View Full Version : Diabetics & GAC ??
extreme8
01-19-2006, 08:16 PM
Friends went to Disney last year for a Children with Diabetes conference, and on the day they were scheduled to visit MK, the conference coordinators told everyone attending they should stop and get a GAC. I knew about GAC but never considered diabetes one of the ailments that should be covered.
They couldn't wait to get home and tell me how they got to get in the FP line for every ride, never a real wait even on the 4th of July weekend. I know that's not how GAC is supposed to work, but it did for them.
I was disappointed in his behavior. Sure a family with a newly diagnosed 5 year old diabetic daughter can use some breaks, but it seemed to me that they were really abusing the system.
Before everyone gets on me about how I have no idea what she's going through I have to say that I've been diabetic since I was 14 (over 28 years now).
Heat really plays havoc with my blood sugars but other than that I've been fortunate to avoid all of the complications usually related to this condition (disease?).
That said; yup, diabetes a pain in the rump and inconvenient as all get-out. Sure, being able to stay out of the heat while waiting for a ride or show would certainly help me keep my sugar under control, but I can't see how that fact alone should give me any sort of preferential treatment.
Ok, enough about my views.
I know how judgemental this sounds, and I'm usually a live and let live kinda guy but for some reason this is bugging me.
Basically I think I'm wondering if I'm being unreasonable by wanting to grab this guy by the lapels and shouting "That's not what the GAC was intended for"
Do other diabetics use the GAC?
Discuss. :)
JenJen
01-19-2006, 10:53 PM
I know for a fact at Disneyland in california you can not get that sort of GAC for diabetes unless there is other problems that require you to not be in the que. They are getting or have just gotten the shade stamp but that does not get you to the front of the line at all it just provides you with a place to wai the line out of the sun.
SueM in MN
01-19-2006, 11:00 PM
Do other diabetics use the GAC?
Discuss. :)
This subject came up about a year ago (maybe longer) and the consensus was that most diabetics didn't see a need to get a GAC for themselves/their child. Most of those who did, used it sort of like insurance - there when needed, but not used for every attraction.
Some diabetics may need to use a GAC, others might not at all. Just like every other diagnosis, not all people with that diagnosis have the same needs. So, it's not the diagnosis that should get the GAC, it's the need for accomidation.
When we got our DD's first GAC, we were given some instructions to go with it. The CM told us to use it like insurance, to get Fastpasses if we were able to and to use the standby line if the wait was 15 minutes or less. He explained that it was not meant to shorten or eliminate the wait in lines, but to provide accomidations that we needed to enjoy the attractions.
Now, in case anyone thinks maybe we don't really need one if we are using it that way, I'll tell you a little about my DD.
She has cerebral palsy and can't walk or stand without support. Because she has a lot of spasticity, she can't transfer herself. So, if she needs to be transferred into ride cars, it means we have to do it. That gets really tiring after a few times (plus, each time she needs the bathroom, that means another transfer in and out of her wheelchair). She is quite sensitive to heat and sun (she sort of totally wilts; all the tight places get tighter and the loose parts get like a rag doll). She also has Attention Deficit Disorder, Seizures (usually has 1-2 during our WDW trip because of the changes in temperature and routine), is non-verbal (so she has a hard time telling us if something is wrong) and has obsessive compulsive tendencies (certain things totally get her started on an obscessive path). Because she can't communicate with people easily, she sometimes hits people (she has hit strangers in line when they got too close to her wheelchair in line). And, because I have to get her ready in the morning, we can't get an early start to go to the parks when they are less busy.
Even with all that, we usually are able to get thru a day only using the GAC a few times a day (during Spring break, when it's busy).
Some days we use it a lot, some days not at all. There are attractions where we always use it (Test Track is one - there is no way she could be in the regular queue for very long in that noise and by the time we get to the park, the Fast Passes for the day are usually gone or so long into the evening that we are pretty sure we won't be there by the time the Fastpass "matures".) How much we use it depends on how her day is going and how busy the park is.
michelle9343
01-20-2006, 07:01 AM
I also use a GAC for my DD like Sue only when nesseccary.My DD has major issues ,is non-verbel ,not toilet trained , has a problem with touching people around her,has seizures , the inability to sweat ,uses a WC (but can walk for short distances). Waiting is a huge issue for her and she can really get "UGLY" if she waits to long. We live close by and go often , so I really try and avoid times when the rides are really busy. Also sometimes when we go, days off and school breaks, We enjoy just watching shows and parades and getting ice cream. That being said I would never judge others but unfortunetly abuse of the GAC is out of control. Many people who would have no problem waiting if the GAC didn't exsit, find out about it and feel they have "the right" to use on. I am really afraid that sooner or later the GAC will be gone.For many it is the only way to be able to do the parks. That will be a really sad day :sad: I had a long conversation with a CM at guest services last year. He said on average each CM at guest service at MK gives out 50+daily. He told me it is extremely frustrating to them because they knowning have to give out the pass to many that do not need it. Cm are instructed to not give more then asked for.For years I had know idea that there is a stamp for waiting in a shaded area. I found out total by accident one day. Many times in years past we have by passed shows because we knew that our DD could not wait the 30+ min in the sun. Although most CM really have no clue how to accomated the "shade" stamp it has really helped in the summer.
kaytieeldr
01-20-2006, 12:46 PM
Now, in case anyone thinks maybe we don't really need one if we are using it that way, I'll tell you a little about my DD.
Sue, just my opinion, but... I don't think you need to explain yourself to anyone, but especially not anyone who's spent more than a couple of days reading this board. And for that matter, you don't need to explain your situation to anyone who doesn't "know" you, either.
Same goes for Michelle :) or anybody in situations similar to yours.
Selket
01-20-2006, 01:06 PM
I think first of all it might be a good idea to discuss this with your friend. He can give you a person-to-person perspective of what it is like to be a parent of a pre-school child who has type 1.
Bless you for getting to this age and being healthy and not in need of assistance. I suspect by the time my son is 14 (the age you were diagnosed) or 42 he would not need a GAC even as "insurance" for bad days.
I can't really even begin to tell you what it is like to be the parent of a young child with type 1 - it is a much different scenario than what you experienced. You were older at diagnosis and not a parent. William was diagnosed when he was 26 months old and I literally got to the point that I was afraid to go out of the house with him. He routinely dropped from the 400's to 80 and below in 30 minutes. He was too young for glucose tabs or candy (choking issues) and wouldn't always drink juice, etc. I had to have him in front of his lunch in minutes. Some of this was the issue with the type of insulin he was on and some of it was honeymooning. He is almost 2 years older now (he just turned 4 today actually - today is his birthday!). He is also on an insulin pump - one of the youngest ever in his HMO to go on a pump - he started pumping when he was still 2 yrs old.
So I'm not completely new to diabetes and I"m not unsophisticated when it comes to treatments. We went to WDW twice last summer - once just to go and once for the same conference your friend attended with his daughter. We got a GAC both times and used it the same as others have mentioned - when we needed it. I know during the conference in July (was the weekend after the 4th of July weekend actually - as Hurricane Dennis blew off the coast) - we went to the parks on Sat and Sun. On Sat William ran low all day - I couldn't hardly keep him above 90 (his target is 100-250). We often had to stop what we were doing and get him to eat, take him to a cooler place (was the heat making him go low, the exercise, the excitement? I don't know), etc. He cannot recognize his lows - he has been in the 20's and playing normally. He has never once alerted us in any way that he was low. He has an older brother who also ended up with a lot of down time too because of William (although sometimes we split up). William isn't a baby though - he wanted to ride stuff as much as the next kid.
The next day he ran high all day - 300's +. Again we stopped often, got water, tested, gave insulin, tried to hang out where it was cool, etc. Going high makes him feel sick. It was another tough day. He was excited and wanted to be in the park - had looked forward to it for a long time like any kid. It is heartbreaking to see your 3 year old struggling like that believe me. :(
I agree with Sue in that we used the GAC when we needed it and tried our best to avoid crowds and so forth (the whole reason for our May trip really was to take William in cooler weather with fewer crowds). I don't think the CWD conference folks overly encourage anyone to get a GAC. They do note that WDW reps are at the conference to give them to those who feel they need them. ANY accomodation given to those with disabilities can be abused - I think you can read enough about that on this board and the parking threads. I think the same medical condition is not experienced the same way by everyone who has it. Or handled as well and so forth. I'm sure there are parents of preschoolers who would say they don't need a GAC at all. And there are parents who don't test their children but 3x a day and still use regular insulin, never test for ketones when their kids are high for days and do all kinds of things I can't personally imagine doing with my son. Goodness knows we aren't all made the same! Even you have problems with the heat. Imagine trying to guess what is going on with your child.
I won't apologize for your friend's use of the GAC. Perhaps he didn't know how Fastpasses even work (most people I talk to about going to WDW don't seem to even know what a FP is) - maybe he hasn't been to WDW much and doesn't know how to tour the park most effectively. I've been going to WDW for a long time and I'm used to the strategies to minimize my wait times - even before I had kids. Maybe the folks handing out the GAC didn't explain to try to use it when necessary and etc (all the stuff Sue said). I know when I got the GAC for William in May I wasn't told all that stuff my the CM - I wasn't told anything!
I'm just hoping for a cure and I would more than happy to have my brain wiped of any knowledge of a GAC. All of us here, no matter the condition, hope that for our children I'm sure.
SueM in MN
01-20-2006, 04:00 PM
Maybe the folks handing out the GAC didn't explain to try to use it when necessary and etc (all the stuff Sue said). I know when I got the GAC for William in May I wasn't told all that stuff my the CM - I wasn't told anything!
I think that is the norm - just hand the card to the Guest or the Guest's parent.
When we got our first GAC, they had just recently changed them. So, I think they were being pretty vigilant about telling people how to use them. We also got the "total of 6 people" and the "on some attractions you may be limited to one - two people accompanying the person with a disability because of space constraints" part of the instructions.
I wish they did the same thing now.
SueM in MN
01-20-2006, 04:03 PM
Sue, just my opinion, but... I don't think you need to explain yourself to anyone, but especially not anyone who's spent more than a couple of days reading this board. And for that matter, you don't need to explain your situation to anyone who doesn't "know" you, either.
Same goes for Michelle :) or anybody in situations similar to yours.
Thank you.
You are probably right. I was a little sensitive when I wrote it because on another board (not the DIS Boards), after I posted about the difficulties of getting on several rides, I got a "snarky" response. So, maybe I was a bit more defensive than usual when I posted here.
JenJen
01-20-2006, 06:54 PM
I have a question ? I have not been to Disney world in about 3 or 4 years but at Disneyland they would never just hand out a pass to people when they say they have fibromylagia, diabetes, MS or any other DX's for that matter. They ask you what type of assistance do you need. Sometimes they even ask what will happen if you are in a line. It seems like at WDW they tend to just pass them out more freely. TO me it seems a lot harder to get them at Disneyland then at WDW. I have heard several people say they walk in and say that there child is autistic and they just had it to you no questions asked. THAT NEVER happens at disneyland. They are very very strict and ask a lot of questions.
I hope no one took offense to my post about not being able to get a pass at disneyland for diabetes. Because if you do go up to them and say you are a diabetic you would have to explain why you need the pass and why you can not be in a Que. There would have to be other underlying problems or issues with the diabetes that require you to be away from people. That is just the way it works there.
(((((((((((((((((((((((hugs))))))))))))))))))))))) ))
Jen
dck12ga
01-20-2006, 08:22 PM
Selket...I was kind of mad when I first read Diabetics and GAC.. I became a diabetic when I was 10 years old (now I am 43 yrs old). And for the longest time I did not want anyone to think I had any disability! I wanted to be "normal"! When we were small, the only way to check on how you were doing was to test your urine, that was it... I am glad you don't have to play that game! and insulin, there were only a handful of different types to choose from! It was a far fetching dream to have an insulin pump!!!!! you can only dream!!! I just want you to realize it was no picnic for us either when we were small, remember puberty(hormones are not our friends!) is a few years off for you, so our parents had to do some fancy dancing back then with no technology to help them!! so please, even though we were 10 and 14 years old, we had far less technology and puberty to go thru!! I wish you luck with your little one, he is lucky to have such a great mom!!! That reminds me... I need to call my mom and dad and thank them for everything they did for me when I was a kid!!! :flower: :flower:
Please do not get me wrong!! I am not trying to flame anyone! just my story... :sunny:
bumpysheep
01-22-2006, 10:58 PM
I am type 1 diabetic and use a GAC when I need to. I had very serious complications that led to autonomic and peripheral neuropathy after a ketoacidoic coma when I was 17. I also have EDSIII & mild autism. Between all of that I need it. I am extremely sunlight sensitive because of my EDS and medications. I also use a scooter and wheelchair at home and have a service dog. I don't mind waiting my turn, but if there is a real pending issue we use the GAC. I would not be able to have a even slightly enjoyable visit without one.
Chloesmom
01-30-2006, 11:29 PM
My daughter (6) was just diagnosed with type 1 diabetes last year when we went to Disney. I would have loved a GAC hen but did not think I could get one. I did not think it would be an issue but more than once we had to leave a long line because her sugar plummeted and she needed to be tested and fed and retested. In short it took us 6 days to see what we used to see in 2 or 3 days because we spent so much time managing her sugar. I would not say that she was in less need of a GAC then any other ill child but in need for different reasons. Any child should be allowed to go and enjoy their vacation without the constant stress and worry of an illness.
goofyrn13
02-11-2006, 09:06 PM
This may seem like a dumb question,but my DD Allie was just dx'd with type 1 3 months ago.We are going to the world in June and not sure how you go about getting the GAC.Her sugars will drop so fast some times it is scary.She can be 190 and 30 minutes later 50.She is still honeymooning,so she can't get the pump for awhile.So I am concerned with her having to wait in the heat etc..This is our 8th trip so we have our favorites and know the heat issues,but this dx throws a big twist in there.So if we feel we need the GAC,how and where do we go at the parks?And do I need any documents from her Dr?Thanks
DonnettaR
02-11-2006, 09:47 PM
I know for a fact at Disneyland in california you can not get that sort of GAC for diabetes unless there is other problems that require you to not be in the que. They are getting or have just gotten the shade stamp but that does not get you to the front of the line at all it just provides you with a place to wai the line out of the sun.
What is a shade stamp?
SueM in MN
02-11-2006, 11:32 PM
This may seem like a dumb question,but my DD Allie was just dx'd with type 1 3 months ago.We are going to the world in June and not sure how you go about getting the GAC.Her sugars will drop so fast some times it is scary.She can be 190 and 30 minutes later 50.She is still honeymooning,so she can't get the pump for awhile.So I am concerned with her having to wait in the heat etc..This is our 8th trip so we have our favorites and know the heat issues,but this dx throws a big twist in there.So if we feel we need the GAC,how and where do we go at the parks?And do I need any documents from her Dr?Thanks
If you check out the disABILITIES FAQs near the top of this forum, it explains the GAC (I think it's post 5 of 6 on that thread).
You don't need a doctor's note; just be able to explain the issues like you did here.
Take your DD with you to Guest Services in any of the parks to request a GAC.
What is a shade stamp?
The GAC (Guest Assistance Card) is printed with some standard information and then there is a space for more specific information that tells what sort of assistance is needed. One of the stamps has a message to allow the person with the GAC to wait out of the sun if the queue is in the sun for a "significant amount of time."
DonnettaR
02-12-2006, 07:33 PM
Thanks
ilovemickeymost
04-26-2006, 12:57 AM
I understand why your are annoyed, he is teaching his DD to use diabetes to get special treatment. I have the same problem w/ family members & my DD. When she is acting like a 12yo acts & she gets punished, I hear, but she's dealing w/ so much (her diabetes). Or when I mention that she didn't do her chores, they act like she should be excempt b/c of her diabetes. What a bunch of crap. She needs to learn that she is just like everyone else. She just has something to deal w/ that her friends don't. But as I tell her, they have things to deal w/ that she doesn't (like divorce & alcoholic parents). I will admit that I let her have more sweets than before she was diagnosed b/c I figure she's got to be careful counting everything she eats, then if she's gonna count for it, then go ahead and enjoy. It has cut back on the sneaking food. Being that you are experienced w/ being diabetic for a while maybe you can give him some insight into what your parents did that helped or hurt you dealing w/ your diabetes. Then he won't feel attacted. Might be that he was trying to show her that there was a positive to having diabetes. He might not know what the true purpose of the GAC is.
CF'er
04-26-2006, 08:01 AM
people in wheelchairs w/ very visible issues (CP, MD and the others), children with sensory disorders etc get GAC that allow them to "wait" out of the sun, in a quiet place etc. I understand that. It is needed.
A diabetic gets a front of the line pass to by-pass the lines.... HUH? What am I missing here?
Go ahead and start flaming now.... I am type 1 diabetic on the pump. I too have highs and lows. I always make sure to have my meter and a snack in my fanny pack with me in-line. If needing to get out of line were an issue I would. I don't see how a front of the line pass is warranted. I also have Cystic Fibrosis. Walking far distances in the heat and humidity is an issue for me as well. I got out of the hospital 2 days before leaving on vacation. I took IV antibiotics to Disney and did them there. Did I get a front of the line pass? No. Did I ask? No. I didn't even consider it. But that's me.
I did rent a scooter and got in the shade as needed etc. But a front of the line pass..... I'm not sure this warrants it.
Just my opinion. Maybe there are other "hidden" disabilities?
Kalen
Selket
04-26-2006, 09:07 AM
I think ilovemickeymost had good advice in another recent post that works well for those with many types of diabilities and chronic conditions - not just diabetes:
"everyone has advice, even if they don't know what the hell they are talking about (each diabetic is different & has different orders, medicine, and reactions)."
Every diabetic IS different - and the problem is trying to compare yourself to your child, or an adult to a 12 year old to a 3 year old, etc. I wonder if the recent posters even read the entire thread or just the original post :rolleyes:
susancl
12-03-2006, 07:55 PM
A newly diagnosed 5 year old has a nightmare schedule. Glucose test before a meal (finger prick and blood), eat, track carbs and inject the right amount of insulin, glucose test 2 hours after a meal and snack between meals. That's it if everything goes smoothly. If there are high glucose readings or low glucose readings, then there is another plan. Chances are there are going to be fluctuations due to the high amount of exercise. I'll bet it's really helpful to bypass a long line or two.
Ambassador
12-04-2006, 09:35 AM
An interesting debate among board members; one can imagine what the general public must think. We have not needed to request a GAC for members of our family.
I am reminded of a similar situation with requesting refrigerators for medical purposes ( at no additional charge). Not too long ago, one had to request a refrigerator from mousekeeping, for which normally there was a charge. It was feared that many might abuse the practice, jeopardizing the needs of others. Surprisingly, Disney began placing refrigerators in all rooms.
Of course, not everyone needs a GAC. For those that can plan on using it, FP is brilliant. For those that have a complex and changing daily schedule, like some diabetics, the GAC is a great solution.
This November, we noticed some groups guiding children with various needs through the Parks. Some had loading issues; most did not. Once loaded, all got to ride the attraction twice in a row without unloading. We saw the groups all over the Parks on several days. We did not see anyone in line who seemed to mind waiting for the next car.
Also, we saw several fortunate families that had won FP for all rides as part of the YOMD promotion. They were regarded with admiration and some envy, but no resentment.
Hannathy
12-04-2006, 10:07 AM
As a former diabetic educator (SAHM now) I do not see why diabetes by its self needs a GAC. Yes if there has been complications and they need a wheelchair (rare in children) etc, but not just for diabetes. We worked very hard to get these children accepted by the schools, sports and general public as normal children to be treated and offered all the perks of normal children, abusing the publics good will and Disney's with gacs isn't going to help. I don't think anyone wants to go back to the past when diabetic children were treated with kid gloves and not allowed to participate in things or looked at as odd or different by other kids but if we keep telling them and the public that they need special treatment isn't that what we are doing?
Lewisc
12-04-2006, 10:16 AM
I think what might be needed is the ability to skip the normal line at a restaurant and be seated at the time of the ADR. Guests might also need the ability to "cut the line" at a CS restaurant. Diabetics need to eat on schedule.
I don't see any reason why a diabetic needs the ability to cut lines in attractions. It would be different if the diabetic had mobility issues but it doesn't sound like that's the case.
It sounds like some people take advantage of Disney's GAC policy.
Selket
12-04-2006, 12:28 PM
I think ilovemickeymost had good advice in another recent post that works well for those with many types of diabilities and chronic conditions - not just diabetes:
"everyone has advice, even if they don't know what the hell they are talking about (each diabetic is different & has different orders, medicine, and reactions)."
Every diabetic IS different - and the problem is trying to compare yourself to your child, or an adult to a 12 year old to a 3 year old, etc. I wonder if the recent posters even read the entire thread or just the original post :rolleyes:
I think I'm just gonna quote myself quoting someone else with an important consideration in BOLD. If you have firsthand knowledge of what it is like to parent a newly dx'd diabetic 26 month old at WDW then come talk to me. And believe it or not, many type 1's do *not* have to eat on a schedule.
I would let the topic rest but there are some who feel the self-righteous need to decree that this disability or medical condition is not worthy of a GAC - indeed is an *abuse* of a GAC. As I have said in other posts, not everyone with the same medical issue has the same needs, issues, or requirements as another person with a similar medical issue. Not every type 1 child (or adult) by any means, needs a GAC. I do not see the point of some posts on this issue other than just to cause a problem. It is my understanding that this board is to offer advice and help rather than judgement on what qualifies one for GACs. Indeed the GAC is not for certain conditions and not others....it is for the PERSON with the condition who may have different needs than others with the same condition.
I will reference a previous discussion on this topic that also has relevant points to make: http://www.disboards.com/showthread.php?t=1256852
And Hannathy, as you are a former diabetic educator (CDE?) I am .... speechless..... on so many levels I can't begin to start.
Lewisc
12-04-2006, 12:56 PM
I don't think anyone was questioning the need for a GAC. People were questioning if diabetis alone is a reason to gain "back door access" via the FP entrance, without ever getting a FP. The OP knows the family that did this and knows the family was abusing the GAC. Telling guests, disabled or not, how to use FP is is good advice. Using a GAC to avoid lines and to avoid having to get a FP for a FP attraction is generally abusive. Nothing wrong with guests commenting about that practice, particularly a poster that personally knows the family using the GAC.
Although I'll agree not every diabetic has to eat on a set schedule many diabetics eat on schedule. A GAC that allows a guest to eat at the time of their ADR when other guests may have to wait 30 minutes is a valid use.
I think I'm just gonna quote myself quoting someone else with an important consideration in BOLD. If you have firsthand knowledge of what it is like to parent a newly dx'd diabetic 26 month old at WDW then come talk to me. And believe it or not, many type 1's do *not* have to eat on a schedule.
I would let the topic rest but there are some who feel the self-righteous need to decree that this disability or medical condition is not worthy of a GAC - indeed is an *abuse* of a GAC. As I have said in other posts, not everyone with the same medical issue has the same needs, issues, or requirements as another person with a similar medical issue. Not every type 1 child (or adult) by any means, needs a GAC. I do not see the point of some posts on this issue other than just to cause a problem. It is my understanding that this board is to offer advice and help rather than judgement on what qualifies one for GACs. Indeed the GAC is not for certain conditions and not others....it is for the PERSON with the condition who may have different needs than others with the same condition.
I will reference a previous discussion on this topic that also has relevant points to make: http://www.disboards.com/showthread.php?t=1256852
And Hannathy, as you are a former diabetic educator (CDE?) I am .... speechless..... on so many levels I can't begin to start.
Hannathy
12-04-2006, 01:19 PM
I have no idea why you are speechless. I am simply stating how it used to be. Diabetic children often would be denied gym or recess because schools were afraid of their condition. It took years to change this thinking and now some people are taking advantage of Disney to get special treatment and I think this is wrong. That is my opinion you are welcome to yours but most diabetics do not need to use a gac.
Cheshire Figment
12-04-2006, 04:14 PM
OK Folks
Time to calm this thread down a little. If you have an opinion, please voice it quietly. The fact there are so many quotes back and forth seem more to be arguing rather than just stating facts or opinions.
We don't want to have to lock the thread
Talking Hands
12-04-2006, 04:34 PM
I have no idea why you are speechless. I am simply stating how it used to be. Diabetic children often would be denied gym or recess because schools were afraid of their condition. It took years to change this thinking and now some people are taking advantage of Disney to get special treatment and I think this is wrong. That is my opinion you are welcome to yours but most diabetics do not need to use a gac.
This is so true and it wasn't that long ago either. Maybe 15 years ago, my daughter had a friend with type 1 diabetes in chorus with her. The entire music magnet were going to Busch Gardens on a field trip and the teachers were really uncomfortable with her going and were not going to take her. My daughter convinced me to go as a chaperone and told the teachers I was a type 1 as well. Finally the teachers allowed her to go as long as she was assigned to my group and I was responsible to make sure she tested, ate properly and took her insulin. Her Mom and I really had to advocate for her to be allowed on the field trip.
I also remember another freind of my daughter's with diabetes who went hypo in 4th grade. Teacher had no idea what was going on but my daughter did and told the teacher exactly what needed to be done (get him a coke) and that his parents should be called so they could monitor his sugar. He wasn't allowed to test at school. It wasn't until they were in high school that they allowed him to monitor at school and then only in the clinic under the supervison of the school nurse. Now I have students who carry their monitors with them and test as needed. And I have no problems of testing in the classroom if needed for them or myself.
Things have changed for the better when it comes to many medical issues in the school systems but it has come slowly. It has taken parents advocating for what is best for their child and not taking no for an answer. We really don't want to go back to the old ways.
Btw I have seen 8 yo children fully competent to test and do their own insulin with an adult supervising. Of course these are children where the only issue is diabetes. By 10 they were doing it all on their own with only occasional checks of their log books. By high school fully independent except when ill.
Selket
12-04-2006, 08:50 PM
I responded because two people questioned the need for ANY diabetic to get a GAC at all ("I do not see why diabetes by its self needs a GAC"). It seems they did not go back and read the original posts, or if they did, it was misunderstood. I think Sue said it best:
Some diabetics may need to use a GAC, others might not at all. Just like every other diagnosis, not all people with that diagnosis have the same needs. So, it's not the diagnosis that should get the GAC, it's the need for accomidation.
I find it extremely frustrating to find such negative and, frankly, hurtful comments on this board....as though those of us with type 1 kids are just abusing the system and teaching our kids to be whiners - or think of themselves as too fragile to do things other kids do. Or make others think they are too fragile. I live this 24 hours a day - 7 days a week.
I give up! You're right! In fact I was overjoyed when he was diagnosed at 26 months with type 1 just so I could skip a line or two at WDW! Yippee!!! Who cares if he had 6 shots a day or felt like crap - I got to get in faster on Buzz Lightyear! You caught me! I am indeed the most callous, self-serving low life on the planet who enjoys taking advantage of the system.
Talking Hands
12-04-2006, 09:47 PM
I find it extremely frustrating to find such negative and, frankly, hurtful comments on this board....as though those of us with type 1 kids are just abusing the system and teaching our kids to be whiners - or think of themselves as too fragile to do things other kids do. Or make others think they are too fragile. I live this 24 hours a day - 7 days a week.
I love this 24 hours a day - 7 days a week and have for almost 30 years. Yes, I have a GAC but it isn't for my diabetes but for other problems not even related to my diabetes. I always keep a meter and snacks with me. Not only does it effect me but also my family. It is no fun to have your barely 5yo call 911 because Mommy is sick. It is a PIA that my husband had to drive back home because somehow we forgot my cooler with lunch and snacks. No I don't even attempt to eat lunches the school provides although I will go to the culinary arts cafeteria as the chef there wife is a type 1 and he will fix my meal up special. You are a parent with a type 1 child, I am a person with type 1 diabetes and my views come from that.
My biggest problem is dining and ADRs because as an adult with type 1, they don't understand that eating reasonably close to when I should is important to my health. That if I take a snack because I am getting low means I can't eat a portion of the meal. That just because a dessert doesn't mean I can have it because it may be high in carbs. That an huge plate of fruit is ridiculous because I can only have a limited amount of the fruit. When I told the chef at Hoop Dee Doo that I could only have 6 large strawberries he was absolutely shocked. When I told them corn and peas are not vegetables for a person with diabetes it was news to them. And that cooked carrots are pretty much a no-no because of the high glycemic in index they had no clue. Now I just say I am allergic to it. Less problems. And added to everything I am severely allergic to aspartame, the most common sweetener for sugar free items so I can't even get a soda even though Coke does made a diet Coke with Splenda. They just don't have that in the fountain or in bottles.
While every child is different and I know your child has other issues, lines for the most part are not the issue for a person with diabetes with no other issues. Getting proper food is. Now that is a struggle.
SueM in MN
12-04-2006, 09:50 PM
I think this is a good point to close this thread.
One of the problems with the 'Related threads' that come up on the bottom of the page is that some of the threads that come up are recent ones and some are very old threads that have run their course.
This was one of the old ones.
The ADA does provide for accomidations to meet needs caused by a disability. The GAC (Guest Assistance Card) is an example of a means of accomidation that may be needed by some people and not others.
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