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View Full Version : Autism Moms and Dads! Let's Share Stories About Our Kids!


IncredibleMom
01-25-2006, 07:09 PM
On another thread, some of us got on the topic of funny little things our kids have in common, "My 6yo Son's fixated on the planning video" (How do I make a link to that?)

I loved hearing about everyone's personal experiences and I thought the topic deserved it's own thread!

Give us your best obsessions, objects of attachment, clever or obnoxious echolalias, television shows, etc.

I'll copy my post to start:

Ha ha! My son (PDD-NOS) refers to the actors on the video by name as if they're old friends.."Where Dave going?" and "I got do that like Luke at Disney World!"

My DD (almost)7 (HFA) has just started recognizing 'echolalia' and refering to it as just that. We were watching the Original Toy Story today and she started laughing at one of 'her old phrases' saying "I used to say that all the time when I was 4 years old" It's has gotten soooo cute how she so openly talks about stimming, echolalia, and being autistic.

As long as I'm refering to this, I've got to share a favorite echolalia story:

On Thanksgiving, when she was 4, Kamryn wanted to go outside and my Dad told her it was too cold. She came back inside and slammed the door, looked at me and said "HE'S LYING! WHATEVER HE SAYS ITS NOT TRUE!" (Sid, Toy Story 1) When most little girls would have been punished for talking back like that, we all fell over laughing! GOOD WORDS, KAMRYN!
(In fact, that's how she learned pragmatic speech - adaptive echolalia, I call it!... and all of those "professionals" told me to take away her videos and not allow her to repeat phrases!)

[By the way, this is especially interesting to me because I'm now back in school (following 3 year hiatus to juggle therapy sessions, etc...but, I wouldn't be so inspired/driven if my kids weren't who they are) I'm doing a double major in Biology and Psychology and developing theories on Autism and Sensory Integration Disorders that I hope will, one day, help all of our kids!]

IncredibleMom

Jotash
01-25-2006, 08:43 PM
adaptive echolalia, I call it!... and all of those "professionals" told me to take away her videos and not allow her to repeat phrases!)

:lmao: I love that!!!

My DS (Age 5, PDD-NOS) drives us crazy with constant Elmo, Clifford, Kipper and Wiggles dialogue, but he does adapt it to his situations. Instead of "1, 2, 3. Wake up, Jeff," from the Wiggles it's "1, 2, 3. Wake up, Daddy (or Mommy, or one of our dogs or whoever is sleeping.) The funniest thing is when he says something that is appropriate, but we still know he's quoting a movie because he usually tries to sound like whatever character he's quoting (i.e., Australian accent for the Wiggles, English for Kipper.) We literally are surprised and amused all the time, but just encourage him when he is appropriate.

From now on, when someone asks why he's doing that I'm going to tell them it's adaptive echolalia!!! :thumbsup2

Earstou
01-26-2006, 12:50 AM
My ds used to headbutt people! He would come up behind them at a run, lower his head and ram them. Most embarassing!!!
He did it to my cousin at her wedding while she was standing on the dance floor getting ready to throw her bouquet.
The last time he headbutted was to our minister. This time he did it from the front, and our minister was a short man, so use your imagination as to where that ended up!!!

IncredibleMom
01-26-2006, 09:39 AM
Earstou:
My daughter headbutts, too! She is ordinarilly a really REALLY sweet little angel (one of her obsessions is following "The Rules"), but when she gets upset and her little impulsive side takes over she comes charging like a little ram! She does it as if to say "I know I can't hit or kick or scream, but I'm really upset and this is the best I can come up with, so, dun dun dun dun du da! CHARGE!"

Jotash:
She was a Teletubbie-Head so we also spoke with an English accent, too. It was really funny to be at the bakery counter at the grocery store and she'd come out with "Mummy, I like buscuits and cake", and the worker asking "Oh, how cute, where is she from?"

IncredibleMom

Tissa
01-26-2006, 10:38 AM
That's so cute :cutie: I wish Brandon did this but he doesn't speak in complete sentences and what he does say only I can understand.

Poohgirl
01-26-2006, 11:41 AM
My DS7 is high functioning he didnt speak until he was almost 3. Hearing your stories I remember going through the headbutting phase, the "use your words phase" when he was so frustrated he was about to explode, and usually did! The repeating phrases over, and over and over. BUT those were all little steps leading to good things. Now sometimes you can't get him to be quiet. He sounds like a 40 year old professor in a mini me body...He comes out with these..."Did you know butterflies actually do not hatch out of cocoon they hatch from a chrysalis?" ok, a few minutes later comes this doozie "Mom, could you explain to me, if tectonic plates shift, how does that cause a volcano to erupt?" :crazy: He's been reading the encyclopedia again... Ask him if he wants to have a play date and he will crawl under his bed! OK so here is a good one from Disney. He LOVES thrill rides. We went on the boat ride in Norway cause I thought it would be cute. He was content the entire ride, we go to exit, he steps off onto the landing and screams in his loudest 7 year old voice "Well that SUCKED" I guess it was not up to his ride standard :eek: horrified....

Earstou
01-26-2006, 11:34 PM
I'm surprised others have/had to deal with headbutting, too. I'd never heard of this before my ds did it!
He also used to growl at people. If he started the interaction, he would answer back when people talked to him. If they started the interaction, he would only growl!
!

3kidsmommy
01-27-2006, 01:01 PM
My 7yo ds with autism, mental retardation, and adhd (although I still say the hyper part is just the autism!) has a few favorite oddities I can share: 1. EVERYTIME we step foot into the van we get the parroting of "Buckle up for safety!" over and over until we do it. Now, mind you, the van isn't even turned on when he starts his rants. I can thank Blue's Clues for that one, I think. 2. Chandler loves to sing and easily remembers the words to songs. He loves Jimmy Buffet and the Grateful Dead (yes, I admit it--I am a deadhead) and on one particular song on a CD Jerry Garcia did entitled "not just for kids" there is the "Ain't No Bugs on Me" song. Chandler loudly sings this song perfectly. Makes for great entertainment when guests come over. They just can't act like they are watching him. 3. Stimming...mouth noises seem to be his favorite at the moment...LOUD mouth noises. 4. Rubbing his head on the floor...anyone had their kid try to be a human sweeper? He USED to do the headbanging, then switched to this... and finally...5. When he was 5, he went through a phase where he pulled out his hair. He was bald on top with longer hair on the sides--kinda that little old man look! Ended up cutting his hair so short he couldn't grab it to pull.
As to the OP's echolalia statement--I LOVE IT! Chandler has always done the same thing...taking things he has heard and eventually using them in the proper context to a situation we are in. His special ed teacher once said how she was amazed by something he had said--until I explained he had heard it on Blue's Clue's and produced the video to prove it! lol...
Aren't our kids cute?

karynnix
01-27-2006, 01:48 PM
I can't believe all of the head-butting!! My son did that in kindergarten and I never thought anything else about it. He started by head-butting his teacher in the rear. Boy...was she surprised! :eek:

I wonder why it is that Blue's Clues is such a fascination. paw: paw: paw: Jack is 7 1/2 and he still watches it every day. He was heartbroken when Steve went to college. I started classes at the local community college (incidently to study psychology and autism, also!!) a few weeks ago, and the morning of my first class, Jack said, "I'll see you next year!" :wave2: I don't think that I have him convinced yet that I'm not going anywhere! It makes me happy that there is a show like Blue's Clues for them to watch. Very educational.

landmark
01-27-2006, 05:56 PM
Another head butter here. Sometimes they come disguised as hugs. We were so happy when he started spontaneously hugging but now they are more like full body slams. (read: full speed from across the room) I told him "I love it that you are hugging mommy... but could you hug softer?" :love:

DS memorized the School House Rock DVDs last year. The teacher asked me if I was teaching him multiplication it took me a week to figure out where he got it... we were driving in the car and all of a sudden he says: "Mr. Morton is the subject of the sentence and what the predicate says... he does." Viola.

Lately his favorite line is from Charlie and the Chocolate Factory and is lovely in public but he will suddenly yell out. "Mumbler!" For those that have seen the movie you'll understand :rotfl2:

I think the most funny thing DS has said recently is at christmas when he opened up the pair of pants I got him (horrors!) he says: "I have no emotion for that present." Then tosses them to the side. My parents are still rolling. :lmao: It's become a family classic.

Anyone else having fun with body functions? DS is 7 and we are having fun trying to teach body functions ethic. Couple of weeks ago he burps this HUGE burp at a restaurant table and I said "Austin! What do you say?" Mortified though not surprised and he announces... "Good one!" :blush:

I'm enjoying reading the other stories.

MN Dis Fans
01-27-2006, 08:08 PM
I love this thread!
When my DS10 was in first grade, the class was asked to make illustrated timelines. He created a timeline of his obsessions.
"First it was trains. Next it was Indiana Jones. Now its Titanic." The school district's autism specialist still uses a copy of it for workshops. :goodvibes Since then we've lived through Yu-Gi-oh (thank goodness that is over with) Star Wars :yoda: :darth: :chewy: :ewok: and now Runescape.

When he was 3, I was mortified when his daycare mom told me he called the other kids "idiot." That night at home the light bulb came on as we watched 101 Dalmations for the bazillionth time. Everybody in that movie says idiot! About that time he also told his little brother, "Be gone with you!" Not sure where he heard that phrase.

PrincessPatty
01-29-2006, 03:35 PM
These stories are so wonderful to hear. Just recently I am doing my internship in an Autism school. I am so nervous to be working here and I havent had much interaction with the kiddos (2 days) but I am so excited to be working here!! Hopefully I can learn a lot from all of you, thanks!

DebIreland
01-29-2006, 08:33 PM
I posted this on another thread about my son. I still get a great laugh out of this incident when I think back. :lmao:

My eldest son who is now 11 was diagnosed with autism when he was 3. He is doing great now thankfully and, bar some occasional language quirks (which are incidentally adorable) and some anxieties re: changes in his life he is coping very well with life and is in mainstream school. He didn't talk until he was 4 except for the constant repitition of phrases he learnt from movies (echolalia) so when, after intensive behavioural therapy, he did start to talk spontaneously and with intent you can imagine our joy. So, along with his lack of desire to communicate he also had some minor (well, I consider them minor!) speech issues which are common, the most obvious one being the replacement of 'f' with a 'b' so, for example, he'd say "brog" instead of "frog". No sweat! So one day, I was walking him to town (a difficult task as he used to stop to lick cars, he had severe tantrums, screamed, became distressed etc.) and we were walking near the river which runs through our city and he pointed and said "BISH, BISH, MOMMY, MOMMY, BISH, BISH" meaning "FISH, FISH, MOMMY, MOMMY [look at the] FISH" - well my heart swelled with pride. My boy LOOKED at me, spoke to me, conversed with me. When he saw the joy on my face, he kept it up and the whole way through town he proudly shouted at the top of his lungs "MOMMY BISH", "MOMMY BISH" - we got quite a few horrified stares as people wondered why I not only didn't scold him but actually praised my son's "name-calling" - one old lady actually stopped and made the sign of the cross on herself and said something like "well my God, I've heard it all, a little boy calling his mother a b**ch, may God forgive ya". All I could do was laugh!!!!!
:rotfl2: :rotfl:

kdtwiss
01-30-2006, 10:54 AM
Well, one of my son's real strengths (and weaknesses) is his memory. He forgets nothing.
Once about a year ago we were looking at pictures , which he loves to do, and we came across one of him at about 18 -20 months. He was on a big plastic slide and you could see very few thiings other than him and the slide. I said Keannor - where is that? "DZ" he says laughing.
It took me a few minutes to look carefully at it to see it was indeed Discovery Zone, which closed when ds was about 2. We have gone and continue to go to many indoor playgrounds, so it was not as if that was the only one he had ever been to, but the second he looked at that photo he knew it was DZ. Amazing to me! :teeth:

cabowser
01-30-2006, 01:22 PM
My son Charlie is nearly six and he had some challenges right from the start. Our house burned half way down and we foolishly lived in it while it was being rebuilt and I became pregnant at the same time and I became lead poisoned. Lead is released in creosote, which come from burning. So lead poisoning in the first trimester is not good.

Then Charlie was born after 7 hours of induced labor in which the dr did not tell me that he had the cord wrapped around his neck twice. His body was white and his head was purple. He had been in distress for days and I didn't know it.

Don't even get me started on the shots... let's just say he doesn't need to get any more to get his lifetime dose of mercury.

He was absolutely 100% silent as the grave except for crying and grunting until he was 3 and a half. He had been in therapy since he was 18 months old. Severely terribly autistic. Then something happened. I have to tell you what happened.

One day we were driving home from K-mart, which is about an hour from our house and CHarlie had been crying and screaming for the whole time. I prayed in my mind, please Lord help me stop him from crying or I am going to KILL this child! I was really on the edge. Well that night at bathtime Jon, Charlie's older brother, was sticking out his tongue, I was sticking out mine and Charlie tried to, but wouldn't.

Then in bouncing on the bed I somehow got a clear look at him as he was UPSIDE down and saw that he was completely tongue tied!!!

I made everyone stick out their tongues, I looked at him again and again. I looked it up on line, and sure enough he was tongue tied!

He had three speech pathologists, two dentists (that amazes me) and a pediatrician and NO one, including his mother (me) who had been an orthodontic assistant for 10 years had spotted it until then!

Within two weeks we had surgery to fix it. That day, for the first time ever, he bit into his pizza instead of scraping the toppings off with his tongue!

He began talking, it took 6 months and then he said, "More". Then "Open", and then it started. Now he can really talk, but most people can't understand when I say, he can talk, but he can't converse.

But I thank god that he can tell me when he is hurt now, and where. He can tell me what he wants to eat.

He will be 6 in two months and is in a regular preschool program at our local public school, set to enter kindergarten in the fall. He has a full time wraparound TSS who attends with him.

He is a great kid and is now sleeping through the night -- thank goodness for melatonin!

Jan

Brightsy
01-31-2006, 06:46 AM
My younger son, Vinny, is a little over 4. He was diagnosed almost 2 years, he's HF. When diagnosed he had less than 10 recognizable words and no two word combos at all. NOW he's got over 200 words and is beginning to speak in complete sentences and is actually starting to use personal pronouns once in a while! *mom swelling with pride and joy*
Anyways, we'v had some fun language quirks, too.
Like t'other day I asked him "Who are you?" and he said "This is me." And pointed at himself. I coulda burst.
He also says "Bish" for fish, and po-sicko instead of popsicle. Movie is "oovie" and so on. BUT when it comes to his Mickey DVD he's says Mick Mouse quite clearly...and when he wants his Cirque Du Soleil dvds he's quite clear too. He askes for those by name. "La Nouba" and "VArekai" are his favorites. (Those also happen to be the 2 shows he's seen live.)
I took him and his older brother (6 yrs. old ADHD) to see Varekai just a couple days ago! Oh it was magical!!!
First we had a moment at the pre-show where one of the performers came over to us (Vinny and Sammy were waving and yelling "HI" quite enthusiastically." She took a feather duster out of a pocket and dusted our knees and my face. Then Vinny jumped out his chair and lunged at her. She caught him and gave him a big ol' hug and Vinny, I swear, said "I wuvooo!" :-)
During the show his favorite act came on and he jumped up and yelled "There they areeeee!!!" He then clapped wildly and cheered through their whole bit. Throughout the show (which he has memorized thanks to DVD) he sang and even pantomimed certain parts. It was quite amazing to watch the little guy. And apparently he caught the eye of the musicians in the show. One of them winked at us as he wandered by. And one of the ushers told me as we were leaving that watching Vinny was about as fun as the show!
OTOH there was Sammy, my usually extremely fidgety ADHD kid. He sat almost riveted through the whole thing. He occasionally grabbed my arm and snuggled me or jumped and clapped, but for the most part he was enthralled. He's only like that at the live shows.
*Sigh* I love my guys.

Sara

larklynn
02-09-2006, 01:25 PM
My ds5 is currently labeled sid but he is veryyyyyyyy socially delayed and they are on the fence about asp. syn. Well I took him to ds11 challenger league baseball game(older son has cp/encephlopathy) We sitting by one of their friends gm's who is raising him. The friends mother and other gm were their first time we had met them.DS5 kept insisting that the gm we hadn't met was Timmy's grandfather. I was so emabarrassed he just got louder and louder. I finally had to whisper him to hush. We went home and I told my husband who could not stop laughing (of course he didn't have to sit through it)

D'AngelosdoDisney
02-09-2006, 04:32 PM
My son soon to be 7 knows every line and every move from all of the star wars movies. He will stand in front of the tv and when they walk, he walks, when they take off their robes, he does, when they speak, he speaks. Now that he got the originally three for xmas, he has added Darth Veder to his character list. He also got one of those ultimate life sabers and changes them for the characters he is acting out on that given moment. My husband says that we should burn the suit. :smokin:

missypie
02-15-2006, 05:02 PM
This isn't about my own child, but it's still a wild story. In a prior life, I taught deaf kids. I student taught at a state school for the deaf. They were always trying to get the student teachers to chaperone varous events (free labor) and one Saturday morning I chaperoned a bus full of little deaf kids on a trip to the circus. It was my last semester of college and I admit to having a few too many drinks at night time on occasion when off duty. So there I was, hung over, with the deaf kids at the circus.

The kid sitting next to me asked (in sign language) if there would be elephants. I signed "Not now. Maybe later elephants." About five minutes later I looked over at the kid and he was repeatedly signing "Not now. Maybe later elephants." The child was echolalic in sign language!

As an aside, I was in college from 1976 to 1979 in a nationally recognized special ed program. They taught us almost nothing about autism...barely a mention...at the time, they thought that autism might be caused by the pain of childhood ear infections being so severe that it made the child "tune out." Seriously. So if your child has any teachers 40 or above who seem clueless, know that their training in the field of autism may have been almost non-existent.

BethanyF
02-16-2006, 11:28 AM
I saw that someone else mentioned incredible memroy. Sam is like this too. Ive gotten to the point where i can use his memory. If we are shopping and I see a magazine or book I can ask him if I already own it. And he always knows the correct answer, he has saved me a couple times from rebuying an issue I already have at home.
He can tell me, in great detail, what we did on each WDW trip. "We dont have to go on that ride this time, we went on that on our 2002 trip when I was 3" 'Remember when that little girl sat next to me in the line for Minnie Mouse, she was cute' 'I was only 3 then, thats why I had to hold my ears during the parade, I was a little scared' and so on. The stuff he remembers is NOT things I have pictures of, so it's not as though he is remembering the picture.
Even his teachers use his built in calendar / memory. In first grade his teacher gave him the job of reminding her to remind the class to return their library books. Every Thursday he would tell me 'I have to remind Mrs N to tell the class to bring the books back tomorrow'

My favorite recent story is from last year (1st grade). There had been some misbehaving on the playground and the teacher sat all the kids down for a discussion about appropriate behaviors and punishment for inappropriate behaviors. She asked the class for ideas. Most of the answers were things like 'no recess' 'no snack time' and so on. Sam raised his hand and she asked for his answer...'I have the perfect idea. We'll just have a tribal council and vote the bad ones outta here' :lmao: She had tears rolling down her face when she told me the story and admitted it was the first time a student was able to stun her silent with an answer. Of course we were all proud that he came up with a solution that seemed appropriate.

MN Dis Fans
02-16-2006, 05:16 PM
I have noon recess duty at our school and your son's idea sounds like a great one! :goodvibes

This week DS handed out some pretty unique valentines. One of his mini obsessions is ancient Egypt (related somewhat to Yu-Gi-oh! I guess). He wrote all his cards in Egyptian hieroglyphics. :scratchin

peepzlz
02-17-2006, 01:01 PM
when I was 10 I had a terrible time at WDW untill they put me on medicine when I went back the next year I had a wonderful time.

Earstou
02-22-2006, 09:34 AM
I just remembered something that happened when we went to the Black Hills on vacation. When I was a kid, my dad always honked his horn in tunnels, and we kids thought that was the greatest thing. So when we hit the tunnels in the Black Hills, I told my dh to honk the horn. When there was lots of traffic, my dh told the kids to "honk" since he didn't want to disturb the other drivers.
So, a few days later we visited Wind Cave and DS (2 yrs) kept making this loud "woo" noise. We kept asking him to stop because the others on the tour couldn't hear the guide. It got to be embarassing because he just got louder and louder.
I finally realized he thought we were in a tunnel, and was trying to make one long continous honk that came out as "woo" instead of the "honk" he had done in the car! As soon as we explained the cave wasn't a tunnel, he stopped!!

This year he did a PowerPoint project for school. He added this,
"Disclaimer: (his name) is not responsible for any PowerPoint Poisoning or any injuries sustained from fainting due to how great his project is."

wiggles02
02-22-2006, 09:46 AM
We took our son who is 4 1/2 and is hyperlexic to see Curious George on Sunday. The movie started and I heard him say, "That's Dick Van ****" and "That's Drew Barrymore". I realized that he had saw the trailer and read the names of the voices. People around us gave us that How does he know that look. He has an amazing memory. He has come so far. We are so proud of him. He didn't really talk until he was three and now he speaks clearly and often. His social interactions are improving. He is reading on a 3rd grade level which should make for an interesting education. Anyway, thanks for this thread. It is always helpful for me to hear about other kids who are just like Braden. It gives me a lot of hope (this coming from a mom who had a really hard time adjusting to the fact that her son was far from typical). But aren't we all...

Ctsplaysinrain
03-04-2006, 12:08 AM
We are planning a trip to Disney in a few weeks. I mentioned to my son who is 10 and has Asperger's... He wanted to know if we were staying in the same hotel with the coke bottles on the wallpaper... This is correct- we were there in 1999 when he was just a week over 4... We stayed at the Holiday Inn Family Suites- there was coke bottles on the wallpaper......BUT, this is the only thing he remembers about his trip to Disney...LOL
Debbie

Family Loves Disney
02-16-2007, 06:28 PM
I am just subscribing to this thread. I will come back and post about my special little boy with pdd-nos or aspergers (2 different doctors with 2 different diagnosis) and fragile x syndrome when I have some spare time. :)

Luv Bunnies
02-19-2007, 12:58 AM
My 11 year old son has Asperger's. He has an incredible memory and excellent verbal skills. He can read a book once and recount the story chapter for chapter. He says the most insightful things sometimes that absolutely amaze us.

A few months ago, we were at a salad bar restaurant. I thought he was done eating but noticed he was still chewing on something. I asked him what he was eating and he said, "Just some sunflower seed interiors."

We also refer to him as our personal GPS. If we take him somewhere once, he can remember how to get there. The second time we went to his new orthodontist's office, I couldn't remember exactly where to turn so he directed me from the back seat. What an amazing kid!

Foohound
02-19-2007, 10:09 PM
My DD is 5 years old. She has mild autisim. She is obessed with reading store signs. Everytime we are shopping, she reads the signs to me until we leave. Once we were grocery shopping and out of the blue she ak me what Beer is. I explained to her it was an adult drink. She proceeded to tell me it must be bad since they do not sell it on Sundays. Even the store clerks were laughing!

rentingspace
02-23-2007, 01:26 PM
It's real nice to have this board. Thanks for all the stories. It lightens the day. My son Charlie was diagnosed when he was 18 months. I remember the fear of being non-verbal now he scripts the movies etc. No full conversations yet, but they too are coming. Then of course you have the fear of not potting training. :scratchin Phew that's done. Now getting ready to try to main stream into kindergarten:hourglass We're going through a stretch right now were he tries to hit anyone in the way when another child is upset. Keep writting everyone!:thumbsup2 All stories help:grouphug:

Dis1978
02-23-2007, 01:46 PM
We have had quite a few obsessions - dinosaurs ( aged just 2 he knew all their names and could read quite a few of them too), Pokemon, Harry Potter, Star wars and now computers. It's strange looking back because we all thought these were just the normal childhood crazes. Only now,with a soon to be diagnosis do I realize that they were obsessions. It is a strange thing Aspergers. It's hard to understand how a child can fit in, have friends and yet to have been autistic all those years and no one knew.
Teenagers and autism it has to be said are not cute at all. I would love to know how to handle all the rage and aggression that he sometimes displays.

rentingspace
02-23-2007, 02:05 PM
:grouphug: I too am worried about how he'll be when he gets older. It's cute right now at 4yrs. I guess I'll stay at the one day at a time moto. We were laughing at the support group I hold every month, remember when? I was worried when he ate wood chips, he didn't talk, he wasn't potty trained, etc. Oh just one more day.

mommie2angels
02-26-2007, 12:05 AM
I love this thread and all the stories are great!

Our dd#2 has autism. She also has Aicardi syndrome. When she was a year old she was diagnosed with angiosarcoma cancer. Her leg was amputated due to the cancer. She scoots every where around the house but when we are out she is in a wheelchair since she cannot walk. I told you all that because she also head butts. I had to laugh when I read the stories because I can just invision her running up and doing that to someone. She head butts people in the chest when they are holding her or she is sitting next to them.

She loves to slap - actually just pat to get people's attention. She is none verbal. She often pats her leg very hard or her hands or anything that makes a loud slapping noise when she hits it.

One day we were at a cancer event. Jeff Foxworthy (the comedian in case anyone didn't know) attends some of our events. He was there this day standing at the check in table. He spoke to us as we came in and we chatted with him some. He turned to talk to someone else as we were about to register. I was pushing my dd in her wheelchair. As we were standing behind him she reaches over and slaps him on the butt. I wanted to crawl under that table. He turned around and I know my face was blood red. I was stumbling over my words so bad trying to apologize and tell him my dd did it. I looked to my dh for help and he looks at Jeff and says I am so sorry, she just loves you. It was obvious he was talking about me. Dh and Jeff are laughing. I was even more embarrassed then. DD was just grinning.

disney dreamers
03-01-2007, 11:32 AM
my son cavan who at eight has a intrest in ladies breasts decided he would tell all the female teachers:teacher: at his school who did and did not have nice ones :blush: ,not happy with this he then wanted to discuss the reasons behind this as in whos were too small,,hard,,or big and comfy looking ,,, well thanks for that cavan!!:love2:

larklynn
03-01-2007, 12:15 PM
I have 2 ds's one is diagnosed with cp and enceplothay he is 12 and then there is his best friend my ds 6. He has been diagnosed with sid but the doc is holding off on diagnosing him with aspergers. He is are drama king. His feelings are hurt so easily and he has very anxiety which interfers with how much he interacts with his teacher event though he adores her and reads very well he tends to freeze up.

disney-super-mom
03-01-2007, 02:00 PM
My 7 year old autistic son, Ryan, is obsessed with video games. He lives and breathes video games. First it was Spyro the Dragon, then it was Crash Bandicoot, and now it's Sly Cooper. He's convinced that he's going to grow up and actually be Sly Cooper (and he even prays, asking God to make him Sly Cooper when he grows up).:goodvibes

Ryan also is in LOVE with Ariel (The Little Mermaid), and proceeded to tell me last night that when he grows up, he's going to be Sly Cooper and his wife is going to be Ariel Cooper.:rotfl:

But much of what all of you have said, about the stimming, echolalia, and superb memory, yep...we go through that too. Ryan likes to rub his cheeks on soft things (carpet or a blanket) and eventually his little cheeks look red and raw - like a sunburn. Thankfully he doesn't do this very often.

BeckyScott
03-06-2007, 11:09 AM
Hi, I'm new here, and looks like I found the right spot!

We're planning our first WDW trip summer of '08 and I'm starting to scout out info.

Anyway, DS6 is newly obsessed with the dictionary! It's a kid's dictionary, with photos, but definately higher than a 1st grade reading level. His most favorite thing to do is to go camp out on the toilet, with the dictionary. He'd probably stay in there all afternoon if we let him, but we only have one bathroom, dude, you gotta get out!

He was already obsessed with how things were spelled-- always asking me how to spell something-- so the dictionary seems a natural next step. And the upside is, he has yet to miss a single spelling word at school. I think this has great potential, the child is going to need to get a job some day, you know?

The funniest thing he's done lately... my DH takes the boys to school in the mornings and has marked on the calendar which kid gets the "good seat" that day. Sibling thing, fighting over the "good seat". Last week, they were getting ready to head out, and DH said "Let me look at the calendar and see what day it is. Is it Thursday?" And DS said "Yeah, it's Thursday, you need to take out the trash, a******." :p Whoops! Don't know where he heard that before! And you know, Thursday is indeed trash day, so the kid was right. But I was about to bust and had to leave the room so he didn't see me.

disneymom3
03-07-2007, 04:04 PM
I love all of these stories and hearing the joy so many of you have in your kids. I worked with kids with Autism/PDD while in colllege. That was the only diagnoses at that time. That was such an awesome experience adn someday I would really like to get back into the field.

I had one little boy I worked with one on one for 18 months, a group class I co-taught and hten just other kids I knew from being there so long. One of my very favorite memories of my little "Frank" was an argument we had of sorts. We used a picture card system to communicate and when we transitioned from one room to another I would show him the card of the place we were to go next. Now, he loooooovvvvvveeeed the computer room. Well, one day we were leaving the gym and I showed him the card for our classroom. He took the key ring with the cards on it as he usually did and would carry it to the next stop. This day though, he changed the card to the computer room, tapped it and started to head that way. I stopped him, said, "No." turned the card back and said "room 2" and tapped that picture. We did this three or four times and it was such a breakthrough. He had never expressed his own desires before other than to have a tantrum. I finally took him to the computer room to show him it was closed. He stomped his foot, turned the card back to Room 2 and off we went.

Another little guy we worked with used to hold a Tracey Chapman cassette tape up to his ear and then mumble what we thought to begin with was jibberish. One day, another therapist caught a word that she recognized and got the idea to tape him. After she did that, she listened to the tape on a slow speed and sure enough he was singing the Tracey Chapman songs. In the order they were on the tape!

MN Dis Fans
03-07-2007, 11:04 PM
I haven't posted a story about DS 11 in a while but do have one to share. My son's inability to relate to other people's feelings came in handy recently.

From 1st thru 4th grade, DS had the same teacher in the autism resource center. This teacher helped the boys in this group achieve so much. When DS reached Middle School age he no longer had contact with this special teacher, but we saw her from time to time in our community.

Recently, this teacher's husband lost his long struggle with cancer. The funeral was held on Valentine's Day. DS goes to Catholic school and weekday funerals at the church enlist our students for altar servers. I suggested to DS that he might be able to serve at this funeral, something his former teacher might appreciate. He nonchalantly volunteered and did a great job. This was a huge funeral with lots of tears. He was a well liked man and I'm sure it would have been very difficult for me to maintain during that funeral service. DS on the other was not affected by the crying mourners , simply did his job - one he loves to do. I would have been crying.
His teacher sent a card saying how touched she was that he could be there. I am so glad that he could perform such a service for someone who has shown so much love and kindness to him. I truly believe that her care and teaching helped him reach a place where he could repay that.

Christine43
03-09-2007, 03:39 PM
If echolalia were a class, Perry (HFA, 10) could teach it. Actually, it's been a bit of a problem lately as he really does it too much. One funny story though was something that happened in school. Apparently, the teacher said something he didn't like and he said (from Shrek) "Donkey, two words, shut up." I was horrified at the time and we discussed rudeness when the teacher told me but I did think it was pretty funny because I didn't like her either.
His twin (AS) loves Harry Potter to the extreme and struts around in his Gryffindor costume a lot. He got obsessed with the movie The Little Vampire prior to this when he was three and insisted on dressing like a vampire with a cape and fake teeth and hissed at a woman in the supermarket once. He's been very creative and for book character day (the first time he hasn't dressed like Harry Potter in years) he went as Sir Tristan, a knight of the Round Table and got very descriptive about his undying love for Isolde. Christine

mtnprotracy
03-09-2007, 09:03 PM
I've really enjoyed reading the posts. It's so helpful to share stories. Since we live in a rural area, there aren't many people I can swap stories with. Thanks for creating this thread.

Our son, Zeke, is almost 8--former 29 weeker. He is mostly non-verbal...has about 15-20 words most people can understand and about 100 his close family understands.

Zeke's thing is humming. He knows 100s of songs (kiddie songs, Christmas songs, Top 40 songs, and DOZENS of 80s songs:cool2:) If he hears it once; he knows it and sings it in perfect pitch and tempo so that anyone could understand it. You'd need to hear AC/DC's "You Shook me all Night Long" to fully appreciate his talents:laughing:

Anyway, when President Ford passed away we were all watching Headline News when a segment came on from his memorial service. Zeke watched for about 30 seconds and belts out, "Swing Low, Sweet Chariot":rotfl2:

We all know he has terrific receptive language, but this was great evidence!

We're heading to WDW in April and he's all excited. DH and I are taking just Zeke. My mom and dad are taking our older two boys on vacation. We're so excited that we can focus the entire trip on Zeke. We've had great experiences with the parks the last two times we've gone.

We're staying at Carribean Beach...any tips? We've not stayed there before.

Anyway, sorry I've rambled so much...just good to have converations with those who understand!

Tracy in NC

mtnprotracy
03-09-2007, 09:11 PM
Zeke also loves Ariel. It's one of the words he says that EVERYONE understands. We take him to all the shows at WDW that have Ariel. Now anytime we're in an auditorum setting and the lights dim, he starts jumping and squealing in his REALLY high-pitched voice, "Ariel!!!Ariel!!!"

Starr W.
03-09-2007, 09:21 PM
My 10 yr old son is an Aspie. Right now his favorite obsession are the Sonic video games. He researches Sonic on Google and Wikepedia(we pointed him to those sites so he could look up "things" without driving DH & I crazy). Then he loves the Guiness & Ripley records book.

He is doing well in his "exposure therapy" to get over his obsessive compulsive behavior(this involves a few things, but he had a big problem with people touching his shoes).

Dis1978
03-10-2007, 09:12 AM
Anyone know about ABA therapy?

DisneyDreams4P&B
03-10-2007, 10:48 AM
Anyone know about ABA therapy?


ABA stands for Applied Behavior Analysis.
The most common and distinguishing type of intervention based on applied behavior analysis is discrete trial teaching (http://www.polyxo.com/discretetrial/). It is what people most often think of when you say "ABA" or "Lovaas method." This is partly because there are so many hundreds of hours of DT teaching, and partly because it looks so odd. But it is what it is because that's what works--every aspect has been refined (and is still being refined) to result in maximum learning efficiency.
(Briefly: the student is given a stimulus--a question, a set of blocks and a pattern, a request to go ask Mom for a glass of water--along with the correct response, or a strong 'hint' at what the response should be. He is rewarded (an M&M, a piggy-back ride, a happy "good job!") for repeating the right answer; anything else is ignored or corrected very neutrally. As his response becomes more reliable, the 'clues' are withdrawn until he can respond independently. This is usually done one-on-one at a table (thus the term table-top work), with detailed planning of the requests, timing, wording, and the therapist's reaction to the student's responses.)


There are many types of learning styles for children with ASD. With our son, we used the Floortime method with great success but there are parents who have found the same success with ABA or other methods. I am a firm believer that you need to pick the style that you think best suits your child and you as you will be the main practitioners of it.

Here are some sites that may help:

http://www.tacanow.com/startaba.htm

http://www.autismspeaks.org/whattodo/ask_a_therapist.php

www.floortime.org (http://www.floortime.org)

Christine43
03-12-2007, 08:15 AM
My son, Perry, learned how to talk via this particular type of ABA although the rewards were a little different. We were very successful with it. I'm currently fighting with the school system to get a therapist to come to our house to do this or a similar type of ABA for behavioral approaches to some self stimming he's doing. I'm getting an advocate for the first time because I think this fight amongst others is going to get very ugly this year. Both twins are being reeval'd at a great hospital for children w/autism this April and I KNOW the recs are not going to be something the school system wants to hear. I may even have to get an atty. This is why I literally go broke going to Disney World when we can. We truly need it, we leave it all behind there.

leanan
03-12-2007, 10:36 AM
Nyssa is obsessed with Sonic The Hedgehog and has been since the day my mom died and we found out while she was playing Sonic. That was over 2 years ago and she is almost as obsessed today as she was back then. It got so bad at one point though that her teacher actually encouraged me to ban Sonic out of the house. She also adores and obsesses about Egyptology and anything to do with Dragons. She read Eragon faster than my SO read it. He is still reading Eragon and she is half way through Eldest already.

She is also into World of Warcraft and will talk to you about her characters in the game. She stole all but one of my sims games for the gameboy. I gave her Sims 2 Pets after my dogs ate my gameboy.

She got mad one day at school because she sat in the middle of the play area on the playground at school reading. The other kids were teasing her. She may not want to play on the playground but she wanted to be near them while they did so.

Christine43
03-13-2007, 07:05 AM
Funny, one of my sons has gotten a thing for King Tut recently so I'm getting the twins Egyptology for Easter. Your daughter must have Dragonology, Tristan has that and loves it. He loves dragons too and it all ties in with the fantasy stuff he's into.
My oldest is obsessed with World of Warcraft.
The teacher story with Sonic sparked some memories because Perry's anal retentive teacher told me to "stow away" our tv set once which set off gales of laughter from the family in general. I'm totally for kids not watching too much tv but her suggestion was ridiculous.

leanan
03-13-2007, 07:26 AM
My daughter has most of the ology books. I think she still needs piratology and fairieology. She adores the Egyptology book. She collects Horus figurines. She had a plastic one from a pyrmid playset that she slept with for months. Discovery Kids has a show called Tutenstien that she loves. I suspect your little one is gaga for it too.

We attend Dragon Con each year. This is a science fiction convention that now bills itself as a multimedia convention. She would squeel with delight everytime somebody walked by in a guild tabard or other WOW gear. She is normally very shy but this one lady was dressed as a blood elf. She walked right up to her and started chatting away. The same child who cant go to Ohanas for breakfast because she is too shy to meet stitch. She has never had a good photo taken with santa because he scares her.

Christine43
03-13-2007, 05:33 PM
Wow. Even though she and Tristan aren't into exactly the same things, I think they'd certainly understand each other. He is uber obsessed with Harry Potter to the point of looking like him, I swear. He has the real HP glasses etc..I've never heard of a kid so happy to learn he needed glasses. We're also very Narnia, Lord of the Rings and King Arthur oriented here. I admit, to some extent, they get it from me and I actually like the fact he's the way he is. I'll take Gandalf and Dumbledore over SpongeBob any day, I can relate to them. He'd so talk dragons to your daughter. Take care, Christine

leanan
03-13-2007, 08:39 PM
Nyssa loves Harry Potter but she does not obsess about it. Her father is quite the HP look alike without any extras. She thinks it is boring that everyone stares at Daddy cause he looks like Harry. She does not watch it when I have her with me because she does not want to think about her Dad. I find this greatly amusing. She is also fond of Narnia and Lemony Snicket. She enjoys LOTR but has not reached the obsessed point YET!

KathyRN137
03-29-2007, 10:05 PM
My autistic son, Billy, loves my hair. He will sniff and stroke it whenever he gets the chance! He gets upset when I wear it up or in a ponytail because it looks different.

Tonight I came home from getting a haircut and, of course, not only does it look a bit different, the smell is also different because they use a different shampoo at the salon.

"Mommy, take a shower!" he commanded.

I washed my hair so that it smelled "normal". He rubbed his face in my hair and then said, "I love you, Mommy."

He is almost nine and I think that he has only spontaneously said "I love you" to me perhaps two or three times in his entire life. :lovestruc

Kathy

leanan
03-30-2007, 12:16 AM
I have similar related issues with my daughter. She likes her own hair long for the same reason that your son plays with your hair. She just hates for it to be brushed. You would think I was beating her or something the way she reacts. Thank goodness some clever soul created a snag free hairbrush. I think whoever created it should get some kind of award. :yay:

disneymom3
04-02-2007, 02:39 PM
My autistic son, Billy, loves my hair. He will sniff and stroke it whenever he gets the chance! He gets upset when I wear it up or in a ponytail because it looks different.

Tonight I came home from getting a haircut and, of course, not only does it look a bit different, the smell is also different because they use a different shampoo at the salon.

"Mommy, take a shower!" he commanded.

I washed my hair so that it smelled "normal". He rubbed his face in my hair and then said, "I love you, Mommy."

He is almost nine and I think that he has only spontaneously said "I love you" to me perhaps two or three times in his entire life. :lovestruc

Kathy

Oh that is such an awesome story!! :hug:

rentingspace
04-13-2007, 04:16 PM
I was just emailed this web site www.whatkindofworlddoyouwant.com it has beautiful videos and songs of wishes and thoughts. You'll get it when you see. Click on the word video in the top bar.

isyne4u
04-14-2007, 11:52 AM
DS6 is HFA and while walking around the Inner Harbor in Baltimore one day this week he decied that his shirt needed to be tucked in. So what's a guy to do...stop in the middle of the road, unzip his pants, tuck his shirt in, then rezip the pants. :lmao: He was totally oblivious!!!

He definately keeps life interesting!!

daughtersrus
04-16-2007, 09:17 AM
I hope that you don't mind me posting. I do not have an autistic child but have one in my home daycare. (I do have a daughter that has a VERY rare genetic disease ~~she's one of about 200 diagnosed cases in the WORLD). He is 4 1/2 yo and a very adorable little boy. It can be frustrating for me because his parents are still not acknowledging/accepting that he has some issues that he needs help with. I know that we all grieve at our own pace.

He came to me when he was two. His obsession is shapes. As long as I've known him, he could point out a trapezoid, octagon, pentagon, hexagon, diamond, heart, oval, rectangle, as well as the standard square, circle, triangle...

He doesn't respond to questions or hold a conversation but at lunch he will scream, "Eat your sandwich" at the top his lungs. He is on a GFCF diet and I don't think that he likes the bread. Apparently, at home his dad has to remind him to eat.

If you say, "what does a dog say?" He will say "woof-woof". "what does a cat say?" He will say "Meow-meow" and so on for just about evey animal. If you say, "what does Mommy say?" He will say "No! No!".

:laughing:

He has been on a supplement regimen (candicyn, cell-max, biotic silver, flora guard, pro dphilus) for about 2 years and has recently started HBOT but yet the parents are not willing to admit that he is autistic.

I'd love to hear any suggestion of ways that I could help this little guy.

rentingspace
04-16-2007, 10:32 AM
I'm not sure what you could say or do for the parents. Just help the child when he is in your care. We're not doctors so therefore, you really can't say if he is autistic. I'm not trying to be too strong just be careful. Obviously you care for children. Let the parents deal with this very difficult time. I know if someone asked anyone of my kids, autistic or not, what does momma say. WOW who knows what would come out of their prescious mouths. If you want to help start a pex system for him.

daughtersrus
04-16-2007, 11:36 AM
I'm not sure what you could say or do for the parents. Just help the child when he is in your care. We're not doctors so therefore, you really can't say if he is autistic. I'm not trying to be too strong just be careful. Obviously you care for children. Let the parents deal with this very difficult time. I know if someone asked anyone of my kids, autistic or not, what does momma say. WOW who knows what would come out of their prescious mouths. If you want to help start a pex system for him.

I'm not sure that my post came across as I intended. I do care for this little guy just as much, if not more than the other kids in my home. I posted the "what does ....say" to show that I thought was a *typical* response. This is something that his mom showed me. I can only imagine what would come out of the mouths of my own children if asked the same question at his age. ;)

I'm just looking for ways that I may be able to help this little guy. His parents do have in EC at our local school but when I ask, they haven't offered me any suggestions or guidance on what I could be doing to help him while he's in my care.

I do use some sign language but I haven't tried PECS. I will look into it since I do have a lot of the Boardmaker symbols printed out that we've used with my daughter. Is there a good website that may be helpful?