think that I just pay too much attention! Then I start thinking I need to exhale better, or inhale more. My best guess is that I am having trouble exhaling, and getting that feeling one has when holding breathe under water. That comes from too much CO2, doesn't it? Rather than too much Oxygen?

[hiwaygal]

I wouldn't say claustrophobic, I think that I just pay too much attention! Then I start thinking I need to exhale better, or inhale more. My best guess is that I am having trouble exhaling, and getting that feeling one has when holding breathe under water. That comes from too much CO2, doesn't it? Rather than too much Oxygen?

that sounds to me like if you had the BiPAP, it would work better for you.

I understand that feeling, I got it too especially at first...the ramping helped some (but I don't even use that anymore) but mostly it was kinda like making myself relax and "teaching" myself how to breathe properly.

[GDUL]

I wouldn't say claustrophobic, I think that I just pay too much attention! Then I start thinking I need to exhale better, or inhale more. My best guess is that I am having trouble exhaling, and getting that feeling one has when holding breathe under water. That comes from too much CO2, doesn't it? Rather than too much Oxygen?

I would say that a BiPAP would be a good machine to try based on what you have said. CFlex might not give you the pressure relief on exhalation that you might need. An auto-CPAP varies the constant pressure throughout the night based on your needs but at any given time, it's still a constant pressure. If you need pressure relief on exhalation, this really wouldn't give you what you need. BiPAP was developed because of people failing CPAP because they couldn't exhale against a constant pressure.

Please, do talk to your doctor about what is going on. He / she knows your case, have your sleep study results, and can make a professional judgement based on these. It's nice to "talk" to people on the boards to get an idea as to what may be going on but it's still just an opinion based on a couple of sentences of information. Please don't consider that a harsh statement as it is truly not meant that way. Being an RT, I'm interested in people being able to use their CPAP machines as it can really be a life-saver. As such, the the person qualified to make these decisions is your physician. It certainly doesn't hurt to know as much as you can about what is going on before you walk into their office though :)!

[GDUL]

Michelle!:hug:
What are your thoughts?

Wow, I'm sorry that that happened to you! Sounds like a certain RT was having a bad day. Feel free to PM me.

[meandtheguys2]

Thanks, GDUL. I will talk with the doc next week. They are closed on Fridays, anyway. I agree, a msg. board is only a way to gather information that may or may not be appropriate for a given situation. It is a nice place to whine, and gather some good cheer, though!

[GDUL]

Thanks, GDUL. I will talk with the doc next week. They are closed on Fridays, anyway. I agree, a msg. board is only a way to gather information that may or may not be appropriate for a given situation. It is a nice place to whine, and gather some good cheer, though!

Good luck working out the issues with your doctor and RT! Sometimes it's a hassle to get to the point where everything is working for you like it should but it's well worth it healthwise! Let us know how it's going!

[meandtheguys2]

hiwaygal, did you get things figured out? I am still relatively miserable, but am dealing with it. I wouldn't mind so much, if they hadn't charged me for the wretched machine. Insurance never mentioned that $400 of it would be a part of our deductible when they gave the "ok" to the med supply company!

[hiwaygal]

hiwaygal, did you get things figured out? I am still relatively miserable, but am dealing with it. I wouldn't mind so much, if they hadn't charged me for the wretched machine. Insurance never mentioned that $400 of it would be a part of our deductible when they gave the "ok" to the med supply company!

Hi Michelle :wave:

:eek:$400?!?!

You know, my doc's office said that my insurance company wouldn't buy the machine until I'd had it for 90 days and they could be sure I was compliant. Unfortunately, that wasn't true. The doctors office was paid in full for the machine when I originally picked it up. Thereby LOCKING me into having to buy equipment and getting it serviced through this doctor. I'm not happy about that, but there is nothing I can do at this point. But I am grateful I did not have to pay that much.

I'm doing okay. Still having some mask issues, but I really haven't done anything about it yet. I do have the information on one I'd like to try.

I'm sorry you are still having problems. Did your doc have any suggestions? Are you still having the same problem as before?

[meandtheguys2]

Those stinkers!

I have to just get use to the one I have. I can't afford to even look at a bpap! I've given myself permission to take a night off when I get really tiered! So, mentally it isn't so hard!

[hiwaygal]

Those stinkers!

I have to just get use to the one I have. I can't afford to even look at a bpap! I've given myself permission to take a night off when I get really tiered! So, mentally it isn't so hard!

I gave myself a night off not too long ago. Some nights the masks just drive me loopy!!

I'm sorry you have to get used to that one and that somehow you too have been "forced" to just deal with it. Something just doesn't seem right about that, you know?:sad2: :mad:

[JunieJay]

Wow, I didn't even know this thread existed. I too have sleep apnea, although mine is a little different than your typical snoring. What I do is involuntarily hold my breath, sometimes all night long. :( I just went in for the study with the mask (the night I got out of the hospital for chest pains...supposedly not heart related but I'm still awaiting one more test to confirm that). Anyhoo, got the results of that today and even though it sure didn't seem like it, sleeping with the mask almost totally erradicated that breath holding. Instead of doing that over 100 times per night, I did it 4 times. So I guess I'll be Mrs. Hanibel Lechter coming here soon. I'm trying to get the issues I had last week with the chest pain resolved, and then I'll get to finding out what I need to do to get this mask. I'm sure I'll be a regular to this board.

[meandtheguys2]

Wow, I didn't even know this thread existed. I too have sleep apnea, although mine is a little different than your typical snoring. What I do is involuntarily hold my breath, sometimes all night long. :( I just went in for the study with the mask (the night I got out of the hospital for chest pains...supposedly not heart related but I'm still awaiting one more test to confirm that). Anyhoo, got the results of that today and even though it sure didn't seem like it, sleeping with the mask almost totally erradicated that breath holding. Instead of doing that over 100 times per night, I did it 4 times. So I guess I'll be Mrs. Hanibel Lechter coming here soon. I'm trying to get the issues I had last week with the chest pain resolved, and then I'll get to finding out what I need to do to get this mask. I'm sure I'll be a regular to this board.

:rotfl:

Hey Judi! Welcome aboard! Advice...read all of the small print, and don't commit to anything without being satisfied with it!!!!!!!!!!! People swear by these wretched machines! Hope yours works for you! The masks are about 100x's better than they were 2 years ago...More like Darth Vader!

They sure did put you thru the wringer, didn't they?

[JunieJay]

:rotfl:

Hey Judi! Welcome aboard! Advice...read all of the small print, and don't commit to anything without being satisfied with it!!!!!!!!!!! People swear by these wretched machines! Hope yours works for you! The masks are about 100x's better than they were 2 years ago...More like Darth Vader!

They sure did put you thru the wringer, didn't they?

Michelle, LOL! Since my son is Luke, its only appropriate I would be Mrs. Darth Vadar. :lmao:

I actually have known about this breath holding thing for a few months and had already made the appointment to go in and get tested. The doctor thinks its what got the panic started in me, and why I ended up in the ER. Even though I wasn't feeling all of this directly, I guess sub-consciously I was dreading the study. This started irregular breathing, which caused my chest to constrict and give me chest pains. Thats his theory, anyway. I'm about tired of these doctors and their theories, that much I know. :( But I'm willing to give the Mrs. Darth Vadar look a try, because I do feel like crap just about every morning, and have never been a good sleeper. For as long as I can remember I have only slept for 3 or 4 hours a night.

[meandtheguys2]

It stinks not being able to sleep! I get pretty darn hairy about it all some days...

[hiwaygal]

Michelle, LOL! Since my son is Luke, its only appropriate I would be Mrs. Darth Vadar. :lmao:

I actually have known about this breath holding thing for a few months and had already made the appointment to go in and get tested. The doctor thinks its what got the panic started in me, and why I ended up in the ER. Even though I wasn't feeling all of this directly, I guess sub-consciously I was dreading the study. This started irregular breathing, which caused my chest to constrict and give me chest pains. Thats his theory, anyway. I'm about tired of these doctors and their theories, that much I know. :( But I'm willing to give the Mrs. Darth Vadar look a try, because I do feel like crap just about every morning, and have never been a good sleeper. For as long as I can remember I have only slept for 3 or 4 hours a night.

Hi JunieJay! Welcome to the club!! :rotfl:

I feel your pain about docs and their theories. I've about had it up to HERE with insurance companies too:rolleyes:

I'm waiting on yet another diagnosis too. Hopefully the doc is wrong about that one! I'm thinking no news is good news!:thumbsup2

I agree with Michelle. You might want to make sure about what your options are with regard to machine type and features and mask types and features before you are fully committed to one. Have you happened to look at come CPAP machine websites out there? :eek: It's scary 'cause there are SOOOOOO many!

The machines and masks are a PITA, but honestly, I do feel better. I don't have to take a pain pill everyday just to get through the day. I don't fall asleep at my desk anymore. I do have more energy to do things. So even though I seem to complain a lot, I have seen improvement.

Definitely come back and keep us posted on your experiences. We have some seasoned pros who post here and give us "newbies" lots of advice!

[GDUL]

hiwaygal, did you get things figured out? I am still relatively miserable, but am dealing with it. I wouldn't mind so much, if they hadn't charged me for the wretched machine. Insurance never mentioned that $400 of it would be a part of our deductible when they gave the "ok" to the med supply company!

Wow, I'm sorry to hear that you are still having problems with the CPAP. Were you able to talk to your doctor about what was going on? If he or she feels that you'd be better off with a BiPAP, they (doctor or homecare company) should be able to work things out with the insurance company - they don't like buying equipment for people that is not working for them. It depends on the insurance company, of course, but it's worth the try!

[LindaBabe]

JUst found this thread tonight - BOY! AM I GLAD TO SEE YOU GUYS! Have my sleep study on the 10th and scared witless. And the thought of having to wear a mask to bed - OYE! I shoulda known the DIS would have the answers and encouragement! Thanks for being here!

[hiwaygal]

JUst found this thread tonight - BOY! AM I GLAD TO SEE YOU GUYS! Have my sleep study on the 10th and scared witless. And the thought of having to wear a mask to bed - OYE! I shoulda known the DIS would have the answers and encouragement! Thanks for being here!

Hi LindaBabe!

Try not to get too worked up about the sleep study. :hug: I know it's easier said than done, but it really isn't that bad. Think of it as a night at a hotel! The worst part is all the wires and stuff they have connected to you. Other than that, it's painless! You just go to sleep and they wake you up in the morning.

Is this your first study? When I went for my first study, they didn't put a mask on me...just monitored my sleep patterns. I went back for a second study when they wanted to try me on the CPAP machine.

At first, I had problems with the mask. I tried a full face mask (meaning it covers both your nose and mouth) and I got a little claustrophobic. So we went to a nasal mask (just covers the nose). That was much better. I actually liked the machine...it was nice to not feel like I couldn't breathe.

Now, I've had my machine for about 4 months. I just got yet another mask and wore it for the first time last night.

The hardest part, for me, is to find a mask that is comfortable. There are lots of smaller, less cumbersome masks and it's really not that bad wearing one while you sleep.

I have noticed some positive changes since I've been using the machine. I have more energy during the day and I don't have as many general "aches and pains".

Let us know how your test goes...and know that we are here if you need encouragement or support!

[meandtheguys2]

LindaBabe, I dreaded my sleep study, also! It was no where near as awful as I feared!!!

[Tyler's Dad]

I have been snoring for years and recently my wife said she has noticed my breathing stopping every once in a while. I was going to get a sleep test done, but I also just heard about something called the Sona Pillow that is supposed to help stop apnea. Has anyone here tried it?

[hiwaygal]

I have been snoring for years and recently my wife said she has noticed my breathing stopping every once in a while. I was going to get a sleep test done, but I also just heard about something called the Sona Pillow that is supposed to help stop apnea. Has anyone here tried it?

Hi Tyler's Dad! :wave:

I haven't heard of the Sona Pillow so I can't be of any help!

Keep checking back though, someone may have heard something!

[eeyoresmountainpals]

I just found this thread and wanted to post.

I was diagnosed with sleep apnea in January, although I have known for years that I've had it. I just never wanted to go through the sleep study and have the diagnoses. They found that I was stopping breathing an average of 91 times per hour, meaning I had not had a full minute of sleep for who knows how long.

I got my CPAP machine in the beginning of February but have had trouble getting a comfortable mask. I just got my third one but haven't tried it yet.

Now I'm going to go back and read all the posts on this thread. I'm so glad to have found this!

[Linda Bell]

I just found this thread and wanted to post.

Now I'm going to go back and read all the posts on this thread. I'm so glad to have found this!

Me too. Now I feel guilty. My machine which does everything but dance is on the closet shelf.

I had the panic attacks in the middle of the night. Just like the severe asthma attacks I had as a child.

The mask fits fine, I use the ramp up feature and the warmed air but...it just feels like there is no oxygen coming in. I gave it a month. Can someone with a similar situation give my how long it took them to get over the suffocation feeling? I am a mouth breather and have the full face mask.:guilty:

Thanks,

Linda

[meandtheguys2]

That is so hard! I tried for 2 months solid, and hit the wall. Now, I use it every other night. I think I'm slowly adjusting. If i weren't so paranoid about taking meds like ambiem, I might be able to make faster progress.

Good luck, all!

[hiwaygal]

Me too. Now I feel guilty. My machine which does everything but dance is on the closet shelf.

I had the panic attacks in the middle of the night. Just like the severe asthma attacks I had as a child.

The mask fits fine, I use the ramp up feature and the warmed air but...it just feels like there is no oxygen coming in. I gave it a month. Can someone with a similar situation give my how long it took them to get over the suffocation feeling? I am a mouth breather and have the full face mask.:guilty:

Thanks,

Linda

Linda...I'm so sorry you are having these problems!:hug:

I have only had those feelings a couple of times. The first time was at the sleep center when I tried to use a full face mask. I thought I was a mouth breather too...but quickly discovered that with the aid of the machine (and the air pressure) I was able to sleep quite comfortably with just the nose mask. The second time was just a few weeks ago with a new mask. Because I have three masks now:rolleyes: I simply switched to a different mask and did fine.

Keep checking back in case someone else has some input...maybe Michelle's idea of every other night will help you too.

Good luck and keep us posted!

[Linda Bell]

Linda...I'm so sorry you are having these problems!:hug:

Keep checking back in case someone else has some input...maybe Michelle's idea of every other night will help you too.

Good luck and keep us posted!

Thanks folks. I ordered an Oracle mask today. Nothing over my nose and headgear not required. Sort of a scuba mouthpiece type system. From the reviews you love it or hate it so we shall see I guess. The scientific reviews gave it good marks for working so just maybe...:goodvibes

Oh for those of you that dry out no matter what I found a spray that works for at least half of the night...it is called Stopper 4 Dry Mouth Spray and you can get it at places like drugstore.com if not available in your location. Kind of surpised it is not for sale on the CPAP sites.:thumbsup2

A restful nights sleep to one and all...:cloud9:

Linda

[mikeandeileen]

I have apnea too, I took my machine with me on my last trip to CBR, I simply cannot sleep without it. it makes me wonder how I slept prior to using it.

the only draw back is my 3yr old who likes to pull the mask off while I am sleeping. :)

[LindaBabe]

Hi All! I survived the sleep test and stopped breathing 627 times in 6 hours, which makes me wonder how I survive sleeping, or what passes for sleep. Howver it took a month to see the doc and would have taken another 10 weeks to get the second test and a m onth after that to actually get a machine, so I switched centers. They gave me a mask that fits over the nose only and I was able to sleep - until the fire alarm that forced us out into the street with our wires dangling. After that I had some trouble getting back to sleep - but did sleep only to awaken with a wicked headache from the bands around my head (worse than the normal morning headache).

I ,too , would like the answer to Linda Bell's question - for those of you who've successfully adapted to wearing the thing - how long did it take you? And what kind do you use?

[hiwaygal]

Hi Linda#2;)

WOW!!! What an exeperience that last test must have been! You poor thing! I can't imagine getting back to sleep after a fire alarm!

I have to admit that I too get headaches every now and again from the bands around my head. My guess is, yours might be just a bit too tight. But if you are like me, if it's much looser then you get some leakage and that will REALLY drive you bonkers.

I have one mask that I use almost exclusively and another mask that I wear sometimes just to not have something on my head.

The first one is the Comfort Lite 2 (http://comfortlite2.respironics.com/) (this shows the right headgear, but I use a different nasal interface...the one that goes over the nose). And I use this one about 80-90% of the time.

The second one is the Mirage Swift (http://www.resmed.com/en-us/products/masks/mirage_swift_nasal_pillows_system/mirage-swift-nasal-pillows-system.html?menu=products). This one causes some discomfort as the air is forced into the nasal passage and at the nostrils, but it is VERY light and nothing on the face/head.

I was lucky, I was able to quickly adapt to the air pressure. I like having cold air to breathe and the machine helps that for me (I have never used the heated air function). The mask has been the hardest part for me. I'm still looking for the perfect mask (if there is such a thing), but the ones I have work for me for now.

I hope you are able to get used to it as quickly as I was. I've been on my machine for just over 6 months now and I do notice that I am not as tired as I used to be.

[eeyoresmountainpals]

I just wanted to share with everyone that I have FINALLY found something comfortable! I went through four different masks since February and had one problem or another with each one and none of them were comfortable.

I was in the hospital for 8 days recently and was on oxygen for six of those days. I never had any problems with having the oxygen cannula on. After I got home and got back on my feet I called the home-medical supply company and asked if there wasn't something available similar to an oxygen cannula. I was told there wasn't. So that night I went on line and found one, called the rep back at the supply company and told her about it. They ordered if for me and I got it that week. I had read enough on line to have an idea of how it worked and when I went in to get it I actually showed her how it worked. :lmao: She was very impressed with it and said she would be recommending it to anyone else she came across that had been having as much trouble with masks that I had!! I LOVE IT!

Here's a link to the pic of it:

http://www.cpap.com/viewImage.php?PNum=1828&Image=NasalAire21.jpg

I've been using it for about six weeks now and haven't had a bit of trouble with adjusting to it. The hoses are very soft and pliable. If you sleep on your side that side of the hose tends to just flatten out and the other side moves the air in. Also, the pic shows the headgear that it comes with but I have found that just a little strap of velcro around the hoses at the back of my head keep it in place.

I finally feel like I've overcome this adjustment hurdle and am truly starting to feel the benefits! :yay:

[LindaBabe]

Got my machine on Friday. Some kind of mask with nasel pillows - doesn't hurt near as much as the over the nose mask I used at the sleep center. The problem that's making me nuts now is how much the full force gale at setting 13 hurts my sinuses. I can't imagine wearing this thing every night for the rest of my life. :(

[disneyfan551]

I go to the sleep Dr. tomorrow morning to discuss my 2 sleep studies. I really hate that I don't know what to expect, since the tech's didn't give me much info at all. Do they try to push certain machines/masks on you to purchase? During my 2nd study last week, I tried the nose mask first, and it was ok. But, I'm a side sleeper, and I eventually got a leak. She tightened it, and strapped my chin. I tried for a while, but then I felt very claustrophobic. I felt like I HAD to breath through my mouth! And, I'm really a mouth breather, so I was very conscious about that. I switched to the full mask and it felt better. However, I just don't know which one to try, since I don't feel like either were that great being a side sleeper, and a mouth breather! I did feel like I was able to wear the nose mask, and that I didn't need to breath through my mouth like I usually did. But, I must have started breathing through my mouth during sleep, in order for them to put the chin strap on me. I'm just so confused.... :upsidedow

[hiwaygal]

Got my machine on Friday. Some kind of mask with nasel pillows - doesn't hurt near as much as the over the nose mask I used at the sleep center. The problem that's making me nuts now is how much the full force gale at setting 13 hurts my sinuses. I can't imagine wearing this thing every night for the rest of my life. :(

LindaBabe...I have the same problem with the nasal pillows! In some ways they are great because they are usually so light and the headgear is so much more comfortable, but that pressure in just the right spot is very uncomfortable. This was the hardest part for me...finding a mask/headgear combination I liked and was comfortable. I finally went back to the Respironics nasal mask and have been wearing it for almost 4 months straight now.

Keep working with your respiratory therapist...there are literally hundreds (if not thousands) of masks out there. You will find one that works for you, it may take awhile, but it is probably out there! Good luck!!

I go to the sleep Dr. tomorrow morning to discuss my 2 sleep studies. I really hate that I don't know what to expect, since the tech's didn't give me much info at all. Do they try to push certain machines/masks on you to purchase? During my 2nd study last week, I tried the nose mask first, and it was ok. But, I'm a side sleeper, and I eventually got a leak. She tightened it, and strapped my chin. I tried for a while, but then I felt very claustrophobic. I felt like I HAD to breath through my mouth! And, I'm really a mouth breather, so I was very conscious about that. I switched to the full mask and it felt better. However, I just don't know which one to try, since I don't feel like either were that great being a side sleeper, and a mouth breather! I did feel like I was able to wear the nose mask, and that I didn't need to breath through my mouth like I usually did. But, I must have started breathing through my mouth during sleep, in order for them to put the chin strap on me. I'm just so confused.... :upsidedow

disneyfan551...Personally, I think some doctors do try to "push" certain brands on you. At least that was *my* experience...but yours could be different.

My advice is to be very clear on what is comfortable for you and ask about how often you can try new masks with your insurance coverage. I got to the point where I was willing to pay out of pocket for a mask if I had to, but I was lucky in that my insurance allows me to try a new mask every 3 months or so.

The first thing I would do is get the mask that was most comfortable for you at your test.

How it will work for you is dependent on whether or not your doctors office also supplies equipment or if they refer you to a separate provider of DME's (durable medical equipment).

When I went back for the results of my study, I took home my machine that day, but I know others have had to wait awhile for the machine to be ordered, and a respiratory technician to come out to help you set it up.

Let us know how it goes and if you have other questions!!

[Muhlenberg]

My DH has a CPAP and wears the full face mask. He uses Breathe Right strips with it, and it seems to help him.

Travel - We recently flew with the machine. Some TSAs know what they are; some don't. But the CPAP ALWAYS has to be hand inspected. Other than that, the most trouble we had was finding distilled water.:rotfl:

Hope this helps some of you.:)

[Muhlenberg]

Oh and I might add that I sleep much better now that my DH uses the machine.

[eek40]

I was given this as a link to a post I had about fellow Hosehead support on the community board.

I am new and proud hosehead/cpap user. After finally figuring out that maybe sleep apnea was effecting my health and getting a sleep study done on June 26th! I was told getting my first study that most patients do not get the split study because you have to have so many events per hour. So I was not counting on anything, just hoping that I would know with one test to cut back on costs. At one am on the night of my test the tech came in pretty quickly and said that I was having a lot of trouble, and he wanted the machine on me. I quickly fell back asleep and woke up feeling MUCH better than normal. Wow its not normal to have a headache each and every morning? LOL.

He stated that he was putting my test at the top and that I should contact my dr right away to tell him that I have an AHI of 174 an hour and my oxygen drops to 65-70% for the three hours of testing before cpap. This way I could get a machine sooner rather than later! He said that my numbers were one of the worst he had ever seen. My Dr's nurse however, decided that I was not being resonable and refused to pass on the information to my dr, which resulted in me having to get a new dr! The new dr took one look at the results(which took him all of 5 min to get and the nurse at my old dr said it would take up to a month!) and ordered the machine. I had it three days later! What a difference a good dr makes!

I am learning only 4 nights on so far, but I am learning ways to adjust. I have had problems with the mask so I have a new one to try tonight. This one has the nasal pillows, it feels better but I have to try it with my pressure. Since I am at a 20 for pressure nasal pillows may not work. I so hope they do though! I have a huge sore under my nose from the mask rubbing, and I have to keep it half way down my lip to keep it away from the sore so I am moving it all night long.

Yes I sleep better, and I feel better, but I am frustrated. I have a ton of sleep debt to repay and with the mask I hope I can start to feel normal again.

I tried the community board post in hopes of getting a support thread going since I know there have to be people here dealing with the same problems and nerves as I am:) Looks like I have found the right place!

I also started a page on myspace with my affectionately named "Hosehead Diaries!" So if anyone wants to read they can just pm or email me.

Hopefully we will all be on :cloud9: soon!

Thanks
Aimee

[hiwaygal]

Welcome Aimee!!!

Wow...what an ordeal you had to go through to get your machine! But I'm glad it all worked out. And yes, sometimes you have to switch doctors to get the best treatment for you.

I have heard of some folks who did so poorly through the first part of the study that they were immediately given a cpap to try. I'm glad it worked out for you!

You were very smart to keep pursuing things because as you know, sleep apnea CAN be very detrimental to your health.

I've had my machine for a little over six months now. I was lucky and didn't have a lot of trouble adjusting to the machine/pressure...and I am finally getting used to a mask, but I am on the lookout for a better one...the "perfect" one.

I hope the nasal pillows work for you!!

This thread isn't incredibly active, but you can always PM one of the others who have posted to maybe get a faster response.

[hiwaygal]

Oh and I might add that I sleep much better now that my DH uses the machine.

:rotfl2: I've heard that from a lot of wives!!! And I'll bet my DH feels the same!!:rotfl:

Thanks for the tips about the travel...I have traveled with mine, but not by plane yet. I do know that the CPAP doesn't count as a carry-on so that might help some folks. And yes, now, with the liquid restrictions the distilled water could be problematic!

[eek40]

Well lol I say we make it more active! LOL Although for the most part I am to tired to help:) LOL Wishing we had a hose head mickey to cheer us up. The machine I do fine with, its the mask. Sounds like everyone has this problem. What pressures are people on? Mine is the highest my machine goes so that makes leaks hard to control. I am hopeful that tonight with the new mask I will be good to go. I would really like to have a few masks so I can change them up now and then. I am thinking of buying some off ebay, as long as they are listed as new I am fine with them! Also has anyone here been over to the support group apneasupport? It has helped me as well. I just wanted some fellow disers to join in! LOL
Aimee

[eek40]

Well not much luck with the nasal pillows. I remember thinking about 3am that I should either take it off or go ahead and put on the full nose mask. Then I fell back asleep and just bugged my partner all night with the noise and jerking(I jerk when I stop breathing apparently?) So tonight I will give it another go and then switch back to the nose one if it still hurts and gives me more problems. Then I guess I will try another one or just deal with the nose mask one.

I sure wish they customized masks! LOL wouldnt that be fun, some sort of molding of your face to get the perfect fit? Dreaming here.

[hiwaygal]

Aimee...I'm sorry the nasal pillows bothered you. Maybe you can try alternating them and the other mask for a few weeks to sort of "build up" your ability to deal with that pressure and the nasal pillows. That's what I did for awhile, but in the end, I went back to the nose mask.

My pressure is 11 (I think) so not as high as yours. My Respiratory Tech said that, to some extent, there is some compensation in the machine for small leaks. She said not to worry much about them UNLESS the air is blowing right into your eyes. Personally, I can't seem to tolerate even the smallest leak.

Right now, I have three masks (one has both the nose mask and the nasal pillows) but really only use the first one I had. In a few weeks, I'll be able to try a new mask again.

Your idea of custom masks is a good one! I've dreamed of that too! Maybe someday...

[I loveStitchnippyjon]

Hmmmm...I never thought about having more than one type of mask! I have been using the nasal pillow type for almost two years now, and still have a problem sometimes with it becoming dislodged when I lay on my side. I freaked out during my second sleep study when they tried a full mask on me...I WARNED them that I was claustrophobic! So the pillow type is great beause my nose and muth are not covered.
I have to confess...when I travel I usually put tap water into the resevoir! It has not seemed to do any harm. Also, I have allergies and often wake up with a stuffy nose. It is wonderful how the CPAP machine can force air up my nose all night even when my allergies act up!
DH was initially worried about the noise from the machine, but mine is ultra quiet. Now if he would just stop making jokes about sleeping with Jacques Cousteau!:lmao:

[TruBlu]

Hi guys!

I had a sleep study last week. I guess I have sleep apnea because at some point during the night they brought the mask in and hooked me up. I think I slept better once they did. I know I felt very rested when I woke up. I go back to my ENT on Thursday for the results.

Wish me luck! :goodvibes

[hiwaygal]

Hmmmm...I never thought about having more than one type of mask! I have been using the nasal pillow type for almost two years now, and still have a problem sometimes with it becoming dislodged when I lay on my side. I freaked out during my second sleep study when they tried a full mask on me...I WARNED them that I was claustrophobic! So the pillow type is great beause my nose and muth are not covered.
I have to confess...when I travel I usually put tap water into the resevoir! It has not seemed to do any harm. Also, I have allergies and often wake up with a stuffy nose. It is wonderful how the CPAP machine can force air up my nose all night even when my allergies act up!
DH was initially worried about the noise from the machine, but mine is ultra quiet. Now if he would just stop making jokes about sleeping with Jacques Cousteau!:lmao:

I'll confess the same thing about tap water;) ...I'm sure someone can or will correct me if I'm wrong, but the biggest issue is mineral build up in the chamber if you consistently use tap water and they heated humidifier. I think if you are rinsing well every night and NOT using the heated part, you're probably okay for the short period of time during travel.

Hi guys!

I had a sleep study last week. I guess I have sleep apnea because at some point during the night they brought the mask in and hooked me up. I think I slept better once they did. I know I felt very rested when I woke up. I go back to my ENT on Thursday for the results.

Wish me luck! :goodvibes

Hi Blu!!! Keep us posted and lots of :wizard: coming your way!

[eek40]

Welcome to the group! I know that first night I felt so great for the first time! Just remember that finding the right mask will take time and patience, I thought it would be easy but its a lot harder than it seems. Just keep at it and do your best to wear it every night, even if you end up not making it all night the more you do it the easier it becomes. Hang in there

Hi guys!

I had a sleep study last week. I guess I have sleep apnea because at some point during the night they brought the mask in and hooked me up. I think I slept better once they did. I know I felt very rested when I woke up. I go back to my ENT on Thursday for the results.

Wish me luck! :goodvibes

[eek40]

:eek: Ok everyone, what do you do when your mask rubs a sore on your nose and you have had it for over 10 days and it will not heal because of the moist air on it nightly. Nose pillows avoid the air but I can not use them due to the pain inside my nose from them and my pressure settings. So nightly it is being rubbed raw and then kept moist. Its nasty when I wake up and I am in fairly severe pain. I know I sleep better with the machine. I am just tired of the pain.

[TruBlu]

Welcome to the group! I know that first night I felt so great for the first time! Just remember that finding the right mask will take time and patience, I thought it would be easy but its a lot harder than it seems. Just keep at it and do your best to wear it every night, even if you end up not making it all night the more you do it the easier it becomes. Hang in thereI tried the one that fits into your nose. I only wore it for half the night, but it worked great and didn't really bother me. Should I try others or stick with that one? (This is all assuming they will give me a machine when I go back to the doc. this week.)

[hiwaygal]

Aimee...

If I were you, I would call in to your provider and let them know that the mask is causing problems. You could probably put something on it (a small bandage) but that's not really going to solve the problem.

It sounds to me like you are having to wear the mask too tight. I know I feel like I have to wear mine tighter than they recommend, but not tight enough to cause sores.

Keep in mind, too that you really only need to wear the mask 4-5 hours a night. Maybe try the nasal pillows again while you give your nose a chance to heal and just take it off when it starts bothering you.

But, I really think you should look into a different mask!

Good luck!

[eek40]

I am trying a gel mask tonight, maybe the softer gel will not rub as much. I know I tighten it really tight with my pressure settings at the highest they go its very hard to not leak. I am going to figure out something soon believe me.

I was told that I should never be asleep without the mask, I have very very high levels of apnea 174 an hour. They said all the time is what I should do. I did have one night where I took it off at 430am, but still that was enough to count towards compliance. I just need this sore to heal then I really think it will be fine. Its that which is causing me the most distress. I think tonight I will try the new skin again to see if it keeps it drier.



Aimee...

If I were you, I would call in to your provider and let them know that the mask is causing problems. You could probably put something on it (a small bandage) but that's not really going to solve the problem.

It sounds to me like you are having to wear the mask too tight. I know I feel like I have to wear mine tighter than they recommend, but not tight enough to cause sores.

Keep in mind, too that you really only need to wear the mask 4-5 hours a night. Maybe try the nasal pillows again while you give your nose a chance to heal and just take it off when it starts bothering you.

But, I really think you should look into a different mask!

Good luck!

[arminnie]

Has anyone considered surgery for obstructive sleep apnea?

Here's a very good web site - although very technical - from the Stanford surgeons (Powell & Riley) who invented most of the sleep surgical procedures. http://www.sleepsurgery.com/protocol.html

I was diagnosed in 1993 - hardly anyone had heard of sleep apnea back then. I constantly had to explain what it was to people.

CPAP and BiPAP did not work for me. I had no trouble tolerating the mask - I wore it for almost 2 years, but it just did not work for me.

I had surgery in 1994 - pretty complicated. They moved my tongue forward in addition to the usual palate and uvula reduction.

I'm 13 years post surgery, and it worked wonderfully.

[hiwaygal]

Hi arminnie! :wave:

Surgery wasn't presented as an option to me. Even after finding out I have other health problems caused by the CPAP machine.

I might ask my doctor about it next time I see her, but to be honest, I don't mind the machine that much. I've always liked a cool room and before I got my machine felt like I needed a humidifier and decongestant to be able to breath at night. Now, I don't have those problems and DH can stay warm in our room;) :rotfl:

I just wish I could find a better mask.

That surgery does sound rather drastic! I'm glad it worked for you though!!

[TruBlu]

My aunt had surgery. I'm not sure of the details - I just remember something about a screw at the back of her tongue. :scared1: I'm hoping the machine will work for me. :thumbsup2

[eek40]

I will consider surgery if cpap does not work. But only as a last resort.

FYI-I found the perfect mask for me! Its the respronics gel "Comfort Gel" medium. It was amazing. My nose even stayed painfree! WOO HOOO

[TruBlu]

I see my ENT tomorrow to get my test results. Are there any specific questions that I should ask? :confused3

[hiwaygal]

Aimee...congrats on finding a good mask!!! I hope you get a good nights sleep!;)

Blu...good luck with your visit tomorrow. I can't really think of too many questions. I guess if your doc prescribes the CPAP machine, you can ask how long it will take to get yours and get it set up for you. And ask how they process things. You might also ask your doc to give you the written prescriptions for both the machine and the "mask of nasal comfort" (rather than a specific mask brand/model). Some insurance companies "rent" the machines for a short period to ensure you are actually using it. Once your compliance is established, then they'll buy the machine for you. You might actually have more questions for your insurance carrier. You might ask them what they cover, how often you can replace a mask, how often you get new equipment (hoses, etc.).

Let us know what happens!

[TruBlu]

I was really surprised at the report from my ENT. He said that I stopped breathing for 55 seconds and my oxygen level dropped to 84%! :scared1:

I had 22 episodes per hour.

But, the thing that surprised him was how easily it was corrected with the machine. My setting will be a 5. He said that was very low. I pick it up today!!!! :goodvibes

[eek40]

Hope things with the machine are going well TruBlu. I know how hard those first few nights are! 5 is low, mine is the highest on my machine, a 20! I would love someday to even be at a 10! My poor ears are killing me, I have defective tubes so I do not handle the pressure well when flying or swimming, the pressure on my cpap is like being under water 20 feet, ouch!


Hang in there

I was really surprised at the report from my ENT. He said that I stopped breathing for 55 seconds and my oxygen level dropped to 84%! :scared1:

I had 22 episodes per hour.

But, the thing that surprised him was how easily it was corrected with the machine. My setting will be a 5. He said that was very low. I pick it up today!!!! :goodvibes

[TruBlu]

Hope things with the machine are going well TruBlu. I know how hard those first few nights are! 5 is low, mine is the highest on my machine, a 20! I would love someday to even be at a 10! My poor ears are killing me, I have defective tubes so I do not handle the pressure well when flying or swimming, the pressure on my cpap is like being under water 20 feet, ouch!


Hang in thereThanks! So far so good. :goodvibes I guess I've slept with it 3 nights now. It is wonderful!!!! I feel so rested when I get up. AND - so far no more headaches. (I used to have at least a mild one every few days.)

The first night the nasal pillows mask really made my nose hurt. They had the one with the largest nose holes on my mask. I think it was really pulling on my nose. I changed it to the medium one and haven't had any more soreness. I love it so far! :thumbsup2

[hiwaygal]

Blu...I'm glad you are seeing a difference!

I too had the headaches and they went away with the machine

My setting is a happy medium between you and Aimee...it's an 11.

[TruBlu]

I think my kid tried to drown me last night! :rotfl:
Somehow my humidity dial was turned up to the max. I didn't notice until around 5 am when I started dreaming that I was drowning. I sort-of woke up but just thought I was dreaming it because we saw Pirates of the Caribbean last night. I turned over in the bed and cold water ran down my face. I pulled the mask off, heard gurgling in the tube, lifted the tube up, and about a half cup of water poured out on me. I was SOAKED! I had to change the sheets and my clothes.
Guess I'll check that dial every night now!:upsidedow

[horseshowmom]

Thanks to the OP for letting me know about this thread. I don't have time to read it all right now, but I'll back! :cool1:

[hiwaygal]

Thanks to the OP for letting me know about this thread. I don't have time to read it all right now, but I'll back! :cool1:

:wave: ;) Good to see you!

[LindaBabe]

Can't seem to get on to the sleep apnea site boards, although I registerd. would someone who belongs there please post that a batch of the

Respironics REMStar Pro M - has been recalled because it "beeps" at random intervals. Apparently they started manufacturing their own chip and didn't discover until later that it wasn't talking to the card - was the explaination I got. I don't know if my dme would have called me or not, but they replaced it right away when I called them.

[DMRick]

Hi all..had no idea that sleep apnea had it's own board. I sleep very well now, at night..since hubby got his machine. I was surprised to see how many of you use the water part. Hubby was told about it, but said it wasn't necessary..up to him. So far he hasn't. Did all of your doc's suggest that?
I can't believe the things that the machine seems to have fixed. No more leg cramps, no more headaches. Who would have thought I didn't have to hear that snoring for 40 years?
On his last appointment, the doc did say if hubby dropped 20 pounds, he'd prob see his sleep apnea go away (not what the sleep center said at all..they said he was lucky he hadn't already had a heart attact), so he is trying to watch his calories and do more exercise.
I also didn't know (nor did he) that there were more than 2 types of masks. Luky for him, he hasn't had any trouble with the masks.
He has traveled overseas with his machine, and although it was plugged into the correct outlet, he blew the persons circuit breaker!

[hiwaygal]

Hi DMRick! Welcome to the thread!

My doc didn't really ask about the water part. I'm pretty sure that's just the model he sold to everyone. You don't have to put water in it, but it's nice to have some extra humidity especially in the winter months.

And yes, my sleep doc also told me that if I lost weight I would most likely be able to get off the machine. But that's not a guarantee, I'm sure the weight issue isn't necessarily true for everyone. And I wonder if I would get so used to the machine that sleeping without it would be really odd, you know?

I know what you mean about how many aches and pains it has helped! I also don't seem to have as many headaches or general aches and pains. And I've noticed I have a little more energy.

I think to some extent the masks become a habit...once you get used to a certain one it's hard to switch. But it can take awhile to get used to one.

[TruBlu]

Hi guys! I still haven't read all the posts in this thread, so please forgive me if this has already been discussed..... :)

Have any of you heard of any type of aromathreapy for the CPAP? My sister thought she read something but couldn't remember where. The smell of the tube isn't bad but it would be nice if it was better. :confused3

[hiwaygal]

Hi guys! I still haven't read all the posts in this thread, so please forgive me if this has already been discussed..... :)

Have any of you heard of any type of aromathreapy for the CPAP? My sister thought she read something but couldn't remember where. The smell of the tube isn't bad but it would be nice if it was better. :confused3

Yes, I have heard of them...saw one on-line too.

I feel your pain about the smell! It took awhile for mine to go away!

One thing you can do is put a small drop of vanilla extract in the water of your humidifier unit. This helps a lot and is cheaper than the aromatherapy stuff.

You have to be really really careful with smells in the machines. They get HIGHLY concentrated and you can really irritate your nasal passages if it's too much.

Hope that helps!

[dvcbnd]

Hi! I'm new to this thread also. So glad that I came across it. My DH just got diagnosed with having sleep apnea (we have been suspicious for many years - he never pursued it) so this is all new to us. He just went for his 2nd sleep study and I'll be back as soon as we find out what the next step will be. I'm sure that we'll have lots of questions. Thanks for the info!

[hiwaygal]

Hi! I'm new to this thread also. So glad that I came across it. My DH just got diagnosed with having sleep apnea (we have been suspicious for many years - he never pursued it) so this is all new to us. He just went for his 2nd sleep study and I'll be back as soon as we find out what the next step will be. I'm sure that we'll have lots of questions. Thanks for the info!

Hey!!

When will you have some updates on how the study went?

[dvcbnd]

He has a follow-up appt. with the pulmonologist on Nov 5th. We were under the impression that he would be receiving a phone call prior to his appt. in reference to someone coming by the house to set him up with the machine and fit him with a mask. Sorry for my ignorance on what it's called.

[hiwaygal]

He has a follow-up appt. with the pulmonologist on Nov 5th. We were under the impression that he would be receiving a phone call prior to his appt. in reference to someone coming by the house to set him up with the machine and fit him with a mask. Sorry for my ignorance on what it's called.


It's okay, you'll learn the lingo!;)

It sounds like someone from the medical equipment company will set him up with everything and give him all the "instructions". It also sounds like they want him to get started on it and see if there are any problems or anything when he sees them on 11-5.

Keep us posted!!

[dvcbnd]

It's okay, you'll learn the lingo!;)

It sounds like someone from the medical equipment company will set him up with everything and give him all the "instructions". It also sounds like they want him to get started on it and see if there are any problems or anything when he sees them on 11-5.

Keep us posted!!

Thanks! I think that you're right. It would make sense to get him started and see how he's doing with everything before his next appt. I hope that we see a difference in how he feels. I'll definitely keep you posted! :)

[dvcbnd]

Hi! I hope that all is well with everyone! I just wanted to give an update on how my DH was doing with his sleep apnea. He is having a hard time falling asleep once the tube and straps are on him. It has been a couple of weeks since he started and he just can't seem to get used to it. I'm afraid that he's going to give up and I keep on encouraging him to keep on trying. The problem is that he is claustrophobic so when he went for the study they switched him from a mask to a nasal tube aparatus. It gets placed at the entrance of his nostrils and then straps around his head to hold it. He finds that when it turns while he's trying to sleep, it shifts and becomes annoying. I don't know what to do for him. He is getting even less sleep now since he'll stay up until the very early hours, hoping to be tired enough to fall into a deep sleep. he has a doctor appt. on Nov. 5th. Until then, any suggestions would be greatly appreciated - thanks!!!!!

[hiwaygal]

UGH! I feel his frustration! I had that problem too. For me, a different mask helped a lot and then just getting used to it. One trick was to prop a pillow "just so" so that my cheek was actually laying on a corner of the pillow and the mask was kinda hanging off the side of the pillow. It seems to work for me.

My equipment provider was really good at helping me with all this...she also mentioned to me that no mask is totally leak free. There will be some leaks that just seem to happen (it's hard to get an "air tight" seal on your face...and be comfortable like that!). Your DH might want to play with the fitting/adjustment of the mask to minimize the leaks so that it's comfortable enough for him to relax.

To be honest, while I seemed to get used to the pressure really quick, it was almost 6 months or more before I felt truly comfortable with the mask.

The doctor may be able to prescribe something to help him get to sleep quickly as well.

Tell him to keep trying, change masks if he has to. I've had some other "medical problems" caused by the CPAP but my doctor agrees that not using the CPAP is not an option. The risks and health dangers caused by untreated sleep apnea far outweigh some of the "side effects" we have to deal with.

Even if he's only getting a couple hours of sleep...he's actually getting better quality sleep with the mask on.

I hope things get better soon!! They really will!!

[annrae]

I was suppose to have a sleep study done recently and I cancelled it......I probably should get it done as sometimes I wake up choking..like once a month. I do not sleep well at all and now with the added stress, I am up before the birds or the sun..

Please let us know how you are doing....and hopefully others will post and you can share...

I hope you will reconsider the sleep study, Marsha and make another appointment. I went last night (I did not want to go at all but my DH and our children really pressured me) and (I think) I'm glad I did finally do it. I fell asleep about midnight and woke up at 4:15am. I have a follow up on Nov. 27 with the doctor. However, the technician told me this morning that I certainly did not waste my night and that I probably should have had the test done a long time ago. I have no idea as to what this means and I haven't read through all the threads so I don't know what to expect.

I will let you know what the results show.

[hiwaygal]

I hope you will reconsider the sleep study, Marsha and make another appointment. I went last night (I did not want to go at all but my DH and our children really pressured me) and (I think) I'm glad I did finally do it. I fell asleep about midnight and woke up at 4:15am. I have a follow up on Nov. 27 with the doctor. However, the technician told me this morning that I certainly did not waste my night and that I probably should have had the test done a long time ago. I have no idea as to what this means and I haven't read through all the threads so I don't know what to expect.

I will let you know what the results show.

Hey! You are right about where I was a year ago when I started this thread! ;)

I hope the follow up goes well!

If the results show that you have apnea (so many "arousal" episodes a night) they will probably schedule a second test to see if CPAP will help you and what the settings would need to be.

If you need a CPAP machine, it will take some getting used to...but I got fairly used to it pretty quickly. Mostly I was amazed at how much easier it is to breathe at night.

I wish you the best:hug: Hang in there and let us know what happens! Sleep apnea is not something to mess around with!!

[TruBlu]

I need some advice....

I've not missed a night sleeping with my CPAP since I got it back in September. I LOVE it and can't imagine sleeping without it. I don't wake up with my heart racing in a blind panic anymore. :cloud9:

But, recently DH said that I am snoring even when wearing it. I've also started to feel very tired during the day again, and I'm falling asleep all the time.

I'm not sure what to do. :confused3

[Chuck-PA]

I need some advice....

I've not missed a night sleeping with my CPAP since I got it back in September. I LOVE it and can't imagine sleeping without it. I don't wake up with my heart racing in a blind panic anymore. :cloud9:

But, recently DH said that I am snoring even when wearing it. I've also started to feel very tired during the day again, and I'm falling asleep all the time.

I'm not sure what to do. :confused3

You need to let your doctor know, they may have to adjust your settings again.

[cassie]

I too seem to have the same problem. Recently, on a trip to Ireland, my friend said I was snoring :confused3 . I use a full mask,which I love, but it does let me sleep even with my mouth open. I may go back to the other one I first used which just covered my nose. I also find myself falling asleep at work..but that could be my boring job and the fact that I get up at 2:30 am for work :laughing:

[annrae]

I hope you will reconsider the sleep study, Marsha and make another appointment. I went last night (I did not want to go at all but my DH and our children really pressured me) and (I think) I'm glad I did finally do it. I fell asleep about midnight and woke up at 4:15am. I have a follow up on Nov. 27 with the doctor. However, the technician told me this morning that I certainly did not waste my night and that I probably should have had the test done a long time ago. I have no idea as to what this means and I haven't read through all the threads so I don't know what to expect.

I will let you know what the results show.

So sorry I have not been in touch since this last post about sleep apnea. I have been using a CPAP machine since last Feb. I went from the mask to the nasal pillow (size M) and it has made a big change in my life. I can now stay awake all day and I do not fall asleep standing up as I almost did before the CPAP machine. I have to admit that there are some nights when I take it off about 4:30 am but most nights it is on until morning. I have to adjust the humidity on occasion or I am soaked because of the water running out of the hose and down my face! When I went for the last sleep study, I stopped breathing 571 times in the run of 4 hours which is a little frightening.

I guess my only suggestion to anyone beginning this new way of sleeping is to just hang in there and you will eventually get used to being Darth Vader!! If I can answer any questions, please either post them or pm me. Good Luck to all of you. Barbara

[corinnak]

My husband has had this issue once or twice. There are a few things that can interfere with the quality of the positive air pressure you are experiencing. Sorry so much if any of these seem like no-brainers. They are all things that we actually had an issue with him starting to have issues again until we realized.

1. Check the filters - a dirty filter can definitely reduce effectiveness.

2. Have you gotten your mask and hoses replaced on a regular schedule? Those things get less airtight over time.

3. Make sure that the machine is properly calibrated - often the place you get the CPAP from will have some way to get the pressure checked periodically.

4. OK, this doesn't apply to women, but I'll mention it anyhow. My husband used to have a moustache and that was interfering with the seal he was able to get with the mask - once he shaved, he got a much better seal.

5. Do let your doctor know if you can't resolve it on your own. You may need another sleep study, different pressure, different mask or a different machine.

Good luck with this. It's incredible how much of a difference the CPAPs can make when they're working well, isn't it?

[TruBlu]

It's incredible how much of a difference the CPAPs can make when they're working well, isn't it?
::yes:: I can't believe how much I love it! I even wear mine for naps. :goodvibes

[CruisinEars]

there is so much useful info in this thread and I just found it.

I am getting my cpap tomorrow so much of this info is helpful. I haven't heard from the dr. yet so I don't even know my test results. Just that I need the machine.

[hiwaygal]

Glad you found it helpful!

The machine may take some getting used to but in the long run it will be worth it!!

Let us (me??;) ) know how it goes!

[CruisinEars]

Thanks. I hope it will be helpful. I am tired of falling asleep at my desk and not having any energy. I also am always stiff and sore and my back has been hurting for 2 years. After my second sleep study using the mask, my back has felt so much better. I will check back in after I get the unit and let you all know how I am doing.

Hiwaygal~ are you still having success with the machine?

[hiwaygal]

Yep! It's really become second nature to me now. I find it hard to fall asleep without it. Many of the symptoms you are describing (no energy, falling asleep at your desk, etc) are what I experienced too. I'm definitely doing a lot better now.

I never noticed the DRASTIC change that others describe, but I do notice a difference.

My friends DH just had his second sleep study last night and he's had so many problems (heart, blood pressure) that this will help!

It really will help you! Don't get discouraged if you have some difficulty adjusting to the machine.

[CruisinEars]

Well I have had my machine for 2 nights now. The first night I only went for 10 minutes. All I could hear was me breathing and it sounded like Darth Vader. The second night I went for an hour and a half. I finally took it off because of condensation in the mask. It was dripping on my nose and tickled.

I use a pressure of 8 and found a memory foam mask. It is very light and comfortable. I just need to get used to having a hose attached to me. I know it will take a bit to become desensitized to the whole thing and actually sleep the whole night. I do like it because I can breathe. I found out I am a shallow breather and tend to hold my breath. When I took off the mask, it felt like something heavy on my chest.

[hiwaygal]

Something else you may notice at first is that your chest feels uncomfortable in the morning. I think it's because the mask makes you breathe more deeply and kinda "stretches" your chest muscles. Mine would ache in the mornings then subside. I guess it did that for a couple of weeks/months and it's not an issue any more.

Getting used to the hose does take a little time...but it gets better. I always thought they should make them a little longer.

Do you have an adjustable setting on your humidifier? You might try turning it down (if you can) to keep the condensation to a minimum. I've only had that problem once or twice because I had the humidity set too warm/high. I tend to like cold air better so I rarely have the condensation problems.

It sounds like you are making progress!! Keep it up!!

[CruisinEars]

I am making progress. I slept the whole night with the mask. I am still yawning alot during the day. I think I shallow breathe during the day too.

I still had condensation issues, but I just took off the mask, used a tissue to dry it and put it back on. I have the heater set at 1 which is pretty low. I think I will try covering the hose too.

I do like the feeling of being able to breathe more easily while wearing the mask.

[cruisnfamily]

Any of you on here that didn't know/feel you had a problem. Have you noticed changes and been happy with the C-pap?

DH didn't know he had an issue and when I told him he stopped breathing during the night, his response was "well I start again don't I". Now he's had the sleep test and he goes tomorrow for the second one with the machine and he's fully on board and everything but since he didn't ever notice any symptoms, I wonder if he'll notice any benefits?

[hiwaygal]

I had no clue that I had a problem. I have other medical issues that I thought were making me feel tired all the time. After getting it all under control, my doc sent me for a sleep study. I was SHOCKED at how often I stopped breathing.

He will notice benefits. It may be right away or it may take a few months but he will notice.

The biggest thing to remind him is that there are so many problems that sleep apnea can cause (especially heart problems!) and that treating the apnea is much more important than people think sometimes.

[cruisnfamily]

I had no clue that I had a problem. I have other medical issues that I thought were making me feel tired all the time. After getting it all under control, my doc sent me for a sleep study. I was SHOCKED at how often I stopped breathing.

He will notice benefits. It may be right away or it may take a few months but he will notice.

The biggest thing to remind him is that there are so many problems that sleep apnea can cause (especially heart problems!) and that treating the apnea is much more important than people think sometimes.
He's totally on board with it. He knows it's an issue now that he's educated himself on it a little bit and been for the study. He's got a great attitude and is willing to use the C-Pap. We haven't heard the results of the test yet, just that he has it and needs the machine. I imagine he'll get his results when he goes for his 2 week follow up after getting the cpap.

It does sound like you knew that you were feeling tired all the time. He doesn't seem to think he is tired all the time.

When you say he will notice benefits, I wonder if you could tell me what kinds of things he might notice. Why would it take a few months to notice benefits? Wouldn't it be immediate?

[hiwaygal]

I'm glad to hear he is going along with it all!! I've heard of people not wanting to wear the mask and stuff for vanity reasons or just because they believe they don't need it.

Some people do notice the benefits right away...I didn't. I guess I figured it took a few years of bad sleep for me to get that tired, it might take a few months for me to catch back up!:rotfl: He may notice some things right away and others in a few weeks or so.

I used to come home from work in the evening and pass out on the couch within an hour or two...then go upstairs and sleep all night. I don't do that anymore (okay, sometimes I still do...when I don't feel well).

I think your DH will feel more energetic. He may (surprisingly) feel more relaxed (blood pressure is another issue that sleep apnea makes worse). He may be calmer and notice fewer "aches and pains" if he had any. It's hard to really say since each person is different.

[CruisinEars]

I have been using it for 4 nights now. These last 2 I have used it all night long. It does help me breathe easier, but I am still not getting undisturbed sleep. I tend to wake up when the mask shifts or condensation drips on my nose. Last night I started with it and it was whistling. So I had to take it apart and try again. Then I couldn't get a consistent seal. But, I kept at it and still slept with it all night. I was still tired at my desk this morning. Could just not stay awake. I think it is because I sit at my desk and computer most of the time. I have noticed that I am not as stiff and sore anymore. That is a nice benefit.

[hiwaygal]

I had a hard time with getting the seal right too. It will take some getting used to.

Believe it or not, you are probably getting better quality sleep when you are sleeping so it kinda makes up for the waking up when the mask leaks or something.

If it gets really bothersome, you might want to see about a different kind of mask. Maybe something that fits your sleep pattern better (some are better for back sleepers, some are better for side sleepers).

Or maybe a different pillow...or just the pillows arranged differently.

[CruisinEars]

I spent a few minutes last evening adjusting the mask and realized I just didn't have it tight enough. So, I tightened it and was able to sleep all night with it. The condensation is still bothersome though. I have to dry it out a couple of times during the night. I keep the moist setting at about 1/2 and if I turn it off, my throat dries out. I guess I will just have to deal with the occasional drips.

[hiwaygal]

I think that condensation problem would annoy the crap out of me too...maybe talk to your provider and see if they have any suggestions on how to reduce or eliminate it. It just seems like you are really having a lot of condensation.

Glad you were able to adjust the fit!

Are you feeling like you are more "awake" during the day?

[cruisindisney]

I was diagnosed with sleep apnea several years ago and I couldn't stand the cpap and mask. I never could sleep more than a few hours before ripping it off in panic.

I went to my nose and throat doctor and he did surgery on me. He removed my tonsils, my top soft pallet and seared down my adnoids. I sleep all night now and feel rested. WOO HOO!! I also don't snore much if at all. My husband loves that.:yay:

[CruisinEars]

I think that condensation problem would annoy the crap out of me too...maybe talk to your provider and see if they have any suggestions on how to reduce or eliminate it. It just seems like you are really having a lot of condensation.

Glad you were able to adjust the fit!

Are you feeling like you are more "awake" during the day?

Yep, I am feeling more alert during the day. My coworkers are noticing too. I think it will take more time to get used to it though. But so far, I am pretty happy with it. the mask is reasonably light and comfortable and it allows me to sleep on my side. I think I will get some fabric and make a sleeve for the hose though. it slides against the wood side rails of my bed and makes that "bump, bump, bump" sound.

[hiwaygal]

I was diagnosed with sleep apnea several years ago and I couldn't stand the cpap and mask. I never could sleep more than a few hours before ripping it off in panic.

I went to my nose and throat doctor and he did surgery on me. He removed my tonsils, my top soft pallet and seared down my adnoids. I sleep all night now and feel rested. WOO HOO!! I also don't snore much if at all. My husband loves that.:yay:

I'm glad that worked for you! I've only heard of two folks who have had surgery to correct sleep apnea, and both were here on the DIS. One poster's surgery was significantly more drastic than yours, IIRC.

I'm just not sure I'd be willing to go through all that!!:rotfl:

Yep, I am feeling more alert during the day. My coworkers are noticing too. I think it will take more time to get used to it though. But so far, I am pretty happy with it. the mask is reasonably light and comfortable and it allows me to sleep on my side. I think I will get some fabric and make a sleeve for the hose though. it slides against the wood side rails of my bed and makes that "bump, bump, bump" sound.

I'm glad you are feeling better and getting more used to the mask. Yeah, I agree it will take more time. Good luck with the hose sleeve! I wonder if that will help with the condensation...

[Bee]

My ex-husband had sleep apnea.... then he had gastric bypass surgery her was 587 and 6'6..... After the surgery he lost so much weight and he doesnt have sleep apnea anymore.

But, for those concerned it will bother the husband or wife that sleeps with you... I will tell you from my own experience... it was a little difficult to get used to... but it was a constant noise.. not the loud snores, then gasping for air than no air being taken in.. I for one can say when he started to use the machine... I slept better...

Hope that helps.

Bee

[hiwaygal]

Bee - thanks for your input!

I think a lot of us who use the machine wonder what our partners think. My DH mostly says he doesn't hear it...but then he'll make a comment about something (if we hear a leak or something) and I know he does.

Do you think it's kinda like a white noise machine?

I'm sure it did help you sleep better just knowing that he was breathing! My mother has apnea (never treated it:sad2:) and it used to terrify me when she stopped breathing!

Congrats to your DH on the gastric bypass too!! I have been told that sometimes losing as little as 20 pounds can make a difference in overweight apnea patients.

[Bee]

It was easier to sleep because is was a constant noise..

Unfortunately he is now my ex-husband... he got skinny, better looking and now he is engaged to another.

He almost died from the surgery and I a glad he didnt...

I wish I had the machine now... I believe I could use it.... lol


Bee

[cgrobin]

I did not know I had sleep apnea until I was diagnosed.

I'm a Hodgkins Lymphoma survivor, and during a standard follow up CT scan the radiologist noted that my Waldeyer's throat ring was enlarged and should be examined.

This concerned my oncologist who then referred me to a ENT who ruled out any disease, including cancer.

When updating my GP (who also happens to be a sleep specialist) on my scan results, he immediately scheduled me for a study. The study showed that when I hit REM sleep, I stopped breathing 60 times an hour. That means that every 60 seconds, I'm not breathing for at least 10 seconds. :(

I was absolutely miserable during the second half of the study, when I was fitted with the mask and the pressure required was being determined. I was fighting a panic attack from mask, while attempting to get get enough sleep for a successful study. Back then, I thought I'd never have a truly restful sleep again, being forced to wear a mask.

When the respiratory therapist came by with my CPAP, I requested the nose pillows instead of the regular mask. He setup the Ramp Up feature, which starts at a pressure of 5 and over a period of a 1/2 hour ramps up to 12. I find if I have to remove the mask in the middle of the night, I can continue at 12.

I don't used the humidifier. I figure the air in Florida is humid enough, and I have a nasal drip which keeps my nasal passages moist. A few times in the beginning when my nose was stuffy, I must have breathed through my mouth, casing it to be dry.

Now I'm hooked on my CPAP, and one night when I attempted to sleep without it, I was miserable like a toddler without their favorite blankie.

[hiwaygal]

cgrobin - Glad you came by to share you experience!

And :hug: to you for beating cancer!

I'm glad you were able to find a mask and settings to make it work for you! I think they sort of expect people to have some problems during the study.

I also agree that trying to sleep without it seems really weird now...like I can't get fully comfortable.

[cgrobin]

The ramp up feature really makes it easier too. It was set to hit full strength at a 1/2 hour because the study showed I took 20 minutes to fall asleep. Even now I have to start the night adjusting to the pressure, then I'm good for the night.

[hiwaygal]

How long have you been using the CPAP?

My RT was not helpful at all. My ramp-up feature didn't go long enough and they claimed they couldn't re-set it to go longer. Maybe they couldn't, I suppose it could depend on the type of machine. But, I finally got used to it and haven't used the ramp-up since about 2 months after I got the machine (it's been 2 years now).

[cgrobin]

I've had mine about 8 months.

I have the REMstar Plus M Series with C-Flex (http://remstarplusmseries.respironics.com/)

And the OptiLife mask (http://optilife.respironics.com/).

I find if the pillow is centered on the nose, you don't even feel the pressure. I used to wave my hand over the vent to make sure it's on.

The CPAP sits next to the bed, so I just have to remember when I flip over to lift the tubing and take it with me when I turn. If not, I can pull the CPAP onto the bed. This has become as much habit as it would be to pull my blanket with me too.

I run the tubing under the blanket and find that keeps it warm enough that I don't get a chill.

[CruisinEars]

I found a website cpap.com that sells accessories for the machine. I found out that the "rainout" condensation can be taken care of by wrapping the hose in fabric. They sell a couple of styles, but I think I might make my own. I might also by the softer more flexible tubing. Great fun to look through the site and see solutions to problems that you didn't know you had. They even sell special pillows and gadgets to keep the hose out of your way.

[cgrobin]

I wonder if having the tubing under the blanket would help. It would keep a large section of the tubing warm on the outside.

[CruisinEars]

I tried, but I just can't put the tubing under the blanket. My sleep style just doesn't allow it. I don't even put my arms under the blankets. I am just going to buy some fleece and make a tube that will slide onto the tubing. Super simple. plus the other reason I wanted it is because the tube makes noise scraping against the side rail of my bed and my nightstand.

[GDUL]

I wonder if having the tubing under the blanket would help. It would keep a large section of the tubing warm on the outside.

Keeping the tubing under a blanket will help with the condensation problems. I'm not able to do this myself as the tubing gets tangled up and the next thing I know, the Auto CPAP is on the floor - LOL!

Condensation occurs when the temperature drops as the air moves along a cool tube. You have warm, humidified air near the humidifier and it begins to cool as it moves down the tubing. Warm air holds more moisture than cool air so some of the humidity begins to "rain out." Technically, the temperature of the air decreases about 1 degree for each foot that it travels. Anything that can be done to help keep the temperature stable will decrease the amount of rain out. For instance, if you have your CPAP / humidifier near a cold window, it would help if you're able to move your unit away from the window.

Gary

[cgrobin]

I've pulled mine onto the floor a few times...now I have the nightstand up against the bed so it falls onto the mattress and it's fall is cushioned.

It's odd how I've become it's become habit when I'm half asleep to list the tubing into the air when I flip over. One night I think I pulled too hard and realized the odd sound I was hearing was the air escaping from the CPAP, 'cause I pulled the tube out of the machine.

I have one of the memory foam mattress toppers on my bed. I few times I've found the tube happily nestled under me, in the foam.

[cruisnfamily]

I spent a few minutes last evening adjusting the mask and realized I just didn't have it tight enough. So, I tightened it and was able to sleep all night with it. The condensation is still bothersome though. I have to dry it out a couple of times during the night. I keep the moist setting at about 1/2 and if I turn it off, my throat dries out. I guess I will just have to deal with the occasional drips.Been thinking about you and your condensation issues all day.

DH picked up his Cpap machine today and I went with him. The respiratory therapist made a big deal about the machine being lower than his head. She said that it must be lower than his head or water will run into his face. She also said some people like to run the tubing over the headboard and that this is a really bad idea for the same reason. So maybe you could try lowering the height of your machine if it's not already lower than your head.

[cgrobin]

Lowering it sounds like a good idea. It could sit on a small table or stool next to the bed. I don't use the heater, so I don't have the same water issues.

Did you guys have trouble with the plastic smell of the tubing?

Originally I washed it in regular Dawn as instructed and I still hated the smell. Then I started using Dawn PLUS Odor Eraser and that seemed to neutralize the plastic smell.

[ilovedisney1]

I am going to a sleep study Sunday and was wondering if someone can tell me what to expect.

[hiwaygal]

Did you guys have trouble with the plastic smell of the tubing?

OMG! YES!!! I hated that smell!!! It finally went away after a number of washings with vinegar and water, Ivory soap and water, and just plain getting older!;)

Even now when I have certain medical tests that require heavy sedation, they use a small breathing tube and the plastic smell with that is hideous!

Overall, I believe I have become significantly more sensitive to smells now. I've also become a little more sensitive to airborne allergens (i.e. pollen).

I am going to a sleep study Sunday and was wondering if someone can tell me what to expect.

Hi ilovedisney1! :welcome: to the thread!!

Different places do different things...but when I went I had to be there by 9pm. They had me watch a short video about sleep apnea and basically get ready for bed. There was a tv in the room and they showed me where the bathroom was and all that.

Then the technician took me into another room to attach all the wires. I don't know how many there are...but it's ALOT!! They don't hurt at all but they can be bothersome. If any of them come un-attached while you are sleeping, they'll come in and re-attach them. The ones on your head are attached using some kind of thick "gunk" lol. The ones on your body are mostly attached using the same kind of "electrode" patches that are used for EKGs. You'll also most likely have a Oxygen monitor on your finger.

After they have you attached, you will sleep as best you can while they monitor all those electrodes.

Sometimes if the apnea is really evident they will let you try a CPAP machine and mask that night. If not, they'll wake you up in the morning, take all the electrodes off and send you on your merry way.

Think of it like sleeping in a hotel room...it's a bit weird but not something you should let yourself get too stressed about.

Let us know if you have any other questions...and definitely come back and let us know how it went!!

[cruisnfamily]

Last night was DH's night 2 with the machine and he made it all night long. He's using the nasal pillows. I think the machine is incredibly quiet and I can't even hear it running....UNLESS....he opens his mouth. Which he seems to do relatively often. Then the air is rushing out of his mouth and it's much noisier.

I don't really care about the noise part of it but I'm afraid he's not getting the benefit he should be getting from the machine if all the air is rushing out of his mouth instead of wherever it's supposed to be going. But then again, maybe he doesn't do it often enough to be a problem, what do I know? Apparently it wasn't an issue when they monitored him during the sleep study.

So, here's the question...do we ignore this for now until he goes for his first followup appt in a month or so. Or do we call the medical supply company and request a chin strap?

[cgrobin]

Does he open his mouth a lot while sleeping, or does it wake him and he closes his mouth and goes back to sleep?

When I open my mouth it makes a wind tunnel and as far as I know, wakes me up. Since the noise and feeling is annoying, I fine myself wanting to close my mouth. Ask you husband if he's aware he's opening his mouth.

The fact I can yawn, sneeze or just take a breath through my mouth keeps me from getting claustrophobic.

As for the sleep study, I presume they gave you instructions, not to drink caffeine or anything else that might keep you awake.

My sleep center is also the doctors office, so around 5 or 6am when I'd wake up, I would be allowed to go home.

The stuff they use to hold the electrodes to the top of you head feels like a waxy putty. You will need to take a shower to wash it out when you get home. The second time, I brought my old 'chemo bonnet' to wear going home and was able to just go to back to sleep with it on, and shower later in the morning.

[ilovedisney1]

OMG! YES!!! I hated that smell!!! It finally went away after a number of washings with vinegar and water, Ivory soap and water, and just plain getting older!;)

Even now when I have certain medical tests that require heavy sedation, they use a small breathing tube and the plastic smell with that is hideous!

Overall, I believe I have become significantly more sensitive to smells now. I've also become a little more sensitive to airborne allergens (i.e. pollen).



Hi ilovedisney1! :welcome: to the thread!!

Different places do different things...but when I went I had to be there by 9pm. They had me watch a short video about sleep apnea and basically get ready for bed. There was a tv in the room and they showed me where the bathroom was and all that.

Then the technician took me into another room to attach all the wires. I don't know how many there are...but it's ALOT!! They don't hurt at all but they can be bothersome. If any of them come un-attached while you are sleeping, they'll come in and re-attach them. The ones on your head are attached using some kind of thick "gunk" lol. The ones on your body are mostly attached using the same kind of "electrode" patches that are used for EKGs. You'll also most likely have a Oxygen monitor on your finger.

After they have you attached, you will sleep as best you can while they monitor all those electrodes.

Sometimes if the apnea is really evident they will let you try a CPAP machine and mask that night. If not, they'll wake you up in the morning, take all the electrodes off and send you on your merry way.

Think of it like sleeping in a hotel room...it's a bit weird but not something you should let yourself get too stressed about.

Let us know if you have any other questions...and definitely come back and let us know how it went!!

Thanks for all the info. I am going for the sleep study on Sunday.

[ilovedisney1]

Well I went to the Sleep Study and I never had to use the CPAP. So that is good news. I have to wait 2 weeks for them to go over all the info. But the lady did say that I snored mild to moderate but that was all she could tell me.

[cassie]

I just had my second sleep study done after 5 years. Big change in my air pressure. I went from a nine to 14! I knew I wasn't getting a good quality sleep, so I asked for another study. Today I got my my new and improved sleep machine, and a new mask. I can't wait to try it out.

What kills me is the price of all the equipment. I suppose it's worth it if I can get a good sleep and not have to worry about possibly dying from a stroke or heart attack. I'm diganosed with severe apnea.

[TruBlu]

I just had my second sleep study done after 5 years. Big change in my air pressure. I went from a nine to 14! I knew I wasn't getting a good quality sleep, so I asked for another study. Today I got my my new and improved sleep machine, and a new mask. I can't wait to try it out.

What kills me is the price of all the equipment. I suppose it's worth it if I can get a good sleep and not have to worry about possibly dying from a stroke or heart attack. I'm diganosed with severe apnea.Does insurance cover a second study? My pressure setting is only a 5, but I think it needs to be higher. I've tried to figure out how to up the setting myself, but no luck. :guilty:

[cruisnfamily]

I just had my second sleep study done after 5 years. Big change in my air pressure. I went from a nine to 14! I knew I wasn't getting a good quality sleep, so I asked for another study. Today I got my my new and improved sleep machine, and a new mask. I can't wait to try it out.

What kills me is the price of all the equipment. I suppose it's worth it if I can get a good sleep and not have to worry about possibly dying from a stroke or heart attack. I'm diganosed with severe apnea.

Does insurance cover a second study? My pressure setting is only a 5, but I think it needs to be higher. I've tried to figure out how to up the setting myself, but no luck. :guilty:I've been thinking about these 2 posts as my DH just got his machine less than a month ago. Truly no criticism intended, but here's my question.....wouldn't your doctor pick up on the need for higher pressure or a new sleep study based on an annual visit where you bring your memory card in? I'm assuming they would be able to see if you were still having apnea episodes or if the mask was leaking too much and so on. I hope that this is how it goes as I don't want it to be a "do it yourself" kind of thing because I'm afraid DH/I would miss important things and he wouldn't be getting the full benefit of the mask so I'd like to place our faith in the hands of the doctor and that little memory card that records all the info.

Please set me straight and thanks for your help!

[cassie]

I've been thinking about these 2 posts as my DH just got his machine less than a month ago. Truly no criticism intended, but here's my question.....wouldn't your doctor pick up on the need for higher pressure or a new sleep study based on an annual visit where you bring your memory card in? I'm assuming they would be able to see if you were still having apnea episodes or if the mask was leaking too much and so on. I hope that this is how it goes as I don't want it to be a "do it yourself" kind of thing because I'm afraid DH/I would miss important things and he wouldn't be getting the full benefit of the mask so I'd like to place our faith in the hands of the doctor and that little memory card that records all the info.

Please set me straight and thanks for your help!


Well, first off, the older cpap machine like I had didn't have a memory card. That is something new. Also, I never had an annual visit with the doctor. I have a followup 2 months after being on the new pressure.

[hiwaygal]

I've been thinking about these 2 posts as my DH just got his machine less than a month ago. Truly no criticism intended, but here's my question.....wouldn't your doctor pick up on the need for higher pressure or a new sleep study based on an annual visit where you bring your memory card in? I'm assuming they would be able to see if you were still having apnea episodes or if the mask was leaking too much and so on. I hope that this is how it goes as I don't want it to be a "do it yourself" kind of thing because I'm afraid DH/I would miss important things and he wouldn't be getting the full benefit of the mask so I'd like to place our faith in the hands of the doctor and that little memory card that records all the info.

Please set me straight and thanks for your help!

I've had my machine for over two years now and have never been back to the sleep doc for a re-check or anything.

You will see your respiratory therapist/equipment provider regularly for replacement masks, hoses, filters, etc. They can also advise you on new machines. Typically, after about 5 years you may want to see about getting a new machine and/or seeing if there is any need for "maintenance" on the one you have.

As new technology develops, it's a good idea to see if there are any changes in the mask or machine that you have. For example, my equipment supplier has told me about some newer masks (at least they are new to our area) designed specifically for women. Most masks are designed for men and are just 'scaled down' to fit women. But there is supposedly a new nasal pillows mask just for women and I'm anxious to try it!

I believe that you may be your best advocate for new sleep studies. You may notice you are feeling tired more often, or not sleeping well. And if there are not any obvious other reasons for that, talk to your PCP about another sleep study. As far as I know, it's not something that you will regularly do...

[cgrobin]

My cpap is less than a year old, and I was told the memory card only shows how much I use it, it doesn't record other stats.

My machines has a ramp up feature. It starts at a 5 and within a half hour builds to a 12.

[CruisinEars]

I would say if you feel the machine is not strong enough to make an appointment with your doctor. They will discuss the situation and recommend the appropriate action. If you want to know if your insurance covers a 2nd sleep study, call them. Mine covered my 2nd one, but it was a continuation of the 1st one really. I have had my machine for about a month, just had a follow up with the sleep dr. and he said to come see him in a year. So, if it has been longer than a year, I would think another visit would be needed.

[CruisinEars]

Update~ Thought I would update you all regarding the accessories I recently ordered from cpap.com. I ordered the 10 foot hose, hose cover and silencing cap. I am very happy with my purchases. The longer hose makes it so much easier to move in bed and the hose cover is fleece and comfy. I highly recommend these. Just makes it more comfortable and I am sleeping better. The silence cap is fairly good. I think it reduces some of the breathing sound. Not sure if it is worth the $15, but anything helps right now. My dh is happier so that is worth it for me.

[cruisnfamily]

Update~ Thought I would update you all regarding the accessories I recently ordered from cpap.com. I ordered the 10 foot hose, hose cover and silencing cap. I am very happy with my purchases. The longer hose makes it so much easier to move in bed and the hose cover is fleece and comfy. I highly recommend these. Just makes it more comfortable and I am sleeping better. The silence cap is fairly good. I think it reduces some of the breathing sound. Not sure if it is worth the $15, but anything helps right now. My dh is happier so that is worth it for me.What exactly is a silencing cap? What type of mask do you use? Our insurance will pay to replace the hose every few months or so. I wonder if your insurance would pay for your new hose? Are you the one that had all the condensation? If so, how's that going?

[cruisnfamily]

Well, first off, the older cpap machine like I had didn't have a memory card. That is something new. Also, I never had an annual visit with the doctor. I have a followup 2 months after being on the new pressure.

I've had my machine for over two years now and have never been back to the sleep doc for a re-check or anything.

My cpap is less than a year old, and I was told the memory card only shows how much I use it, it doesn't record other stats.

DH just went today for his first re-check with the Dr. It's been about 3 weeks since he got the machine. They want to see him again in 3 months. They want to see him regularly to see how he's doing and apparently the insurance company also wants him to be seen as proof he is still using the machine? Something like that. Anyway, the doc was able to tell him how many episodes he's still having (avg of 5.2 which is apparently great!) and whether the mask is leaking (it was leaking when he first started and then no leaks and now just lately leaking again) and all kinds of cool stuff. He was also able to have the doc adjust the ramp feature right there in the office on the memory card? He wanted the ramp shortened and supposedly it's done on the card. I'm not quite sure about that as DH did not bring the machine, just the card.

Anyway, it looks like DH will be seeing the doc regularly and I'm thrilled about that. They may back it down to annually after this next visit in 3 months.

[CruisinEars]

What exactly is a silencing cap? What type of mask do you use? Our insurance will pay to replace the hose every few months or so. I wonder if your insurance would pay for your new hose? Are you the one that had all the condensation? If so, how's that going?

The silencing cap goes over the filter intake area and helps cut down on the breathing noise.

Yes, my insurance will also pay to replace hoses every 6 months, but I didn't want to wait that long. I wanted to "customize" my machine to make it more comfortable for me to use. The hose was only $15 or so so it wasn't a big deal for me. The mask I use is a Fisher and Paykel memory foam with neoprene head gear. very light weight and comfortable. I get the condensation when I use the heat and the tech said it was really my own breath that was condensing inside the mask. When I keep the heat off, it is much less of a problem.

I am actually getting addicted to using it. That totally surprises me.

[cruisnfamily]

The silencing cap goes over the filter intake area and helps cut down on the breathing noise.

Yes, my insurance will also pay to replace hoses every 6 months, but I didn't want to wait that long. I wanted to "customize" my machine to make it more comfortable for me to use. The hose was only $15 or so so it wasn't a big deal for me. The mask I use is a Fisher and Paykel memory foam with neoprene head gear. very light weight and comfortable. I get the condensation when I use the heat and the tech said it was really my own breath that was condensing inside the mask. When I keep the heat off, it is much less of a problem.

I am actually getting addicted to using it. That totally surprises me.But you're going to have to replace that hose every few months so hopefully they'll pay for your customized longer hose. I'll have to tell DH that that is available and see if he's interested.

New question, do most of you use the c-flex option on your machine?

[CruisinEars]

But you're going to have to replace that hose every few months so hopefully they'll pay for your customized longer hose. I'll have to tell DH that that is available and see if he's interested.

New question, do most of you use the c-flex option on your machine?

True. The insurance should cover any hose I want same as they would cover most mask choices. The hoses are all about the same price. We are leaving for a cruise in 2 weeks and I still am not sure if I will take the 6' or 10' hose with me.

Yes, I do use the c-flex feature. I am a shallow breather so using that helps me expel easier.

I don't use the ramp feature anymore though. I found I like to go directly to full pressure when I lay down.

[cassie]

Please explain the c-flex feature. I haven't heard of that.

[CruisinEars]

Please explain the c-flex feature. I haven't heard of that.

From what I understand, the pressure when you breathe out is lessened so that it is easier to breathe. So when you breathe in it is full power and breathe out lesser power. Makes the machine sound like darth vader.

[cruisnfamily]

From what I understand, the pressure when you breathe out is lessened so that it is easier to breathe. So when you breathe in it is full power and breathe out lesser power. Makes the machine sound like darth vader.I agree with all of the above except the darth vader thing. It really doesn't sound loud to me at all. DH had the Cflex feature and was using it set on 3 but when he went to the dr yesterday and the dr adjusted the ramp to a shorter time(at DH's request) on the memory card and apparently he disabled the cflex by accident. DH said it doesn't seem too bad without it. We'll probably call monday and find out how to add it back on but I just wondered how many of you use it.

[cassie]

I'm still confused on the c-flex. I just got a new cpap machine and mask. He told me of the card, but I don't have it in the machine. He never said to put it there. Also he never mentioned c-flex.

[GDUL]

I'm still confused on the c-flex. I just got a new cpap machine and mask. He told me of the card, but I don't have it in the machine. He never said to put it there. Also he never mentioned c-flex.

Here is an explanation of C-Flex from Respironic's website.

http://cflex.respironics.com/

[CruisinEars]

From what I understand, not all machines have c-flex and not everybody is prescribed that feature. There are several types of cpap machines and your doctor will prescribe the features that are most beneficial to you. Go to cpap.com and check out all the different types of machines. Interesting reading.

[CruisinEars]

Thought I would stop by and update you all about traveling with my cpap. We flew to LA and then hopped on a cruise ship to Mexico. I bought a nice rolling carry on and it was perfect for my machine and mask. I easily went through security. I did have to remove the machine and it had to be swabbed for explosives both coming and going. I even forgot to empty the water chamber for the first leg and they didn't even notice. I did and got it emptied as soon as I found a bathroom.;) I did end up taking the 10' hose and put that in my suitcase. It was a good decision. I had no trouble using it on my cruise and was very comfy.